Hi Linda :) Im new to CCSVI, I havent had the angio done yet. But I plan on it as soon as I can get it done. Im in FLorida and moving back up to Connecticut in April- SO I plan to do it when I get back up North- I loved watching all your videos, and you get more beautiful with each one too :) Those little puppies are soo cute! And your husband and family seem wonderful- I wish you blessings overflowing! And Im looking forward to watching your updates! Maria :)
Hi Linda great video as usual, this is all new and exciting and we are only at the very start of a long and educational road. I believe we are approaching the tipping point in our favour, we won't be giving up just yet, (finances permitting) and are looking forward to day Vicky posts her recovery video.
Thanks Linda for this video :) I agree coz of the resistance of this cutting edge treatment and how it has been handled by all involved the figures will never add up! There is too much quietness in the MSSs and I am just wondering what is up their sleeves now. Grrrrrrrrrrrrrrrrrrrr You look great by the way :) XOXO
Thank's Linda! I don,t understand our Government....they should all try having MS for a week, might change their minds real quick!!!!!!!!!!!!..............Marty
Hi Linda, great to hear you are still improving I will be going next week, I am excited and yet a little unsure what to expect. There are companies who would be affected negatively they are certainly not helping simply because of money issues. Thanks for the pioneering efforts!
I can't wait to hear about your next procedure. I do hope your doctor is one who believes in blowing the valves and using a larger balloon catheter. This may very well be the answer to stents and clotting issues. So far, the clinical observations are showing that to be true. I know too well who can see the dwindling bottom line when DMD's are recognized by the entire medical community as the failure they were destined to be.
Thanks for the video.....can,t wait til I take my wife to Albany this summer ! She's had it since 1977! Thank the Lord for Dr. Siskin...........We,er driving down from Toronto
I'm happy for you and your wife. I wish you had the opportunity to have it done in Toronto where it should be available to her, but this is much better than great distances overseas.
So good to hear from you again! I am one who has had more gradual improvements. I am, however, still happy with what I do have. Am working on eating better and keeping as positive as I can and hoping for more.You are an example for me, I strive to do as well as you are doing. I also hope for our Canadian brothers and sisters to be 'allowed' (kind of sticks in your craw) to get this in their own country!
in canada we also have to worry about follow up care. I actually had an acquaintance who is an admin for the major health insurance here, say to me the other day "well you're a pioneer, just go to the US and get treated again' well not everyone can afford that and when it's more than once it's very hard, then there's the follow up issue. urghhh so frustrating. I also wish more would speak up, good and bad, second, and even third time around, all of it helps to know
It's an important issue to worry about. If I lived in Canada, I would have come to the US. But I know it would be a poor second to having humane after care at home. I think Canada is embarrassing herself to let this charade continue.
I am hoping for better consideration by Canada and other countries as well. The procedure has progressed a great deal from where it was a year ago.Doctors have taken the torch from Dr. Zamboni and moved forward to provide so much more than what we had. Better results were inevitable. Two or three procedures will change as more join in our cause.
So good to see your video update~! Many blessings to you and all the early CCSVI pioneers. I hope all the studies and case stories help bring about change. The good news is there are clinics in the US which are working to upgrade and provide CCSVI treatments. Canada and other countries need to take note. Again all the best to you and everyone dealing with this and other health challenges!
Hi! I'm one of those with gradual improvements. The more I try to walk the better I do. I really do appreciate you keeping do these. The doctors I had prefer using larger balloons to stents. Since I am being watched with good follow up care, I am glad to be part of the learning curve in my own way. You are looking really pretty and much more healthy! Glad again, that you have not stopped doing videos. Too many now of those "what ever happened to . . ." MS Vloggin patients out there.
So encouraging to hear you are doing well. I may have a second procedure done if I don't see more improvement. I had my first treatment done as part of research being done by the Hubbard Foundation in San Diego, CA. hubbardfoundationDOTorg...
Hi Linda :) Im new to CCSVI, I havent had the angio done yet. But I plan on it as soon as I can get it done. Im in FLorida and moving back up to Connecticut in April- SO I plan to do it when I get back up North- I loved watching all your videos, and you get more beautiful with each one too :) Those little puppies are soo cute! And your husband and family seem wonderful- I wish you blessings overflowing! And Im looking forward to watching your updates! Maria :)
coldmountainpix 1 year ago
Hi Linda great video as usual, this is all new and exciting and we are only at the very start of a long and educational road. I believe we are approaching the tipping point in our favour, we won't be giving up just yet, (finances permitting) and are looking forward to day Vicky posts her recovery video.
Good Luck,Andy.
MrAndyclarke123 1 year ago
Thanks Linda for this video :) I agree coz of the resistance of this cutting edge treatment and how it has been handled by all involved the figures will never add up! There is too much quietness in the MSSs and I am just wondering what is up their sleeves now. Grrrrrrrrrrrrrrrrrrrr You look great by the way :) XOXO
SHIRLEYRENSHAW 1 year ago
Thank's Linda! I don,t understand our Government....they should all try having MS for a week, might change their minds real quick!!!!!!!!!!!!..............Marty
Binder472000 1 year ago
Bravo Linda..... well said.
boatjohn1 1 year ago
Hi Linda, great to hear you are still improving I will be going next week, I am excited and yet a little unsure what to expect. There are companies who would be affected negatively they are certainly not helping simply because of money issues. Thanks for the pioneering efforts!
irishblessings1 1 year ago
@irishblessings1
I can't wait to hear about your next procedure. I do hope your doctor is one who believes in blowing the valves and using a larger balloon catheter. This may very well be the answer to stents and clotting issues. So far, the clinical observations are showing that to be true. I know too well who can see the dwindling bottom line when DMD's are recognized by the entire medical community as the failure they were destined to be.
mammananny 1 year ago
Thanks for the video.....can,t wait til I take my wife to Albany this summer ! She's had it since 1977! Thank the Lord for Dr. Siskin...........We,er driving down from Toronto
Binder472000 1 year ago
@Binder472000
I'm happy for you and your wife. I wish you had the opportunity to have it done in Toronto where it should be available to her, but this is much better than great distances overseas.
mammananny 1 year ago
So good to hear from you again! I am one who has had more gradual improvements. I am, however, still happy with what I do have. Am working on eating better and keeping as positive as I can and hoping for more.You are an example for me, I strive to do as well as you are doing. I also hope for our Canadian brothers and sisters to be 'allowed' (kind of sticks in your craw) to get this in their own country!
lavmac56 1 year ago
@lavmac56
Never give in. There is so much we need to do for ourselves in addition to the procedure.
mammananny 1 year ago
in canada we also have to worry about follow up care. I actually had an acquaintance who is an admin for the major health insurance here, say to me the other day "well you're a pioneer, just go to the US and get treated again' well not everyone can afford that and when it's more than once it's very hard, then there's the follow up issue. urghhh so frustrating. I also wish more would speak up, good and bad, second, and even third time around, all of it helps to know
BrendaRaven1 1 year ago
@BrendaRaven1
It's an important issue to worry about. If I lived in Canada, I would have come to the US. But I know it would be a poor second to having humane after care at home. I think Canada is embarrassing herself to let this charade continue.
mammananny 1 year ago
I am hoping for better consideration by Canada and other countries as well. The procedure has progressed a great deal from where it was a year ago.Doctors have taken the torch from Dr. Zamboni and moved forward to provide so much more than what we had. Better results were inevitable. Two or three procedures will change as more join in our cause.
mammananny 1 year ago
So good to see your video update~! Many blessings to you and all the early CCSVI pioneers. I hope all the studies and case stories help bring about change. The good news is there are clinics in the US which are working to upgrade and provide CCSVI treatments. Canada and other countries need to take note. Again all the best to you and everyone dealing with this and other health challenges!
88whynot 1 year ago
Hi! I'm one of those with gradual improvements. The more I try to walk the better I do. I really do appreciate you keeping do these. The doctors I had prefer using larger balloons to stents. Since I am being watched with good follow up care, I am glad to be part of the learning curve in my own way. You are looking really pretty and much more healthy! Glad again, that you have not stopped doing videos. Too many now of those "what ever happened to . . ." MS Vloggin patients out there.
donotconcede 1 year ago 2
So encouraging to hear you are doing well. I may have a second procedure done if I don't see more improvement. I had my first treatment done as part of research being done by the Hubbard Foundation in San Diego, CA. hubbardfoundationDOTorg...
Continued well wishes...
ccsviguy 1 year ago
same problem in Norway too, but maybe seeing some lights now.
ChaozFear 1 year ago