This is such a tragically sad story, and I know that Sophie was not alone in the cruelty she suffered at the hands of her doctors. My heart goes out to her family. What success did her mother have with her complaint against the GMC?
I'm saddened that it takes such a tragic event to prove that this is real! While those people (inc. my landlord) who refuse to believe make offensive, hurtful comments, goodness knows how many of us even struggle to sit up for pain. The woman in the post is right, those who refuse to believe should be made to spend a month living with the restrictions we face daily, especially benefits people & politicians who "govern" the benefits system. Just the very fight to keep our money makes us more ill!
Since I first watched this video three months ago, I discovered something called brain retraining or neuroplasticity. There are two of such programs that are successfully treating ME/CFS, search for Gupta Amygdala Retraining or DNRS. I have MCS, after 5 weeks of doing the dnrs program I am 60%+ better, all body pain symptoms and fatigue are gone. I know ME people on planetthrive (support community for EI) who are getting better. Damage to the brain can be repaired much like with stroke victims.
This video makes my heart saddened! It could happen to any of us who suffer from this debilitating illness,We just have to make the best of each & every day,For we don't know which one will be the last.
No one deserves this Illness I recommend a really great book out there called THE JOURNEY THROUGH ME/CHRONIC FATIGUE by Janet Hurrell its an A TO Z packed with great information you can get it on Amazen and Auther house publishing
I have ME/CFS and totally related to Sophia.I have no family and few friends for they are too ignorant on health. I went to VGH for help ending up in pysch. wards for 3 months periods in 2 different occasions and psychiatrist and neuropsychiatrist tell me that everything is normal and suggest ECT or shock treatment. I had nowhere to go for help. They say it was all in my head! I have epilepsy and had brain surgery 20 yrs ago and now this. It is just time before I kill myself. I am 37 yrs old.
@babybunnies It's so aweful the way you have been treated. Despite Sophia's death reaching the news, it seems little has changed.
I have moderate/severe ME and have given up on the NHS helping me. I have now turned to the private doctor Dr Myhill wwww.drmyhill.co.uk who treats loads of ME patients (including the severe), and treats it as a physical illness. I have been seeing her for a few months and have already seen improvements. x
@babybunnies I totally can sympathize! I've been sick for many years & It took many misdiagnoses before they finally found out what was wrong with me,The hope found in the bible that this is all just temporary is what keep's me going -psalm 37:29,Don't give up! Life is not easy,But this isn't the real life,It's only a test.-psalm 83:18 -exodus 6:3 -Matthew 24:14.
I don't think this is a cruel thing to say, but I think the Psychiatrists did her a favor putting her out of her suffering, no one should have to endure that much suffering for such a long time, and if you think I am wrong from saying this, then you are cold, no one should have to suffer through that much, she is in Heaven now a better life for her and there probably wont be a cure for yonks to come.
This storey made me cry, I've been sick for years & they finally said it was cfs,I can relate of dr's saying it was in my head,No one wants to learn why i'm so sick,not even the closest family members:(
@nancypittman Hi Nancy...I just wanted to tell you that you're not alone. Of course, you know that many other people suffer, but those who are ridiculed, even by their own families, surely suffer the worst. It took me 12 years to get a multiple diagnosis. POTS, CFS, FM. I'm curious now about the CFS/ME debate as I've never heard this information before, but it would be truly wonderful if they could put a "real" name to CFS.
Here in Germany one would end up in the psychiatry too. Where chemical sensitive people are forced into a treatment with chemicals (drugs) having deprived of all of their personal rights, cleaning stuff spraying disinfectants into even the most hidden corners in order to be sure to instantly kill even the most harmless bacteria - and unknowingly putting humans into severe danger. A nice toxic cocktail - a nightmare becoming true...
This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
in what other branch of medicine, other than psychiatry, would it be acceptable to allow a patient to become so dehydrated that it caused death? Whoever allowed her to go untreated for the physical manifestations of this illness should be imprisoned.
in what other branch of medicine, other than psychiatry, would it be acceptable to allow a patient to become so dehydrated that it caused death? Whoever allowed her to go untreated for the physical manifestations of this illness should be imprisoned.
in what other branch of medicine, other than psychiatry, would it be acceptable to allow a patient to become so dehydrated that it caused death? Whoever allowed her to go untreated for the physical manifestations of this illness should be imprisoned.
thanks for posting (was a bit suprised to see a tiny bit of footage of myself), I have to say I think merdian/stacey have done more to raise awareness than any other program/person.
Thanks for Criona for sharing her daughters story, as she said Sophia will of changed so many peoples lives
This makes me want to howl with grief and rage. That poor young woman, she had everything to live for and instead of receiving the tests, antivirals and other medical treatment she needed she was scoffed at, tortured and imprisoned.
The stranglehold the psychiatric profession have on this physical, neurological illness is leading to so much intense suffering.
Great report. I saw this a few years ago on the IIME site but it's such a shame that there doesn't appear to be any follow up about this in the media. Such a damning report and such a scandalous way to treat the most vulnerable in society and yet it's not even treated as newsworthy. Showing us celebs who had "a bit of M.E" for a few months which was resolved with LP or yoga and organic vegetables is an insult to Sophia's memory- the two situations clearly aren't the same.
Of course you're completely right...the two situations are not the same. The psychiatric lobby have concocted their own benign version where one approach 'fits all'. It is a medical scandal of epidemic proportions where those with very serious , often degenerative and inflammatory conditions are expected to follow 'therapy' that may of course benefit those with no underlying organic disorders, but presenting with 'fatigue'.Serious and permanent harm will be this lobbys legacy. It is inhumane.
This is such a tragically sad story, and I know that Sophie was not alone in the cruelty she suffered at the hands of her doctors. My heart goes out to her family. What success did her mother have with her complaint against the GMC?
festivalguru 1 month ago in playlist More videos from Satori5
I'm saddened that it takes such a tragic event to prove that this is real! While those people (inc. my landlord) who refuse to believe make offensive, hurtful comments, goodness knows how many of us even struggle to sit up for pain. The woman in the post is right, those who refuse to believe should be made to spend a month living with the restrictions we face daily, especially benefits people & politicians who "govern" the benefits system. Just the very fight to keep our money makes us more ill!
SuperMissblueeyes 1 month ago
Since I first watched this video three months ago, I discovered something called brain retraining or neuroplasticity. There are two of such programs that are successfully treating ME/CFS, search for Gupta Amygdala Retraining or DNRS. I have MCS, after 5 weeks of doing the dnrs program I am 60%+ better, all body pain symptoms and fatigue are gone. I know ME people on planetthrive (support community for EI) who are getting better. Damage to the brain can be repaired much like with stroke victims.
theoriginalskinsey 2 months ago
There's a video you can order online called "sleepydust" It's a true life documentary about "C.F.S/M.E " it's wonderful!
nancypittman 2 months ago
This video makes my heart saddened! It could happen to any of us who suffer from this debilitating illness,We just have to make the best of each & every day,For we don't know which one will be the last.
nancypittman 2 months ago
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ME is not CFS - Check out AHummingbirdsGuide to learn the differences. They are two distinctly different illnesses that have been lumped together.
reddolphin65 7 months ago
No one deserves this Illness I recommend a really great book out there called THE JOURNEY THROUGH ME/CHRONIC FATIGUE by Janet Hurrell its an A TO Z packed with great information you can get it on Amazen and Auther house publishing
essy111 7 months ago
@essy111 Thanks,I will look it up.
nancypittman 2 months ago
I have ME/CFS and totally related to Sophia.I have no family and few friends for they are too ignorant on health. I went to VGH for help ending up in pysch. wards for 3 months periods in 2 different occasions and psychiatrist and neuropsychiatrist tell me that everything is normal and suggest ECT or shock treatment. I had nowhere to go for help. They say it was all in my head! I have epilepsy and had brain surgery 20 yrs ago and now this. It is just time before I kill myself. I am 37 yrs old.
babybunnies 8 months ago
Comment removed
lotusflower474 8 months ago
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@babybunnies It's so aweful the way you have been treated. Despite Sophia's death reaching the news, it seems little has changed.
I have moderate/severe ME and have given up on the NHS helping me. I have now turned to the private doctor Dr Myhill wwww.drmyhill.co.uk who treats loads of ME patients (including the severe), and treats it as a physical illness. I have been seeing her for a few months and have already seen improvements. x
lotusflower474 8 months ago
@babybunnies Are you ok?
theoriginalskinsey 6 months ago
@theoriginalskinsey Yes, I just now got my comments,My computer has been eaten up with viruses.
nancypittman 2 months ago
@babybunnies I totally can sympathize! I've been sick for many years & It took many misdiagnoses before they finally found out what was wrong with me,The hope found in the bible that this is all just temporary is what keep's me going -psalm 37:29,Don't give up! Life is not easy,But this isn't the real life,It's only a test.-psalm 83:18 -exodus 6:3 -Matthew 24:14.
nancypittman 2 months ago
I don't understand why the authorities literally "broke down her door" to institutionalize her. Where is this? That is just plain terrifying!
justthemom3 10 months ago
Comment removed
lovesmusic836 1 year ago
I don't think this is a cruel thing to say, but I think the Psychiatrists did her a favor putting her out of her suffering, no one should have to endure that much suffering for such a long time, and if you think I am wrong from saying this, then you are cold, no one should have to suffer through that much, she is in Heaven now a better life for her and there probably wont be a cure for yonks to come.
2876543ify 1 year ago
@2876543ify -Ecclesiastes 9:5
nancypittman 2 months ago
This storey made me cry, I've been sick for years & they finally said it was cfs,I can relate of dr's saying it was in my head,No one wants to learn why i'm so sick,not even the closest family members:(
nancypittman 1 year ago
@nancypittman Hi Nancy...I just wanted to tell you that you're not alone. Of course, you know that many other people suffer, but those who are ridiculed, even by their own families, surely suffer the worst. It took me 12 years to get a multiple diagnosis. POTS, CFS, FM. I'm curious now about the CFS/ME debate as I've never heard this information before, but it would be truly wonderful if they could put a "real" name to CFS.
justthemom3 10 months ago
@justthemom3 Have you read about Martin Pall's research on CFS?
theoriginalskinsey 6 months ago
@theoriginalskinsey NO, I will check it out,Thank's
nancypittman 2 months ago
@justthemom3 Thank you for your kindness,People can really be cruel & unloving.
nancypittman 2 months ago
@nancypittman WOW! Your story sound's exactly like mine!
nancypittman 2 months ago
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Fluoroquinolone Antibiotic Toxicity (Cipro, Levaquin, Avelox, Floxin)
Quins induce this pain
quinscripple4ever 1 year ago
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Fluoroquinolone Antibiotic Toxicity (Cipro, Levaquin, Avelox, Floxin)
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quinscripple4ever 1 year ago
Fluoroquinolone Antibiotic Toxicity (Cipro, Levaquin, Avelox, Floxin)
quinscripple4ever 1 year ago
Here in Germany one would end up in the psychiatry too. Where chemical sensitive people are forced into a treatment with chemicals (drugs) having deprived of all of their personal rights, cleaning stuff spraying disinfectants into even the most hidden corners in order to be sure to instantly kill even the most harmless bacteria - and unknowingly putting humans into severe danger. A nice toxic cocktail - a nightmare becoming true...
schokolade975 1 year ago
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schokolade975 1 year ago
This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
nancypittman 1 year ago
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This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
nancypittman 1 year ago
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This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
nancypittman 1 year ago
This video breaks my heart & really scares me! I haven't gotten totally bed ridden & i hope i never do,but my life has really changed signifincly due to this illness! My heart goes out to her family,i've been sick for years & told I had lupus,pancreatitis & many other thangs ! I was told it was in my head numerous times, Finally they found out it was c.f.s. I hope dr's start caring more about this disease!
nancypittman 1 year ago
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in what other branch of medicine, other than psychiatry, would it be acceptable to allow a patient to become so dehydrated that it caused death? Whoever allowed her to go untreated for the physical manifestations of this illness should be imprisoned.
Artym1ss 1 year ago
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in what other branch of medicine, other than psychiatry, would it be acceptable to allow a patient to become so dehydrated that it caused death? Whoever allowed her to go untreated for the physical manifestations of this illness should be imprisoned.
Artym1ss 1 year ago
Comment removed
Artym1ss 1 year ago
in what other branch of medicine, other than psychiatry, would it be acceptable to allow a patient to become so dehydrated that it caused death? Whoever allowed her to go untreated for the physical manifestations of this illness should be imprisoned.
Artym1ss 1 year ago 2
@Artym1ss Yes it's really sad that a human would be treated that way.
nancypittman 2 months ago
thanks for posting (was a bit suprised to see a tiny bit of footage of myself), I have to say I think merdian/stacey have done more to raise awareness than any other program/person.
Thanks for Criona for sharing her daughters story, as she said Sophia will of changed so many peoples lives
vikkkilouise 2 years ago 8
This makes me want to howl with grief and rage. That poor young woman, she had everything to live for and instead of receiving the tests, antivirals and other medical treatment she needed she was scoffed at, tortured and imprisoned.
The stranglehold the psychiatric profession have on this physical, neurological illness is leading to so much intense suffering.
Bluebottle83 2 years ago 6
Great report. I saw this a few years ago on the IIME site but it's such a shame that there doesn't appear to be any follow up about this in the media. Such a damning report and such a scandalous way to treat the most vulnerable in society and yet it's not even treated as newsworthy. Showing us celebs who had "a bit of M.E" for a few months which was resolved with LP or yoga and organic vegetables is an insult to Sophia's memory- the two situations clearly aren't the same.
neelubird 2 years ago 11
Of course you're completely right...the two situations are not the same. The psychiatric lobby have concocted their own benign version where one approach 'fits all'. It is a medical scandal of epidemic proportions where those with very serious , often degenerative and inflammatory conditions are expected to follow 'therapy' that may of course benefit those with no underlying organic disorders, but presenting with 'fatigue'.Serious and permanent harm will be this lobbys legacy. It is inhumane.
sly1958 2 years ago 2