Hookworms? HOOKWORMS?? OMG are we in the Middle Ages now! This is preferable to vascular research in the opinion of the MSSoc and their cabal of neurologists. It's enough to make my blood boil - but even that wouldn't heat my cold feet, would it?
excellent video! I know here in Canada there is a phone number that MRI/x ray techs etc. are supposed to call to confer about stents etc. being compatible with tests. Jenna Machala had quite a stand off with her MRI department and managed to get it cleared for persons living in BC that went abroad for treatment and have stents. great work!
Hi Michele, great idea to separate VI out of MS & CCSVI. Let's see VI treated in its own right! Best of luck in your endeavours to see this through. As always, I stand with you guys albeit it from 10,000 miles away. :o)
Thank you all, as ever I was helped by Kevin to refine the reasoning and arguments. Do what you can to pass it on to anyone who you think might be interested. @ SHIRLEYRENSHAW I'd be grateful for anything you can do to circulate it.@Lynneheal, Thanks Lynne. I always aim at honesty and rationality.
I managed to get a GP to refer me to a supportive Vascular doctor but he cannot persuade the imaging dept in my hospital to do a Doppler scan on my IJVs - because I have MS- but he has arranged a scan for venous insufficiency in my legs! My doctor's rationale is that he may be able to work up the way... When I see him though I intend to make it clear what a stupid situation this is and make a formal complaint to the NHS via my PCT. I like the beaver! The MSS certainly does not act for us. A
@STINGOALI That's the way to do it... How can they deny people treatment because they have MS. I'd like to keep in touch with you STINGOALI because you might be the case we need to go to court with.
I am in awe Michelle. You have explained this very well. Understandable and it makes absolute sense. WELL DONE AND BRAVO. This must go viral right away. I will try my best to help you. CCSVI and it's treatment makes perfect sense. The NAY SAYERS have run out of time and I will NOT STOP the fight until we get this choice. I refuse to acknowledge my nureo dx. I have CCSVI formerly missdx as MS. Thank you for being an advocate for us all. Keep up your great fight.
Thank you for a great video. Keep the faith :) susan
ThePennygirl 10 months ago
Great video and idea to move things forward and onto VI-ctory, see you tomorrow in London.
MrAndyclarke123 10 months ago
Hookworms? HOOKWORMS?? OMG are we in the Middle Ages now! This is preferable to vascular research in the opinion of the MSSoc and their cabal of neurologists. It's enough to make my blood boil - but even that wouldn't heat my cold feet, would it?
alidor08 10 months ago
great video michele.. VI, so much easier and straight to the point..
omexmc80 10 months ago
excellent video! I know here in Canada there is a phone number that MRI/x ray techs etc. are supposed to call to confer about stents etc. being compatible with tests. Jenna Machala had quite a stand off with her MRI department and managed to get it cleared for persons living in BC that went abroad for treatment and have stents. great work!
BrendaRaven1 10 months ago
Hi Michele, great idea to separate VI out of MS & CCSVI. Let's see VI treated in its own right! Best of luck in your endeavours to see this through. As always, I stand with you guys albeit it from 10,000 miles away. :o)
kezzcass 10 months ago
Thank you all, as ever I was helped by Kevin to refine the reasoning and arguments. Do what you can to pass it on to anyone who you think might be interested. @ SHIRLEYRENSHAW I'd be grateful for anything you can do to circulate it.@Lynneheal, Thanks Lynne. I always aim at honesty and rationality.
Doviedove 10 months ago
I managed to get a GP to refer me to a supportive Vascular doctor but he cannot persuade the imaging dept in my hospital to do a Doppler scan on my IJVs - because I have MS- but he has arranged a scan for venous insufficiency in my legs! My doctor's rationale is that he may be able to work up the way... When I see him though I intend to make it clear what a stupid situation this is and make a formal complaint to the NHS via my PCT. I like the beaver! The MSS certainly does not act for us. A
STINGOALI 10 months ago
@STINGOALI That's the way to do it... How can they deny people treatment because they have MS. I'd like to keep in touch with you STINGOALI because you might be the case we need to go to court with.
Doviedove 10 months ago
great talk - would love to hear more about the history of the m.s society - thank you
chapterg8 10 months ago
Excellent information, thank you from one who has had the procedure!
21Skywatcher 10 months ago
I am in awe Michelle. You have explained this very well. Understandable and it makes absolute sense. WELL DONE AND BRAVO. This must go viral right away. I will try my best to help you. CCSVI and it's treatment makes perfect sense. The NAY SAYERS have run out of time and I will NOT STOP the fight until we get this choice. I refuse to acknowledge my nureo dx. I have CCSVI formerly missdx as MS. Thank you for being an advocate for us all. Keep up your great fight.
SHIRLEYRENSHAW 10 months ago
Thank you Michelle and the UK group for putting this very informative and great video together to show what all MS'ers are facing every day.
mackierojo 10 months ago
this is really good video ,its very informative honest and truthful thankyou
Lynneheal 10 months ago