Added: 3 years ago
From: DebRACharity
Views: 9,074
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  • The love of parents is amazing

  • OMG lucky shes still alive :.(

  • i think that if it is really serious eb ..... just from my point of veiw..... i think they should be placed to sleep ..... rather than having to live in this nightmare all their lives....

  • *sob* its so *sniff* sad

  • :""""""""(

  • i really miss adana she was my best friend but died when she was 10 because of eb

  • Good thing God loves us. Sure wouldn't want to be on God's shit list. Maybe EB (Epidermolysis Bullosa) can be chalked up to God working in mysterious ways... Right?

  • I believe Jonny Kennedy (may he rest in peace!) started the DEBRA foundation. Watch his story for more info.

  • My God this is heartbreaking!

  • I wish they can find a long term medicine and permanent one for those children.

  • @Dawoudkhalifa i feel like we all wish that :)

  • @Dawoudkhalifa They kinda have a thing good for the skin. I have EB and its not bad as it looks on the video some of my skin is pink and can turn read and turn into bubbles with too much heat

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