thanks for sharing, lymphedema does definitely SUCK, been dealing with it for some years not but I did get therapy and im in remission although as you said, it will never completely go away
thank so much for sharing your story, I have been suffering from lymphedema in my scalp/had/neck a result from an MRSA infection. I hope that your journey leads you to a place of better health.
What irritates me is people pronounce lymphedema incorrectly and when my folks do it I get madder. They don't care yet have ideas out their tush which I don't need but don't know how to respectfully say MYOB. Its frustrating. I have night boots from my feet to my mid thigh. I don't make it to the toilet at night and get the pee in my boots so hubby has to get up take off the boots and rinse them; dry them put them back on. Thank goodness I don't have cellulitis or skin breakdown.
thank you for your video. i have had lower leg lymphedema for 30 years now. my leg looks like a tree trunk. i'm a hairstylist & i love it, but my leg has finally put a damper on my career. the lady who sold me my flexitouch pump said that in medical school, doctors spend an average of FIFTEEN MINUTES learning the lymphatic system! wtf? i've been to so many dr.s over 30 years that i lost count after 50 or so. there really is nothing they can do. nice to see ppl like you speaking out. thanks again
@peacelovehippychick HI! Thank you for the nice comment. It means the world to me : ) I think it is such a sad state of affairs when Dr.s know nothing about lymphedema. I was sick and swollen for a looooong time before Dr.s knew what was actually wrong with me and even then - there was not a lot they could even tell me. Mostly, we just learn on our own or from each other.
I think that I am going to do another lymphedema vid soon - there was so much I left out. xo
@Marianahism hi,i'm quite sure i have a very mild form of lymphatic malfunction.i notice that when i eat lightly or after exercise i feel a lot better,less puffy and my skin gets a better color.is it the same for you?
@geiuy Since my lap band surgery I have had no complications with my lymphedema - it has actually nearly gone away completely. When it was very bad I could not exercise at all because I would get swollen, I was in pain & I would get cellulitus. But yes, now that everything has calmed down these things help a lot!
I have Primary Lymphedema from my finger tips to the shoulder of my right arm. I wasn't diagnosed until I was 27 years old. All the knowledge about this condition I have gleaned from my own research. I have a compression sleeve and gauntlet and a FlexiTouch pump that I use for one hour once a day.
I feel so guilty sometimes. My mother makes me feel like it's my fault for not exercising and controlling my weight over the years, :(. I had 3 months of inpatient therapy and lost 100 lbs, and my legs were so-so, but after I went home, got depressed again, and here I am all swollen with an open place on my left thigh, yuck, so I am on antibiotics. What do you think about the pumps? Some therapists say yes, others say it's dangerous? wft? Help!! Thanks for your testimonial. !
if you watch this new video "The Journey" by Freda Whalen, she tells you soo much about how to deal with lymphedema be it from breast cancer (in her case) but also in the lower limbs. She explains so much to help you out. Take a look. It's here in the listings, came in 2 days ago.
thank you for posting this! i have lower leg lymphedema and struggle with weight too, i've had such a hard time getting help its good to know im not alone although im sorry that you have to deal with this, i hope you will find relief soon honey! thank you for the tips, they are so much more meaningful coming from someone who actually understands what its like. also cool makeup/hair! its nice to see other alternative ladies to relate to on this although im sorry that you have to go through it
thanks so much for the video at least I know I am not alone and today I am sick and not happy today I knew I was sick before I really got sick but you're right listen to your body .
@emergart06 Thank you so much : ) I hope that you feel much better soon! And you are never alone - feel free to email me if you ever need someone to talk to - marigrrrl@yahoo.com
thanks for sharing, lymphedema does definitely SUCK, been dealing with it for some years not but I did get therapy and im in remission although as you said, it will never completely go away
GreenEyezLiz 1 month ago
thank so much for sharing your story, I have been suffering from lymphedema in my scalp/had/neck a result from an MRSA infection. I hope that your journey leads you to a place of better health.
cloudninefamof4 1 month ago
What irritates me is people pronounce lymphedema incorrectly and when my folks do it I get madder. They don't care yet have ideas out their tush which I don't need but don't know how to respectfully say MYOB. Its frustrating. I have night boots from my feet to my mid thigh. I don't make it to the toilet at night and get the pee in my boots so hubby has to get up take off the boots and rinse them; dry them put them back on. Thank goodness I don't have cellulitis or skin breakdown.
pearlhanna1 3 months ago
thank you for your video. i have had lower leg lymphedema for 30 years now. my leg looks like a tree trunk. i'm a hairstylist & i love it, but my leg has finally put a damper on my career. the lady who sold me my flexitouch pump said that in medical school, doctors spend an average of FIFTEEN MINUTES learning the lymphatic system! wtf? i've been to so many dr.s over 30 years that i lost count after 50 or so. there really is nothing they can do. nice to see ppl like you speaking out. thanks again
peacelovehippychick 4 months ago
@peacelovehippychick HI! Thank you for the nice comment. It means the world to me : ) I think it is such a sad state of affairs when Dr.s know nothing about lymphedema. I was sick and swollen for a looooong time before Dr.s knew what was actually wrong with me and even then - there was not a lot they could even tell me. Mostly, we just learn on our own or from each other.
I think that I am going to do another lymphedema vid soon - there was so much I left out. xo
Marianahism 4 months ago
@Marianahism yay! you're speaking out for those of us who are hiding in the woodwork.
peacelovehippychick 4 months ago
@Marianahism hi,i'm quite sure i have a very mild form of lymphatic malfunction.i notice that when i eat lightly or after exercise i feel a lot better,less puffy and my skin gets a better color.is it the same for you?
geiuy 3 weeks ago
@geiuy Since my lap band surgery I have had no complications with my lymphedema - it has actually nearly gone away completely. When it was very bad I could not exercise at all because I would get swollen, I was in pain & I would get cellulitus. But yes, now that everything has calmed down these things help a lot!
Marianahism 3 weeks ago
I have Primary Lymphedema from my finger tips to the shoulder of my right arm. I wasn't diagnosed until I was 27 years old. All the knowledge about this condition I have gleaned from my own research. I have a compression sleeve and gauntlet and a FlexiTouch pump that I use for one hour once a day.
TheJonellesherree 4 months ago
Have you tried compression garments? Farrow wraps? These garments cutdown on wrapping time! Good luck god bless!
thecompressionshop 6 months ago
I feel so guilty sometimes. My mother makes me feel like it's my fault for not exercising and controlling my weight over the years, :(. I had 3 months of inpatient therapy and lost 100 lbs, and my legs were so-so, but after I went home, got depressed again, and here I am all swollen with an open place on my left thigh, yuck, so I am on antibiotics. What do you think about the pumps? Some therapists say yes, others say it's dangerous? wft? Help!! Thanks for your testimonial. !
myrac2011 6 months ago
if you watch this new video "The Journey" by Freda Whalen, she tells you soo much about how to deal with lymphedema be it from breast cancer (in her case) but also in the lower limbs. She explains so much to help you out. Take a look. It's here in the listings, came in 2 days ago.
213southernbelle 8 months ago
thank you for posting this! i have lower leg lymphedema and struggle with weight too, i've had such a hard time getting help its good to know im not alone although im sorry that you have to deal with this, i hope you will find relief soon honey! thank you for the tips, they are so much more meaningful coming from someone who actually understands what its like. also cool makeup/hair! its nice to see other alternative ladies to relate to on this although im sorry that you have to go through it
flowersandrobots 9 months ago in playlist Mmmarch
thanks so much for the video at least I know I am not alone and today I am sick and not happy today I knew I was sick before I really got sick but you're right listen to your body .
much love for ya NZ
emergart06 11 months ago
@emergart06 Thank you so much : ) I hope that you feel much better soon! And you are never alone - feel free to email me if you ever need someone to talk to - marigrrrl@yahoo.com
Marianahism 11 months ago