i have it threw hereditary from my mums side since i was around the age of 3 i am now 20 the doctors wouldnt belive my mum and didnt treat me for it till i was 5.
i still suffer with it now just not as frequently as i did when i was younger.
I've had it for about 5 years now. I'm on pain meds all the time. It sucks. Now when I get admitted, the pain meds in the hospital offer no relief. I would stay home, but I'm extremely diabetic now. I'm also always running some kind of vitamin or mineral deficiency. The clown doctors I get think 5 units of morphine is going to help. It's a sad joke. I got a question, when I get morphine or dilaudid in the hospital it hurts where the pain is for a second before the relief, anybody else?
@joninct i know how you feel. i have gone through that more times then i can count since i was 17, so about 3 years now. and i really do feel sorry for you and i hope everything goes well in the near future. if they find anything that helps you please feel free to let me know.
@paulwilsonmusician You're right, and I did indeed end up in hospital just hrs after my last comment.
I am now being tested for a "Domino" effect of Pancreatitis where my entire endocrine system is buggered, resulting in Addisons disease, Cushings syndrome or others.
Oh and after 9 yrs, I still dont have adequate pain relief. I control it mostly by strict diet, but still have to endure excruciating pain daily.
I am a long time pancreatitis patient and don't take it personal that she can not adequately describe the pain. No one can describe it.
In my case, I fall within the 10% of patients where there is no realized caused. No drug use, no drinking. Just all of a sudden one day I was near death with something I had never heard of. It has been an unreal ride.
Same with my husband! view my channel, you can see several videos of our necrotizing pancreatitis, one in pictures, very graphic at some points...we are 10 months into this disease, 4 surgeries, 5 hospital stays this year alone, we lost our home, jobs, education and ministries in Chattanooga...what type did you have? Would love to talk to others that were near death. on Facebook there is a support group but none there have been on life support and almost died as my husband did.
@cdbicdb My first attack landed me in ICU with the Docs telling my wife I wouldn't make it through the night, they finally said she should go home to rest after 4 days and I was downgraded after 13 days.
I'm 9 yrs in now but the Quacks said I wouldn't live 5. I should count every day as a blessing, but thats a difficult thing whilst doubled up in pain most of the day.
I was in hospital every few weeks, but I stay out as long as i can bear now. Even going nil by mouth at home. Docs dont help.
It is amazing to me how I never heard of such an organ in our bodies until my husband almost died from it. Necrotizing Pancreatitis, it just started dying inside him. No warnings, symptoms, within 36 hours of ER admittance he was on life support!
@easternimports I am up to 2.5 years of dealing with this. But I am doing alright. It is more of an annoyance right now. I take my diabetic meds, work out. Eat a very strict diet and absolutely never drink.
are you a Dr or a reader, Youre eyes ere on the autocue more than the screen! I am having an attack right now whch probably means I'm not very niceto you, but after 8 yrs my first few attacks resulting in ICU, I am still in screaming bloody pain I am probably going to have to dial 999 if it gtets any worse.But put something us unfortunates can use, not what we can find in books or simple googleing!
i have it threw hereditary from my mums side since i was around the age of 3 i am now 20 the doctors wouldnt belive my mum and didnt treat me for it till i was 5.
i still suffer with it now just not as frequently as i did when i was younger.
ckydudejoe 8 months ago
@lmao1776 Thank you.
modzilla732k 1 year ago
I've had it for about 5 years now. I'm on pain meds all the time. It sucks. Now when I get admitted, the pain meds in the hospital offer no relief. I would stay home, but I'm extremely diabetic now. I'm also always running some kind of vitamin or mineral deficiency. The clown doctors I get think 5 units of morphine is going to help. It's a sad joke. I got a question, when I get morphine or dilaudid in the hospital it hurts where the pain is for a second before the relief, anybody else?
joninct 1 year ago
@joninct i know how you feel. i have gone through that more times then i can count since i was 17, so about 3 years now. and i really do feel sorry for you and i hope everything goes well in the near future. if they find anything that helps you please feel free to let me know.
JessiKkaTye 8 months ago
@paulwilsonmusician You're right, and I did indeed end up in hospital just hrs after my last comment.
I am now being tested for a "Domino" effect of Pancreatitis where my entire endocrine system is buggered, resulting in Addisons disease, Cushings syndrome or others.
Oh and after 9 yrs, I still dont have adequate pain relief. I control it mostly by strict diet, but still have to endure excruciating pain daily.
Doc's just don't do enough.
modzilla732k 1 year ago
High blood triglycerides and lipids are associated with it as well. The attack itself is painful beyond description.
marky2112 1 year ago
What an elegant looking lady.
I am a long time pancreatitis patient and don't take it personal that she can not adequately describe the pain. No one can describe it.
In my case, I fall within the 10% of patients where there is no realized caused. No drug use, no drinking. Just all of a sudden one day I was near death with something I had never heard of. It has been an unreal ride.
kimblers 1 year ago
@kimblers
Same with my husband! view my channel, you can see several videos of our necrotizing pancreatitis, one in pictures, very graphic at some points...we are 10 months into this disease, 4 surgeries, 5 hospital stays this year alone, we lost our home, jobs, education and ministries in Chattanooga...what type did you have? Would love to talk to others that were near death. on Facebook there is a support group but none there have been on life support and almost died as my husband did.
cdbicdb 1 year ago
@cdbicdb My first attack landed me in ICU with the Docs telling my wife I wouldn't make it through the night, they finally said she should go home to rest after 4 days and I was downgraded after 13 days.
I'm 9 yrs in now but the Quacks said I wouldn't live 5. I should count every day as a blessing, but thats a difficult thing whilst doubled up in pain most of the day.
I was in hospital every few weeks, but I stay out as long as i can bear now. Even going nil by mouth at home. Docs dont help.
modzilla732k 1 year ago
@modzilla732k
It is amazing to me how I never heard of such an organ in our bodies until my husband almost died from it. Necrotizing Pancreatitis, it just started dying inside him. No warnings, symptoms, within 36 hours of ER admittance he was on life support!
cdbicdb 1 year ago
@kimblers how long have you had pancreatitis. how is it like now? what helps it?
easternimports 1 year ago
@easternimports I am up to 2.5 years of dealing with this. But I am doing alright. It is more of an annoyance right now. I take my diabetic meds, work out. Eat a very strict diet and absolutely never drink.
kimblers 1 year ago
This is a great video, straight forward facts. Got a test tommorow and this helped me clarify somethings, thanks!
cylon21921 2 years ago
I stopped drinking cold turkey because my pancreatitis was so excruciatingly painful!
padude64 2 years ago
are you a Dr or a reader, Youre eyes ere on the autocue more than the screen! I am having an attack right now whch probably means I'm not very niceto you, but after 8 yrs my first few attacks resulting in ICU, I am still in screaming bloody pain I am probably going to have to dial 999 if it gtets any worse.But put something us unfortunates can use, not what we can find in books or simple googleing!
Help us dont patronise us please!
modzilla732k 2 years ago
1st
iBuGGyLiFe1 2 years ago