We need your help to STOP ALS. Not raising awareness & funding ALS will not receive the research necessary to find a cure. It will continue to strike down every person.
We believe that Phase 2 drugs showing safety & efficacy, such as Dexpramipexole, & NP001, as well as off label wf10, should be made available to us through Compassionate Use Now. PLEASE SIGN THE Change.org PETITION. Corporate Citizens: Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!
hah.. there is no "treatment". I watch my father get worse daily. I go to his house every day to move his limbs so the joints dont freeze up. "his daily stretches" now I also hellp my mom feed him and dress him...ALS is horrid.
@AcidBong Hey Acid, You may already know this but I thought I would share it with you. Please just nevermind if you knew it already but researchers from Feinberg School of Medicine discovered the protein ubiquilin 2 malfunctions in patients with ALS. The next step for them is to find out how recycling pathways are involved with ALS which could bring new ideas into how new treatments could be developed to target this disease. This gave me some hope. I hope it does you too.
@Slingblade420 Thank you for your thought and time. Yes, in fact I have read about this also. It sure does give researches the next step into finding a true treatment for future ALS patients. However...my father is just too far gone now and he's just waiting to leave this earth.
Amyotrophic Lateral Sclerosis (ALS) aka: Lou Gehrigh's disease, is a relentlessly progressive paralyzing disease - most patients die within 2-5 yrs.
ALS is a death sentence w/no end in sight & the only way to further push for research is to get the word out. There is no known cure for ALS, but you can easily bring a thousand people the seed of hope.
PLEASE HELP SPREAD PUBLIC AWARENESS IN THE FIGHT AGAINST ALS AND HELP STRIKE OUT AND DEFEAT ALS.
neurologist r useless ???? they only dx desease with no cures or with very EXPENSIVE and ineffective treatment. als, ms, alzhaimer, huntignton, parkinson, epilepsy, etc etc
This has been flagged as spam show
We need your help to STOP ALS. Not raising awareness & funding ALS will not receive the research necessary to find a cure. It will continue to strike down every person.
We believe that Phase 2 drugs showing safety & efficacy, such as Dexpramipexole, & NP001, as well as off label wf10, should be made available to us through Compassionate Use Now. PLEASE SIGN THE Change.org PETITION. Corporate Citizens: Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!
BEAT ALS!!!
RAINBOWLIZY333 2 months ago
hah.. there is no "treatment". I watch my father get worse daily. I go to his house every day to move his limbs so the joints dont freeze up. "his daily stretches" now I also hellp my mom feed him and dress him...ALS is horrid.
AcidBong 4 months ago
@AcidBong Hey Acid, You may already know this but I thought I would share it with you. Please just nevermind if you knew it already but researchers from Feinberg School of Medicine discovered the protein ubiquilin 2 malfunctions in patients with ALS. The next step for them is to find out how recycling pathways are involved with ALS which could bring new ideas into how new treatments could be developed to target this disease. This gave me some hope. I hope it does you too.
Slingblade420 2 months ago
@Slingblade420 Thank you for your thought and time. Yes, in fact I have read about this also. It sure does give researches the next step into finding a true treatment for future ALS patients. However...my father is just too far gone now and he's just waiting to leave this earth.
AcidBong 1 month ago
This has been flagged as spam show
Amyotrophic Lateral Sclerosis (ALS) aka: Lou Gehrigh's disease, is a relentlessly progressive paralyzing disease - most patients die within 2-5 yrs.
ALS is a death sentence w/no end in sight & the only way to further push for research is to get the word out. There is no known cure for ALS, but you can easily bring a thousand people the seed of hope.
PLEASE HELP SPREAD PUBLIC AWARENESS IN THE FIGHT AGAINST ALS AND HELP STRIKE OUT AND DEFEAT ALS.
RAINBOWLIZY333 4 months ago
neurologist r useless ???? they only dx desease with no cures or with very EXPENSIVE and ineffective treatment. als, ms, alzhaimer, huntignton, parkinson, epilepsy, etc etc
Gandalf17 5 months ago
WHERE IS THE HOPE FOR ALS PATIENTS, WHEN THERE IS STILL NO CURE,
NO TREATMENT AND NOTHING TO STOP OR AT LEAST SLOW DOWN THE PROGRESSION OF BEING TRAPPED "PARALYSED" IN YOUR OWN BODY !!!
RAINBOWLIZY333 1 year ago
nice
yoyolapointe 2 years ago