I am so sorry. There's nothing these strangers on youtube (including me) could possibly say to make you smile, but I hope you know that you're not alone, and neither is your darling little girl.
Thank you for sharing your beautiful pictures. I lost my son too from renal agenesis not too long ago. I also made a video of him and there's not a day I don't watch it. For me, it makes my heart heal, I continue to relive those precious moments we had with him, being able to say hello and goodbye. I'm sure you feel the same way.
so sorry. I'm a mother and cannot even begin to imagine what you and your family went through. God bless you all and take peace knowing she is at the foot of his feet looking down on you every day, happy to know for whatever legnth of time she was physically with you, you and your family loved her (and still do) with every piece of your hearts....
What a beautiful little girl. I'm so sorry for your loss!
I just lost my son to Potter's Syndrome (bilateral renal agenesis), he was born sleeping November 29th, 2009. It's been a difficult journey and my heart breaks every time I see another baby that has suffered from the same thing.
So sorry to hear of your loss. Rory actually had BOR Syndrome- which was confused with potters syndrome until the geneticist figured it out- she had a little brother born without kidneys as well, and he graced us for 6 & 1/2 months. I hope to get a video of him up soon, but there is a lot of his life that I don't want to leave out... so it will take a while.
I am so sorry for your loss. I have a 13 month old daughter and just thinking of what it would feel like to only hold my daughter for a hour after she was born is tering me apart. You are strong!!!
Oh my......my friends are 21 weeks pregnant and have just been told that there baby has bilateral renal agenesis. We are so sad for them. Thank you for sharing your joy and sorrow.
If they would like to be put in contact with someone who went through this twice, please let me know. If it is BOR syndrome & they have a perinatologist that is willing to work with them, there may be something they can do. I'd love to speak more with you.
I am so sorry for your tremendous loss and suffering. There are no other words to say. What a beautiful and fitting name for your precious daughter <3
She had bilateral renal agenesis as a result from a genetic disorder known as BOR syndrome. She also had a beautiful little brother named Elijah that blessed us for 6 & 1/2 months. I am working on a video of him & will have that up soon. My sister has since had two more beautiful children, a boy & girl, both healthy.
I am so sorry. There's nothing these strangers on youtube (including me) could possibly say to make you smile, but I hope you know that you're not alone, and neither is your darling little girl.
HumanoidSparky 5 months ago
this name belongs to this beautiful baby girl!!!!
MinMinLicht 1 year ago
Beautiful little angel , love her cherub mouth.
kissymywham 1 year ago
a beautiful girlQ.Q
is so pretty that god miss a angel and wanted it back...
the souls gets wings get back to the roots...
and the song og twila paris belongs to this viedeo of love...
its written for this girl with named like a nature miracle--
now i know my little sister is nit alone..
thank you little aurora..
*sorry my english is not so perfect*
greets,
min-min-light
MinMinLicht 1 year ago
Thank you for sharing your beautiful pictures. I lost my son too from renal agenesis not too long ago. I also made a video of him and there's not a day I don't watch it. For me, it makes my heart heal, I continue to relive those precious moments we had with him, being able to say hello and goodbye. I'm sure you feel the same way.
rretlaww 1 year ago
That was a beautiful tribute to Aurora and her family. Sending smiles through my tears.
funkycold1974 1 year ago
I'm so sorry for you loss. I loss my son at 15 weeks gestation on November 5, 2009 from unknown causes. I hope that you find peace.
littledudebea27 2 years ago
What a beautiful little girl, my little girl was born June 21 2006, rest in heaven little princess, love from my family to yours, xxx
MsJenn1985 2 years ago
so sorry. I'm a mother and cannot even begin to imagine what you and your family went through. God bless you all and take peace knowing she is at the foot of his feet looking down on you every day, happy to know for whatever legnth of time she was physically with you, you and your family loved her (and still do) with every piece of your hearts....
SMC799 2 years ago
What a beautiful little girl. I'm so sorry for your loss!
I just lost my son to Potter's Syndrome (bilateral renal agenesis), he was born sleeping November 29th, 2009. It's been a difficult journey and my heart breaks every time I see another baby that has suffered from the same thing.
selphykitty 2 years ago
So sorry to hear of your loss. Rory actually had BOR Syndrome- which was confused with potters syndrome until the geneticist figured it out- she had a little brother born without kidneys as well, and he graced us for 6 & 1/2 months. I hope to get a video of him up soon, but there is a lot of his life that I don't want to leave out... so it will take a while.
So sorry again for your loss.
JadeSanford519 2 years ago
I am so sorry for your loss. I have a 13 month old daughter and just thinking of what it would feel like to only hold my daughter for a hour after she was born is tering me apart. You are strong!!!
ladybug19791 2 years ago
What a beautiful angel you were blessed with. I am so sorry for you loss and I DO understand the pain. My thoughts are with you always.
ccnrps123 2 years ago
i am sooooooooooooooooo sorry
MrSardisgirl 2 years ago
What a precious little face. Heaven never saw such a perfect little angel until they met her. Thank you for sharing your beautiful pictures.
jmg102380 2 years ago 3
Oh my......my friends are 21 weeks pregnant and have just been told that there baby has bilateral renal agenesis. We are so sad for them. Thank you for sharing your joy and sorrow.
ryanjames731 2 years ago
If they would like to be put in contact with someone who went through this twice, please let me know. If it is BOR syndrome & they have a perinatologist that is willing to work with them, there may be something they can do. I'd love to speak more with you.
JadeSanford519 2 years ago
I am so sorry for your tremendous loss and suffering. There are no other words to say. What a beautiful and fitting name for your precious daughter <3
momcubed76 2 years ago
It's so sad seeing children passing away... :(
FreezingFears 2 years ago
R.i.p lil 1 xxx
angelbabyjohnathan 2 years ago
R.i.p lil 1 keep ur mummy n daddy strong ino teh pain ur feeling i lost my son at 40 weeks n 2days xx
angelbabyjohnathan 2 years ago
WHAT HAPPENED
perfectstorm101 2 years ago
She had bilateral renal agenesis as a result from a genetic disorder known as BOR syndrome. She also had a beautiful little brother named Elijah that blessed us for 6 & 1/2 months. I am working on a video of him & will have that up soon. My sister has since had two more beautiful children, a boy & girl, both healthy.
JadeSanford519 2 years ago
Happy Birthday Aurora Skye...sweet dreams little angel
bopples2006 2 years ago 2
what a little darling, rest in peace babes x
k3llz67 2 years ago 2
It's abeautiful video to celebrate the life of a beautiful little girl.
jessicapotter76 2 years ago 4