This was very informative.I have Hereditary Chronic Pancreatitis, 6 generations identified. looking at doing the celiac plexus block, after MANY spincterotomies there's nothing left they can do for fear my pancreas will fall apart leving us with no option but removal so,this procedure that wendy had has given me some new hope I am going to discuss it with my Doctor and the pain clinic I now go to at UCSF medical center in San Francisco Ca. i HOPE its something they can do and that it works..
i have been there wendy. im still dealing with doctors thinking im crazy, everyone but my specialist. who happens to be hours away when the pain becomes unbearable. however even my specialists do not have this treatment available. instead they insert tubes into my pancreatic duct. i wish it worked as well as this apparently does.instead it makes mine worse, you should feel blessed to have Dr. Steve Freedman. i wish i did. keep hanging in there girl.
This sounds like a good treatment for one aspect of pancreatitis - the pain. But there is a lot more to pancreatitis - especially in the chronic condition - than just pain. I have dealt with pancreatitis for mre than 45 years and finally had the Total Pancreatectomy with Autologous Islet Cell transplant surgery. Since this surgery I am off my deathbed, no more feeding tubes, went from an uncontrolable Type 1 diabetic to a well controlled hereditry Type 2 diabetic.
You can't cure pancreatitus. Idon't care what you say this is coming from someone who was born with it and i'm 32 yrs. old know and it still has not let up. But of course i'm knothing but an addict to these doctors
So proud to be marrying you Wendy. It's a shame to see pancreatitis ravage you and all these posters but you're so strong. Do everything you can to help as many people as possible as I am doing with my Tourette's. You're a tough girl. Keep on living the life you live and giving all the love you give. You have an amazing future that I'm proud to be a part of. Love always, T.
i have just come out of hospital myself today! its a killer! the pain is like only what i can decribe as a chestburster inside you from the film alien,all they do for me is take blood,and give morphine followed by codiene which i have been on for 6 yrs!
my advice is when having a pancreatic attack,dont eat! drink fluid! then hopefully it will pass after a wk or 2! its awful,im in so much pain now!
My daughter has suffered form stomach pain for two years after gastric bypass surgery.We seen scores of Dr's and specialist.Her story is long.Can anyone please help this girl? I will write the whole story if anyone can help.Thank you.
man pancreatitis is fucking killer i feel mine coming on i hate going to the hospital cuz all they do is take blood and tell me to go home see my dostor but i dont have a doctor i just dont think they like helping me cuz im native american but i dont know
Yes Its a Wow- I have chronic pancreatits having day to day pain i've had it since 13 and they've did tests and cant find anything wrong with me they say the exact same thing that Im"crazy" its all in my head. A Doctor messed me up when he tore my bile duct and it throwed me into chronic pancreatitis and still suffering from it and im 23 now i sure would like to know what i need to do?its killing me to keep hearing this. its nerve wrecking Please Help me with some advice.
Wow- to find someone else out there who knows how bad pancreatitis is!!!! I have had chronic pancreatitis since I was twelve!! I am currently living on Total Parental Nutrition IV's 16 hours a day and I am post whipple but still have the disease, still in a lot of pain, still puking my guts up and that knife is still in my abdomen. God Bless You Sweetie!! I've been there!!! I missed a lot of school too, I will be 25 in June. Keep your head up girlie!!!!
WOW...my husband had the IV feedings and the whipple surgery. Praying for you, this is a long, tough, lifestyle changing road...you can see several of our videos on my page, one is our story in picture, some graphic, most are in sign language. God be with you!
Wendy i have the same thing.it is truly extreame pain.i am only 10 years old.i am better now.im praying for you.God Bless You Wendy!!!
crazycats657110 1 month ago
This was very informative.I have Hereditary Chronic Pancreatitis, 6 generations identified. looking at doing the celiac plexus block, after MANY spincterotomies there's nothing left they can do for fear my pancreas will fall apart leving us with no option but removal so,this procedure that wendy had has given me some new hope I am going to discuss it with my Doctor and the pain clinic I now go to at UCSF medical center in San Francisco Ca. i HOPE its something they can do and that it works..
BarbBare 2 months ago
i have been there wendy. im still dealing with doctors thinking im crazy, everyone but my specialist. who happens to be hours away when the pain becomes unbearable. however even my specialists do not have this treatment available. instead they insert tubes into my pancreatic duct. i wish it worked as well as this apparently does.instead it makes mine worse, you should feel blessed to have Dr. Steve Freedman. i wish i did. keep hanging in there girl.
JessiKkaTye 10 months ago
This sounds like a good treatment for one aspect of pancreatitis - the pain. But there is a lot more to pancreatitis - especially in the chronic condition - than just pain. I have dealt with pancreatitis for mre than 45 years and finally had the Total Pancreatectomy with Autologous Islet Cell transplant surgery. Since this surgery I am off my deathbed, no more feeding tubes, went from an uncontrolable Type 1 diabetic to a well controlled hereditry Type 2 diabetic.
ReeAnnBetts 1 year ago
You can't cure pancreatitus. Idon't care what you say this is coming from someone who was born with it and i'm 32 yrs. old know and it still has not let up. But of course i'm knothing but an addict to these doctors
Sogden78 1 year ago
So proud to be marrying you Wendy. It's a shame to see pancreatitis ravage you and all these posters but you're so strong. Do everything you can to help as many people as possible as I am doing with my Tourette's. You're a tough girl. Keep on living the life you live and giving all the love you give. You have an amazing future that I'm proud to be a part of. Love always, T.
Shredderific 1 year ago
i have just come out of hospital myself today! its a killer! the pain is like only what i can decribe as a chestburster inside you from the film alien,all they do for me is take blood,and give morphine followed by codiene which i have been on for 6 yrs!
my advice is when having a pancreatic attack,dont eat! drink fluid! then hopefully it will pass after a wk or 2! its awful,im in so much pain now!
506jimbob 1 year ago
My daughter has suffered form stomach pain for two years after gastric bypass surgery.We seen scores of Dr's and specialist.Her story is long.Can anyone please help this girl? I will write the whole story if anyone can help.Thank you.
Ditch1221 1 year ago
man pancreatitis is fucking killer i feel mine coming on i hate going to the hospital cuz all they do is take blood and tell me to go home see my dostor but i dont have a doctor i just dont think they like helping me cuz im native american but i dont know
whorun218 1 year ago
Yes Its a Wow- I have chronic pancreatits having day to day pain i've had it since 13 and they've did tests and cant find anything wrong with me they say the exact same thing that Im"crazy" its all in my head. A Doctor messed me up when he tore my bile duct and it throwed me into chronic pancreatitis and still suffering from it and im 23 now i sure would like to know what i need to do?its killing me to keep hearing this. its nerve wrecking Please Help me with some advice.
Thanks
chelsea
chelsea20sc 1 year ago
Wow- to find someone else out there who knows how bad pancreatitis is!!!! I have had chronic pancreatitis since I was twelve!! I am currently living on Total Parental Nutrition IV's 16 hours a day and I am post whipple but still have the disease, still in a lot of pain, still puking my guts up and that knife is still in my abdomen. God Bless You Sweetie!! I've been there!!! I missed a lot of school too, I will be 25 in June. Keep your head up girlie!!!!
Medic25MK 1 year ago
@Medic25MK
WOW...my husband had the IV feedings and the whipple surgery. Praying for you, this is a long, tough, lifestyle changing road...you can see several of our videos on my page, one is our story in picture, some graphic, most are in sign language. God be with you!
cdbicdb 1 year ago