Montel Williams Goldenhar Syndrome guest Mandy Kemp

[mywindyhorse]

I have goldenhar but I am very lucky I have a small ear tag and missing a muscle to turn my eye but I don't have the facial deformities

[MVPIsHipHop]

I have Goldenhar too, but I am blessed beyond belief that I only have a malformed left ear. I have a YouTube channel and I make music, check it out!!

[ecosby100]

i know these crack heads that just had a baby and it looks like it has goldenhar but idk they say its something else

[Sebizzar]

Uh... what's with the audio? o_e

[aimee10904]

My daughter was born with this syndrome. She is now 7 weeks old. She has a deformed ear, coloboma of the eye, one eye is smaller and her pupil is keyhole shaped in that eye, her spine and jaw is misaligned, and her left naustral is almost closed. Everything that is wrong with her is on her left side of her face. She also had 2 holes in her heart when she was born, that are now closed. We are almost positive that she is deaf, and possibly blind. She has not undergone any surgeries yet.

[aimee10904]

My daughter was born with this syndrome. She is now 7 weeks old. She has a deformed ear, coloboma of the eye, one eye is smaller and her pupil is keyhole shaped in that eye, her spine and jaw is misaligned, and her left naustral is almost closed. Everything that is wrong with her is on her left side of her face. She also had 2 holes in her heart when she was born, that are now closed. We are almost positive that she is deaf, and possibly blind. She has not undergone any surgeries yet.

[lapetiteombre]

Mandy, you're gorgeous!

[amazingdany]

Nice surgery! That girl has at least somewhat of a decent face.

There are people with G syndrome here on YT that don't even have a face, and quite honestly, very difficult to look at.

[woodenspoonlover]

Thanks for this posting. my Daughter was born with Goldenhar, and it's great, as a parent to know that she's not alone in having this condition, and i'm not short of support xx All the best to all those with the condition. I truly know how frustrating all the hospital visits are x

[principesca01]

hola me llamo ANGELICA, soy de la Cd. de México, y mi bebe tiene 4 años se llama DIANA FERNANDA y tiene este sindrome, aquí en México no hemos conocido a nadie con este problema, me gustaría poder contactar a alguno de ustedes, para intercambiar comentarios, y mando bendiciones para las mamas especiales que tienen bebes especiales. Besos

[klogsdon02]

Hi, I just happened to find this video as I was doing more research on my daughter. She is 15 months old with Goldenhar. She has a small ear, cleft palate, spine and rib abnormalities and is missing some muscles and bones in her face and wrist, as well as is having poor weight gain. Thank you for sharing this video. I'd like to share it with her someday and my friends and family now to help them understand better. Blessings

[daniellos333]

she looks fine now, im happy for her =)

[lovehandles92]

Hi Im 16 years old and I suffer from this Syndrome. Im missing an ear, I have a misaligned jaw, and many parts of my body are missing, don't work right, or arent in the right place. I need surgery, but, I don't know where my family can go. Help and advice is appreciated

[MichaelSexiJackson]

oh i feel srry for u godbless u i hope ur disorder doesnt make u feel bad about urself i bet ur beautiful on the inside? :} hus and kisses (kaisha) i hope u get the treatment u need :}

[urbangems1]

Hi my son had this syndrome and he sadley died at 9 days old. I think you are very brave. Be srong and hang in there. God bless you.

[JaYnEsAyZ]

bless you Mandy- I hope many good things come your way : )

[flightchick1999]

Thanks for posting Mandy!! I pray you continue to do well!!

[JFlatley5001]

Having grown up Goldenhar was not cool at all. Doctor visits and more doctor visits. Surgeries were countless. I'm glad there are others out there that also know what its like. 24 year old in Virginia.

[pricanma0322]

Hi everyone, I'm a 23 year old mother. My daughter was born with Goldenhar syndrome and she is now 2 months old. She was missing one ear. I would like to hear what people went through and perspective on childhood and what you went through. I would love to gather information on this syndrome so I can help my daughter out. Thank you all for your time in listening to my story. Hope to hear from anybody soon.

[USMC0613]

well, total MILF

[katia123234]

what? Thats a slap in the face to every person who has had surgey to look normal not to look sexy...god we are not trying to look like Miley Cyrus...I am proud of 11 surgeys and no i do not look conformed.

[xxxjennyxxx1974]

oh shut up

[beverlypress]

Thank you for helping to make a difference!

[katia123234]

I have Goldenhar syndrome. I am 19 years old and I have been told I have a mild case. But its is very noticable. I am kinda upset with this movie, I hate how people focus on how we get teased and how that hurts us. I don't know about you but I rather have someone say hey your ugly and get it over with than hey it only matters whatin the inside...Thats the kicker there. I am insanely happy and I love my life to bits. Its not fair what happend to us, but we're beautiful and strong people. Thanks!

[fifimsp]

@katia123234 I think that it's great that your experience has been positive, but you shouldn't say that for this girl not to focus on it is bad. She may have had a different experience and that maybe it's not for us to say if it's good or bad but to understand.

[angelfire004]

I was born with golden ahr syndrome, and that's y i searched this on youtube.. i wanted to just re-search this.. but my case was mild, i still needed surgery for my eye and my ear... but my jaw is still weird..

[beverlypress]

Thank you for helping to make a difference!

[marcunator]

i born with it to, but im lucky i only mis one ear.. if u c this,, i realise how lucky i am...

[dalcon555]

i have the same scenario, i have goldenhar's and all i'm missing is my ear, it hastn' effected my life as much as alot of those with goldenhar's for that i am greatful

[lerislentia]

hi i born whit goldenhar too, let me tell you , you are amazing, so strong, i like to be your friend.

[SweetBabe07]

*Hello! *Cool Page! *Want to be my friend? *Want to subscribe to each other? *Subscribe please & i will subscribe back! *Are you agree?

[nuttynarny]

Hi im priyana from the uk and i have very mild goldenhar was just born with cleft lip on the left side of my lip - ive never met anyone with the same condition - you are an amazing person and this symdrome deserves more publicity.

[shibez]

your new jaw and hairdo make you look like maggie gyllenhaal

[SweetBabe07]

Hello I have Goldenhar's as im deaf as born but not as bad as this. God bless you.

You are a beauitful girl.

Loves Sweetbabe07

[snaiperskaia]

My daughter (2 ys) has Goldenhar syndrome.

I want to thank you for this video.

People like us needs first of all information and then visibility.

About Goldenhar and about others craniofacial malformations too.

I wish you all the best.

[fartybunny]

wow - i have a mild level of goldenhar syndrome, it was hard for me as a young child. I went through a a lot of surgery and I never got to know anyone else who had goldernhar. This MONTEL segment was really inspirational and touching..that young girl and her mother are so brave, and I know what they have been through.

[metsgrl45]

I would just like to say I have Goldenhar's but not as bad as this.

God bless you.

You are a beautiful girl.

Love Emily,

[abyss62678]

You are beautiful Mandy dont ever forget that. I am glad you have been able to have this surgery. But what I am happier about is that you didnt let how horrible people were toward you make you a bitter and hateful person. Because of that you have always been beautiful!