The thing about having an illness is that you still had to go through life day by day like a normal person and the people around you don't understand what's going on.
You are not putting anyone in a bad mood. Your story helps those who are suffering from the same lupus flares. Often, they wonder if their symptoms are a part of lupus or what?? I've learned a lot from networking with others who have lupus. Remember, we have an inflammatory condition, which can cause inflammation ANYWHERE in the body.. Please join our cause, through Lighthouse for Lupus 1,500 members, which is the largest FB Lupus support group. We also have our new Lupieville.. <3 VHD
hello! well i have lupus as well. since i was young. im 21 now. my feet ache and swell daily and my legs are always in chronic pain. the dr prescibed me predisone.i took four at a time. i wasnt even taking them for a week b4 i had a really bad reaction to them. muscle weakness and it felt like my back was being stabbed. have you had any of this as a reaction?? if so, what else are u taking to help subside the symptoms. thankxxx
hello! well i have lupus as well. since i was young. im 21 now. my feet ache and swell daily and my legs are always in chronic pain. the dr prescibed me predisone.i took four at a time. i wasnt even taking them for a week b4 i had a really bad reaction to them. muscle weakness and it felt like my back was being stabbed. have you had any of this as a reaction?? if so, what else are u taking to help subside the symptoms. thankxxx
You are a stong young woman thank you for sharing your bad days,i get so depressed sometimes,and my family is great ,i amd 49 and have discord lupus,i got to the specialist next week to check for sle,i hurt so bad somethimes and i am so tired ,i have seen so many dr that it gets frustrating, good luck
I have just sent you A FOLLOW REQUEST on TWITTER. I don't want to Post My TWITTER name on Here, but if you Look at The Last 7 Letters which are 2 Words in My YouTube name, you will See that They are The first Letters in My TWO WORD TWITTER NAME (which Contains an UNDERSCORE _ ) ... I hope You'll Accept my request. I'll also Follow your BLOGGER BLOG when I Log Into BLOGGER Next Time.
>> ... (Continued from My Previous Comment) >>> . . I'd just like to say, Samantha, that I think You are A Very Brave Girl and I'll often think of you and I'll Try to Follow Your VLOGS as much as I can. I Do Not have LUPUS myself, but a Cousin of My Mothers had it. Also as I said in My First Comment, I have a Very close friend with it. I only met her by accident through my work, and I began to Follow Her On TWITTER and Facebook during one of her LUPUS PROJECTS, now we are Very Good Friends.
>> ... (Continued from My Previous Comment) >>> . . After watching that first VLOG of Yours that I came across - I think it was the one about 'Rashes and Biggest Fears', I had to watch more of them. So far I have watched about 6 of Your VLOGS, and I have watched about 4 other LUPUS related videos (besides the one that My Friend made). I intend on watching The Rest of Your VLOGS, but I am going to attempt to Watch Them In Order From When You Made The Initial One . . . (Cont. Next Comment) >>
I came across one of Your VLOGS after looking at The Lupus Video of A Close friend of mine who has LUPUS and is doing A Lot Of Work Raising Awareness For LUPUS. In case anyone hasn't worked out what a VLOG is and thinks that Samantha Pressed The 'V' instead of the 'B' - because they are Usually Next to Each Other on The Keyboard it is a ' Video - bLOG ' ... hence V from Video and LOG from BLOG .......... (Continued on The Following Comment/s) >>>
my little girl..i have sle too and my feet and my fingers and my eldows were sooo swollen...just like you.every night i cried (bec i did n t want to upset my family).
today is a bad day for me too.i m soooo tired....and i shiver....and i want to cry all the time.when i have a bad day i fell bad my body and my mood too.hope ur fine.
i wrote here cauze i wanted to talk to someone..anyone...my parents worry so much about me..i don t want to upset them...stay strong!
You are an incredible young lady- I know people will learn and get inspired from your videos!! I don't know if lupus is what I have yet- but we do seem to have a lot in common- thank you!!
wow! omg, my Rheumy just reduced my prednisone, and I over did it today and I'm paying for it. Wow, thank you so much for responding. It feels good to have answers especially whne my Dr. office just closed. Thank You so much.
@bigsanfer32 I know your active in sports, do you have swelling or pain that day or the next day? I have so much pain today, I don't know if its the reduction of the prednisone, the weather change, or the fact that I pushed myself to far physically. Im in horrible pain.
@BIATCHONBUDGET Yeah, during basketball season I seem a lot more out of it than usual. My bad day was caused most likely from doing to much in one day, along with prednisone tapering.
@BIATCHONBUDGET Hey... The first symptom I had was hair loss. I went to a dermatologist and she said that the patches of hair loss throughout my scalp looked like discoid lupus but then i was later diagnosed with SLE. I have had this for about fours years now and some of the hair is growing back in the spots.
It sucks that we all have to go through this but I'm glad you made this video. It shows people how fast this disease can affect us. (literally over night!). I hope that you feel better real soon. I myself have been having more bad days then good but I blame mine on the lovely Canadian weather that were having. three days ago it was high of 24 degree's, yesterday we had snow and today were sitting around 14 degree's.
Oh honey, I feel your pain and can see it in your face. I hurt for you. I wish you didn't have to endure this like I do. The rain we have been having is making me have more bad days than good but we are troopers and although it stinks we do get through it. Praying for better days ahead for you sweetie.
Wow! Thank you for that, I go through the same thing. i'm sorry you suffer like I do. This video is so important for people to know the severity of this disease. Thank you
Aww sweetie I hope you feel better. You'll be in my prayers =) Epsom salt baths help, and tiger balm help relieve the pain. You can get it at Walgreens.
awe, hon, take it easy! I've recently had to buy a big bulky electric toothbrush just for those days that i couldn't wrap my hands tight enough to grip a normal toothbrush :/
Im the same, i get it bout a few times a month. We gotta stay strong
jazzyjay0712 3 months ago
The thing about having an illness is that you still had to go through life day by day like a normal person and the people around you don't understand what's going on.
rayhanah11 7 months ago
You are not putting anyone in a bad mood. Your story helps those who are suffering from the same lupus flares. Often, they wonder if their symptoms are a part of lupus or what?? I've learned a lot from networking with others who have lupus. Remember, we have an inflammatory condition, which can cause inflammation ANYWHERE in the body.. Please join our cause, through Lighthouse for Lupus 1,500 members, which is the largest FB Lupus support group. We also have our new Lupieville.. <3 VHD
Landlockmermaid 7 months ago
Im 16 and i was just told i have Lupus
ilovemyoreobunnbunn 7 months ago
I feel you sister... I'm 22 and after ten years I was finally officially diagnosed with Lupus. Keep fighing <3
Silentgraves 9 months ago
This has been flagged as spam show
hello! well i have lupus as well. since i was young. im 21 now. my feet ache and swell daily and my legs are always in chronic pain. the dr prescibed me predisone.i took four at a time. i wasnt even taking them for a week b4 i had a really bad reaction to them. muscle weakness and it felt like my back was being stabbed. have you had any of this as a reaction?? if so, what else are u taking to help subside the symptoms. thankxxx
milkchoco2007 9 months ago
hello! well i have lupus as well. since i was young. im 21 now. my feet ache and swell daily and my legs are always in chronic pain. the dr prescibed me predisone.i took four at a time. i wasnt even taking them for a week b4 i had a really bad reaction to them. muscle weakness and it felt like my back was being stabbed. have you had any of this as a reaction?? if so, what else are u taking to help subside the symptoms. thankxxx
milkchoco2007 9 months ago
You are a stong young woman thank you for sharing your bad days,i get so depressed sometimes,and my family is great ,i amd 49 and have discord lupus,i got to the specialist next week to check for sle,i hurt so bad somethimes and i am so tired ,i have seen so many dr that it gets frustrating, good luck
TheAnnamarie49 1 year ago
Hello Again Samantha,
I have just sent you A FOLLOW REQUEST on TWITTER. I don't want to Post My TWITTER name on Here, but if you Look at The Last 7 Letters which are 2 Words in My YouTube name, you will See that They are The first Letters in My TWO WORD TWITTER NAME (which Contains an UNDERSCORE _ ) ... I hope You'll Accept my request. I'll also Follow your BLOGGER BLOG when I Log Into BLOGGER Next Time.
TheNevJohn 1 year ago
@TheNevJohn Hey! I accepted the request! And thank you so much for writing all of this and taking the time to learn about lupus!
LiveHopeLupus 1 year ago
>> ... (Continued from My Previous Comment) >>> . . I'd just like to say, Samantha, that I think You are A Very Brave Girl and I'll often think of you and I'll Try to Follow Your VLOGS as much as I can. I Do Not have LUPUS myself, but a Cousin of My Mothers had it. Also as I said in My First Comment, I have a Very close friend with it. I only met her by accident through my work, and I began to Follow Her On TWITTER and Facebook during one of her LUPUS PROJECTS, now we are Very Good Friends.
TheNevJohn 1 year ago
>> ... (Continued from My Previous Comment) >>> . . After watching that first VLOG of Yours that I came across - I think it was the one about 'Rashes and Biggest Fears', I had to watch more of them. So far I have watched about 6 of Your VLOGS, and I have watched about 4 other LUPUS related videos (besides the one that My Friend made). I intend on watching The Rest of Your VLOGS, but I am going to attempt to Watch Them In Order From When You Made The Initial One . . . (Cont. Next Comment) >>
TheNevJohn 1 year ago
Hello Samantha,
I came across one of Your VLOGS after looking at The Lupus Video of A Close friend of mine who has LUPUS and is doing A Lot Of Work Raising Awareness For LUPUS. In case anyone hasn't worked out what a VLOG is and thinks that Samantha Pressed The 'V' instead of the 'B' - because they are Usually Next to Each Other on The Keyboard it is a ' Video - bLOG ' ... hence V from Video and LOG from BLOG .......... (Continued on The Following Comment/s) >>>
TheNevJohn 1 year ago
my little girl..i have sle too and my feet and my fingers and my eldows were sooo swollen...just like you.every night i cried (bec i did n t want to upset my family).
today is a bad day for me too.i m soooo tired....and i shiver....and i want to cry all the time.when i have a bad day i fell bad my body and my mood too.hope ur fine.
i wrote here cauze i wanted to talk to someone..anyone...my parents worry so much about me..i don t want to upset them...stay strong!
Dimitot 1 year ago
@Dimitot Hey thanks for writing! I know you wrote a week ago but I hope that you are feeling better now! By the way this is my other account.
LiveHopeLupus 1 year ago
@LiveHopeLupus i feel much better now thanks!i m doing great!!hope u have perfect mood too!i ll stay in touch!
Dimitot 1 year ago
You are an incredible young lady- I know people will learn and get inspired from your videos!! I don't know if lupus is what I have yet- but we do seem to have a lot in common- thank you!!
takinaluk 1 year ago
youre such an inspiration<3
ecohn45 1 year ago
i cried
ThePinklemonade123 1 year ago
Oh my gosh this actually like made me hurt, i feel so bad for you. Stay strong, you inspire me (:
xocatherinexo10 1 year ago 6
Such an inspirtation <3
How do you deal with school? at my school you can only have 9 days absence. out of the yr.
does your school give you benefits?
hellokitty2656 1 year ago
stay strong <333333333333333
snorg123 1 year ago
Hope you've been doing better this week!
melskimo 1 year ago
Hope you're feeling better today.
BIATCHONBUDGET 1 year ago
wow! omg, my Rheumy just reduced my prednisone, and I over did it today and I'm paying for it. Wow, thank you so much for responding. It feels good to have answers especially whne my Dr. office just closed. Thank You so much.
BIATCHONBUDGET 1 year ago
You look like me on my bad days.
NamekianPikkoro7 1 year ago
I have to ask if you have gone through any hair loss. I have, and was just wondering if you have seen that.
BIATCHONBUDGET 1 year ago
@BIATCHONBUDGET In the beginning I had some hair thinning. Nothing drastic though and luckily it went away.
bigsanfer32 1 year ago
@bigsanfer32 I know your active in sports, do you have swelling or pain that day or the next day? I have so much pain today, I don't know if its the reduction of the prednisone, the weather change, or the fact that I pushed myself to far physically. Im in horrible pain.
BIATCHONBUDGET 1 year ago
@BIATCHONBUDGET Yeah, during basketball season I seem a lot more out of it than usual. My bad day was caused most likely from doing to much in one day, along with prednisone tapering.
bigsanfer32 1 year ago
@BIATCHONBUDGET Hey... The first symptom I had was hair loss. I went to a dermatologist and she said that the patches of hair loss throughout my scalp looked like discoid lupus but then i was later diagnosed with SLE. I have had this for about fours years now and some of the hair is growing back in the spots.
maecoe88 11 months ago
It sucks that we all have to go through this but I'm glad you made this video. It shows people how fast this disease can affect us. (literally over night!). I hope that you feel better real soon. I myself have been having more bad days then good but I blame mine on the lovely Canadian weather that were having. three days ago it was high of 24 degree's, yesterday we had snow and today were sitting around 14 degree's.
SusieAnne6 1 year ago
Oh honey, I feel your pain and can see it in your face. I hurt for you. I wish you didn't have to endure this like I do. The rain we have been having is making me have more bad days than good but we are troopers and although it stinks we do get through it. Praying for better days ahead for you sweetie.
lupiemelly14 1 year ago
Wow! Thank you for that, I go through the same thing. i'm sorry you suffer like I do. This video is so important for people to know the severity of this disease. Thank you
BIATCHONBUDGET 1 year ago
Aww sweetie I hope you feel better. You'll be in my prayers =) Epsom salt baths help, and tiger balm help relieve the pain. You can get it at Walgreens.
optimisticlight 1 year ago
i hope you feel better girlie
sweetblueberry1 1 year ago
i have those days too. I hope you feel better by tomorrow.. or even by tonight :D you never know. May God Bless you :)
LVG4GOD 1 year ago
awe, hon, take it easy! I've recently had to buy a big bulky electric toothbrush just for those days that i couldn't wrap my hands tight enough to grip a normal toothbrush :/
hope the swelling goes down soon!
melskimo 1 year ago
I understand! last night I feel asleep without taking pain meds, and I couldn't get out of bed this morning. I have rheumatoid arthritis!
GlamGirlLiz 1 year ago