you have a wonderful and beautiful daughter, you seem like a very good and caring mother. have a child with ppd-nos can be very trying at times (i know, my son has it) and i praise parents like you!
Wow your daughter reminds me of my 4 year old son. The part in particular where she stops swinging and stares as soon as the other kids approach! My son seems to 'dislike' other kids coming up to him or 'getting in his way' .. and even though he ok eye contact i would not always say his eye contact is appropriate, as he stares at other kids ALOT! Any more info you can give me about your daughter and why you think she stopped swinging when the other kids came?
My three year old daughter does the same things. She puts her hands over her ears with any loud sound and she gets overwhelmes easily. She has meltdowns and throws herself on the floor. With PPD-NOS can they develop normally but still have some symptoms of Autism? My daughter speaks normally and has normal motor skills, she just cannot handle sensory stuff like noises, lights, crowds, etc.
@ILUVHORSES1981 It sounds like your daughter may have Sensory Integration Dysfunction more than PDD-NOS. Does she have any areas of concern regarding social skills? With normal speech and motor skills, an autism label is unlikely unless social skills are significantly affected. She would benefit from SIOT (sensory integration occupational therapy) and I recommend reading The Out of Synch Child.
I realied when I listened veerrryyyyclosely that she does have some speech problems :( She cannot pronounce her s's or f's and for example "Fish" she says "Pish" and "Scared" she says "Cared". I see some PPD_NOS symptoms and am afraid that she may have it, but I also do agree with you her symptoms do match slightly more with SPD (Sensory Perception Disorder). I am calling the Pediatrician tomorrow to talk to her and hopefully get a referral to a specialist to have her evaluated. TY!
I forgot to add that she does do a lot of things that your little girl does in this video. She gets scared very easily, and Jumps a lot (hyperactive) and covers her ears with noises, she also chews on her shirt, runs in circles, spins, lines up her toys in rows, puts her mouth on the doorknob, throws tantrums, things like that. I figured I would add this information, I am just a worried mama. Sorry to keep bugging you!
Thank you. I was being too judgemental on my son.. I was thinking that he was lazy due to his brother being an Aspie and he got a good amount of the attention to get him straight. Then my youngest son was my "worst" no language etc... I completely forgot that even though my middle son was functional he has a problem too... ring ring wake up time! thank you
I have a 6 year old that was just diagnosis-ed with PDD-NOS and it was a battle to get the doctors to listen... watching your baby girl reminds me so much of mine...
im 17 with pdd and to tell the truth i hate it there are not alot of people who no what it really is so in school i sit in the back of the class but i really went to talk to people its jus to hard to get friends when you have this also to all parents let your kids stay in one school because with pdd its hard to get used to a new school
She's beautiful! I think it's a testament to what a great mom you are that she can tell you WHY she is flapping and what she is scared of. <3 We're adopting two little boys this year, and the younger of the two (aged 3 currently) has been dx with PDD. I hope and pray we'll be able to make him feel as safe to be himself as your little girl!
thanks for sharing. It is good to know there are others out there with children the same as my son. He has PDD-NOS and ADHD. It was very hard to get him diagnosed. I was trying since he was 1 1/2 years old. He is 6 now. He wasn't properly diagnosed until he had to be hospitalized at 5.
Your daughter is so precious. My 2 year old daughter was just diagnosed with PDD-NOS. I have never been so confused in my life. Could you recommend any resources to help me better understand her diagnosis?
My strength is that I am a very brilliant, capable salesman with a stunning rapport to match, and my dream is to acquire a degree in business administration, work for a martial arts company and possibly climb the ladder to an executive position.
I am gifted enough to do this and my diagnosis will never be enough to stop me.
Thank you for sharing this! My daughter has PDD-NOS as well and her behaviors are so similar! I especially relate to the last part - 30 min melt down. Evelyn has an amazing capacity to "keep it together" until she feels she is in a safe space where she can let it out. It's nice to be reminded that we are not the only parents cruising along the sometimes bumpy road with our kid's unique way of experiencing the world.
my son 6 going on 7 yrs is PDD-NOS on the spectrum he has the same syptoms your daughter does, except when he cannot cope he will scream whine cry or attack someone. he flaps his hands too but in excitment or when trying to cope with being bored or when zoning out or when really happy. Stemming is a way for a child with PDD_NOS to cope. your daughter seems to cope much better with taking turns, my son has his days, one min hes okay with it, the next he could be super upset
By the way, I don't mean to make anyone sad by what I just said. I wasn't nearly as dependent on my mother and my independence has brought me a lot of sadness. Other than that I'd say I have the symptoms you're describing. What do I do, especially in a collegiate atmosphere. I mask them whichever way I can. As soon as people know though, you become an object of examination an discrimination, and that's only true if you're for the most part socially on par with everyone else.
@TheHeadlineEel your way of writting is amazing. I do not think you are different than anyone. Let us put it this way. Everyone has different behavior, characteristics and way of looking at life :) simle and never be sad. Alway thank God. He loves you.
Interesting fact: LSD was used to treat a variety of problems for those with schiz and AUTISM. How bout that? I don't recommend this to a child though, you have to have a strength of mind that can't be tarnished.
how different I am from everyone else, because afterall, I mean I'm on a spectrum. I was born with no absolutes. Its very odd indeed, but I roll with the punches. Children with this disorder can teach just about anybody a valuable lesson about the world, the only question is can they convey that message. I want to be a part of a movement. I mean really get some mind-bending case studies underway.
not be effected emotionally the next day, quite the paradox. But as I have come to see there are contradictions in everyone, and I think this disorder proves just that. I'm being a bit vague, possibly, absolutely, but its a thought process I hold very dear to my understanding of the world and hopefully I can move foward. If there's one thing that I find to be a burden its my sometimes uncontrollable self-centeredness, not of which i express openly. It just comes as a product of me realizing just
And I know you can't cure it, but that's for now anyways. Our society is technologically advancing exponentially, and with new technology, newer technology is produced faster than its ancestor. I have high hopes that this will be treatable in the future, and hopefully kids won't have to come to the realization of what they have and become severely depressed like I've have infrequently become. It's so weird that I can have these downright depressive, give or take, suicidal thoughts one night, and
I got a laugh out of the title when it said "A Trip to the Park", cause I have PDD-NOS, and I'm starting to wonder if my life is just one giant trip. But anyways, I digress. I'm glad that your posting this letting people see this through first-hand experience. Best way to learn the disorder, honestly. I'm in college right now and actually hoping to become a neurologist myself someday in hopes of curing the disorder or the symptoms that are related to autism itself.
Have you considered a service dog for your daughter? A service dog could help with social interaction and also help her anxiety; I have one and wish now I would've had one when I was her age!
I am 18 as of now and have recently found out about PDD-NOS. By how I see your daughter acting, I see many similarities to myself when I was very little. I refused to play with other children and would often only trust kids I really knew at the park.
Thank you for posting this - very helpful to see it. My daughter is 6 and nobody has made a diagnosis yet (no symmetrical handflapping, but otherwise fits the PDD-NOS profile). My daughter has very similiar characteristics but is has some signficant behavioral issues. I constantly wonder how much of those behaviorial issues derive from the parenting style, though we have an ABA that works with us.
My son was diagnosed with PDD-NOS in April. He is ahead for his age with math, reading and writing but with behavioral, developmental and one other he is a little behind in. If we hadn't put him in preschool as well as therapy at the age of 3 he would have aspergers
your video brings so much memory for me. I have a teenage boy with the same disorder. I don't know how i survived those 14 years. I am a single mother with no family support. I went through so much with him. He still has a lot to overcome but he's made great progress. As he gets older, i am afraid of the challenges ahead but i remain hopeful.
Thank you for posting this. Your daughter is so cute! Not only does this video show the tough part, it shows that she's also a regular kid who loves to swing and go to the park! People don't always get that. My son covers his ears at loud noises, chews his shirt collars, and also gets overwhelmed in chaotic environments - he'll go all floppy. But there's so much GREAT stuff too. Hang in there! With OT and other services kids like ours do really well!
this is so my daugther at 4. She was just diagnosed with PDD-NOS at 12. I've beening seeing everyone possible since she was 4 for help starting with speech therapy, When she was 7 I pushed for a psyhcology report, she was very shy and a "loner". they said then she was ADHD. The meds did not help at that time, just made her suicidal. first yr in Junior High was hell, finally pushed again, she was in mental health unit for 2 wks. 8 years of fighting the system & finally i know how to help her!
Anna seems very similar to my 4-year-old son. He has autism and struggles with sensory processing, particularly in new environments. I'm not sure if you've used any picture-based communication with Anna, but we have with my son. Actually, we once used laminated printouts and strips of pictures, but then my wife and I made our own iPhone/iPod app, called "iPrompts". We use it to show our son picture schedules, social stories, a countdown timer, and choices. Google it if you're interested!
Thank you for sharing this! My 7 y/o son was professionally dx'd with PDD-NOS. He has many of the same behaviors Anna showed. Hand flapping, hopping, though mine does not typically have the "melt downs". He has difficulty with the normal give and take of conversation. Have you read about sementic-pragmatic syndrome? It's dx'd in Europe, not recognized as a dx here (US), may just be a facet Autism Spectrum d/o. Many of the traits associated with PDD-NOS.
i am replying to the woman who is in the process of getting her son diagnosed , my son was 12 before he was diagnosed , and i told doctors and other ppl for years something was wrong.
life is far easier with a diagnosed child..... as u will know how to handle daily life, and know the things that will trigger them off. My son has alot of what anna displays in this video... but my son cried alot, he would have been crying and screaming.. if this was his trip to the park
Dogwiskers:Why NOT share this with the world? Educate don't hate thats my motto. Secondly I am not trying to be rude with anyone, but the spectrum is huge and not all kids exhibit the same behaviors. I have 6 kids 5 that are boys, 3 of them are in the ASD. If you have a child that is socially inept, awkward at times, poor eye contact, lack of verbal skills, sensory overload, serious food aversions, spinning in circles, stacking things or order of society, find out what end of the ASD they are at
To Agentbromsnor, ADHD is not considered on the Autism Spectrum. I have a 4 yr old who has PDD-NOS and i have ADHD but he has different characteristics that I never had as a child. No disrespect but you don't really know what you are talking about.
This reminds me so much of my 4 year old son,it is like watching him.I am in the process of getting him diagnosed but it has not been easy,Doctors continue to tell me there is nothing wrong.I see these and more behaviors in my son everyday but the doctors refuse to listen Best Wishes
Thank you for putting this on here! My son was just diagnosed PDD-NOS. He displays a lot of the symptoms of your daughter. This vid game me certainty PDD-NOS was my answer before we were dx'd. Parents reading this, if you know in your heart something is "off"...dont let anybody but a neurologist or developmental ped. tell you otherwise. A majority of pro's(school/medical)are uneducated when it comes to autism! Only 10% of parents are taken seriously the first time they express concern!
i was born with pdd wen i was about 2 and im now 16 i thank god for the doctors who helped me but you cant really tell that i have it because i have it mildy and if you look at me you cant really tell but if i told you be like ooooh
Your knowledge of PDD-NOS and of your daughter's specific symptoms is astounding. Thank you so much for sharing and inspiring parents like me to deal with these wonderful children appropriately. I am just discovering these symptoms in my son and trying to learn everything I can about this disorder to help him as much as possible.
Interesting.. I was diagonosed with PDD-NOS, im 24, almost 25, and i see myself in this video to an extent, as far as being withdrawn in social contact.. how she withdrew as soon as other children approcahed the swings. I was much like her. Now, i am a college student struggling at times to finish my degree, uncertain of the future, but hopeful for sucesss. I have been misunderstood, and people have misinterpeted my symptoms as obstiance or lack of caring, when they dont understand, it bothes
my son was diagnosed with pdd-nos at first. and that is in the asd (austistic spectrum disorder) seems he is deeper thatn pdd-nos now. we considar him to just be "autistic".i am sorry to say i do believe your daughter is deeper in it as well from what i can see in this one video alone.very good on her talking! my son does not except to label a few objects and the alphabet-non-comunicative verbally.he is 4 now.
my 3 yr old son has been flagged with having autism ... he flapps his hands and spins and is overstimulated by everything.. but he can speak by repeating words and small sentances, he can also count to 16... i am wondering if maybe he might not be autistic but have somthing similar to your daughter.. the professionals here dont really want to listen to me or look at other options.. do you have any advice about where to go to learn more about this ? what is mrdx and nld ?
PDD is very broad in definition and my daughter is one of them. PDD children do have characteristics of autism, although not profound. Your daughter reminds me of mine. She was not dx with MR. However, she will dig in sand and I believe that is comforting to her as well as other items we would say "Yuk" to.
PDD is not a diagnosis, it is another name for the autism spectrum. PDD NOS is a diagnosis, basically it means 'atypical autism'. NLD is nonverbal learning disability, a specific learning disability in nonverbal areas such as reading nonverbal signals, motor control and spatial skills - NLD kids also have strengths in speech skills and many are verbally gifted. NLD overlaps with higher functioning autism spectrum, such as Asperger Syndrome (autism with normal IQ and speech) and mild PDD NOS.
Hello, i enjoyed your clip it is nice to see your not alone and others have trouble doing all the normal daily things too! I have 2 daughters a 3 year old with Autism and a 6 year old with Aspergers.
Are you sure your daughter doesn't have Aspergers? She seems Autistic but she verbalises quite well so I guess she may not fit into that catagory?
To be considered Asperger: "indicated by the use of single words by the age of 2, and use of phrases by the age of 3. Self help skills and cognitive development are also on target." Her speech didn't really start developing until age 4, her self-help skills are still delayed, and her cognitive skills are splintered (she got an MR dx last year). That's why PDD-NOS fits her best.
how a verbal first and next this helps my students when we are on the playground and they get overstimulated.. i tell them first slide then swing..if there is a wait for the swing maybe u could use the sand by the swing and pour with her it might take her mind off the surroundings and of the children screaming..regualte(calm) her a bit
please dont feel bad for her.....she's obviously got an extremely loving mom (I can tell) and she is special and unique just being herself. I have two young children with PDD-NOS and the WORST thing a relative told me after hearing about it was "I'm so sorry" Its not a curse, just a different, more interesting way of life :-)
my son was diagnosed with NLD but i was also told he was" deffinately on the autism spectrum under pdd-nos. do you know what it means to be on the spectrum? i always thought pervasive developmental disorder not otherwise specified was a diagnosis in itself.
I think we live in the same city. Anyway, my son with PDD, has an opposite reaction to that train (and any other train) and I can't count how many times I've had to ride on it. You'd think that the way he reacts to other loud things would make him hate trains but not so much. It's an absolute obsession. He used to freak out when we got to the tunnel though. He knows it's coming but he'd freak out every time then insist on getting back on.
I am glad I got to see the video again with the text. I do think it is so great that Anna can say how she feels in terms of being scared of the clown.
I am sure the meltdown on the ay home was rough on you both.
There sure was a lot going on....its a very overstimulating park. I actually felt uncomfortable with the texture the gravelly sand they used as the playground surface....and that was just from watching it!
I have an alomst 4 year old daughter who has Sensory Integration and was recently diagnosed with Aspergers. I see a lot of anna in my daughter. Although Sadie has a sister that is 12 months older so she plays with her a lot.. or at least follows her. It's good to see other children like this to feel less alone. So many people don;t understand... it's heartbreaking because we want to protect them..but we can't protect them from this.
you have a wonderful and beautiful daughter, you seem like a very good and caring mother. have a child with ppd-nos can be very trying at times (i know, my son has it) and i praise parents like you!
SunevDNA 1 month ago
Wow your daughter reminds me of my 4 year old son. The part in particular where she stops swinging and stares as soon as the other kids approach! My son seems to 'dislike' other kids coming up to him or 'getting in his way' .. and even though he ok eye contact i would not always say his eye contact is appropriate, as he stares at other kids ALOT! Any more info you can give me about your daughter and why you think she stopped swinging when the other kids came?
lucieann21 1 month ago
Lovely girl.
I don't see much wrong with her. She's just different with social skills.
We can't all be the same with that.
I'm sure she turns out fine :)
TheDigitalStone 3 months ago
My three year old daughter does the same things. She puts her hands over her ears with any loud sound and she gets overwhelmes easily. She has meltdowns and throws herself on the floor. With PPD-NOS can they develop normally but still have some symptoms of Autism? My daughter speaks normally and has normal motor skills, she just cannot handle sensory stuff like noises, lights, crowds, etc.
ILUVHORSES1981 3 months ago
@ILUVHORSES1981 It sounds like your daughter may have Sensory Integration Dysfunction more than PDD-NOS. Does she have any areas of concern regarding social skills? With normal speech and motor skills, an autism label is unlikely unless social skills are significantly affected. She would benefit from SIOT (sensory integration occupational therapy) and I recommend reading The Out of Synch Child.
holly0817 3 months ago
@holly0817
I realied when I listened veerrryyyyclosely that she does have some speech problems :( She cannot pronounce her s's or f's and for example "Fish" she says "Pish" and "Scared" she says "Cared". I see some PPD_NOS symptoms and am afraid that she may have it, but I also do agree with you her symptoms do match slightly more with SPD (Sensory Perception Disorder). I am calling the Pediatrician tomorrow to talk to her and hopefully get a referral to a specialist to have her evaluated. TY!
ILUVHORSES1981 2 months ago
@holly0817
I forgot to add that she does do a lot of things that your little girl does in this video. She gets scared very easily, and Jumps a lot (hyperactive) and covers her ears with noises, she also chews on her shirt, runs in circles, spins, lines up her toys in rows, puts her mouth on the doorknob, throws tantrums, things like that. I figured I would add this information, I am just a worried mama. Sorry to keep bugging you!
ILUVHORSES1981 2 months ago
@zofa30 Thing about that is, I don't believe in a God(s). I still try to be a good person, though.
TheHeadlineEel 3 months ago
Thank you. I was being too judgemental on my son.. I was thinking that he was lazy due to his brother being an Aspie and he got a good amount of the attention to get him straight. Then my youngest son was my "worst" no language etc... I completely forgot that even though my middle son was functional he has a problem too... ring ring wake up time! thank you
nagaempress 3 months ago
I have a 6 year old that was just diagnosis-ed with PDD-NOS and it was a battle to get the doctors to listen... watching your baby girl reminds me so much of mine...
CGBrewer20061 3 months ago
god this reminds me of how i was it was pure hell for me hope wont be for her nic mom so prob not.
MrTimothytim 3 months ago
im 17 with pdd and to tell the truth i hate it there are not alot of people who no what it really is so in school i sit in the back of the class but i really went to talk to people its jus to hard to get friends when you have this also to all parents let your kids stay in one school because with pdd its hard to get used to a new school
evenlessrhyme15 4 months ago
She's beautiful! I think it's a testament to what a great mom you are that she can tell you WHY she is flapping and what she is scared of. <3 We're adopting two little boys this year, and the younger of the two (aged 3 currently) has been dx with PDD. I hope and pray we'll be able to make him feel as safe to be himself as your little girl!
SigEMT09 4 months ago
thanks for sharing. It is good to know there are others out there with children the same as my son. He has PDD-NOS and ADHD. It was very hard to get him diagnosed. I was trying since he was 1 1/2 years old. He is 6 now. He wasn't properly diagnosed until he had to be hospitalized at 5.
ladyrogue1976 5 months ago
Your daughter is so precious. My 2 year old daughter was just diagnosed with PDD-NOS. I have never been so confused in my life. Could you recommend any resources to help me better understand her diagnosis?
Josh2JT 5 months ago
My strength is that I am a very brilliant, capable salesman with a stunning rapport to match, and my dream is to acquire a degree in business administration, work for a martial arts company and possibly climb the ladder to an executive position.
I am gifted enough to do this and my diagnosis will never be enough to stop me.
IronWinged 5 months ago
I was diagnosed with PDD-NOS at 18. It has been my life's dream to join the military. I have wanted to become a fighter pilot since the age of 3.
But reality has other plans.
PDD-NOS has forced me into Psychosis, Bi-Polar II, ADHD, Clinical Depression and with an anti-social personality to boot.
It is hard to do what others take for granted.
Like people removed from the spectrum, we have our strengths and weaknesses....
IronWinged 5 months ago
@IronWinged Yeah I was diagnosed with PDD-NOS at age 14. I suffered from depression and some form of Bi-Polar. It's really hard with PDD-NOS :/
SilverWolf1019 5 months ago
Thank you for sharing this! My daughter has PDD-NOS as well and her behaviors are so similar! I especially relate to the last part - 30 min melt down. Evelyn has an amazing capacity to "keep it together" until she feels she is in a safe space where she can let it out. It's nice to be reminded that we are not the only parents cruising along the sometimes bumpy road with our kid's unique way of experiencing the world.
EvsMommy1 5 months ago
noting yet, my psychiatrists things I could have PDD-NOS and I have ADD too (or in stead?)
ShiroiSakuraYume 6 months ago
My son is 9 going on 10 and he has PDD-NOS and ADHD. It brought tears to my eyes to see how similar the attributes are.
aprylr3ign 6 months ago
I wish you were my mom
ShiroiSakuraYume 6 months ago
@ShiroiSakuraYume (((Big hugs, sweet girl!))) Are you on the spectrum?
holly0817 6 months ago
my son 6 going on 7 yrs is PDD-NOS on the spectrum he has the same syptoms your daughter does, except when he cannot cope he will scream whine cry or attack someone. he flaps his hands too but in excitment or when trying to cope with being bored or when zoning out or when really happy. Stemming is a way for a child with PDD_NOS to cope. your daughter seems to cope much better with taking turns, my son has his days, one min hes okay with it, the next he could be super upset
boskox 8 months ago
i have pdd-nos too
Narateful 10 months ago
By the way, I don't mean to make anyone sad by what I just said. I wasn't nearly as dependent on my mother and my independence has brought me a lot of sadness. Other than that I'd say I have the symptoms you're describing. What do I do, especially in a collegiate atmosphere. I mask them whichever way I can. As soon as people know though, you become an object of examination an discrimination, and that's only true if you're for the most part socially on par with everyone else.
TheHeadlineEel 1 year ago
@TheHeadlineEel your way of writting is amazing. I do not think you are different than anyone. Let us put it this way. Everyone has different behavior, characteristics and way of looking at life :) simle and never be sad. Alway thank God. He loves you.
zofa30 9 months ago
Interesting fact: LSD was used to treat a variety of problems for those with schiz and AUTISM. How bout that? I don't recommend this to a child though, you have to have a strength of mind that can't be tarnished.
TheHeadlineEel 1 year ago
how different I am from everyone else, because afterall, I mean I'm on a spectrum. I was born with no absolutes. Its very odd indeed, but I roll with the punches. Children with this disorder can teach just about anybody a valuable lesson about the world, the only question is can they convey that message. I want to be a part of a movement. I mean really get some mind-bending case studies underway.
TheHeadlineEel 1 year ago
not be effected emotionally the next day, quite the paradox. But as I have come to see there are contradictions in everyone, and I think this disorder proves just that. I'm being a bit vague, possibly, absolutely, but its a thought process I hold very dear to my understanding of the world and hopefully I can move foward. If there's one thing that I find to be a burden its my sometimes uncontrollable self-centeredness, not of which i express openly. It just comes as a product of me realizing just
TheHeadlineEel 1 year ago
And I know you can't cure it, but that's for now anyways. Our society is technologically advancing exponentially, and with new technology, newer technology is produced faster than its ancestor. I have high hopes that this will be treatable in the future, and hopefully kids won't have to come to the realization of what they have and become severely depressed like I've have infrequently become. It's so weird that I can have these downright depressive, give or take, suicidal thoughts one night, and
TheHeadlineEel 1 year ago
I got a laugh out of the title when it said "A Trip to the Park", cause I have PDD-NOS, and I'm starting to wonder if my life is just one giant trip. But anyways, I digress. I'm glad that your posting this letting people see this through first-hand experience. Best way to learn the disorder, honestly. I'm in college right now and actually hoping to become a neurologist myself someday in hopes of curing the disorder or the symptoms that are related to autism itself.
TheHeadlineEel 1 year ago
Is PDD-NOS the same thing as autism ?
xxxAlphaxxx5 1 year ago
@xxxAlphaxxx5 Yes, to a degree. PDD-NOS is on the autism spectrum... displaying some, but not all, of the characteristics of autism.
holly0817 1 year ago
@holly0817 Which is characteristics is different from autism ?
xxxAlphaxxx5 1 year ago
Have you considered a service dog for your daughter? A service dog could help with social interaction and also help her anxiety; I have one and wish now I would've had one when I was her age!
pawsandpuzzles 1 year ago
I am 18 as of now and have recently found out about PDD-NOS. By how I see your daughter acting, I see many similarities to myself when I was very little. I refused to play with other children and would often only trust kids I really knew at the park.
kjl 1 year ago
Wow. So, yeah. My son has PDD-NOS. I was uncertain about the diagnosis... but your daughter and my son have the exact same symptoms.
xtattertatterx 1 year ago
thank you for posting this video. i have PDD-NOS myself and see so much from myself in her when I was young.
I am now 16 years old but i still remember it very well :)
yougotOWENd1 1 year ago
Thank you for posting this - very helpful to see it. My daughter is 6 and nobody has made a diagnosis yet (no symmetrical handflapping, but otherwise fits the PDD-NOS profile). My daughter has very similiar characteristics but is has some signficant behavioral issues. I constantly wonder how much of those behaviorial issues derive from the parenting style, though we have an ABA that works with us.
willieruf 1 year ago
My son was diagnosed with PDD-NOS in April. He is ahead for his age with math, reading and writing but with behavioral, developmental and one other he is a little behind in. If we hadn't put him in preschool as well as therapy at the age of 3 he would have aspergers
teri81979 1 year ago
your video brings so much memory for me. I have a teenage boy with the same disorder. I don't know how i survived those 14 years. I am a single mother with no family support. I went through so much with him. He still has a lot to overcome but he's made great progress. As he gets older, i am afraid of the challenges ahead but i remain hopeful.
MERDE1104 1 year ago
heeft dit meisje ook nog het syndroom van down erbij?
Lrsaatj 2 years ago
@Lrsaatj
PDD-NOS en Down zijn twee totaal verschillende dingen.
Als dit wél het geval was geweest lijkt mij dat het wel in de tekst vermeld had gestaan.
Bovendien zie ik bij dit meisje niet de uiterlijke kenmerken van een Down kindje.
Misschien had je eerst je even moeten verdiepen in de kenmerken van PDD-Nos??
Rudewomantt 1 year ago
She's adorable!!!!!
IsThisTourettes 2 years ago
Thank you for posting this. Your daughter is so cute! Not only does this video show the tough part, it shows that she's also a regular kid who loves to swing and go to the park! People don't always get that. My son covers his ears at loud noises, chews his shirt collars, and also gets overwhelmed in chaotic environments - he'll go all floppy. But there's so much GREAT stuff too. Hang in there! With OT and other services kids like ours do really well!
Luindriel 2 years ago
this is so my daugther at 4. She was just diagnosed with PDD-NOS at 12. I've beening seeing everyone possible since she was 4 for help starting with speech therapy, When she was 7 I pushed for a psyhcology report, she was very shy and a "loner". they said then she was ADHD. The meds did not help at that time, just made her suicidal. first yr in Junior High was hell, finally pushed again, she was in mental health unit for 2 wks. 8 years of fighting the system & finally i know how to help her!
ratworld4me 2 years ago
Anna seems very similar to my 4-year-old son. He has autism and struggles with sensory processing, particularly in new environments. I'm not sure if you've used any picture-based communication with Anna, but we have with my son. Actually, we once used laminated printouts and strips of pictures, but then my wife and I made our own iPhone/iPod app, called "iPrompts". We use it to show our son picture schedules, social stories, a countdown timer, and choices. Google it if you're interested!
HandHoldAdaptiveLLC 2 years ago
Thank you for sharing this! My 7 y/o son was professionally dx'd with PDD-NOS. He has many of the same behaviors Anna showed. Hand flapping, hopping, though mine does not typically have the "melt downs". He has difficulty with the normal give and take of conversation. Have you read about sementic-pragmatic syndrome? It's dx'd in Europe, not recognized as a dx here (US), may just be a facet Autism Spectrum d/o. Many of the traits associated with PDD-NOS.
Thanks again for sharing, :)
dadslbm 2 years ago
she is just like my son omg he is 4 also autism pdd nos
tiaaiden 2 years ago
i am replying to the woman who is in the process of getting her son diagnosed , my son was 12 before he was diagnosed , and i told doctors and other ppl for years something was wrong.
life is far easier with a diagnosed child..... as u will know how to handle daily life, and know the things that will trigger them off. My son has alot of what anna displays in this video... but my son cried alot, he would have been crying and screaming.. if this was his trip to the park
l00king4u 3 years ago
Dogwiskers:Why NOT share this with the world? Educate don't hate thats my motto. Secondly I am not trying to be rude with anyone, but the spectrum is huge and not all kids exhibit the same behaviors. I have 6 kids 5 that are boys, 3 of them are in the ASD. If you have a child that is socially inept, awkward at times, poor eye contact, lack of verbal skills, sensory overload, serious food aversions, spinning in circles, stacking things or order of society, find out what end of the ASD they are at
mom2fivemonkeys 3 years ago
To Agentbromsnor, ADHD is not considered on the Autism Spectrum. I have a 4 yr old who has PDD-NOS and i have ADHD but he has different characteristics that I never had as a child. No disrespect but you don't really know what you are talking about.
meggie416 3 years ago
This comment has received too many negative votes show
i have PDD and this is very informative.
but if i was her i'd be hella pissed at u for sharing to the world
lets not keep this up, k?
dogwiskers 3 years ago
This reminds me so much of my 4 year old son,it is like watching him.I am in the process of getting him diagnosed but it has not been easy,Doctors continue to tell me there is nothing wrong.I see these and more behaviors in my son everyday but the doctors refuse to listen Best Wishes
Insatiable4Darren 3 years ago
Thank you for putting this on here! My son was just diagnosed PDD-NOS. He displays a lot of the symptoms of your daughter. This vid game me certainty PDD-NOS was my answer before we were dx'd. Parents reading this, if you know in your heart something is "off"...dont let anybody but a neurologist or developmental ped. tell you otherwise. A majority of pro's(school/medical)are uneducated when it comes to autism! Only 10% of parents are taken seriously the first time they express concern!
SaVvyWatcher 3 years ago
My son does the exact same thing in sand!! Spitting image of that. He's PDD-NOS as well.
MindyFox 3 years ago
whats the difference between PDD NOS and Autism?
Bagoners03 3 years ago
None. Autism is just a wide term for a whole class of symptoms. These include PDD-NOS, ADD, ADHD, Asperger and more.
Agentbromsnor 3 years ago
Why do many children with autism seem withdrawn around other children? My son is like that with others.
Bagoners03 3 years ago
i was born with pdd wen i was about 2 and im now 16 i thank god for the doctors who helped me but you cant really tell that i have it because i have it mildy and if you look at me you cant really tell but if i told you be like ooooh
lizzylovesizzy 3 years ago
how old is she now?
missi0106 3 years ago
She is now 7.
holly0817 3 years ago
Your knowledge of PDD-NOS and of your daughter's specific symptoms is astounding. Thank you so much for sharing and inspiring parents like me to deal with these wonderful children appropriately. I am just discovering these symptoms in my son and trying to learn everything I can about this disorder to help him as much as possible.
RogJenSamBen 3 years ago
rofl i also got it man the title of the vid makes it look like with it u are a damn retard:P
myfatproductions 3 years ago
I have PDD-NOS too. It's awesome that it makes you inteligent.
Yes, I spelled intelligent wrong on purpose.
FlazeTheHedgehog 3 years ago
Interesting.. I was diagonosed with PDD-NOS, im 24, almost 25, and i see myself in this video to an extent, as far as being withdrawn in social contact.. how she withdrew as soon as other children approcahed the swings. I was much like her. Now, i am a college student struggling at times to finish my degree, uncertain of the future, but hopeful for sucesss. I have been misunderstood, and people have misinterpeted my symptoms as obstiance or lack of caring, when they dont understand, it bothes
fryboy190 3 years ago
my son was diagnosed with pdd-nos at first. and that is in the asd (austistic spectrum disorder) seems he is deeper thatn pdd-nos now. we considar him to just be "autistic".i am sorry to say i do believe your daughter is deeper in it as well from what i can see in this one video alone.very good on her talking! my son does not except to label a few objects and the alphabet-non-comunicative verbally.he is 4 now.
grownfosterkid 4 years ago
my 3 yr old son has been flagged with having autism ... he flapps his hands and spins and is overstimulated by everything.. but he can speak by repeating words and small sentances, he can also count to 16... i am wondering if maybe he might not be autistic but have somthing similar to your daughter.. the professionals here dont really want to listen to me or look at other options.. do you have any advice about where to go to learn more about this ? what is mrdx and nld ?
CassyKB 4 years ago
PDD is very broad in definition and my daughter is one of them. PDD children do have characteristics of autism, although not profound. Your daughter reminds me of mine. She was not dx with MR. However, she will dig in sand and I believe that is comforting to her as well as other items we would say "Yuk" to.
kajolly01 4 years ago
PDD is not a diagnosis, it is another name for the autism spectrum. PDD NOS is a diagnosis, basically it means 'atypical autism'. NLD is nonverbal learning disability, a specific learning disability in nonverbal areas such as reading nonverbal signals, motor control and spatial skills - NLD kids also have strengths in speech skills and many are verbally gifted. NLD overlaps with higher functioning autism spectrum, such as Asperger Syndrome (autism with normal IQ and speech) and mild PDD NOS.
Abnormaldiversity 3 years ago
Hello, i enjoyed your clip it is nice to see your not alone and others have trouble doing all the normal daily things too! I have 2 daughters a 3 year old with Autism and a 6 year old with Aspergers.
Are you sure your daughter doesn't have Aspergers? She seems Autistic but she verbalises quite well so I guess she may not fit into that catagory?
Dan2069 4 years ago
To be considered Asperger: "indicated by the use of single words by the age of 2, and use of phrases by the age of 3. Self help skills and cognitive development are also on target." Her speech didn't really start developing until age 4, her self-help skills are still delayed, and her cognitive skills are splintered (she got an MR dx last year). That's why PDD-NOS fits her best.
holly0817 4 years ago
how a verbal first and next this helps my students when we are on the playground and they get overstimulated.. i tell them first slide then swing..if there is a wait for the swing maybe u could use the sand by the swing and pour with her it might take her mind off the surroundings and of the children screaming..regualte(calm) her a bit
funnygrl702 4 years ago
omg soo sad i fell bad for that lil girl
gymnasticslover96 4 years ago
please dont feel bad for her.....she's obviously got an extremely loving mom (I can tell) and she is special and unique just being herself. I have two young children with PDD-NOS and the WORST thing a relative told me after hearing about it was "I'm so sorry" Its not a curse, just a different, more interesting way of life :-)
jennie71379 4 years ago 2
my son was diagnosed with NLD but i was also told he was" deffinately on the autism spectrum under pdd-nos. do you know what it means to be on the spectrum? i always thought pervasive developmental disorder not otherwise specified was a diagnosis in itself.
kattoo13 4 years ago
pdd-nos means they dont have all the signs of autism i believe to be classic autistic there are 12 so maybe he has 6 aka autistic traits
funnygrl702 4 years ago
ı have pdd-nos and mcdd
xxaylin 4 years ago
I think we live in the same city. Anyway, my son with PDD, has an opposite reaction to that train (and any other train) and I can't count how many times I've had to ride on it. You'd think that the way he reacts to other loud things would make him hate trains but not so much. It's an absolute obsession. He used to freak out when we got to the tunnel though. He knows it's coming but he'd freak out every time then insist on getting back on.
mamaindigo4 4 years ago
I am glad I got to see the video again with the text. I do think it is so great that Anna can say how she feels in terms of being scared of the clown.
I am sure the meltdown on the ay home was rough on you both.
There sure was a lot going on....its a very overstimulating park. I actually felt uncomfortable with the texture the gravelly sand they used as the playground surface....and that was just from watching it!
Love,
Cassie
Titibasana 4 years ago
I have an alomst 4 year old daughter who has Sensory Integration and was recently diagnosed with Aspergers. I see a lot of anna in my daughter. Although Sadie has a sister that is 12 months older so she plays with her a lot.. or at least follows her. It's good to see other children like this to feel less alone. So many people don;t understand... it's heartbreaking because we want to protect them..but we can't protect them from this.
edgarfamily 4 years ago
thanx for sharing,it makes it easier for people to see the symptoms .
boogi2thebeat 4 years ago
Very informative video. Thanks for sharing it!
momofwo24 4 years ago
Wow - what a powerful video. Anna's anxiety and isolation are quite marked here. This really has affected me deeply.
ml2424 4 years ago