hello!! nice explanation. My sister worked for People with Cerebal P. for many years, but you are by far the most wiggly one ive seen :-) My name is katy,Its nice to meet you.
Thank you for taking the time to explain what CP is to people who do not know. The more we share knowledge the more barriers and misunderstandings we break down. Keep on educating the world powerchairchick, 'cause the message you're sending is inspirational! :)
I'm glad you made this video to help people understand more about cerebral palsy you're a very brave girl for putting you're self out there and and explaining it to them. God Bless you :)
@Noahsp19 please don't. There's no reason to. I'm thankful for my abilities and I'm perfectly happy with the way I am. can you do me a favor? Please watch my video called "perceptions of the disabled"
Your are an inspiration to all. I am a student majoring in Therapeutic Recreation. I was studying for an exam which involves knowing about certain disabilities. To try and understand more about cerebral palsy I youtubed it and came across your videos. You give me motivation to pursue this career and would someday love to be a TR specialist and become an aid to help people with disabilities. It is inspiring and refreshing to see you are making such a difference. You are amazing! Keep it up!
@bboypinoy21santos a combination of athetoid and spastic quadriplegic cerebral palsy. I explained it in the video as well as typed it in the description. click "see more" under the video to read it.
First, thank you for posting your video. I am in nursing school and studying the different types of cerebral palsy. Your video helped me understand the physical aspects of the disorder. Second, your courage is inspiring. Thanks again for your post.
I'm so happy to see that your not going to let your cerbal palsey get in the way of doing things, I have a mild case of cerbal palsey and I let get in my way sometimes, you have inspired me. I just wanted to tell you that you're amazing and noone should tell you any differently!;)
you're inspiration is tremendous! keep being YOU, because youre amazing! i wish more people had the willingness and motivation to express themselves as you did! god bless!
you are amazing !!!! please keep showing people how great you are through your videos. I did not know anything about cerebral palsy before watching your video, but now i know. I now have tremendous respect for people with this condition.
Im juss letting you know your Saved. you dont know how blessed you are because u get to go to heaven without proving yourself. we have to do right by God. but you , your saved and your so lucky for that. in Jesus name bless you.<3
@severnjeff i have an adapted keyboard with a guard on it so i don't hit multiple keys at once. see my "how i use a computer" video to see me type. as far as how long it took me to type the description, i'd estimate 30-45 minutes? i don't really keep track of how long it takes me to type things. i can say i don't type very fast, considering i only type with one finger. lol.
i want to tell you that you're video just been posted on a image board from where they think bullying other people on the internet is funny (im part of them) But this time they've gone to far. Im actually crying when looking at you. I will never be part of this stuff again you inspired me for the rest of my life.
@lsdgamer u have got 2 be shitting me! seriously?! thats f-in nauseating. i guess those idiots never bothered reading the description. can i get it taken off somehow?
@lsdgamer can u message me(go 2 my channel & click "send message") the link 2 the site please? i dont think youtube allows links 2 be posted in comments. thanks.
@powerchairchick Iam glad you can get over your cerebal palsy and move on with life I had hard times to I was vaccined by the MMR vaccine I now have autism from the vaccine itself my parents don't have it but I got injected it's sad but true and I hope people understand that cerebal palsy and autism is not funny it's a serious problem.
@chickendoesit im all 4 stem cell research also but not entirely 4 my own personal gain. i wanna see individuals with life-threatening disabilities/diseases helped 1st. my lifespan isn't cut short because of my disability & i'm perfectly happy the way i am. the brain is the,most complex organ that humans have and it wouldn't shock me if they don't find a way to reverse brain damage in my lifetime.
Thanks powerchairchick for enlightning all of us. It's helpful to have your summary but equally, when listening carefully, I can understand what you're saying. I'm interested in knowing how easy it is for you to interact with a computer i.e. using MSN, Facebook, emails etc.(My students are on these a lot of the time), and what features could be added to a computer to make interaction easier for you. I admire your 'can do' attitude, and your nice tidy room :-)
@YoureGuilty thanks! i actually have a video about how i access computers. it won't let me post the link here but if you go to my channel, there is a list of all my videos. click on the 1 called "how i use a computer"
Thanks for the video! You know, it drives me crazy when people that that individuals with cerebral palsy are mentally challenged. I have a classmaate in law school who has CP - she is literally at the top of our class!
You've got the right attitude. You have no reason to be annoyed because you've been blessed by god. You have great parents and by the looks of things your doing great. You go to school, your well educated so don't feel different because no ones perfect. I believe everyone has a disability, whether they know it our not, it could be small or a big one, physical or mental!
I went to school with someone like you. His name was Marty. He was placed with a person that would take his notes for him and help him out because he could not control his motor skills either. He was so intelligent and amazing! He got high grades in all of his advanced classes and I found them difficult.
thank you so much for this video i have grown up with cp not really understanding it and why people look at be funny for talking a little diffrent and not being able to spell and read very well you are a great person for taking the time to help everyone understand thank you again
@powerchairchick when you were little did you take speech and physical therapy? also you should do a video of how you operate your chair and communication device. maybe you could do a video with your aid interviewing you with some questions!
So does your brain function normally but you just can't comunicate that throught your body? I sometimes see people talking to people in your circumstance and they say things like "yay" and "good job" like the person is 3 years old or something. Do you get that? Does that bother you?
@ThinIce27 i guess u can say that. the part of my brain that is responsible 4 controlling muscle movement is damaged but the part of my brain that is responsible 4 controlling intelligence is perfectly fine. yes, i get treated like a 3 yr old all the time. thats y i make these videos; 2 educate the ignorant.
you're blessed,your abilities out weights what you're not supposed to be capable of doing.doctors and specialists can't get it right.you look like you're living your life very well.
Ive been researching Cerebral Palsy for an assignment and I wanted to know if you could answer one of the questions . what are some helpful intervention strategies that you and your family use to deal with Cerebral palsy? I would really appreciate it .
@deadboylover im not quite sure wut u mean by "intervention strategies." its kind of vague. can u be more specific? do u mean how i go about daily activities? how my family & i mentally deal w/ cp? how we adapt? if i do anything 2 decrease the symptoms of cp?...
Powerchairchick I listened very carefully and caught most of it and when I read your explanation I realised what I'd missed. I think you are top and it's a great video - to any of the naysayers I simply say it's not powerchairchick's fault her brain got damaged and it took some effort to verbalise the detail with less coordination than most people.
@JoeyHD2 just read this: i have a mix between athetoid cerebral palsy (causes wiggly, uncontrollable movements) & spastic quad cerebral palsy (causes very tight muscles). cerebral palsy is caused by damage to the cerebrum (the part of the brain that controls muscle movements). when i was being born, something blocked my airway & the lack of oxygen caused brain damage. i also had head trauma, which caused bleeding in the brain. i have no balance but i can walk w/ someone holding me... (cont)
I get patronized a lot too; having ADD, minor brain damage and being somewhat of an introvert, people just assume I'm 'stupid' or aloof, thanks a lot for making these videos - you seem so brave and willing when these insurmountable odds have been placed on your shoulders, you truly are an inspiration to all.
@Jessie6870 y not? wouldnt u want ppl better understand ur disability if u had 1 & let the ignorant know 2 not treat u like a toddler? im trying 2 make the lives of disabled ppl easier when they go out in public. the more ignorant ppl who watch my videos, the more ppl that will properly treat disabled ppl & just see them as ppl, rather than as "disabled" ppl. :-)
I can understand how you feel - I have dystonia, and it makes my tongue, lips & jaw basically have a mind of their own. I have a lot of trouble talking - it annoys me so much when people assume that I have some problem thinking, when I absolutely do not.
Youre an inspiration to me,dear....Keep going ! I have Cerebral Palsy as well,but I was lucky enough not to be in a wheelchair.God bless ya! Take care!
I'm just so happy to see this and read your replies, and hear how strong you are. I would assume it would be hard or frustrating for you, but you still sit there, with confidence and pride and are able to tell the world that you are no different than anyone else. This could happen to anyone, and I think your an amazing person to put this video out there to talk about your disability so candidly. Thank you!
Your amazing, my girlfriends sister has cerebral palsy but has little to no movement, she cannot speak at all and only responds by smiling sometimes to what people are saying. I really dont know how to figure out if she knows what is going on. Some people talk to her like a baby, which they do meaning no harm, but she is 27 years old and I've read many articles on cerebral palsy and most say that it only effects movement and motor skills. Do you think she knows what is going on all of the time?
@forbes400 thanks. no one gave her a communication device? there r devices that can be operated by a head switch or even eye movement. it's difficult 2 tell if a person like ur gfs sister is mentally challenged or not if she never had a way 2 communicate. was she ever seen by a speech pathologist? when a non-verbal person w/ little 2 no movement who had no communication device came 2 the school i went 2, ppl would ask them yes/no questions & have them respond w/ their eyes...
@forbes400 ...4 example, they would ask if they wanted 2 get out of their chair & tell them 2 look left (u can point 2 the left also) 4 yes & look right 4 no.
wow you are a brave girl, cant believe you were able to learn and make videos with your disability, even though i'm guessing its not too hard from your point of view.I'm
definitely going to subscribe because you have a good sense of humor and show people how you do things with your difference.
@xkruulx my disability doesnt affect my intelligence, so, its not a stretch that im intelligent. im actually a big computer geek so making youtube videos was/is a cinch. :-) thanks!
@mcfr23 y would i cry? my life is great. i am like "everyone else." i go to college, i have aspirations...just because my physical needs are a little different doesn't mean i'm not like able-bodied people
More power to ya! I knew somebody in high school with CP and I always talked to him before lunch. He'd get out of class early so he wouldn't get overrun by everybody else(and I'd sneak out LOL) and we'd tease each other about being ditchers. Fun times :) I think he had athetoid CP because he wiggled a lot too.
powerchairchick,I have heard that a lot of cp people have no problem with intellect only that you're trapped in a body that doesn't quite work right. God bless you!
I've met a few people who appear to have the same disability as you, but I'm just wondering, and don't kill me for being ignorant - but does your brain function like a 'normal' persons does? I mean is your intelligence impaired? Furthermore, this might sound terrible but I have to ask - are you happy with your life? You of course know you will probably never lead a normal life - how does this affect you? I am sure I would not have the strength 2 go on
@XxXxSeasonxXxX im sorry but did u watch this video or read the synopsis in the video description? i clearly said & also wrote "many people assume that i'm mentally challenged, when in fact i'm NOT." u really should listen to me speak before asking something like that.
yes, i am happy with my life.
excuse me, but what do u mean by i will probably never lead a normal life? fyi, i graduated high school valedictorian & im in college. how much more normal can my life be?
@powerchairchick I could not understand you, I'm sorry. I did read it yes, but I wanted a direct reply for further clarification, thank you. By normal life, I mean things such as going out with friends to clubs, going to the cinema with your boyfriend alone, getting dressed, being able to style your hair on your own, put your own make-up on, order yourself a take-out and so and so forth. Just everyday things that everyday people do without thought or without any hindrance in the slightest.
@XxXxSeasonxXxX i meant that as a retorical question. just because i need assistance with things doesnt mean my life isnt "normal." i plan on leading a perfectly normal life. 1 that involves a good job, a husband & kids
@powerchairchick Also, I understand your need to be defensive when people say certain things that you don't agree with, but I think you can be a little understanding towards people who haven't known anyone in this position or is in this position, and I think that their comments reflect on that, but I don't think you need to be offended, or get a little bitter, because like you said, you're putting out this video to get people aware, and they're just examining, and questioning certain things.
honestly, i don't know how to answer that because i don't really notice it. i've had them my entire life. most of the time, my mind is preoccupied with other thoughts. this might sound weird but the only time i notice how much i move is when i look in the mirror or watch my videos back.
Thank you for sharing this video. It is so important for people with other disabilities or people without them to see videos like these and lead to better understanding in this world. Please take care and I wish you lots of good things.
I think my daughter (12 years-old and started when she was 10 years-old) has uncontrollable movements too. I never brought her to the doctor. My daughter told me that when she move a certain part of the body she get the uncontrollable movement again. My daughter also told me that sometimes when she stands up she gets the "uncontrollable movement" feeling but if she just stands and not move for a few seconds it's gone. Is there any cure for this or any medicine? PLease help.
i was born with my disability, it didn't just suddenly develop. i would bring your daughter to a neurologist and see what they say. did you mention it to her GP?
I really admire you, my condition didn't start until my 30's and I'm losing ability to coordinate muscles. Mine's not nearly as bad as yours yet, but I only had it 7 years. Sorry to ask again but can you tell me what you are saying in this explanation of your disability please?
This has really opened my eyes to how other people feel struggling to understand me when I get frustrated with them cos I'm trying my best to get the words out as clearly as i can!
i know. my speech is probably the most annoying thing about my disability.
i have a mix between athetoid cerebral palsy (causes wiggly, uncontrollable movements) & spastic quad cerebral palsy (causes very tight muscles). cerebral palsy is caused by damage 2 the cerebrum (the part of the brain that controls muscle movements). when i was being born, something blocked my airway. i also had head trauma, which caused bleeding in the brain. i have no balance but i can walk w/ someone holding me.
Do you still have your Bacflofen Pump? I had the Trial for it, and am considering getting the actual thing... Thanks for posting all of these Video Updates!!
Many thanks for your Response!! I do greatly appreciate it!! I have severe Quadriplegic Spastic Athetoid Dystonic CP. I use my Computer with a Head-Pointer/Wand, as I do no have as much control over my hand (actually, my whole body) as what you do. How does having the Pump make you feel all over? In your Video, you were saying how when you are anxious, our spasms/movements are worse. I have this problem as well, and I am wondering whether, or not, you think that the Pump assists you with this?
it sounds like we're pretty similar. i dont feel as relaxed as i hoped i would. im slightly more relaxed. the biggest difference i notice is that i can open my hands easier. like u probably know already, the pump doesnt control athetosis, it controls spasticity & dystonia. so, if ur main issue is athetosis, i wouldnt get it.
unfortunately, it doesnt help much when i get nervous. i was really disappointed about that because that was the main reason y i got it.
Many thanks for all of this. I do really appreciate it!!
I agree, we sound very similar!!! It's nice to have finally "met"' someone who has the same sort of problems as I do! I must admit that I felt a bit disappointed with the Trial; but the Pump is not a cure...it's only supposed to help a little bit. During the Trial though, I felt no pain in my dislocated right hip.
Have you tried: "Camera Mouse", and: "The Grid"? These may make typing quicker for you. You can download it...
Many thanks for all this. I appreciate it greatly!! I agree, we sound very similar It's nice to have finally "met" someone with the same sorts of problems! I admit, I was disappointed with the Trial. However - during it - I felt no pain in my dislocated right hip. I guess it's not a cure, and the Pump only serves as an aid
Have you tried: "Camera Mouse", and: "The Grid 2"? These may make typing quicker, and easier, for you... You can download them both for free. All you need is a Web Cam.
i type using a bent pinky finger. my keyboard is miniature & has a keyguard over it (a plastic thing w/ holes) 2 prevent me from hitting multiple keys @ once. i use a joystick as a mouse.
i used to think my life sucked and no boys liked me but i watched this vid and i relized i am so blessed....i started cryin in this vid... :(
thenappfamily 5 months ago
hello!! nice explanation. My sister worked for People with Cerebal P. for many years, but you are by far the most wiggly one ive seen :-) My name is katy,Its nice to meet you.
russell26041980 5 months ago
:o im so sorry.. i feel bad now :L
Mw2QuiiKScOp3z 7 months ago
@Mw2QuiiKScOp3z please don't. There's no reason to. I'm perfectly happy the way I am
powerchairchick 7 months ago 18
Because your speech holds you back from communicating clearly have you considered a device that will assist you to talk and have a conversation?
DrLexinda 8 months ago
@DrLexinda i have a DynaVox that i use when necessary.
powerchairchick 7 months ago 2
Thank you for taking the time to explain what CP is to people who do not know. The more we share knowledge the more barriers and misunderstandings we break down. Keep on educating the world powerchairchick, 'cause the message you're sending is inspirational! :)
MrsRedfox77 10 months ago 5
I'm glad you made this video to help people understand more about cerebral palsy you're a very brave girl for putting you're self out there and and explaining it to them. God Bless you :)
JessieGirl933 10 months ago 3
:( i feel so bad and im series
Noahsp19 10 months ago
@Noahsp19 please don't. There's no reason to. I'm thankful for my abilities and I'm perfectly happy with the way I am. can you do me a favor? Please watch my video called "perceptions of the disabled"
powerchairchick 10 months ago 5
You are proof that the human spirit is unbreakable.
frost010101 10 months ago
Your are an inspiration to all. I am a student majoring in Therapeutic Recreation. I was studying for an exam which involves knowing about certain disabilities. To try and understand more about cerebral palsy I youtubed it and came across your videos. You give me motivation to pursue this career and would someday love to be a TR specialist and become an aid to help people with disabilities. It is inspiring and refreshing to see you are making such a difference. You are amazing! Keep it up!
cmu1642 11 months ago
What is this disiability called? or what muscle problem is this callled?
bboypinoy21santos 11 months ago
@bboypinoy21santos a combination of athetoid and spastic quadriplegic cerebral palsy. I explained it in the video as well as typed it in the description. click "see more" under the video to read it.
powerchairchick 10 months ago
you are just like my friend he is starting to be able to walk with no help at all for about a few min.
Maggie3039 11 months ago
First, thank you for posting your video. I am in nursing school and studying the different types of cerebral palsy. Your video helped me understand the physical aspects of the disorder. Second, your courage is inspiring. Thanks again for your post.
fritomondito 11 months ago
God bless you you are a very brave girl Bless your heart
AshyHusky1 11 months ago
I'm so happy to see that your not going to let your cerbal palsey get in the way of doing things, I have a mild case of cerbal palsey and I let get in my way sometimes, you have inspired me. I just wanted to tell you that you're amazing and noone should tell you any differently!;)
mscraziefulgirl 11 months ago
You're an inspiration! Thank you for sharing your thoughts on your disability.
colin0630 1 year ago
you're inspiration is tremendous! keep being YOU, because youre amazing! i wish more people had the willingness and motivation to express themselves as you did! god bless!
mariabarot1 1 year ago
you are amazing !!!! please keep showing people how great you are through your videos. I did not know anything about cerebral palsy before watching your video, but now i know. I now have tremendous respect for people with this condition.
captainoz2112 1 year ago
You must get so frustrated sometimes and I respect you so much, you are so strong! I wish you the best of luck in everything you do.
luceee4991 1 year ago
Way to go powerchairchick! (awesome ID btw) You rock :)
nursebarbie1 1 year ago 3
@nursebarbie1 thanks!
powerchairchick 1 year ago
you go girl u r my hero
babypandasoresagian 1 year ago
i understood every word you said
igorner people that cant be bothered to learn and take the time to understand
cp it just them being rude
you are so strong
starrycaroline 1 year ago
Im juss letting you know your Saved. you dont know how blessed you are because u get to go to heaven without proving yourself. we have to do right by God. but you , your saved and your so lucky for that. in Jesus name bless you.<3
CFiZzl3andAr4bson 1 year ago
how can you type? or i should say.. how long did it take you to type that description?
severnjeff 1 year ago
@severnjeff i have an adapted keyboard with a guard on it so i don't hit multiple keys at once. see my "how i use a computer" video to see me type. as far as how long it took me to type the description, i'd estimate 30-45 minutes? i don't really keep track of how long it takes me to type things. i can say i don't type very fast, considering i only type with one finger. lol.
powerchairchick 1 year ago
i want to tell you that you're video just been posted on a image board from where they think bullying other people on the internet is funny (im part of them) But this time they've gone to far. Im actually crying when looking at you. I will never be part of this stuff again you inspired me for the rest of my life.
lsdgamer 1 year ago 14
@lsdgamer u have got 2 be shitting me! seriously?! thats f-in nauseating. i guess those idiots never bothered reading the description. can i get it taken off somehow?
powerchairchick 1 year ago
@lsdgamer WHAT IS THIS WEBSITE?? I want to have access to it and ask them to remove it!!!!!
JScotto127 1 year ago
@lsdgamer can u message me(go 2 my channel & click "send message") the link 2 the site please? i dont think youtube allows links 2 be posted in comments. thanks.
powerchairchick 1 year ago
@powerchairchick
Sorry i' was away for a long time but i got it off with the help of a friend ^^, I'm very sorry and i really hope the didn't attack you in any way!
lsdgamer 1 year ago
whats the point with this? cant even hear what u say :S
vire123456789 1 year ago
@vire123456789 wut i say is typed in the description under the video
powerchairchick 1 year ago
i feel sorry for you.I hope noone makes jokes about you because than they are just dumb ;)
Mihkellt 1 year ago
@Mihkellt there is no reason to feel sorry for me. im perfectly happy the way i am
powerchairchick 1 year ago 39
@powerchairchick Kudos to you powerchairchick! you go girl!!!!!
hippyable 1 year ago
@powerchairchick Iam glad you can get over your cerebal palsy and move on with life I had hard times to I was vaccined by the MMR vaccine I now have autism from the vaccine itself my parents don't have it but I got injected it's sad but true and I hope people understand that cerebal palsy and autism is not funny it's a serious problem.
KatyPerryandKeshaFan 1 year ago
Thank GOD George Bush is gone now. Hope Obama can run a stem cell program to restore the people who are disabled
chickendoesit 1 year ago
@chickendoesit im all 4 stem cell research also but not entirely 4 my own personal gain. i wanna see individuals with life-threatening disabilities/diseases helped 1st. my lifespan isn't cut short because of my disability & i'm perfectly happy the way i am. the brain is the,most complex organ that humans have and it wouldn't shock me if they don't find a way to reverse brain damage in my lifetime.
powerchairchick 1 year ago
Oh okay
I am disabled also (ADHD, and DHH)
chickendoesit 1 year ago
@chickendoesit Oh what has Obama done for stem-cell research? Nothing! He's a liar and scumbag.
manco82 1 year ago
Thanks powerchairchick for enlightning all of us. It's helpful to have your summary but equally, when listening carefully, I can understand what you're saying. I'm interested in knowing how easy it is for you to interact with a computer i.e. using MSN, Facebook, emails etc.(My students are on these a lot of the time), and what features could be added to a computer to make interaction easier for you. I admire your 'can do' attitude, and your nice tidy room :-)
YoureGuilty 1 year ago
@YoureGuilty thanks! i actually have a video about how i access computers. it won't let me post the link here but if you go to my channel, there is a list of all my videos. click on the 1 called "how i use a computer"
powerchairchick 1 year ago
Thanks for the video! You know, it drives me crazy when people that that individuals with cerebral palsy are mentally challenged. I have a classmaate in law school who has CP - she is literally at the top of our class!
silentobservor 1 year ago
You've got the right attitude. You have no reason to be annoyed because you've been blessed by god. You have great parents and by the looks of things your doing great. You go to school, your well educated so don't feel different because no ones perfect. I believe everyone has a disability, whether they know it our not, it could be small or a big one, physical or mental!
hearns00001 1 year ago
it must be so damn annoying for you
ParticleJesus 1 year ago
@ParticleJesus the only thing that's annoying for me is people's ignorance regarding disabled people. my disability itself doesn't annoy me at all
powerchairchick 1 year ago
i really admire your courage and determination towards life... And I pray to God to give you good health and a good life further....
ketan9728 1 year ago
I went to school with someone like you. His name was Marty. He was placed with a person that would take his notes for him and help him out because he could not control his motor skills either. He was so intelligent and amazing! He got high grades in all of his advanced classes and I found them difficult.
jessibooroo 1 year ago
God Bless You, your strength and courage is inspiring and hope you can have access to any treatment which helps you. Stay strong!
chrisleo33 1 year ago
God Bless You, your strength and courage is inspiring and hope you can have access to any treatment which helps you. Stay strong!
chrisleo33 1 year ago
thank you so much for this video i have grown up with cp not really understanding it and why people look at be funny for talking a little diffrent and not being able to spell and read very well you are a great person for taking the time to help everyone understand thank you again
dykealicious23 1 year ago
Nicole, I do have a question; when you are quiet (not talking, when you are sleeping), does your body have time to rest and get to stop moving?
sallydan1 1 year ago
I do have a question; when you are quiet (not talking, when you are sleeping), does your body have time to rest and get to stop moving?
sallydan1 1 year ago
@sallydan1 yes. i cant tell u 4 sure if i move a little in my sleep because i havent had any1 watch me sleep 4 a long period of time
powerchairchick 1 year ago
Aw this is so sad I hope your doing well :)
Scenesarah24 1 year ago
@powerchairchick when you were little did you take speech and physical therapy? also you should do a video of how you operate your chair and communication device. maybe you could do a video with your aid interviewing you with some questions!
iNuggetify 1 year ago
@iNuggetify yes, & occupational therapy. i still get physical therapy.
thanks 4 the ideas!
powerchairchick 1 year ago
So does your brain function normally but you just can't comunicate that throught your body? I sometimes see people talking to people in your circumstance and they say things like "yay" and "good job" like the person is 3 years old or something. Do you get that? Does that bother you?
ThinIce27 1 year ago
@ThinIce27 i guess u can say that. the part of my brain that is responsible 4 controlling muscle movement is damaged but the part of my brain that is responsible 4 controlling intelligence is perfectly fine. yes, i get treated like a 3 yr old all the time. thats y i make these videos; 2 educate the ignorant.
powerchairchick 1 year ago
you're blessed,your abilities out weights what you're not supposed to be capable of doing.doctors and specialists can't get it right.you look like you're living your life very well.
smurfsgot1 1 year ago
Ive been researching Cerebral Palsy for an assignment and I wanted to know if you could answer one of the questions . what are some helpful intervention strategies that you and your family use to deal with Cerebral palsy? I would really appreciate it .
deadboylover 1 year ago
@deadboylover im not quite sure wut u mean by "intervention strategies." its kind of vague. can u be more specific? do u mean how i go about daily activities? how my family & i mentally deal w/ cp? how we adapt? if i do anything 2 decrease the symptoms of cp?...
powerchairchick 1 year ago
AHHH,Im doing a project for cerebral palsy.
Jinisinsane 1 year ago
@Jinisinsane for or about cerebral palsy? if ur doing a project about cerebral palsy & u have questions, feel free to ask
powerchairchick 1 year ago
@powerchairchick yeah Im a med student so we just finished reporting about it yesterday.
Jinisinsane 1 year ago
Hi. I was wondering if I was the only one who had no brain, looks like I found somebody else.
DeaneRenata 1 year ago
@DeaneRenata please do me (& yourself) a favor and read the description of this video. maybe you'll learn something
powerchairchick 1 year ago
@DeaneRenata Hey jerk, try doing your research. She explained it for a reason. People can be so ignorant...
flj7 1 year ago
may God bless you always...
akoxatau 1 year ago
You are most welcome more power to your elbow - as we say in England!
All the best. :-)
jnmklo9 1 year ago
Powerchairchick I listened very carefully and caught most of it and when I read your explanation I realised what I'd missed. I think you are top and it's a great video - to any of the naysayers I simply say it's not powerchairchick's fault her brain got damaged and it took some effort to verbalise the detail with less coordination than most people.
Powerchairchick you rock.
jnmklo9 1 year ago
@jnmklo9 thank u :-)
powerchairchick 1 year ago
no offence but u cant understand her so why did she make a videos??
JoeyHD2 1 year ago
@JoeyHD2 just read this: i have a mix between athetoid cerebral palsy (causes wiggly, uncontrollable movements) & spastic quad cerebral palsy (causes very tight muscles). cerebral palsy is caused by damage to the cerebrum (the part of the brain that controls muscle movements). when i was being born, something blocked my airway & the lack of oxygen caused brain damage. i also had head trauma, which caused bleeding in the brain. i have no balance but i can walk w/ someone holding me... (cont)
powerchairchick 1 year ago
@JoeyHD2 ...many people assume that i'm mentally challenged, when in fact i'm NOT.
if i had time 2 caption my videos, i would.
powerchairchick 1 year ago
@JoeyHD2 Because she has a point to prove about people with cerebral palsy! Please stop being so shallow.
msdontprocrastinate 1 year ago
I get patronized a lot too; having ADD, minor brain damage and being somewhat of an introvert, people just assume I'm 'stupid' or aloof, thanks a lot for making these videos - you seem so brave and willing when these insurmountable odds have been placed on your shoulders, you truly are an inspiration to all.
grenade0wnyou 1 year ago
Ur brave and have alot of courage. i wouldnt be able to make a vid of me if i had any disability =]
Jessie6870 1 year ago
@Jessie6870 y not? wouldnt u want ppl better understand ur disability if u had 1 & let the ignorant know 2 not treat u like a toddler? im trying 2 make the lives of disabled ppl easier when they go out in public. the more ignorant ppl who watch my videos, the more ppl that will properly treat disabled ppl & just see them as ppl, rather than as "disabled" ppl. :-)
powerchairchick 1 year ago
@powerchairchick hope this dnt sound to corny or weird but u are a cutie plus if give u a foot massage anyday
JoeyHD2 1 year ago
You have a lot of courage! Keep it up!
Gigi13243 1 year ago
You're amazing. :)
lilyampersand 1 year ago
I can understand how you feel - I have dystonia, and it makes my tongue, lips & jaw basically have a mind of their own. I have a lot of trouble talking - it annoys me so much when people assume that I have some problem thinking, when I absolutely do not.
whoa10wholepacks 1 year ago
@whoa10wholepacks yea. it drives me nuts!
powerchairchick 1 year ago
You are braver then me
I have the same exact disability as you
themycommunity 1 year ago
Youre an inspiration to me,dear....Keep going ! I have Cerebral Palsy as well,but I was lucky enough not to be in a wheelchair.God bless ya! Take care!
naibastie 1 year ago
What did you say from @3:00 to the end? Sorry I couldn't understand you that well and I would love to know what your saying.
gLeekFreek66 1 year ago
I'm just so happy to see this and read your replies, and hear how strong you are. I would assume it would be hard or frustrating for you, but you still sit there, with confidence and pride and are able to tell the world that you are no different than anyone else. This could happen to anyone, and I think your an amazing person to put this video out there to talk about your disability so candidly. Thank you!
aschwer79 1 year ago
@aschwer79 thanks. i guess im just tired of living in a world where disabled ppl (4 the most part) arent understood by the general public.
powerchairchick 1 year ago
I love you; and I'll keep you in prayer.
musicorey 1 year ago
OMG! we're like exactly the same! im going n2 8th grade.
mslatinchickify 1 year ago
Your amazing, my girlfriends sister has cerebral palsy but has little to no movement, she cannot speak at all and only responds by smiling sometimes to what people are saying. I really dont know how to figure out if she knows what is going on. Some people talk to her like a baby, which they do meaning no harm, but she is 27 years old and I've read many articles on cerebral palsy and most say that it only effects movement and motor skills. Do you think she knows what is going on all of the time?
forbes400 1 year ago
@forbes400 thanks. no one gave her a communication device? there r devices that can be operated by a head switch or even eye movement. it's difficult 2 tell if a person like ur gfs sister is mentally challenged or not if she never had a way 2 communicate. was she ever seen by a speech pathologist? when a non-verbal person w/ little 2 no movement who had no communication device came 2 the school i went 2, ppl would ask them yes/no questions & have them respond w/ their eyes...
powerchairchick 1 year ago
@forbes400 ...4 example, they would ask if they wanted 2 get out of their chair & tell them 2 look left (u can point 2 the left also) 4 yes & look right 4 no.
powerchairchick 1 year ago
wow you are a brave girl, cant believe you were able to learn and make videos with your disability, even though i'm guessing its not too hard from your point of view.I'm
definitely going to subscribe because you have a good sense of humor and show people how you do things with your difference.
xkruulx 1 year ago
@xkruulx my disability doesnt affect my intelligence, so, its not a stretch that im intelligent. im actually a big computer geek so making youtube videos was/is a cinch. :-) thanks!
powerchairchick 1 year ago
I hope you dont cry for a life you never knew i hope with friends and family in sprit you grew .
with guidence from of a friend you have hope to lend . Someone some time will look at you and see just you.
and the chair is just an extention of you but it is not you . If you know in your hear that somewhear inside of that shell lies a person .
someone who wants more than anything to be like everyone alse . but you cant be . and as you are you no matter what people see outside
mcfr23 1 year ago
@mcfr23 y would i cry? my life is great. i am like "everyone else." i go to college, i have aspirations...just because my physical needs are a little different doesn't mean i'm not like able-bodied people
powerchairchick 1 year ago
hi where do u live? o)
sk8ergurl1200 1 year ago
@sk8ergurl1200 ny
powerchairchick 1 year ago
@powerchairchick where in ny,i live in ny also,would love to meet you
lovelyme63 1 year ago
@lovelyme63 where in ny do u live?
powerchairchick 1 year ago
Thank yo so much for putting this up it has really inspired me
dylan7147 1 year ago
More power to ya! I knew somebody in high school with CP and I always talked to him before lunch. He'd get out of class early so he wouldn't get overrun by everybody else(and I'd sneak out LOL) and we'd tease each other about being ditchers. Fun times :) I think he had athetoid CP because he wiggled a lot too.
WeirdGirlCyndi 1 year ago
powerchairchick,I have heard that a lot of cp people have no problem with intellect only that you're trapped in a body that doesn't quite work right. God bless you!
BCAD01 1 year ago
@BCAD01 basically, yes.
powerchairchick 1 year ago
You go girl! keep up the videos and get your word out, You could chance the world.
hottopicgirlacdc 1 year ago
@hottopicgirlacdc will do :-)
powerchairchick 1 year ago
You are so pretty!
rockshow1806 1 year ago
I have a really ignorant question, sorry.
I've met a few people who appear to have the same disability as you, but I'm just wondering, and don't kill me for being ignorant - but does your brain function like a 'normal' persons does? I mean is your intelligence impaired? Furthermore, this might sound terrible but I have to ask - are you happy with your life? You of course know you will probably never lead a normal life - how does this affect you? I am sure I would not have the strength 2 go on
XxXxSeasonxXxX 1 year ago
@XxXxSeasonxXxX im sorry but did u watch this video or read the synopsis in the video description? i clearly said & also wrote "many people assume that i'm mentally challenged, when in fact i'm NOT." u really should listen to me speak before asking something like that.
yes, i am happy with my life.
excuse me, but what do u mean by i will probably never lead a normal life? fyi, i graduated high school valedictorian & im in college. how much more normal can my life be?
powerchairchick 1 year ago
@powerchairchick I could not understand you, I'm sorry. I did read it yes, but I wanted a direct reply for further clarification, thank you. By normal life, I mean things such as going out with friends to clubs, going to the cinema with your boyfriend alone, getting dressed, being able to style your hair on your own, put your own make-up on, order yourself a take-out and so and so forth. Just everyday things that everyday people do without thought or without any hindrance in the slightest.
XxXxSeasonxXxX 1 year ago
@XxXxSeasonxXxX i meant that as a retorical question. just because i need assistance with things doesnt mean my life isnt "normal." i plan on leading a perfectly normal life. 1 that involves a good job, a husband & kids
powerchairchick 1 year ago
@powerchairchick Also, I understand your need to be defensive when people say certain things that you don't agree with, but I think you can be a little understanding towards people who haven't known anyone in this position or is in this position, and I think that their comments reflect on that, but I don't think you need to be offended, or get a little bitter, because like you said, you're putting out this video to get people aware, and they're just examining, and questioning certain things.
msdontprocrastinate 1 year ago
what a bitch.. lol the damn cp, not you dear.. :) i have it too.. rock on little sister
65kellys 1 year ago
@65kellys i dont mind it
powerchairchick 1 year ago
How does it feel to make all those movements? does it feel like someone is moving you or more like a twitching feeling?
splatgoesthefrog 1 year ago
honestly, i don't know how to answer that because i don't really notice it. i've had them my entire life. most of the time, my mind is preoccupied with other thoughts. this might sound weird but the only time i notice how much i move is when i look in the mirror or watch my videos back.
powerchairchick 1 year ago
Thank you for sharing this video. It is so important for people with other disabilities or people without them to see videos like these and lead to better understanding in this world. Please take care and I wish you lots of good things.
bodryn 1 year ago
u dont get tired to do a lot of movements?
heleniita25 1 year ago
yea but i learned 2 deal
powerchairchick 1 year ago
I have CP as well and I HATE when people link CP with mental retardation.
outjewed 1 year ago
I think my daughter (12 years-old and started when she was 10 years-old) has uncontrollable movements too. I never brought her to the doctor. My daughter told me that when she move a certain part of the body she get the uncontrollable movement again. My daughter also told me that sometimes when she stands up she gets the "uncontrollable movement" feeling but if she just stands and not move for a few seconds it's gone. Is there any cure for this or any medicine? PLease help.
world1peace2008 1 year ago
i was born with my disability, it didn't just suddenly develop. i would bring your daughter to a neurologist and see what they say. did you mention it to her GP?
powerchairchick 1 year ago
I really admire you, my condition didn't start until my 30's and I'm losing ability to coordinate muscles. Mine's not nearly as bad as yours yet, but I only had it 7 years. Sorry to ask again but can you tell me what you are saying in this explanation of your disability please?
This has really opened my eyes to how other people feel struggling to understand me when I get frustrated with them cos I'm trying my best to get the words out as clearly as i can!
Katilea69 1 year ago
i know. my speech is probably the most annoying thing about my disability.
i have a mix between athetoid cerebral palsy (causes wiggly, uncontrollable movements) & spastic quad cerebral palsy (causes very tight muscles). cerebral palsy is caused by damage 2 the cerebrum (the part of the brain that controls muscle movements). when i was being born, something blocked my airway. i also had head trauma, which caused bleeding in the brain. i have no balance but i can walk w/ someone holding me.
powerchairchick 1 year ago
Good luck to you, beautiful girl. You are a real fighter.
amputeesuperadmirer 1 year ago
I wanna give you a hug.
it must be hard living like that. I bet alot of things are going through your mind.
But take care, Stay strong :)
deGUEV 2 years ago
its not hard. i look at it this way: u cant miss wut u never had. i know no other way of life.
powerchairchick 2 years ago
@powerchairchick
heh ur not really missing much anyways. where r u from?
skeptic9991 1 year ago
ur pretty
Stsfan7 2 years ago
this is as good as im gonna get. cerebral palsy cannot be cured. brain damage is permanent.
powerchairchick 2 years ago
Do you still have your Bacflofen Pump? I had the Trial for it, and am considering getting the actual thing... Thanks for posting all of these Video Updates!!
sarejarm 2 years ago
yes, i do. if u have questions, feel free 2 ask.
np.
powerchairchick 2 years ago
Many thanks for your Response!! I do greatly appreciate it!! I have severe Quadriplegic Spastic Athetoid Dystonic CP. I use my Computer with a Head-Pointer/Wand, as I do no have as much control over my hand (actually, my whole body) as what you do. How does having the Pump make you feel all over? In your Video, you were saying how when you are anxious, our spasms/movements are worse. I have this problem as well, and I am wondering whether, or not, you think that the Pump assists you with this?
sarejarm 2 years ago
@sarejarm can i answer u on the weekend? i type really slowly, i wanna give u a good explanation but i have a ton of hw right now.
powerchairchick 2 years ago
Yes... Certainly!! Thank you SO EXTREMELY much for wanting to help me!! All the best with your Homework... --Sare--
sarejarm 2 years ago
it sounds like we're pretty similar. i dont feel as relaxed as i hoped i would. im slightly more relaxed. the biggest difference i notice is that i can open my hands easier. like u probably know already, the pump doesnt control athetosis, it controls spasticity & dystonia. so, if ur main issue is athetosis, i wouldnt get it.
unfortunately, it doesnt help much when i get nervous. i was really disappointed about that because that was the main reason y i got it.
hope this helped!
powerchairchick 2 years ago
Many thanks for all of this. I do really appreciate it!!
I agree, we sound very similar!!! It's nice to have finally "met"' someone who has the same sort of problems as I do! I must admit that I felt a bit disappointed with the Trial; but the Pump is not a cure...it's only supposed to help a little bit. During the Trial though, I felt no pain in my dislocated right hip.
Have you tried: "Camera Mouse", and: "The Grid"? These may make typing quicker for you. You can download it...
sarejarm 2 years ago
@sarejarm i have hip problems also. mine is w/ my ITB's (the band that goes from the hip 2 the knee). they ssnap a lot & sometimes cause pain.
camera mouse is cool but i have more control over my left hand then i have over my head. i have adaptive equipment, so its not so bad
powerchairchick 2 years ago
Many thanks for all this. I appreciate it greatly!! I agree, we sound very similar It's nice to have finally "met" someone with the same sorts of problems! I admit, I was disappointed with the Trial. However - during it - I felt no pain in my dislocated right hip. I guess it's not a cure, and the Pump only serves as an aid
Have you tried: "Camera Mouse", and: "The Grid 2"? These may make typing quicker, and easier, for you... You can download them both for free. All you need is a Web Cam.
sarejarm 2 years ago
Hi Nicole. I was just wondering if you are able to feed urself or if u need help. x
johncomrie 2 years ago
i need help. i can stab food w/ a fork & eat that way, but i cant balance food on a fork or spoon; it ends up all over the place. lol.
powerchairchick 2 years ago
@powerchairchick Theres adaptive equipment to help you eat, feed things to your mouth, you should check it out! (:
msdontprocrastinate 1 year ago
you seem a lot better then before.
i am curious, how do you type with Quadraplegic??
usually wouldnt it be hard for you to open your hand ??
shufanchen 2 years ago
i type using a bent pinky finger. my keyboard is miniature & has a keyguard over it (a plastic thing w/ holes) 2 prevent me from hitting multiple keys @ once. i use a joystick as a mouse.
powerchairchick 2 years ago