Please go to beikebiotech (.) com and on the first page, there is a recent article about new studies on stem cells and Ataxia ! Please read it carefully . I am willing to go and try it.
I saw the movie The Cake Eaters. I just got aware of this disease, because of the movie. I have never heard of the disease before. I really liked her in the movie.I think she was convincing.
My brother and I were both diagnosed, he was diagnosed at 12, and I was diagnosed at 10. The only thing that affects me is my walking, a lot of people think I'm drunk. My brother is in a wheelchair and has a hard time talking. My cognitive skills aren't the greatest, but still manageable. Just keep ya head up(:
Has anyone ever seen Kristen Stewart's portrayal of a girl living with Friedrich's Ataxia in the movie The Cake Eaters? It's definitely a very convincing portrayal.
@reachingsomething u can goto fara.org and if u got facebook, scroll down the site, click their facebook icon. also, if u want to be notified of a clinical trials, join their patient registry
i noticed when i was12 der was sumtin wrong wit me but i tuk no notice i taught it was all in my head....... i was badly bullied durin school bcoz of my speach and my balance .
wen i was 17 i was diagnosed with it ....
im now 20 i have a job and i study engineering
sure d condition is very hard 2 live with but if i cud turn bak time when i was in school id kick shit outta them bullies.......
@clarkymann thanks, just wanderin i no there r different severity levels of it but is your speech more affected than balance ? cause my speech is not to bad mine is mainly balance, i shake pretty good
@kylepyro991 my speach is fairly ok . my balance is fairly shit alright but ders no point in gettin down bout it it cud be alot worse i consider myself lucky .......enuf..
@clarkymann thanks, just wanderin i no there r different severity levels of it but is your speech more affected than balance ? cause my speech is not to bad mine is mainly balance, i shake pretty good
im 17, i was diagnosed with it wen i was 14, i got balance problems but i can still walk and run good, i have found personaly that if u work with your legs and arms u can teach your limbs to rework(i play soccer) so there is some advice 4 yall,
the worst part and the only realy noticible part is trying to carry open drinks and walking up stairs, besides that its not to noticible, besides a funky walk
My little brother was diagnosed with this about 16 years agom he is now 19. He has an extremely advanced case of the illness and now he is completely wheelchair bound and eating via feeding tube. His spine and heart the greatly effected. He has also lost his ability to speak and can barely see anymore (not able to focus his eyes). It is nice to know that we are not alone. :)
I was diagnosed when I was 9 and am now 16. I've been feeling depressed for a good 5 years because it seems mine and my older brothers FA are much worse than everyone else', so it's nice to know there are worse off, but sad at the same time :(
My brother can barely hear anymore, has bad eyesight (for the same reason as your brother) and heart problems. We've both had our spines fused.
I can't imagin how hard it must be for both your family and him. You must be really strong. Your brother is the same age as me. My thoughts go out to you.
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Please go to beikebiotech (.) com and on the first page, there is a recent article about new studies on stem cells and Ataxia ! Please read it carefully . I am willing to go and try it.
ct89ccx 1 month ago
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azilanaolim 1 month ago
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azilanaolim 1 month ago
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azilanaolim 1 month ago
I saw the movie The Cake Eaters. I just got aware of this disease, because of the movie. I have never heard of the disease before. I really liked her in the movie.I think she was convincing.
bigMerylStreepfan 7 months ago
you inspire me..may help come to all of you who suffer from this soon
harewoodhouse 1 year ago
My brother and I were both diagnosed, he was diagnosed at 12, and I was diagnosed at 10. The only thing that affects me is my walking, a lot of people think I'm drunk. My brother is in a wheelchair and has a hard time talking. My cognitive skills aren't the greatest, but still manageable. Just keep ya head up(:
xibreakheartsx 1 year ago
Has anyone ever seen Kristen Stewart's portrayal of a girl living with Friedrich's Ataxia in the movie The Cake Eaters? It's definitely a very convincing portrayal.
wirklichdoof 1 year ago
hey , i ' am FA patient , and i want to know how can i join FARA
reachingsomething 1 year ago
@reachingsomething u can goto fara.org and if u got facebook, scroll down the site, click their facebook icon. also, if u want to be notified of a clinical trials, join their patient registry
virtualdq 1 year ago
i noticed when i was12 der was sumtin wrong wit me but i tuk no notice i taught it was all in my head....... i was badly bullied durin school bcoz of my speach and my balance .
wen i was 17 i was diagnosed with it ....
im now 20 i have a job and i study engineering
sure d condition is very hard 2 live with but if i cud turn bak time when i was in school id kick shit outta them bullies.......
clarkymann 1 year ago
Comment removed
kylepyro991 1 year ago
@clarkymann thanks, just wanderin i no there r different severity levels of it but is your speech more affected than balance ? cause my speech is not to bad mine is mainly balance, i shake pretty good
kylepyro991 1 year ago
@kylepyro991 my speach is fairly ok . my balance is fairly shit alright but ders no point in gettin down bout it it cud be alot worse i consider myself lucky .......enuf..
clarkymann 1 year ago
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@clarkymann thanks, just wanderin i no there r different severity levels of it but is your speech more affected than balance ? cause my speech is not to bad mine is mainly balance, i shake pretty good
kylepyro991 1 year ago
Comment removed
kylepyro991 1 year ago
im 17, i was diagnosed with it wen i was 14, i got balance problems but i can still walk and run good, i have found personaly that if u work with your legs and arms u can teach your limbs to rework(i play soccer) so there is some advice 4 yall,
the worst part and the only realy noticible part is trying to carry open drinks and walking up stairs, besides that its not to noticible, besides a funky walk
kylepyro991 1 year ago
@kylepyro991 i know d feelin man ............
clarkymann 1 year ago
My little brother was diagnosed with this about 16 years agom he is now 19. He has an extremely advanced case of the illness and now he is completely wheelchair bound and eating via feeding tube. His spine and heart the greatly effected. He has also lost his ability to speak and can barely see anymore (not able to focus his eyes). It is nice to know that we are not alone. :)
msticlaru 2 years ago
@msticlaru
I was diagnosed when I was 9 and am now 16. I've been feeling depressed for a good 5 years because it seems mine and my older brothers FA are much worse than everyone else', so it's nice to know there are worse off, but sad at the same time :(
My brother can barely hear anymore, has bad eyesight (for the same reason as your brother) and heart problems. We've both had our spines fused.
Thankfully, we can still eat normally.
Mesquissto 2 years ago
I can't imagin how hard it must be for both your family and him. You must be really strong. Your brother is the same age as me. My thoughts go out to you.
MiraSekelsky 2 years ago