Added: 2 months ago
From: FitGirl15
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  • Hi Jessica,

    I think we got BP at the same time and I have identical synkinesis with my eye etc. Luckily I have found a specialist centre in the UK on the NHS that deals with people with my condition and I have been referred for them to help with physio and botox injections...looking forward to what the doctor says as upto now, the answer has been you have to live with it but I will let you know if they say anything encouraging!

  • Where are you Jess? When are we going to see another video? You are my mentor or maybe kinda like a counselor!

  • Wow youre smile and eyes shut are or look to me to be completely normal. I cant tell you how better it makes us feel. I am on 7 months and doctors tell me "you'll never recover" or "you'll have this for life now" which is so distressing. I still cant smile properly or close my affected eye properly.

    Can you remember what recovery was like form 7 months to where you are now? Was it slow recovery-what do you recommend? How can we aim to get a recovery like you?

  • You are so strong, beautiful, and kind. It's good to see you recovering, however incrementally!

  • nothing else matters as long as you are happy, Happiness is just a state of mind, you look beautiful!

  • Why don't you answer our ?... Please do so. You are a great inspiration.. We need your feed back

  • @Marilu5232 I have been away for over a week with no internet service.

    Please forgive me for the late response, but I need you to remind me what is your question?

  • and an other thing that a greek physiotherapist told me, cause i told her that what i did that i think its very important was forget about the mirror, and she told me that it was ok but its important when u do the massagges for your brain to see and synchronize again.

  • Your doing pretty well! :D:D i have 5 months im getting better and yesterday i was thinking that i forgot to tell you a thing that i did also.. apart all the exercises that you suggested i also chew-bit nuez moscada i dont kw how to say it english, i cut the nuez moscada and chew it that was a suggestion by a cuban doctor and it make u feel more.. normally i was just to chew 2 at day. and yes i think your very right i spend a lot of money in medications and i dont think they get me better..

  • I'm exactly where you are. I first had it in April 2010 and I'm going on 2 years now. I still wish my smile was straight..it's crooked but it's better than not being able to smile at all. that was horrible.

  • I went for acupuncture after 3 days twice a week for 3 months £1200

    In most cases even without treatment people start improving far earlier than fitgirl and myself our nerves died and had to regrow so you can't take the credit for something that would in 75% cases improve with no treatment

    I feel all these alternative treatments exploit people's desperation

    But that's just my opinion

  • Comment removed

  • watched a few videos of your progress on BP ( didn't watch the whole thing on every video, i just watch each one to see your facial expression to see the progress). i have to say that your progress is different from what i observe in my clinic. Somehow i get a lot of BP patient (& stroke as well), i probably have treated at least 40 BP cases so far. of course everyone can progress differently. but looking at your week 23~24 wk video

  • , i'd say that most of the time I observed the same progress after 12 treatments of acupuncture in 4 weeks.  so your videos are interesting b/c it's different from what i see with my patients. Also, another thing that is different is how fast you and I feel the treatment should be done. For both BP & Stroke, I get much faster result if they're treated quickly, rather than waiting a month or two. one thing is the same though...

  • Increase dose in small increments so I don't look like I got BP again

    Some people apparently untangle the Nerves after 3 / 4 jabs (1year) I don't think it's that nerves or muscles have shrunk there just pulling agains each other ....... And it's a pain in the butt..... Think about it every day

    I think if after 1 year plus you will only get improvement from Botox

    Big love fittie xxxx

  • Hey fittie xx

    I'm in my 13th month and also did electro stim acupuncture after 1 week !! My symptoms are similar with eyelid

    I also wish I'd not waste £1000 on treatment I believe made things worse in our case the nerve died and had to regrow at 1mm day

    The lucky ones just get nerve compression

    I have spoken to a so called world expert in londons royal free hospital dr grobbler

    He has me on Botox done 1st injection 2 months ago he started dose so low It didn't seem to do anything but will in

  • I've had Bell's Pallsy for over 10 years. I haven't really done any exercises regularly, but I'm tired of not being even on both sides of my face. Aside from the exercises, do you recommend any massages and/or diet specifics that might speed up my recovery?

  • What are your thoughts on Botox?

  • i get bells palsy 3 weeks ago and thanks god i just get almost full recover. when i get bells palsy i went to the dector and he gove me bells for 8 days and vitamin b for 2 weeks with Physical Therapy and i start recover after 1 week since i get bells palsy. im pray for any one get bells palsy to get full recovery very soon even u fitgirl

  • Hello Lovely AND Fit girl.

    Well Documented.

    I was aflicted in 2004. My ordeal was seven months long. I have recovered only 40 % on my Right side. This is Rare. I was able to Endure only because of the positive motivation of others on the Tube Here and my friends and family. My eye lid does not open fully and that buggs me. At the time I asked the doctor If I will be able to sing when this is all over with. He said "Of course" I said "Good I have all ways wanted Sing"..Ha.. Joke. Thanks Dale .

  • Do u believe in retraining and also I notice that one cheek is bigger than the other one. Even the expression line in the affected area is deeper than in the right cheek. Did it happen to u too?

  • @fitgirl15 I'm at 5 weeks with BP and my Neuro advised me to start facial exercises, however when I do them, my ear makes a crackling noise and I feel some pressure..Did this happen to you? Or have you ever heard this happening to anyone with BP? You look great btw :)

  • @missgenius142 BP affects the facial nerves but somehow the ear on the side effected hurts. I had sensitive hearing for the first two weeks but it went away. Now, when I do my exercises, I feel pulling on my ear of the side effected but no crackling.

  • Hi FitGirl, just wanted to give you an update on me, BP for 2yrs and 3 months now and i'm starting to live with it more, its so funny how our recoveries are so similar. But I have decided to move on and I actually submitted an audition tape to X-Factor (i've been singing forever, but since BP havn't sang publically in a few years). I really hope I make it and if I do I will have to shout you out for being so encouraging!!!!

  • @TheDreia87 Aweee.... thanks for that lovely comment! I wish you ALL the best in your X-Factor audition!!! Remember, the only person who sees your Bell's Palsy is YOU... to everyone else you look GREAT! KNOCK EM OUT with your amazing pipes :)

  • Your recovery is tremendous considering looking at your early stages! You look awesome, and I can't really see the synkinesis effects! Dont worry about it anymore :)

  • @KWinarko Thank you. I continue to post videos to encourage those who still are going through the condition that there is always hope, no matter how long it takes to fully recover.

  • Jessica, thank you for taking the time to respond to my earlier queries on BP. I didn't realize that my current bout of 9+ months is the norm compared to my first encounter of only 5 weeks.

  • It's unfortunate that I let this current bout of BP sideline me to a near recluse state for more than 8 months. I didn't want anyone to see me, not even family members. I even stopped dating. I would wear sunglasses indoors and out because any days where it was sunny would hurt my eyes and it also made driving difficult. I still experience tearing when I eat.

  • @jschrauwen You are not alone... that is how most people react to such a traumatic event! Dating was not high on my priority list either. I felt quite like a monster of my former self for the first 3-4 months! It does get better... I hope you are getting out more now and enjoying life again!

  • hey, we have the same facial expressions too. my BP is now 4 months. :)

  • I came down with Bells Palsy yesterday and was diagnosed today. It seems like a relatively mild case and I feel sure that I will recover fairly soon.

    Thank you for uploading these videos. They are inspiring and give me hope that I *will* recover.

    What I take from your story is that I have too much stress in my life and it seems that this must be addressed. I plan to change these things that negatively impact on my health as clearly my body is telling me to stop and change direction. Chris.

  • Still waiting to have my surgery. They are going to take a nerve and muscle from my inner thigh and implant it into my left cheek. It should take about 6 months for it to come to life!

  • we are too much thaknful to you. You not know how big work you did, How many people get benfit from it. Many hopeless people get new hope after your videos.... Happy NEW YEAR 2012

  • Wow, you look great, my case is coming up to 4 months and I am about 90% recovered, the only annoying thing is the drooping eye that waters a lot and I can't yet whistle:) I hardly did facial exercises, my idea is that if there is no signal to the mussels from the brain then what good would exercise do? Your case took a long time but the result is fantastic you look gorgeous.

  • Thanks for the vid., it was very informative and insightful. Thank You. Have a Merry Christmas, wishing you the best!

    PS Loved the bloopers in the beginning!

  • I am one year thankgiving day and still have some problems with it. It is a ride and not a good one when one day your normal and the next you cant move half your face.

  • Thank you, Jessica. You are a good person and enjoyed getting your reply.

    Richard Soja from Linden, Mi.

  • Hi I currently have Bells Palsy and this is my 2nd time with it, on the same side of the face, which is my right side. My 1st time I was 13 yrs old and this time round 27 yrs old. I recovered pretty fast when I was 13 yrs old, within a few weeks. At the moment it going slow but I cant feel some movement in my cheek.

    But I think massage to the face definitely helps cos I massaged my face alot with my 1st experience. Im massaging now and getting physio on the face and I feel my face is better.

  • @kazberries I'm glad you are feeling better. I don't think every instance of BP is the same, likely you have a lot more to deal with in your life now, then you did at 13! Stress can definitely be a contributing factor to someone's overall health.

    Continue the massage, if that works for you! All the best!

  • Woke up with Bells Palsy yesterday morning! THIS IS CRAZY!! Thanks for your videos!

    Bring on an adventure.

    -Skyler

  • @SkylerSutton

    Skyler, you have a very positive attitude towards all this! This condition is a roller-coaster ride of emotions, for sure! Take Care of yourself!

  • @SkylerSutton how you feeling now? i got it too on boxing day! 26 dec 2011? gp has given me asteriods 6 a day for one week! what about improvement!

  • I like this latest video, Jassica. I've enjoyed everyone of you're video's and it has helped me going back and rewatching them many times over. My world seemed over once I had gotten Bells Palsey last March 22, 2011. After watching you're video's gave me a lot of hope because, I have been confined to a wheelchair with musclar dystrophy for 47 years now. I would like one day meet the person that gave me hope with already having a disability to deal with.

    Thank You,

    Richard Soja

  • @48chevy1000 I know the feeling, Richard. My life felt like it STOPPED when I fell ill with BP on April 28th, 2010. (We never forget the day!!!)

    Never let your disability define who you are! Not even BP! You can overcome all these barriers with the right frame of mind! ... I hope I have helped give you a more hopeful outlook on your life!!!

    Please take good care of yourself! You are worth it!!!

  • You're stressing too much about stressful situations. How's your 'social' life?

  • @n0rep1y I have tried not to talk about my social life in my YouTube videos... but that is a large contributing factor to why I got BP in the first place! Some people just have more, larger, and yes STRESSFUL issues to deal with in life then others. It is not something to be overlooked!

  • @FitGirl15 You think this was a result of a virus you got from a bf/gf? Is that what you mean by a 'social life being a large contributing factor'?

  • Hello Jessica!!!

    I'm so happy for You!!!

    I'm surprised for the progress you have achieved.

    Smile forever and have a Happy Christmas.

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