Started LDN 3.0 MG 4/17/2003 for MS; my dad started 4.5MG 3/07 when DX with cancer & given SIX months to live, he just turned 87; my bro started it 5/07 for sarcoidosis.
I have been on LDN for my MS for about 9 months. I have only wonderful things to say about it. Like so many others my Neurologist did not want to give it to me. I did not let up. He was WRONG and I was right. I take 4.5 a day, the dreams only lasted a couple of weeks. You start out at 1.5, for a few days, then 3.0 a few more days then 4.5. It only cost about $20 a month, I get mine from Skips in FL. Do research if you have MS, its the best thing you can do for yourself
presented my case to try LDN 3mg (recommended if muscle spasticity is an issue like it is in my case). THE NEUROLOGIST HAD NEVER HEARD OF THIS THERAPY, but researched what I gave her, and then approved it!!! After 1 week of LDN my dyskinesia (twitching of the extremities) all but stopped. It has caused difficulty sleeping and VERY vivid dreams, but so far I am responding well and have been on it for 3 months, and have been quite pleased.
I was diagnosed with a very aggressive form of MS 4 yrs ago. I came across LDN therapy by chance and did EXTENSIVE research and learned that most doctors won't prescribe LDN & that it can't be taken with any opiates (narcotic pain killers) or interferons (Avonex, Rebif, Betaseron) but can be taken in conjunction w/Copaxone which is my current therapy. At my next appointment with my Neurologist I came well prepared with research print-outs both in doctor speak and simple text for me and
FINALLY a simple explanation to share with family and friends. After 4.5 years of MS I start taking my first 3mg LDN pill tonight. (in conjunction w/copaxone, fyi) Looking forward to its benefits.
This clever bit of info and animation shows in layman's terms how LDN can help all of us, and How it works on not just the illness but the pain too...LDN for everyone x
@gonnabeatMS Its showing how LDN works. People who are well do not need to take medications for no reason. In a healthy body the OGF-OGFr system functions normally without need for outside intervention.
@SagDec15 Wow! I live in Malta, Europe, and when I inquire about Naltrexone at the pharmacy or at the neurologist, they look at me as though I just crapped on the floor in front of them. Can't get it for love nor money here. Has anyone had success ordering it online? If so, which web site? Thanks a lot :)
@gonnabeatMS Well I have MS, so does that make me not well? I only take supplements along with 4 mg of LDN a day. I feel great besides some leg weakness and major heat intolerance. Having a procedure to correct CCSVI in Aug. Hoping it will be in my past.
would ldn work for neuroblastoma relapse case and can it be administered on a 5 yr old?
simijeetu 1 week ago
@simijeetu Please check the question and answer section on LDNscience . org
LDNscience 6 days ago
Does LDN works for psoriasis ?
Is it safe to take LDN while on an SSRI(luvox) ?
nielsz1972 1 month ago
@nielsz1972 Please check the question and answer section on LDNscience . org
LDNscience 2 weeks ago
Started LDN 3.0 MG 4/17/2003 for MS; my dad started 4.5MG 3/07 when DX with cancer & given SIX months to live, he just turned 87; my bro started it 5/07 for sarcoidosis.
SagDec15 3 months ago
It works for me. ( Bartonella infection ).
MsPuckable 3 months ago
wow! I have really tried to find an explanation of how this works,but failed to do so---until now! thanks, that was great!
Raina430 8 months ago
My 10 year old daughter just started LDN, track her progress on her blog...
beatingjra.blogspot.com
dianakcollins 8 months ago
I have been on LDN for my MS for about 9 months. I have only wonderful things to say about it. Like so many others my Neurologist did not want to give it to me. I did not let up. He was WRONG and I was right. I take 4.5 a day, the dreams only lasted a couple of weeks. You start out at 1.5, for a few days, then 3.0 a few more days then 4.5. It only cost about $20 a month, I get mine from Skips in FL. Do research if you have MS, its the best thing you can do for yourself
cathyinphoenix 10 months ago
presented my case to try LDN 3mg (recommended if muscle spasticity is an issue like it is in my case). THE NEUROLOGIST HAD NEVER HEARD OF THIS THERAPY, but researched what I gave her, and then approved it!!! After 1 week of LDN my dyskinesia (twitching of the extremities) all but stopped. It has caused difficulty sleeping and VERY vivid dreams, but so far I am responding well and have been on it for 3 months, and have been quite pleased.
sbkpk 1 year ago
I was diagnosed with a very aggressive form of MS 4 yrs ago. I came across LDN therapy by chance and did EXTENSIVE research and learned that most doctors won't prescribe LDN & that it can't be taken with any opiates (narcotic pain killers) or interferons (Avonex, Rebif, Betaseron) but can be taken in conjunction w/Copaxone which is my current therapy. At my next appointment with my Neurologist I came well prepared with research print-outs both in doctor speak and simple text for me and
sbkpk 1 year ago
Even after reading tons of material before starting LDN, this brief and clear explanation was really helpful to understand how it works! Thanks!
joysie08 1 year ago 2
FINALLY a simple explanation to share with family and friends. After 4.5 years of MS I start taking my first 3mg LDN pill tonight. (in conjunction w/copaxone, fyi) Looking forward to its benefits.
sbkpk 1 year ago
Very good video. Nice information and good clear talking. Thank you.
My mother is gonna try it out for MS. Hope it helps her
cloudfire777 1 year ago
This clever bit of info and animation shows in layman's terms how LDN can help all of us, and How it works on not just the illness but the pain too...LDN for everyone x
butterflyfightingfm 1 year ago
Is LDN compatible with Natalizumab?
bellotojuanfra 1 year ago
@bellotojuanfra @bellotojuanfra
Please see LDNscience Question and Answer page
LDNscience 1 year ago
@bellotojuanfra DO what I do call your pharmacy and ask them!! if its ok with rx dose naltrexone its going to be a ok for LDN.
presouz 10 months ago
Ok so are they saying LDN is good for anybody to take? Thats what I understand?
gonnabeatMS 1 year ago
@gonnabeatMS Its showing how LDN works. People who are well do not need to take medications for no reason. In a healthy body the OGF-OGFr system functions normally without need for outside intervention.
LDNscience 1 year ago
@gonnabeatMS there are many taking LDN as a preventative measure. No colds since 4/17/2003 for me, and my LIFELONG allergies are gone.
I think LDN can help anyone
SagDec15 1 year ago
@SagDec15 Wow! I live in Malta, Europe, and when I inquire about Naltrexone at the pharmacy or at the neurologist, they look at me as though I just crapped on the floor in front of them. Can't get it for love nor money here. Has anyone had success ordering it online? If so, which web site? Thanks a lot :)
rooflee 1 year ago
@gonnabeatMS Well I have MS, so does that make me not well? I only take supplements along with 4 mg of LDN a day. I feel great besides some leg weakness and major heat intolerance. Having a procedure to correct CCSVI in Aug. Hoping it will be in my past.
gonnabeatMS 1 year ago
@gonnabeatMS Great to hear the LDN is treating you well. Please let me know what the CCSVI procedure does for you. Best of luck :)
rooflee 1 year ago