I never met anyone that has suffered as much as I have in my life. I have spoken to at least a million ppl online the last 15 years with all the forums and support groups and what not. I had additional illnesses where I was unable to keep going for the fms. I also really didnt want to cause each time I go and be persistant they find something new. I just couldnt handle no more haha. To know that osmeone else KNOWS my pain and still is alive gives me drive again. Thank you for this.
Omg Michelle I watched this again and would LOVE to be a fly on the wall while you converse with Sarah Palin! Wishing you love and luck with that because she is one of those who wait for their turn to talk without listening. Whatever this is that we have it scares me to death....honestly. You forgot to tell them how our eyes crust shut and it feels like glass if you rub them, unable to talk for at least an hour or two upon waking, and also an innability to find words with other noise around.:(
Thank you Michelle for your videos they give all of us sufferers hope!
you are such a strong lady even with this horrible disease. I am getting so much worse with this disease, now I'm wearing afo's to try and walk and my arms and wrist are just as bad. praying for a cure for this horrible disease and for kindness and understanding from others.
Michelle I love you. In the last couple of months after getting mad I was finally referred to a urologist and I had thought there was some sort of obstuction and they did a test and told me I am not making urine!! They haven't been forthcoming with answers when I ask except ...you aren't making urine. Could this be IC? Or are my kidneys failing? I don't lie. People do not want to hear the truth and here in Reno they lie about everything. It makes me crazy. They say something is wrong in my...
lol, i realised that i must of seen this vid before because i left a comment, but carnt remember seing it, thans to my fibro memory loss. Some great information, thank you. I am in a bad way at present.. peace and love to you.. X
the 23rd is my final visit with rheum...can't deal with the stupidity anymore. These doctors are too afraid that even with their degrees they may be WRONG. They don't see anything so there must be nothing there, right. Glad that you are making progress. Texas is a very BACKWARD state.
Michelle, I dropped off everywhere for personal reasons. I am getting worse. I know this. I have all your symptoms. In 9 months my bloodwork has shown nothing more than an active hike in CRP from 22-38. I don't have time to take care of me and my doctor is a dick that won't LISTEN to me. I live in a constant battle between either pissing myself or dying of dehydration. My right arm/hand stopped working days ago. Left is following. Right foot is JUNK. You are not stupid. You make a difference.
i feel for ya hun, i too have fibro for over 10 years now, been diagnosed for 5 years aprox. Keep theses videos coming, one day they may find a cure .(((soft hugs)))
Amazing how we all have the same symptoms and stuff and they spent so many years trying to tell us we were nuts. I have HHV6, so far, never had CMV. I soak the bedsheets, too. It's awful. At least you know, you're not alone in this.
I feel for you Michelle. My doctor isnt much help; I often think he believes Im a hypochondriac. He is always after me to lose weight, but if you cant exercise because every movement hurts how are you supposed to lose weight? I did find a group of ladies on Facebook that formed a chronic pain support group; it has made me feel not so alone.
I love how you tell it exactly how it is! You r far from being stupid. You are amazing and just listening to you makes me want to keep fighting another day! Gentle hugs my friend...
I never met anyone that has suffered as much as I have in my life. I have spoken to at least a million ppl online the last 15 years with all the forums and support groups and what not. I had additional illnesses where I was unable to keep going for the fms. I also really didnt want to cause each time I go and be persistant they find something new. I just couldnt handle no more haha. To know that osmeone else KNOWS my pain and still is alive gives me drive again. Thank you for this.
lineblack2 2 months ago
Omg Michelle I watched this again and would LOVE to be a fly on the wall while you converse with Sarah Palin! Wishing you love and luck with that because she is one of those who wait for their turn to talk without listening. Whatever this is that we have it scares me to death....honestly. You forgot to tell them how our eyes crust shut and it feels like glass if you rub them, unable to talk for at least an hour or two upon waking, and also an innability to find words with other noise around.:(
dawnten 2 months ago
Thank you Michelle for your videos they give all of us sufferers hope!
you are such a strong lady even with this horrible disease. I am getting so much worse with this disease, now I'm wearing afo's to try and walk and my arms and wrist are just as bad. praying for a cure for this horrible disease and for kindness and understanding from others.
God Bless you and again thank you!
lazydaisy1966 3 months ago
Michelle I love you. In the last couple of months after getting mad I was finally referred to a urologist and I had thought there was some sort of obstuction and they did a test and told me I am not making urine!! They haven't been forthcoming with answers when I ask except ...you aren't making urine. Could this be IC? Or are my kidneys failing? I don't lie. People do not want to hear the truth and here in Reno they lie about everything. It makes me crazy. They say something is wrong in my...
dawnten 5 months ago
lol, i realised that i must of seen this vid before because i left a comment, but carnt remember seing it, thans to my fibro memory loss. Some great information, thank you. I am in a bad way at present.. peace and love to you.. X
thekatie40 5 months ago
LOL @ always asking "why" -- I've been doing that since I could talk, its been 34 yrs and hasn't changed ;)
superotter77 8 months ago
you ROCK Michelle!! Standing with you in TRUTH and SOLIDARITY!! *hugs
superotter77 8 months ago
(before I start, I will say that I'm new to this fibromyalgia... so if I offend I apologize in advance. :)
JesicaC88 9 months ago
the 23rd is my final visit with rheum...can't deal with the stupidity anymore. These doctors are too afraid that even with their degrees they may be WRONG. They don't see anything so there must be nothing there, right. Glad that you are making progress. Texas is a very BACKWARD state.
txmomoftwo1 9 months ago
Michelle, I dropped off everywhere for personal reasons. I am getting worse. I know this. I have all your symptoms. In 9 months my bloodwork has shown nothing more than an active hike in CRP from 22-38. I don't have time to take care of me and my doctor is a dick that won't LISTEN to me. I live in a constant battle between either pissing myself or dying of dehydration. My right arm/hand stopped working days ago. Left is following. Right foot is JUNK. You are not stupid. You make a difference.
txmomoftwo1 9 months ago
i feel for ya hun, i too have fibro for over 10 years now, been diagnosed for 5 years aprox. Keep theses videos coming, one day they may find a cure .(((soft hugs)))
thekatie40 9 months ago
Thank you again for your posts. Gentle (((hugs)))) Hang in there and take pride in knowing you have helped many with your info and honesty xo
BarbiM04 9 months ago
We r all crazy! Yup that's the answer! Damn docs.
ironbith 9 months ago
Amazing how we all have the same symptoms and stuff and they spent so many years trying to tell us we were nuts. I have HHV6, so far, never had CMV. I soak the bedsheets, too. It's awful. At least you know, you're not alone in this.
Carrigon 9 months ago
I feel for you Michelle. My doctor isnt much help; I often think he believes Im a hypochondriac. He is always after me to lose weight, but if you cant exercise because every movement hurts how are you supposed to lose weight? I did find a group of ladies on Facebook that formed a chronic pain support group; it has made me feel not so alone.
treetopteresa 9 months ago
I love how you tell it exactly how it is! You r far from being stupid. You are amazing and just listening to you makes me want to keep fighting another day! Gentle hugs my friend...
Ikimification 9 months ago