I have trisoy x witch means I have 3 x's and when my mom found out before I was born she could had termanided me but when she didn't that's when you know your parrents will love you forver!
I had a baby with trisomy 13 she lived almost 3 months. her name was kyara .. I miss her more and more everyday. she truly was a blessing. we had her home for the 3 months and it was very hard but now I see her as mommy's little angel.
@tillitblo82 Awe, she is "mommy's little angel". I'm so very happy to hear that you were able to spend 3 months with her. I know it was hard but you were truly blessed! Hugs!
Lori, Thank your again for this wonderful Trisomy Awareness Video up on the internet. The LWT13 site (2005-2010) has been Archived at trisomy13archive (dot) com The site CONTACT page points to current Trisomy Support.
My daughter was pregnant with a baby with trisomy 13. At 14 weeks, everything looked normal. Then 15 weeks 4 days, the ultrasound showed no brain and extra digits. My daughter made the hard decision to go ahead with induced labor at 19 weeks 5 days. The morning of the induction, an ultrasound showed that the baby had already died. We got to hold Aiden for a while before the funeral home came to pick him up. It was a very emotional time. He weighed 7.5 ounces and was 6.5 inches long.
Youe daughter is a precious angel, and I pray for you and your family. I can't say that i know what you feel because I dont know, but I do Know that Gods plan for baby Kia was fullfilled. the bible says that even a sparrow does not fall with out god knowing. arent you worth more than just a little bird!! It also says I have great plans for you. Plans to prosper you and not to harm you. Plans to bring joy to your life. GOD fullfilled that plan he had for Kia. I pray for your Family. Milynn
There is never an excuse to abort a child, no matter what medical problems the doctors say they will face. God alone should hold every life in the palm of his hand, and no one should rob an innocent unborn HUMAN BEING of a chance to live. This little angel is proof that miracles exist. She held onto life for 17 hours, which the doctors said wouldn't happen. It was by the grace of God I got to see her perfect face in this video. Rest peacefully in the arms of the angels Kia, you are loved!!!
Sorry am student,head of the syndrome and what to know more about it and come across this.Pls God gives and l hope he will give u the one that will stay with u.Sorry once again.
She looked so pretty. I don't know, i just think it. Your video about your baby is something beautiful, i think that it's a very beutiful thing, not just by the people that live this kind of situation, but also by the people who work at the hospitals (doctors, nurses, psychologists, etc) ... I hope that all your family will be perfect. (And sorry by my bad english, but it's not my native language)
i feel very guilty now as i and my girlfriend were told that the baby mightn't survive or would only live for 3 days so we made the hard decision and decided to terminate, i only wish i have the faith shown by these people and left it in gods hands
thank you for sharing you beautiful babies short life with us, my heart rejoices that you were strong enough to make the choice to do what god would have wanted you to do, and what was best, to know your darling Kia, to hold her, and love her, im sure she taught you so much in her 17 hours. i had a baby they told me would not survive due to kidney issues and said he had down syndrome although he was terminally ill he survived and is a normal 9 yo boy now thanks to God! God bless you & ur family
Thinking of you today Lori, the day before what would have been your daughter's 6th earthly birthday... It is her heavenly day tomorrow ~ May 6th.. Celebrating her Life! I remember meeting you prenatally, praying for you and KIa... How wonderful you could hold and love this precious child of yours. My heart goes out to you as you remember your sweet Kia.
I do respite care for a little angel who has Partial Trysomy 11. He is such a beautiful little boy and has a wonderful caring and supprtive family but we are in an area where there is very little knowledge of this disorder amoung medical staff and even less in the community. It is a lonely road for these parents who have no one who understands what they are going through. There is noone to connect with. Is there a support group or much awareness where you are?
I'm so sorry that you had such a short time with your gorgeous little girl...what a blessing God gave to you...to be Kia's Mommy forever...God's Blessings on you and your beautiful family always...
How DARE they tell you to terminate... She is your BEAUTIFUL baby girl. I thank you for this video, it must have taken alot of courage... Love and best wishes to you and your family. She is a beautiful angel xo
The Father of my children carried a recessive trisomy 13 gene, meaning he carried it but was not affected by it. I had to have invasive tests during my pregnancies but we were extremely lucky and none are affected or carry it recessively. I understand your stress and anguish when the doctors say its best to terminate or that if you procede there will be no life. I was also told it is incompatible with life and never knew there were actual survivours, living children.
what a blessing your video was to me! I appreciate the value you placed on your sweet baby's life. we live in a country that has no soul and no compassion for the unborn. God will (and already has) bless you and your family for your faithfulness. I'm sorry for your loss, and thankful for your message of hope and life.
I also had a Patau baby girl. She did not survive full term pregnancy and was born at 23 and a half weeks. I got to see and hold her. I miss our baby Hazel..... Thank you for the video. I just wish i had done one. Sorry for your loss XXXX
Thank you for posting this video- it helps to know that there are others who have gone through the same journey. I lost my precious little girl who is 6 days old on 15 May to what the doctors suspect is Trisomy 13 (tests results not out yet) as she showed the classic symptoms and Hydroplastic Left Heart Syndrome. For a small thing, she left a big gap in our hearts but we will always treasure the time we had with her.
Happy Birthday my little Butterfly Angel! Five years ago today I was waiting oh so patiently for you to come into this world so I could meet you and love you for all your life! Mommy misses you baby girl! xoxoxo
The doctors just told me today my baby boy has trisomy 13 and he will not live even if I wanted to continue the pregnancy. I had no idea there were survivors. Your video has touched me and gave me hope. The tears won't stop rolling down my cheeks.
On Aug. 31 2008 our son Andrew was born and lived 11 1/2 hours. He also had full T-13. We were told the same thing you were. Until we found a doctor that would work with us because we chose not to terminate either. It was the best decision we have ever made. The hardest but the best at the same time. Thank you for sharing your beautiful daughter with us. I just made a video of our Andrew and its nice to see others have too.
Your outlook on things is amazing and hopefully inspires others to follow your lead. I am truly sorry for your loss but congratulate for your time of happiness with your beautiful Kia. God Bless
My daughter Samantha was born with Trisomy 13 last Thursday Oct. 30. She passed away in our arms on Sunday Nov. 2. We are so glad we never new ahead of time. We were able to hold her, bathe her, dress her and change her diapers. Her big brother and sister were allowed to help and we were given a hospice room where we could all be with her. She had such a brief life but it was a great gift to us all. Thanks for your video. Now we feel we are not alone!
What an angel! :( I'm so sorry... I have to hold on to believing that God allows these things, although when the pain is so great it's HARD to understand why...
We had a baby in Aug 2003 with Trisomy 13-- he lived 40 hours and was a wonderful blessing. We just learned the baby I am expecting also has Trisomy 13-- and again we'll leave it in God's hands how long with get with this little one. We also have 4 healthy children under the age of 7, so going through this again will be hard on them. Thanks for sharing your video. What a wonderful tribute to Kia.
I'm so very sorry to hear of your loss! Obviously God has blessed you with another angel because he knows what a good Mommy you are! Thank you for telling me your story! I will keep you in my prayers!
I know how you and your family feels. I had a little cousin that passed away at 6 days old. she was the best. she had four other brothers and sisters. her name was Macie Grace McCloskey.she passed away in her mom's and dad's loving arms. now she lays at peace,she was born November 26,2007 and passes away December 2,2007. i am soo aorry for you and your family eversince i watched this for the first time i had always prayed for you and your family and also Baby kia.
At school when one of the kids got the scholarship in her name and the principal read she was only 6 days old, I had to research it. Thanks for getting the awareness out.
I also had a little girl LIVING with Trisomy 13 mosaicism. She had been in our arms for 4 months and will be in our souls for the rest of our lives. Her name is Maya and she is now our little angel, our little white guard from up above. We also treasured every moment spent with her, though there were days of dispare and hopelessness. God bless our angels.
She was truly beautiful, and I'm happy that you got some time to spend with your little girl. We had a trisomy scare during our recent pregnancy, but it turned out to be all clear, our little boy just had a cleft lip and palate. Wherever your little Kia is, she's smiling because she knows you love her.
Thank you for sharing Kia with the world. I've been watching these videos of babies with different "incompatible with life" Trisomies and they are truly miracles and blessings, even if they are only here for a few hours, days, or months.
I agree with your decision to put her life in Gods hands. I'm glad you at least got to enjoy some time her. My heart and prayers go out to you and your family.
This is a beautiful video and it is so wonderful to hear in your words how special this little bundle of joy was and is to you....her short time on life has and continues to touch many....God bless you and your message! +JMJ+
Kia is sooo beautiful! Love and (((HUGS)))from one loving Trisomy Mom to another. Our babies are so amazing! The greatest gift I ever received was my baby boy.
Kia was beautiful! What a cherished little girl, I know this video is saving little babies lives. My son has autism and seizures, he is loved more than anything in the world, God trusts us, he gave us these kids because He knew we could handle it. You are in my prayers.
In 1997 my second son was born with with full trisomy 13. He lived for 3 months & 19 days. I had no idea that anything was wrong with my son until he was born. I believe with the number of ultrasounds my doctor did to "make sure of the sex of the baby" he new something was wrong but didnt want to tell me.
I learned so much from my baby boy that only he could teach me. I truely feel blessed to have such a special guardian angel watching over my family!
God bless you for posting this beautiful tribute to your precious daughter. There just aren't enough words to tell you how moved I was....Our prayers are with you.
I love the video you made. What a beautiful little Angel. " It`s not matter how long a star shines, the brightness of the light is what will be remembered!!!" Someone send me this phrase after Leyna got her wings and it is so true. I also cherish every minute of the few hours we had with her. The best thing we can do for our babies is keeping their memories alive!!!
beautiful baby lovely family, Trisomy 13 pataus syndrome parents have the choice, some may not even want to put there child through any pain. you have an angel who you shall treasure,as we had ours.
Thank you for sharing Kia's story. I'm know you cherished every moment of those 17 hours. My niece had trisomy 13 and my sister was instructed to terminate the pregnancy. She chose not to and Rachael went full term, but didn't make it through the birth. Thank you for sharing this.
God Bless you and your family! I cant even imagine what type of decision that would have been, but I feel in my heart that you definately made the right decision. I know shes with you all everyday and watches out for you in heaven! God Bless you all!
What a beautiful tribute. Thanks for posting your video. Our little niece was diagnosed with Trisomy 13. She is almost 6 months old and we are praying everyday for complete healing. She is such a blessing and has taught us so much already.
have fath many others care and have been through what you have been through others will keep fath in you dont loose fath in your self and keep fath in jesus too he is there forever and foralways :)
i dont know anybody with that diese but i do know how it feels to loose someone presious to you im sure your thankful for the 17 hours you shared with her she was a beatful baby and now and forever will be a gorgous angle <3
I believe the choice to continue or to terminate is indeed a choice each couple has to make, but I deeply thank you for showing such love and reminding us all how beautiful ALL life can be, if only for a moment, a few hours, a day. Thank you, more than you'll ever know.
What a gorgeous little girl! Your choice to continue on was a courageous one. I am so sorry for your loss, but I am glad you were blessed with those wonderful 17 hours to cherish. My love is with you all. xo
Thank you for sharing Kia and showing how each of these precious children are worthy of love. I'm so happy for you that you had those wonderful 17 hours of life with her. Her life has inspired you..and has made a difference in this new age of the internet and trisomy awareness. Thank you for sharing your sweet daughter.
This is really beautiful, my little nephew luke had trisomy 13 and we shared 18 wonderful days with him. Hopefully this will help raise more awareness in this rare chromosomal defieciency x
my mom seemed very sick when she was pregnant with my brother and they just kept telling her nothing is wrong.
MidniteCatK 2 weeks ago
my little brother had it and he lived for about a day. I was about 9 at the time
MidniteCatK 2 weeks ago
I have trisoy x witch means I have 3 x's and when my mom found out before I was born she could had termanided me but when she didn't that's when you know your parrents will love you forver!
Maggie3039 3 weeks ago
I had a baby with trisomy 13 she lived almost 3 months. her name was kyara .. I miss her more and more everyday. she truly was a blessing. we had her home for the 3 months and it was very hard but now I see her as mommy's little angel.
tillitblo82 1 month ago
@tillitblo82 Awe, she is "mommy's little angel". I'm so very happy to hear that you were able to spend 3 months with her. I know it was hard but you were truly blessed! Hugs!
KiasMomma 1 month ago
NIEW Trisomy Advocacy Group - Trisomy HELP
trisomyhelp (dot) org
SOFT Support Organization for Trisomy 18, 13 and Related Disorders
25 years Supporting Families
trisomy (dot) org
ThereseAnnM 1 month ago
Lori, Thank your again for this wonderful Trisomy Awareness Video up on the internet. The LWT13 site (2005-2010) has been Archived at trisomy13archive (dot) com The site CONTACT page points to current Trisomy Support.
ThereseAnnM 4 months ago
Comment removed
ThereseAnnM 4 months ago
My daughter was pregnant with a baby with trisomy 13. At 14 weeks, everything looked normal. Then 15 weeks 4 days, the ultrasound showed no brain and extra digits. My daughter made the hard decision to go ahead with induced labor at 19 weeks 5 days. The morning of the induction, an ultrasound showed that the baby had already died. We got to hold Aiden for a while before the funeral home came to pick him up. It was a very emotional time. He weighed 7.5 ounces and was 6.5 inches long.
ShaylaMafia 5 months ago
Comment removed
gomenos421 11 months ago
Youe daughter is a precious angel, and I pray for you and your family. I can't say that i know what you feel because I dont know, but I do Know that Gods plan for baby Kia was fullfilled. the bible says that even a sparrow does not fall with out god knowing. arent you worth more than just a little bird!! It also says I have great plans for you. Plans to prosper you and not to harm you. Plans to bring joy to your life. GOD fullfilled that plan he had for Kia. I pray for your Family. Milynn
mojoswim2014 1 year ago
There is never an excuse to abort a child, no matter what medical problems the doctors say they will face. God alone should hold every life in the palm of his hand, and no one should rob an innocent unborn HUMAN BEING of a chance to live. This little angel is proof that miracles exist. She held onto life for 17 hours, which the doctors said wouldn't happen. It was by the grace of God I got to see her perfect face in this video. Rest peacefully in the arms of the angels Kia, you are loved!!!
Shaezter 1 year ago
Sorry am student,head of the syndrome and what to know more about it and come across this.Pls God gives and l hope he will give u the one that will stay with u.Sorry once again.
capriuc 1 year ago
She looked so pretty. I don't know, i just think it. Your video about your baby is something beautiful, i think that it's a very beutiful thing, not just by the people that live this kind of situation, but also by the people who work at the hospitals (doctors, nurses, psychologists, etc) ... I hope that all your family will be perfect. (And sorry by my bad english, but it's not my native language)
TheGothicBrokenDoll 1 year ago
All of our lives are measured in moments, every breath we breathe is a gift from God.
hugenex2000 1 year ago
i feel very guilty now as i and my girlfriend were told that the baby mightn't survive or would only live for 3 days so we made the hard decision and decided to terminate, i only wish i have the faith shown by these people and left it in gods hands
kieranlavin01 1 year ago
thank you for sharing you beautiful babies short life with us, my heart rejoices that you were strong enough to make the choice to do what god would have wanted you to do, and what was best, to know your darling Kia, to hold her, and love her, im sure she taught you so much in her 17 hours. i had a baby they told me would not survive due to kidney issues and said he had down syndrome although he was terminally ill he survived and is a normal 9 yo boy now thanks to God! God bless you & ur family
ayaamaya 1 year ago
Thinking of you today Lori, the day before what would have been your daughter's 6th earthly birthday... It is her heavenly day tomorrow ~ May 6th.. Celebrating her Life! I remember meeting you prenatally, praying for you and KIa... How wonderful you could hold and love this precious child of yours. My heart goes out to you as you remember your sweet Kia.
livingwithtrisomy13 1 year ago
I do respite care for a little angel who has Partial Trysomy 11. He is such a beautiful little boy and has a wonderful caring and supprtive family but we are in an area where there is very little knowledge of this disorder amoung medical staff and even less in the community. It is a lonely road for these parents who have no one who understands what they are going through. There is noone to connect with. Is there a support group or much awareness where you are?
Kelibur1 1 year ago
I'm so sorry that you had such a short time with your gorgeous little girl...what a blessing God gave to you...to be Kia's Mommy forever...God's Blessings on you and your beautiful family always...
MsStaciejm 2 years ago
How DARE they tell you to terminate... She is your BEAUTIFUL baby girl. I thank you for this video, it must have taken alot of courage... Love and best wishes to you and your family. She is a beautiful angel xo
petalovespongy 2 years ago
I'm sorry that I could do nothing about it.
lpernites2 2 years ago
The Father of my children carried a recessive trisomy 13 gene, meaning he carried it but was not affected by it. I had to have invasive tests during my pregnancies but we were extremely lucky and none are affected or carry it recessively. I understand your stress and anguish when the doctors say its best to terminate or that if you procede there will be no life. I was also told it is incompatible with life and never knew there were actual survivours, living children.
miffymuffet 2 years ago
what a blessing your video was to me! I appreciate the value you placed on your sweet baby's life. we live in a country that has no soul and no compassion for the unborn. God will (and already has) bless you and your family for your faithfulness. I'm sorry for your loss, and thankful for your message of hope and life.
mollystroud 2 years ago
I also had a Patau baby girl. She did not survive full term pregnancy and was born at 23 and a half weeks. I got to see and hold her. I miss our baby Hazel..... Thank you for the video. I just wish i had done one. Sorry for your loss XXXX
EclipseKids 2 years ago
God bless your family.
Your baby has a special place in heaven.
horta85 2 years ago
Thank you for posting this video- it helps to know that there are others who have gone through the same journey. I lost my precious little girl who is 6 days old on 15 May to what the doctors suspect is Trisomy 13 (tests results not out yet) as she showed the classic symptoms and Hydroplastic Left Heart Syndrome. For a small thing, she left a big gap in our hearts but we will always treasure the time we had with her.
pipitjay 2 years ago
I'm so very sorry for your loss! Treasure all your moments with her. Hugs!
KiasMomma 2 years ago
Happy Birthday my little Butterfly Angel! Five years ago today I was waiting oh so patiently for you to come into this world so I could meet you and love you for all your life! Mommy misses you baby girl! xoxoxo
KiasMomma 2 years ago
Oh, she is so beautiful!!!!
boudoiramani 2 years ago
The doctors just told me today my baby boy has trisomy 13 and he will not live even if I wanted to continue the pregnancy. I had no idea there were survivors. Your video has touched me and gave me hope. The tears won't stop rolling down my cheeks.
hdilay 3 years ago 2
God bless you all; I am sorry for your loss! So sad; but she lives on in memory and in your hearts!
txstoryteller 3 years ago
Cute lil baby , You did the right thing, God bess You all
annamaria96 3 years ago
Very sad.
marcluc1988 3 years ago
On Aug. 31 2008 our son Andrew was born and lived 11 1/2 hours. He also had full T-13. We were told the same thing you were. Until we found a doctor that would work with us because we chose not to terminate either. It was the best decision we have ever made. The hardest but the best at the same time. Thank you for sharing your beautiful daughter with us. I just made a video of our Andrew and its nice to see others have too.
Spidette 3 years ago
She had the eyes of his father .
fadfdb 3 years ago
Your outlook on things is amazing and hopefully inspires others to follow your lead. I am truly sorry for your loss but congratulate for your time of happiness with your beautiful Kia. God Bless
BMHorne 3 years ago
My daughter Samantha was born with Trisomy 13 last Thursday Oct. 30. She passed away in our arms on Sunday Nov. 2. We are so glad we never new ahead of time. We were able to hold her, bathe her, dress her and change her diapers. Her big brother and sister were allowed to help and we were given a hospice room where we could all be with her. She had such a brief life but it was a great gift to us all. Thanks for your video. Now we feel we are not alone!
Sincerely
The Pjevac family
vvnpjeva 3 years ago
What an angel! :( I'm so sorry... I have to hold on to believing that God allows these things, although when the pain is so great it's HARD to understand why...
yamagoof 3 years ago
Love for little Kia. Mom looks so happy holding her in her arms. RIP little Kia. I felt so sad...
TURKOMAN 3 years ago
Love from Malaysia..
purelyery 3 years ago
Cute little angel ,RIP. You were right not to terminate her.Love from Hungary
annamaria96 3 years ago
my brother stephen had trisomy 13 he lived for a day =(
Roboklintworth12 3 years ago
thats so sas im so sorry for you :(
DuneWars 3 years ago
I always thought that having an extra chromosome gave you like super powers or something.
viciousogg 3 years ago
We had a baby in Aug 2003 with Trisomy 13-- he lived 40 hours and was a wonderful blessing. We just learned the baby I am expecting also has Trisomy 13-- and again we'll leave it in God's hands how long with get with this little one. We also have 4 healthy children under the age of 7, so going through this again will be hard on them. Thanks for sharing your video. What a wonderful tribute to Kia.
simplyschooling 3 years ago 4
I'm so very sorry to hear of your loss! Obviously God has blessed you with another angel because he knows what a good Mommy you are! Thank you for telling me your story! I will keep you in my prayers!
KiasMomma 3 years ago
I know how you and your family feels. I had a little cousin that passed away at 6 days old. she was the best. she had four other brothers and sisters. her name was Macie Grace McCloskey.she passed away in her mom's and dad's loving arms. now she lays at peace,she was born November 26,2007 and passes away December 2,2007. i am soo aorry for you and your family eversince i watched this for the first time i had always prayed for you and your family and also Baby kia.
shit8661 3 years ago 2
she was born on my birthbay november 26...
agentj07 3 years ago
At school when one of the kids got the scholarship in her name and the principal read she was only 6 days old, I had to research it. Thanks for getting the awareness out.
Canichenoir 3 years ago
Dear KiasMomma,
I also had a little girl LIVING with Trisomy 13 mosaicism. She had been in our arms for 4 months and will be in our souls for the rest of our lives. Her name is Maya and she is now our little angel, our little white guard from up above. We also treasured every moment spent with her, though there were days of dispare and hopelessness. God bless our angels.
Rita, mommy of angel Maya, form Romania
youngrita2000 3 years ago
aww she was beautiful
izzimaccawizzi 4 years ago
She was truly beautiful, and I'm happy that you got some time to spend with your little girl. We had a trisomy scare during our recent pregnancy, but it turned out to be all clear, our little boy just had a cleft lip and palate. Wherever your little Kia is, she's smiling because she knows you love her.
BlackmoonUK 4 years ago
Thank you for sharing Kia with the world. I've been watching these videos of babies with different "incompatible with life" Trisomies and they are truly miracles and blessings, even if they are only here for a few hours, days, or months.
StarbucksCoffeeFreak 4 years ago
Your daughter was beautiful and I'm sorry to hear about this tragic occasion. I hope only for the best in the future and God bless all of you.
Shabers128 4 years ago
im so sorry about this tragic occastion. thank you for the video because im doing a report for school on it
pentaboyz5 4 years ago
This is so sweet, Thankyou for making this video, its been pretty helpful, because I'm doing a project on Trisomy 13.
hp141414 4 years ago
I agree with your decision to put her life in Gods hands. I'm glad you at least got to enjoy some time her. My heart and prayers go out to you and your family.
Fishman6007 4 years ago
This is a beautiful video and it is so wonderful to hear in your words how special this little bundle of joy was and is to you....her short time on life has and continues to touch many....God bless you and your message! +JMJ+
hullabullahullabulla 4 years ago
Thank you for sharing this video. What a precious gift Kia was :)
May God continue to bless you and your family.
OregonGal1 4 years ago
Kia is sooo beautiful! Love and (((HUGS)))from one loving Trisomy Mom to another. Our babies are so amazing! The greatest gift I ever received was my baby boy.
veranichole1981 4 years ago
Kia was beautiful! What a cherished little girl, I know this video is saving little babies lives. My son has autism and seizures, he is loved more than anything in the world, God trusts us, he gave us these kids because He knew we could handle it. You are in my prayers.
navywife1977 4 years ago
a lovely memory of your daughter. thanks for sharing it with the rest of the world, it really touched me.
jules71274 4 years ago
In 1997 my second son was born with with full trisomy 13. He lived for 3 months & 19 days. I had no idea that anything was wrong with my son until he was born. I believe with the number of ultrasounds my doctor did to "make sure of the sex of the baby" he new something was wrong but didnt want to tell me.
I learned so much from my baby boy that only he could teach me. I truely feel blessed to have such a special guardian angel watching over my family!
3BB1GG 4 years ago
God bless you for posting this beautiful tribute to your precious daughter. There just aren't enough words to tell you how moved I was....Our prayers are with you.
cathmomof32b 4 years ago
I love the video you made. What a beautiful little Angel. " It`s not matter how long a star shines, the brightness of the light is what will be remembered!!!" Someone send me this phrase after Leyna got her wings and it is so true. I also cherish every minute of the few hours we had with her. The best thing we can do for our babies is keeping their memories alive!!!
angelleynasmommy 4 years ago
beautiful baby lovely family, Trisomy 13 pataus syndrome parents have the choice, some may not even want to put there child through any pain. you have an angel who you shall treasure,as we had ours.
linda063 4 years ago
Thank you for sharing Kia's story. I'm know you cherished every moment of those 17 hours. My niece had trisomy 13 and my sister was instructed to terminate the pregnancy. She chose not to and Rachael went full term, but didn't make it through the birth. Thank you for sharing this.
--Mel
zookiemommy 4 years ago
God Bless you and your family! I cant even imagine what type of decision that would have been, but I feel in my heart that you definately made the right decision. I know shes with you all everyday and watches out for you in heaven! God Bless you all!
domesticabusehelp 4 years ago
What a beautiful tribute. Thanks for posting your video. Our little niece was diagnosed with Trisomy 13. She is almost 6 months old and we are praying everyday for complete healing. She is such a blessing and has taught us so much already.
bekados 4 years ago
have fath many others care and have been through what you have been through others will keep fath in you dont loose fath in your self and keep fath in jesus too he is there forever and foralways :)
dragonwizard103 4 years ago
i will rember this i feel for you i cant wait till your united with your little girl at hevens gate im sure you will see her again
dragonwizard103 4 years ago
i dont know anybody with that diese but i do know how it feels to loose someone presious to you im sure your thankful for the 17 hours you shared with her she was a beatful baby and now and forever will be a gorgous angle <3
dragonwizard103 4 years ago
I believe the choice to continue or to terminate is indeed a choice each couple has to make, but I deeply thank you for showing such love and reminding us all how beautiful ALL life can be, if only for a moment, a few hours, a day. Thank you, more than you'll ever know.
gauffsa 4 years ago
What a gorgeous little girl! Your choice to continue on was a courageous one. I am so sorry for your loss, but I am glad you were blessed with those wonderful 17 hours to cherish. My love is with you all. xo
gauffsa 4 years ago
my cousin was born with trisomy 13 and lived for 2.5 years and we loved him for every second of every day
AlternateDragon 4 years ago
my cousin was born with trysomy and lived for 2 and 1/2 years and we loved him for every second of every day
AlternateDragon 4 years ago
Thank you for sharing Kia and showing how each of these precious children are worthy of love. I'm so happy for you that you had those wonderful 17 hours of life with her. Her life has inspired you..and has made a difference in this new age of the internet and trisomy awareness. Thank you for sharing your sweet daughter.
ThereseAnnM 5 years ago
My Trisomy 13 sister just turned 12 today. I have sympathy for you and I hope her 17 hours will change 17,000 lives.
Macceltic 5 years ago
This is really beautiful, my little nephew luke had trisomy 13 and we shared 18 wonderful days with him. Hopefully this will help raise more awareness in this rare chromosomal defieciency x
obsessedmjlover 5 years ago
What a beautiful little angel you and G have! Thanks for sharing this with me!
cobydoll 5 years ago
This is lovely...I will always remember!
Thank you for sharing Kia with me and others! She is an angel now...speak to her.
Love you~
Kathleen
AudiMoonKat 5 years ago