Dear Zcaism, testing would be quite hard, as twenty odd genes are now know to cause dystonia, and if someone is found to be a carrier, they may never develop the illness themselves, but may be capable of passing it on.
Dear DanceLoveLily, thank you for your comments. Some people can feel that dystonia is caused by stress, but i know all far too well that this has never been the case for me. Yes stress makes the condition worse, but doesn't stress makes all illnesses worse?
In terms of medication, some forms can give bad movement problems. We are all different, and all respond to treatment in different ways.
IDK wut the heck I have O.O If I get stressed or think too hard (I know funny right :/) my arms and legs start to twitch and spaz. Same happens with certain medicines...it's quite annoyin cuz my whole arms and wrsts will start twitiching and it feels like suger is running threw my veins so to say...May sound confuzing but my parents think it may be part of ADHD thats why i have to excersise a lot, but this has only been happening recently... and i just had my 5th concussion.had my 4th last year
I think your positivity is very inspiring and you're very brave to share your problems so openly :) I sincerely hope your treatment is successful, Good luck xxxxx
Well, I've read the others' responses and I think we can all agree- neurological disorders in general, suck. LOL BUT, I live with mine smiling. Thank you for sharing this.
brain EEG, I thought that was for seizures only. I had a postiive one for seizures I also have. I was going to research re EEG's and dystonia movement disorders, I have the spasmoic and slow and rapid jerking of whole body (andseizures and moe) ur attitude is good. I am working on mine. thx 4 posting check otu WEGO HEALTH
Dear Chery, thank you for your message. I must make a correction. The test I have done was an EMG test, which is a nerve conductivity test. It revealed that I have only faint F waves in the legs. The new treament I will be trying will increase these waves. However, I feel it could be too late to venture in this direction. However, I always think to myself that there are much worse things in life, so I aim to be happy.
@lynnbond123 I have been refused EMG, but then I have been refused everything regarding medical care here for the damage done. usually it can be painful unless your nerves are near dead. All the best to you. I would take dystonia over ME/CFS and FM, still hell thou. Wego has a dystonia group there :) not getting these in email - cheers
@lynnbond123 came back to apologize. I wouldn't want dystonia at all which Ihave several forms, my ME/CFS has been so severe and kept me bed/houseconfined. it's been a nightmare .healing blessings to u
Thank you so much for your bravery to expose your illness and educate others about what is happening. Thank you so much for sharing your story. Anyone going through this should benefit from you.
Comment removed
christophorM 3 months ago
Dear Zcaism, testing would be quite hard, as twenty odd genes are now know to cause dystonia, and if someone is found to be a carrier, they may never develop the illness themselves, but may be capable of passing it on.
lynnbond123 7 months ago
is there any way to test for this before the symptoms fully appear
zcaism 7 months ago
Dear DanceLoveLily, thank you for your comments. Some people can feel that dystonia is caused by stress, but i know all far too well that this has never been the case for me. Yes stress makes the condition worse, but doesn't stress makes all illnesses worse?
In terms of medication, some forms can give bad movement problems. We are all different, and all respond to treatment in different ways.
I wish you all the best.
lynnbond123 10 months ago
IDK wut the heck I have O.O If I get stressed or think too hard (I know funny right :/) my arms and legs start to twitch and spaz. Same happens with certain medicines...it's quite annoyin cuz my whole arms and wrsts will start twitiching and it feels like suger is running threw my veins so to say...May sound confuzing but my parents think it may be part of ADHD thats why i have to excersise a lot, but this has only been happening recently... and i just had my 5th concussion.had my 4th last year
DanceLoveLily 10 months ago
my Dr. thinks I have this
plushbanana 11 months ago
i have the same problem in my feet ..... but wearing two aircast..... what else have you worn on ur feet ?
kzee28 1 year ago
I think your positivity is very inspiring and you're very brave to share your problems so openly :) I sincerely hope your treatment is successful, Good luck xxxxx
keriquacka 2 years ago
Thank you for your comments keriquacka. I will keep everyone posted on progress.
xxxxx
lynnbond123 2 years ago
Thanks for sharing with us!
shaynapulley 2 years ago
Well, I've read the others' responses and I think we can all agree- neurological disorders in general, suck. LOL BUT, I live with mine smiling. Thank you for sharing this.
bennasdwarf 2 years ago
brain EEG, I thought that was for seizures only. I had a postiive one for seizures I also have. I was going to research re EEG's and dystonia movement disorders, I have the spasmoic and slow and rapid jerking of whole body (andseizures and moe) ur attitude is good. I am working on mine. thx 4 posting check otu WEGO HEALTH
CherylSpeaksOut 2 years ago
Dear Chery, thank you for your message. I must make a correction. The test I have done was an EMG test, which is a nerve conductivity test. It revealed that I have only faint F waves in the legs. The new treament I will be trying will increase these waves. However, I feel it could be too late to venture in this direction. However, I always think to myself that there are much worse things in life, so I aim to be happy.
lynnbond123 2 years ago
@lynnbond123 I have been refused EMG, but then I have been refused everything regarding medical care here for the damage done. usually it can be painful unless your nerves are near dead. All the best to you. I would take dystonia over ME/CFS and FM, still hell thou. Wego has a dystonia group there :) not getting these in email - cheers
CherylSpeaksOut 2 years ago
@lynnbond123 came back to apologize. I wouldn't want dystonia at all which Ihave several forms, my ME/CFS has been so severe and kept me bed/houseconfined. it's been a nightmare .healing blessings to u
CherylSpeaksOut 2 years ago
Thank you so much for your bravery to expose your illness and educate others about what is happening. Thank you so much for sharing your story. Anyone going through this should benefit from you.
God bless you
SamiBebe2 2 years ago