Living with Multiple Sclerosis - Summer heat and Tysabri

[nsirgado]

hey laurenparrot,l i know what u mean, i live down here in miami, very hot, work nights, still humid, love music i work out with arm curls and do lots of pushups, but my legs then start to hop and down, well your videos help, havent started yet with tysabri yet, have appt on jan, im on fmla as of oct suffured 2nd relapse in 5 years, not bad but now im on work disability, and i would like my life back

[laurenvparrott]

I hope that your appointment goes well in January! Please let me know what happens! I hope the weather isn't too hot right now!

[oldfart442]

Hi Lauren,

thanks for the posting. I was diagnosed with MS in 1994. I have a lot of trouble with heat same as you , and everybody else does. Have you looked into vests with cooling packs in them? They are sold as heat protection devices, mainly for the construction trades. They have re freezable bags that then are put in a vest with pockets made for the bag. Not too pretty, but they will extend the temperature range you can tolerate. Good Luck!

FYI - You are still young! Mike-48 w/ MS

[laurenvparrott]

Hi Mike! Thank you for the suggestion! I will definitely look into a vest like that. I wish you the best!

[medad1]

Hi Lauren from Mohammed, im a multiple sclerosis patient from Saudi Arabia since 1992,thank you for all valuble infromation about Tysabri.

bye

[laurenvparrott]

Thank you so much for writing! Good luck with everything and please keep in touch!!

[vincekelly1]

Hi Lauren,

Thanks for the videos and insights!

I was wondering about your walking/gait. How far can you walk at a stretch? a mile? more? how was it before Tysabri?

[laurenvparrott]

Thank you for writing! I can walk for about a mile and then I need to rest. My overall physical abilities improved after taking Tysabri, but I do still get tired easily.

[laurenvparrott]

Hi Omar! Thank you so much for your comment! I know, I HATE the summer. I couldn't go to a wedding in Tennessee either because it was too hot and humid for me. I totally understand. I hope you are making the best of it - stay cool - it won't last for too much longer!!

[omexmc80]

you are looking great, wish i could enjoy summer again, my brothers getting married in a hot country next week and i cant go because of my MS.. oh well its good to see you feeling better..

Omar

[graecotha8]

Lauren, thank you so much for your videos. I'm 34 and have had MS since I was 16. I'm going to be having my 2nd Tysabri treatment next week and am having high hopes of getting the same results you have. After the first one, I felt horrible but like you said Was it because I would feel horrible anyway or because of the tysabri? Hope you are having a great summer.

[laurenvparrott]

Thank you for writing! I'm so glad that you're keeping an open mind. There are lots of reasons why you could have felt horrible, so I would give it another shot.

I hope you're having a great summer too!

Lauren :)

[vincekelly1]

Hi Lauren,

I have an odd question, did you ever smoke (cigarettes)? I ask cuz my physician tells me that my smoking is bad for my MS and so I'm thinking of stopping (I should quit anyway). Just curious to find MSers and ask them...

[laurenvparrott]

Hello! No, I have never smoked cigarettes. I do know that people who have MS and do smoke have more problems, so I would suggest quitting. I know it's really hard to, but it can only help you!

[memama2]

Lauren!: when I need a lift, and a smile, I think? "wonder if Lauren has done any videos lately!?" and luckily for me, you had done one I had not seen yet! You have encouraged me to try to exercise again. It is discouraging when I used to hike on mountain trails and worked and walked from dawn till dusk! You have to make the most, of each day God has given, and to see you doing that gives me a lift. I loved your dress(woohoo:girls can say that to each other)hope the wedding day was fun.Louann

[laurenvparrott]

Hi Louann!! You are so sweet! I'm so glad that you're going to exercise again!! I definitely miss running, but now I LOVE the ellipticial! Thank you for saying that about my dress :)

I hope to talk to you soon!!

Lauren :)

[ZxFrancesxZ]

Hello Lauren

It's been quite a while since I've seen your video's and I can't believe the improvement! You look and sound fantastic and I'm so happy for you.

Frances x

[laurenvparrott]

Hi Frances!

It's so great to hear from you! Thank you so much for your sweet comment!!

Lauren :)

[Desinie]

Hi Lauren,

Thanks for your encouraging video. You always make me smile! My best to you!

Desinie

[laurenvparrott]

Hi Desinie! Thank you so much! Your comments always make me smile!!

Lauren :)

[SAS4]

You rock Lauren. It seems that the heat is unbearable for everybody with MS. I've had it since 2002 and it's crazy because I love the Summer heat and HATE the winter months. Anyway, keep up the good work sister. God Bless-----Pat

[laurenvparrott]

Hi Pat! Thank you so much! Wow, good for you. I hope you're enjoying the summer!! God Bless :)

[paulo1149]

Lauren, I'm so glad the Tysabri has been good for you, as it obviously has. I'm also glad you are remaining as active as possible. It's so important to fight back using the tools we have. Ps. 103:3

Paul

[laurenvparrott]

Thank you so much! It is important to fight back - I'm trying my very best. I like 103:3 - it sure makes me feel better! I wish you the best of luck :)

[greenelc]

You are amazing! Your strength over the years is truly unbelievable. Thank you for sharing your self. It was so wonderful to watch all your videos and feel like I was sitting in the room with you.

[greenelc]

oops, on my sisters account, its T.G your first kiss and drink...

[laurenvparrott]

Thank you so much!!! You are so sweet!

[paulohumemoto]

Do you know the best way I have to keep the smile on my face? Watching your videos! :)

[laurenvparrott]

Hi Paulo!! You are SO SWEET!! Thank you for saying that!! I hope you are doing well!

[7mumfred7]

"...and as long as everything stays inside my dress..."

What's this ? And I thought it was a nice R-rated show !!!

[laurenvparrott]

Hahahaha...it's always been a problem for me!! That's another reason why I don't like the summer - clothes don't cover much!

[jermeal385]

the heat does that to me also i watch you and other ms/er video imma make one soon keep ejoying life best wishes p.s luv ya smile it's pretty

[laurenvparrott]

Hey!! I can't wait to see your newest video. Good luck with the heat!! Thank you for your comment :)

[carlogiovanni]

Hey Lauren! I'm sorry I've not been up to date with your progress, BUT I got a new internet connection so I'm definitely going to go back and see as many as I can, then send you a nice big email! Miss chatting to you. You look amazing! Carl xx

[laurenvparrott]

HI CARL!!! It's so great hearing from you! I'm so glad you got a new internet connection. I can't wait to catch up!! Thank you for your comment!!

[dmplaura]

Looking great girl! Send that big smile up my way to warm up our freezing temperatures a bit, ok? :)

[laurenvparrott]

Thank you so much! I wish I could send you the heat!! Cuddle up and stay warm!

[dmplaura]

It's luckily crazy warm/hot and sunny here today! Just in time for Canada Day!

Hope your 4th of July ends up being as beautiful as our holiday! Hugs girl!

[laurenvparrott]

I'm glad you had a nice day! Thank you, I hope it's a nice day too!! xoxoxo :)

[pmonaghan65]

Lauren,

Glad you're feeling better! Hopefully you'll keep headed in the right direction and glad the Tysabri seems to be working for you. Hang in there!

[laurenvparrott]

Thank you!

[tummydesk71]

Hi Lauren, it's good to see the info you give about your progress on Tysabri as it is horrendously expensive here in Oz. It will be subsidised very soon though. I am currently on Betaseron and am going OK, but would be interested in changing to a better medication if it is proven. Because Tysabri is so new though, the neuros here are reluctant to prescribe. They want it to be proven further I think. But I will look at it for the future. You seem to be getting great results. Keep it up, Jodi.

[laurenvparrott]

Hi Jodi! I know, many neuros here are skeptical to put their patients on Tysabri because it's so new, but I'm feeling great and I feel very fortunate!

Good luck with everything!

[luvmyboys1025922]

Lauren, u look so beautiful! Thanks for the positive energy that u continuously give to so many through your vids. Keep smiling and know that I am wishing u continued success with Tysabri. I am so proud of you!!

[laurenvparrott]

Thank you so much!! Your comment is so sweet and I really appreciate it! I wish you the best of luck with everything!!

[WORRO01]

I wish I could give u more than 5 stars. You know, it's not always WHAT you say, it's HOW you say it..Thanks for your video's. Keep your beautiful smile sweetie..

[laurenvparrott]

Thank you so much!!! I want everyone to stay as positive as possible!! It's great hearing from you!!

[OSA503]

You look great Lauren. The heat bothers me enormously. I got central air last year, that helped so much. I also have a cooling vest, but it adds about 15 lbs. Its a little heavy to lug around for long. Its also ugly, I feel like I'm wearing a bullet proof vest...lol..but what can you do. Maybe someone will design some stylish cooling products. I'm glad you're doing well.

[laurenvparrott]

Thank you!! I know what you mean about the cooling vest. My Mom wanted me to wear one but it was too heavy - it wasn't worth it! I wish you the best this summer!

[made2luvhim]

yay im happy for you.

i usually run with fast upbeat music also, it makes you want to keep going, which is nice. i was just in a wedding last june, i was a bride's maid, and it was really fun, so i hope you enjoy yourself.

[laurenvparrott]

Thank you! I can't wait for the wedding, and I'll keep playing that fast music!!

[qualisarx]

Thank you for the update! Communication between everyone is the ultimate key...

[laurenvparrott]

Thank you for writing!!