Wow this is such a beautiful video, you did a wonderful job putting it together. Such a terrible tragedy to loose a precious little baby. My condolences to the family. I know its over 3years now but this will always be like yesterday. Rest in peace sweet sleeping angel! !!
Thank you for your continued support and condolences. Addie's family is greatly appreciative. Our baby girl would be 3.5 YOA now, and we can only imagine the fun she is having with OUR FATHER. Our angel watches over us until the day we meet again. Again, thank you.
My sincere condolences go out to Adelle's Mummy & Daddy. I'm so sorry that Adelle was taken away from you way too soon. May you have many cherished memories of your little angel. She is adorable. I'm sure she is around you each & everyday shining her love around you both. R.I.P little Adelle xxx
im so sorry u lost ur baby girl,i hate that they took her song off her video.i think so videos should be left alone expecially tribute videos. she was such the lil fighter. may God be with u all
I wanted to share with you some truly comforting scriptures (Psalm 147:3) "He is healing the brokenhearted ones, And is binding up their painful spots". Jesus said: I am the resurrection and the life. He that exercises faith in me, even though he dies, will come to life. (John 11:25) The Bible teaches that the dead will live again here on earth, in perfect conditions. (Psalm 37:29)The righteous themselves will possess the earth, And they will reside forever upon it.
I apologise on behalf of Zeptorr, that is a nasty and unfair comment to make. Sorry for your loss, I cant imagine how difficult it must be to lose a baby. My thoughts are with you and your family.
sorry for your lost. my son passed away a half hour after he was born. god bless you and your family. may she rest in peace. god has a plan for our children
@UntoldChaptazMiracle I am sorry for your family's loss as well. May your angel rest in peace. I am saddened that he never got to experience life as it should be.
Adelle was born with HLHS, a very rare and serious heart defect. Most of the time we don't know how/why this heart defect happens. She had a special surgery, was doing VERY WELL. We were supposed to go home. However many small complications occured and she passed away suddenly and unexpectedly while resting in my arms. She had an autopsy, but no cause of death was ever determined. The blessings she brought are never ending and we cherish and miss her very much.
Unfortunately, I have not recieved copyright permission for the audio portion of this video. If you are curious: The first part of the video is Elvis Presley's "Can't Help Falling In Love"; The other song is Brudda Iz' version of "Somewhere Over The Rainbow/What A Wonderful World."
I am so sorry for you're loss. My nephew William was born with CHARGE syndrome. They initally believed he had HLHS. He does not, but his heart does have alot of problems. Holes the size of peas,multiple ones. I thank the Lord we still have him. He is 21/2 now. But my thoughts and prayers are with you and you're family. And God bless you're little angel in heaven. Again... I am sorry for you're loss. God bless, Denise
what a beautiful baby girl death at the best of times makes sense to no one but when you get called it will make sense to you but if you in the sky tonight if you a bright star above that will be baby adelle watching over you, She is now free of pain and suffering now at least she is with the angels waiting for u until you are called see her passing as a celibration of her short life because her memories of her will never die she will always stay within you both. I lost my nan last yr too RIP
What a beautiful video. It is a cruel thing to have them taken away when you've hardly gotten to know them. The joy of having them at all even if it was just a little while is something that can never be taken. Feel free to indulge in it everyday. Don't let the grief take that from you. Blessings to you and your family.
I am so sorry that you lost your precious baby girl. :( I know what that means - I lost my daughter 6 years ago. Your daughter was so precious and beautiful! My thoughts are with you.
I, too, am sorry for your loss. I noticed they did Josie's surgery immediately and was curious as to why. Truly everyone of these babies has a unique story and individual diagnosis (I mean even though Addie and Josie both had HLHS there can still be so many variants). Thank you for posting and for the beautiful videos of your daughter, God Bless.
her pulmonary artery was large and was damaging her lungs, which is also why they took her early to prevent more damage to her lungs, and rushed surgery. Too much blood flow to the lungs causes damage to the lungs. Your welcome for my sharing I want to share her with the world. I gave her to help other babies like her. She passed because her heart wasn't strong enough to hold the surgery done perfectly. I am glad your baby made it, I hope my baby helps future babies like her.
I am so forgetful sweety I am so sorry about my end of this last comment...I am so out of it these days, grief I guess has its vicious hold on me these days. Please forgive me, I am deeply sorry for your loss. May God keep our hearts light and our feet firmly planted on the ground.
It's okay. I understand the fog. I'm glad you guys made the choice to have the surgery- as you said your daughter taught the doctors something as all of these babies do. With that we move forward constantly improving the techniques and survival rates of these surgeries. So many choose to give up that glimmer of hope and opt for no treatment, but we've come so far- why stop now?
Glad you understand, and I totally agree with you, its hard to see them in that state they have to go through but in the end I see its worth it with all the success stories out there, I mean this is the dark side of the force our babies who lost, but I know there is light side of these type stories there are so many children living with hearts that were repaired, its amazing how it can all come together, I am sad that our's had to be lost, but know their purpose is far bigger than we imagined :)
Thank You for sharing this with us. I hope you guys are ok. I believe little Addie came to change your life and the life of many of us. I feel lucky for what I am and have. Ant I thank Spirit for giving me the opportunity to live. Blessings and strenght to you guys.
my baby was just born on October 27th with hypoplastic left heart syndrome, I cried watching your video, it was so sweet. My mother made a video for my newborn who is having surgery next week, I can't wait to hold her...
Addie was born with Hypoplastic Left Heart Syndrome. To simplify that essentially half of her heart didn't develop at the critical stage in pregnancy. Adelle had her first of three open heart surgeries at the age of 2 days. She did very well. We were going home soon. Then complications started arising and she passed away of unknown cause in her Mamma's arms with her daddy at her side very suddenly one evening. Attemps were made to save her, but our angel had already taken her wings.
I am so sorry about your baby girl I cried because that is so sad. That touched my heart. I hope you guys were okay when it was over. I'm sorry about your loss I know it is almost 2 years since she past away but I hope you guys are doing okay.
365 days have flown by since you departed this world, my sweet little Adelle. What I would do to have you here with all of us, but I know that you're in better hands now. You were taken from this broken and suffering world, but not before you too, suffered. My heart breaks every time I remember what you and your little body went through. You, precious girl, have touched my heart in ways no one else has. I look forward to the day that I get to meet you, you can give me the Heavenly tour. I love u
I am sorry for your loss.What a little sweetheart.I am here in tears your girl has touched my heart an the hearts of the world.God Bless You Little Angel.You Have your wings sweet girl.God Bless you and your family xxx
I resently had a baby girl 3 months ago and I cant imagine my life without her. My heart and prayers go out to you and your family. She is a beautiful angel in heaven now.
What a beautiful baby girl you two were blessed to know, if only for a while. I hope the two of you can work through this together! It's nobody's fault, it's Gods way. God Bless both of you and your precious baby girl.
Happy Birthday my sweet baby girl. Eat a really big piece of cake and share lots of giggles with every one up in Heaven. As always I miss you and can't wait to hold you again.
Happy First Birthday baby girl. I love you so much. I wish you were here to celerbrat your big 1 Year, but I know that you are having one heck of a party in Heaven. Hugs and Kisses my Love. Love Aunti Sally
first let me say you have my sympathy,god do everything for a reason so hold on long stay strong and keep her memories close to heart.i know how it feel lost a angel then god bless me with three more they are now 17,14,13.amen stay praying.
i cried watching your video, she is the sweetiest angel, so innocent, R.I.P., stay strong, she is with God looking down & smiling at her mommy & daddy for being so strong with her.
what an angel taken too soon, this was a wonderful tribute to her...I know it will never get easier how can it your baby is gone, but even though you can't carry her in your arms I know you will always carry her in your hearts its not enough so until you can be together again hold on to the moments you had with her in the end its only moments and memories we have
i know if i see a baby now all i want to do is pick it up and love it knowing how fragile babies life and knowing how easy they can be lost both during pregnancy and birth, i am happy do say we did continue with our family and now have a 2 year old boy :) we lost our babies 4 years ago and we still get them xmas presents and birthday presents, some people say whats the point to them its hard to explain, but i am sure you will understand they are our babies and always will be babies to us xxxxxxx
I think it is so important to remember your children in a healthy way. We are having a birthday party this year for Adelle. We also go to her gravesite every day for a few minutes to talk to her and let her now that we love her and are always thinking about her. You have a way with words.. you should take advantage of that! You really have the ability to reach out to people.
Yes they was premi 27 weeks, Aaron weighed just over 1lb and sadly only lived 30 minutes, Ryan weighed just over 2lb and gave us 11 days of happiness before he sadly passed away in my arms. A lot of people don't understand or know how to react to you when you have told them of your loss, they just say "i am sorry it will get easier" i think they see it as a adult passing away, sadly its not and i truly hope they never get to feel what it is like, life does go on for us but in a different way....
I feel your loss having lost twins I understand what you feel and are going through, one day you will be reunited with your angel as we will be with our angels, she will always be with you in heart and in soul.. i can't say it gets any easier as time goes by you just learn to accept it and think of her in everything you do thats the biggest love you can give her...
I'm sorry to hear about your heartache. Were they premies? I worked with a disabled twin who had been born @ 23 weeks gestation weighing 1lb, 8oz. Sadly his brother didn't make it. I appreciate you mentioning that it doesn't get it easier. Many people kept telling me it would and I wanted to scream at them. Nothing gets easier it just gets different. God bless you and yours and thanks for your message!
Your message is so true and honest. I can feel your pain and I'm sorry for what has happened during your life. Sometimes I wonder why certain events happen. You are strong and I pray for your baby, you and all your family and friends.
THe multitude of people this video has touched amazes me. We initially put it up as a way for Addie's family to take joy in her life when we were missing her ever so badly. Never would I have thought it would reach so many people. We have been very blessed and will continue to share her legacy always.
what a sad video im so sorry 4 ur loss she is so beautyful what a short life 4 the little angel wish yous all the best 4 the future 4rm a imotional mother
im so sorry for your loss may god please bless you your family and Addie. She was such a beautiful little girl. I wish the best for you and yours God Bless Amanda
WOW!!! It has been along time since I posted anything on this video. I can not belive how many people have viewed this video of our Addie. 28,614. You continue to touch so many people. I love you lil one. Love Auntie Sally. P.S. I bet you are excited to be a big sister. I bet you pick him or her and told them that they will be the best parents. So is it a boy or girl?
im so sorry 4 ur loss we have lost 1 to its not easy i know but time does heal youre wounds u r feeling rite now such a beautiful baby ... god bless her and you all ....lee
sorry to hear of your loss, we just lost our lil eli to sids in june, he was 33 days old so i know how it hurts, my thoughts and prayers are with you and your family
I'm so sorry. I'm sure he was gorgeous. May God be with you all during this hard time, may He bring you peace and healing. You are in our thoughts and prayers as well.
man if they had youtube back in 1985, my video from my mom would have looked alot like this, because thats what I looked like from birth until age 8. I know whats its like and it's not fun, havin a heart problem....sorry for your loss, I guess oct/november is bad months, because my son passed away in november of 2006.
I'm sorry to hear about your son. How did he pass? I'm also sorry to hear about your C.H.D. You're right: they are no fun. What do you have? How are you doing medically? I ask these because a lot of people in that generation did not make it if they were born with a severe C.H.D. so it is interesting to talk to the people who have made it. Once again I am sorry to hear about your son and I would love to see a picture of him.
what a beautiful little girl. I cant even begin to imagine what you all went through, you must be amazingly strong people to have gone through that, seeing your baby hurtng and being unable to help must simply be torture. The picture of the 3 of you is particularly lovely. xx
She was heavily sedated while her chest was open & during recovery we always made sure she was comfortable. There was only 1 or 2 times when she seemed in pain & that was bcuz she was having withdrawals (they had taken her off of her pain meds 2 quickly). She was happy. She would smile and stare in2 ur eyes & she LOVED to eat. She had a very good energy level. We were going home soon. We couldn't be more blessed, as we were in the company of an angel, even if it was just for a while.
We were getting ready to go home. Adelle had done very well in the recovery process, the dr.s even called her the poster child for the Norwood Procedure. In no way do I see her as having lost the fight, she just chose to fight it from a different angle. She is taking care of other HLHS survivors from Heaven and the doctors and families who care for them.
hiya i am so sorry for the loss of your daughter im pregnant now and during early pregnancy i bled serverly that was devistating i know this cant possibly be like anything you've felt but stay strong and i hope you are coping
our world didnt deserve ur angel u gave birth to something so precious it didnt deserve to feel life in this cruel dirty world shes somewhere btter where shell be happy waiting to be reunited with u
My baby didnt exactly have health problems but did come 10 days too early to be on any machine to help him live, but just wanted to say that I hope you guys are still strong and remember our babies were just too special for this world that God wanted to keep them with him....one day we shall see them and hold them....so sorry...God would never put us through anything we couldnt handle...we are in a way chosen to go though shit for unknown reasons....never lose hope or your mind...keep ur head up
I am so sorry to hear about your sweet baby. I hope someday we may find a way of preventing premature birth. I believe that God gives his best students the hardest assignments because we have the ability to take good out of even the most dire situations. We have the ability to take heart ache and use it to become caring and compassionate instead of angry and ungrateful people. You learn a lot about love when you can no longer see it. Someday we all will be reunited. Thanks for your words.
I am so sorry to hear about your angel. It upsets me to know how far we still have to go, I guess we can only think of how far we have come. I pray that you may have only healthy pregnancies and babies in the future (if you desire to have more children). Thank you for your comment and God bless.
wow...i have no words of comfort for you and i truly wish there were words to say to someone that can completely lift the spirits of anyone that has suffered such a horrible loss like you have. I know for a fact that this baby is waiting for that day you join her and be together for an eternity of happiness and pure love with our God in heaven. I will truly keep you and your family in my prayers...
I'm sure that u hear i'm sorry everyday. But i truly am, you are a insperation for many of us mothers who have babies with health issues. i am one of them. Thank you for shareing ur beautiful baby gurl with us.
SHES so Pretty..im so sorry for your loss.I remember my girl.shes premature and shes in ICU for 3 weeks her lungs not yet develop.lucky me my daughter is fighter now shes 2 yrs old and very hyper...im so sorry for your loss.
I am so sorry for your loss. I could never pretend to undertsand how you feel or what you were going through. Your daughter was beautiful and she is now an angel in heaven with god looking after her for you. I feel that she is looking over the two of you every day and knows how much you love her
You're predictable and a bore. I'm on to ur sick little game. I've read ur page and read comments other users have left for u. Apparantly our Addie is not ur only victim. I've been polite and answered ur rediculous comments, thus far. Now u need to go seek an encounter with God. He is the only 1 who can help ur depraved mind. U should seek quickly. U'v got some reconciling ahead of u. I've already prayed 4 u today. I felt better after I did. Game time is over. U can't hurt us. U hurt yourself.
First things first... Adelle is not an "it" to "get over". She is our family member and now an angel with the Lord Almighty... the same Lord u will one day stand before and give account to everything u ever said or did. I pray there is more to u than the ignorant comments u leave. Second, no the mother is not now, nor ever has been a crackhead. Third, people care, unlike u and ur calloused heart. Instead of saying something I'd regret, I leave you with this.. u r officially on my prayer list!
I'm glad you didn't sue. My son died when he was 3 mos old from HLHS. He had a pacemaker...the kind that was later recalled and a lot of people are blaming the company for deaths. I had thought about suing but in the end, it wouldn't bring my son back and as you know, that's all you really want anyway. I'm sorry about your little girl. I wish no parent had to lose their child.
I think I remember reading about that recall, or 1 similiar. Here you have something that is supposed to protect your child and it ends up putting their life at risk. I ?d everything the dr.s did to the point it drove my husband crazy, and honestly I wish I'd asked more ?s because moms really do know best. I'm sorry that you know the horrible heart ache of the passing of a child and I'm sure your son was gorgeous. God Bless.
We had 2 babies die in the late 50's of holes in the heart. My Aunty Wendy was 5 months and cried alot for the 5 months she was alive and she was suffering with no medical care. And Ian was 10 days old. He was early. Sadly no pictures of them exist only birth and angel dates. My grandmother was 2 poor to take pictures of them.
It is amazing how many advances the medical community has made in the treatment of Congenital Heart Defects. Surgeries for a hole in the heart (Ventricular, Atrial, or Atrioventricular Septal Defects)have become a lot more common day & the survival rates are much higher now than ever, but we still have far to go. Thanks for sharing your story. Your grandmother sounds like a sweetheart!
I am sorry to hear about your angel's passing.. I am sure he was just gorgeous. Did he have a heart defect/ do you know the cause of his passing? May God be with you.
i am so sorry for your loss she was so beutiful i cried so hard i am a mother of 6 children 5 girls 1 boy and some times you take for granted that life is so fragal my youngest is 7 months she is healthy but when i was pragnate thay said that she had some ciysts in her brain(thay cleared up)i was so scaired how did you find out your little angel had HLHS do the children always become angels
We found out during a routine ultrasound. If surgery is not performed all babies with HLHS will die. Before 1990 few people made it even with surgery, right now there is a 70% survival rate with surgery! These surgeries are relatively new so long term outlook is unknown, but there is more than a glimmer of hope as more and more HLHS babies are becoming HLHS adults! I am glad to hear your sweetheart is healthy, my husband is the only boy with 6 older and 1 younger half-sister. You are brave!!
We don't really know. Adelle had flown through the recovery process, exceeding all expectations. She developed an arrhythmia the day b4 we were to be discharged. They kept her a few days to monitor her & then she developed NEC the night b4 she passed away. The autopsy said the NEC wasn't advanced enough to cause death. The autopsy only ruled out what didn't happen, so we are left with the belief a significant arrhythmia occured & it wasn't caught bcuz the nurse forgot to hook up her monitor.
Some days you feel like it, and you have to stomp those thoughts out. Human error happens and mostly at the expense of others, but I know if I had made such a mistake that haunted me all of life with "what-ifs" I'd pray that someone could find it in their heart to forgive me because I don't think I could forgive myself. I've typed this and re-typed it because everything is so complex and there is never an easy explanation, emotions are so paradoxical.
I can not imagine the pain this type of situation would bring! I'm feel VERY sad for you and other parents who have lost their children, no matter the age. I'm blessed to have my baby girl, and my boy on the way. I could not imagine barring my child. I am really sorry for your loss, my heart goes out to you guys.
Thank you, I always said I could never do it but when I found myself in this situation I had to. I don't feel strong, I just feel like a mom who loved her baby girl with all of her heart. Congratulations on your son, I hope your pregnancy and delivery are smooth going.. God Bless:-)
it wasn't caught bcuz the nurse forgot to hook up her monitor."that says it all I am so sorry for your loss hun you havve such a great way of dealing with it....amnio's are dangerous but hell it sure is best to know b4 hand God Bless you,ive had a bub in scu&know tha fear of the monitors but ifu don't do a complaint will there be more?hccc takes the entire case it simply possibly stops another babe leaving us rip little one thnaks for sharing this xx
Thank you. Sadly an amnio does not detect this type of birth defect merely the possibility of 1 if there is a chromosomal abnormality such as Turner's syndrome that is linked with CHD's. We did find out in utero from an ultrasound. My husband went up to the nurse and gave her a hug the day after my daughter passed away. She broke down in tears apoloqizing profusely, I think our forgiveness left more of an impression that any law suit could have.
i know what its like to lose someone close to you, but not a child, i am going to have my daughter on june 15 i cant tell you that i know how it feels, but i can imagine, the only thing i can tell you is that while it may never be ok it wont always hurt as bad
Good luck with your pregnancy, there is nothing sweeter in the world than a newborn baby. I don't know if the pain does get better because as time has gone on I've come to miss my daughter more, my memory is not very good and I hate that. I watch this video every day to remind myself of how beautiful she is and though we have many pictures you always wish you had more. Thank You for writing, again congratulations on your baby girl!
My husband has an identical twin and their little girl was born the same day as our Lilly, two hours apart from one another. Now they are expecting their second in July, and they just found out that she (they are naming her Grace) is going to have HLHS.
rest in peace little one of of gods little angels
TheChristina1954 3 months ago
lamento tanto su pérdida , los acompaño en sus sentimientos y ahora se que hay un pequeño angelito que nos espera besos
TheGuasimo 4 months ago
Comment removed
4angels9732 8 months ago
Wow this is such a beautiful video, you did a wonderful job putting it together. Such a terrible tragedy to loose a precious little baby. My condolences to the family. I know its over 3years now but this will always be like yesterday. Rest in peace sweet sleeping angel! !!
4angels9732 8 months ago
bless with wings fly little one send love to your angels .xx
singerallanmac 11 months ago
thank you for sharing.
TheCongenitalHeart 11 months ago
im so so sorry for your loss she is so so gorgouse i know she is watches over you
antrobius1 1 year ago
Thank you for your continued support and condolences. Addie's family is greatly appreciative. Our baby girl would be 3.5 YOA now, and we can only imagine the fun she is having with OUR FATHER. Our angel watches over us until the day we meet again. Again, thank you.
addiedaddie 1 year ago
yes im so sorry for your loss , she was gorgouse and so pretty , if only you could spend more time with her so sorry x
maisymoo12345 1 year ago
such a sweet baby girl my heart is with you guys. may i ask what happened and how she died???
birthmom4life 1 year ago
@birthmom4life i'm assuming from the tags, that she had Hypoplastic Left Heart Syndrome, which is a congenital defect.
akakatielyn 1 year ago
pic at 1:41 so adorably pretty!
mylovesofmylife 1 year ago
aww poor baby :'(
jaaa1109 1 year ago
och ne :( macht sowas nicht rein :( voll schlimm :((
natyschadzi 1 year ago
I'll bet Brudda Iz is singing to her right now in heaven.
eddysacat 1 year ago
@eddysacat SO TRUE!!! AND SHE'S SINGING ALONG!!!!
addiedaddie 1 year ago
i give to you my deepest condolences, may Adelle rest in peace in heaven with our Almighty Father
jarvin21 1 year ago
Adelle was a Angel. Look at her. I am so sorry that she had to endure so much pain before she got her wings. She was a very brave little girl. :-)
TheShosho1978 1 year ago
I am so sorry for the loss of your little angel. She is so beautiful. My thoughts and prayers are with you. Rest in Peace little one.
HotRedStilettos 1 year ago
My sincere condolences go out to Adelle's Mummy & Daddy. I'm so sorry that Adelle was taken away from you way too soon. May you have many cherished memories of your little angel. She is adorable. I'm sure she is around you each & everyday shining her love around you both. R.I.P little Adelle xxx
samjo2770 1 year ago
im so sorry u lost ur baby girl,i hate that they took her song off her video.i think so videos should be left alone expecially tribute videos. she was such the lil fighter. may God be with u all
jjac31456287 1 year ago
@jjac31456287 I just watched the video and heard both songs..What a gorgeous little angel..
imarightwing 7 months ago
sorry for your lost, god bless
TheGrandmaofthree 2 years ago
I wanted to share with you some truly comforting scriptures (Psalm 147:3) "He is healing the brokenhearted ones, And is binding up their painful spots". Jesus said: I am the resurrection and the life. He that exercises faith in me, even though he dies, will come to life. (John 11:25) The Bible teaches that the dead will live again here on earth, in perfect conditions. (Psalm 37:29)The righteous themselves will possess the earth, And they will reside forever upon it.
rrskdonnelly 2 years ago
I apologise on behalf of Zeptorr, that is a nasty and unfair comment to make. Sorry for your loss, I cant imagine how difficult it must be to lose a baby. My thoughts are with you and your family.
Evofrenzy 2 years ago
sorry for your lost. my son passed away a half hour after he was born. god bless you and your family. may she rest in peace. god has a plan for our children
UntoldChaptazMiracle 2 years ago
@UntoldChaptazMiracle I am sorry for your family's loss as well. May your angel rest in peace. I am saddened that he never got to experience life as it should be.
HotRedStilettos 1 year ago
Im sorry for your loss. this made me cry.. I would be depressed if I lost my son.. God bless you.
LadyAmisi 2 years ago
rip, sorry for your loss, bless you !
babycentella96 2 years ago
my heart goes out to you.I to lost my daughter years ago.God will always be with you
sexy90797 2 years ago
I am...sorry for your daughter...
...But I don't understand, why couldn't she be saved? I lived through it... Why did I live? Why can't the others live like I did?
Seeing this... really makes me more grateful for my life... I'm sorry about your daughter...
PrinceDeity 2 years ago
what happened to her to make her die?
drdiablo12 2 years ago
Adelle was born with HLHS, a very rare and serious heart defect. Most of the time we don't know how/why this heart defect happens. She had a special surgery, was doing VERY WELL. We were supposed to go home. However many small complications occured and she passed away suddenly and unexpectedly while resting in my arms. She had an autopsy, but no cause of death was ever determined. The blessings she brought are never ending and we cherish and miss her very much.
AddiesMamma 1 year ago 3
I am so sorry for your loss of your perfectly beautiful baby girl. HUGS!! Stay strong. Adelle would want that.
heid31 1 year ago
Unfortunately, I have not recieved copyright permission for the audio portion of this video. If you are curious: The first part of the video is Elvis Presley's "Can't Help Falling In Love"; The other song is Brudda Iz' version of "Somewhere Over The Rainbow/What A Wonderful World."
addiedaddie 2 years ago
she was beautiful.... i am very sorry for your loss
80srockbandsingers 2 years ago
Beautiful little girl...
bec1270 2 years ago
I am so sorry for you're loss. My nephew William was born with CHARGE syndrome. They initally believed he had HLHS. He does not, but his heart does have alot of problems. Holes the size of peas,multiple ones. I thank the Lord we still have him. He is 21/2 now. But my thoughts and prayers are with you and you're family. And God bless you're little angel in heaven. Again... I am sorry for you're loss. God bless, Denise
edined090580 2 years ago
So much lasts at the same time so beautiful and disconcerting video I am so sorry but what it occurred ?
We love you
ginkos23 2 years ago
What happened to the baby. I am so sorry. R.I.P
angelkissedu 3 years ago
what a beautiful baby girl death at the best of times makes sense to no one but when you get called it will make sense to you but if you in the sky tonight if you a bright star above that will be baby adelle watching over you, She is now free of pain and suffering now at least she is with the angels waiting for u until you are called see her passing as a celibration of her short life because her memories of her will never die she will always stay within you both. I lost my nan last yr too RIP
DanielR305 3 years ago
I am so sorry for the loss of your beautiful precious child. I could not imagine losing a child.
God Bless you!
ihatespngbob 3 years ago
What a beautiful video. It is a cruel thing to have them taken away when you've hardly gotten to know them. The joy of having them at all even if it was just a little while is something that can never be taken. Feel free to indulge in it everyday. Don't let the grief take that from you. Blessings to you and your family.
ravenscairn 3 years ago
Absolutely Gorgeous, my prayers are with you
twinmummy22 3 years ago
Poor baby, she was gorgeous! If you don't mind me asking, what happened?
computerjunkee 3 years ago
What a precious angel.. I am so sorry for the loss of your beautiful baby girl..
mikesmum83 3 years ago 2
mir tut das so weh,dass ich richtig am weinen bin :(
t3Mpr4r 3 years ago
im so sorry, god bless
mikec1100 3 years ago
God Bless!
joline004 3 years ago
Beautiful Video!
mom2madanddan 3 years ago
Ab wann kann man sein reingestelltes Video unter suchen finden?
KleineLady21 3 years ago
Ich danke dir.
KleineLady21 3 years ago
Kein Problem
AddiesMamma 3 years ago
Das zweite Lied eures Videos ist so schön,könntet ihr mir den Titel sagen?
Ich wünsche euch wieterhin viel kraft.
Mein Beileid
KleineLady21 3 years ago
Vielen Dank, ist der Titel vom Lied Irgendwo Über dem Regenbogen durch Israels Kamakawiwo Ole.
AddiesMamma 3 years ago
Beautiful baby girl. I'm so sorry for your loss. What hope we have in Christ you will see her again!! God Bless you and your family
dlyndsey 3 years ago
I am so sorry that you lost your precious baby girl. :( I know what that means - I lost my daughter 6 years ago. Your daughter was so precious and beautiful! My thoughts are with you.
tntwins 3 years ago
ty, and I am so sorry to hear about your loss too. May God keep our hearts light and our feet firmly planted on the ground
RabekaJo 3 years ago
I'm sorry to hear about your daughter, I'm sure she was beautiful and that a day doesn't go by when she isn't in your thoughts and heart.
AddiesMamma 3 years ago
I am so sorry for you rlost. I lost my first child too. RIP little girl
katdanmo 3 years ago
thank you sweetheart sorry for your loss, I can't say it enough May God keep our hearts light and our feet firmly planted on the ground.
RabekaJo 3 years ago
I am so sorry, do you know why?
AddiesMamma 3 years ago
I am sorry for your loss. Thank you for sharing your baby with the world. May God keep our hearts light and our feet firmly planted on the ground.
RabekaJo 3 years ago
I, too, am sorry for your loss. I noticed they did Josie's surgery immediately and was curious as to why. Truly everyone of these babies has a unique story and individual diagnosis (I mean even though Addie and Josie both had HLHS there can still be so many variants). Thank you for posting and for the beautiful videos of your daughter, God Bless.
AddiesMamma 3 years ago
her pulmonary artery was large and was damaging her lungs, which is also why they took her early to prevent more damage to her lungs, and rushed surgery. Too much blood flow to the lungs causes damage to the lungs. Your welcome for my sharing I want to share her with the world. I gave her to help other babies like her. She passed because her heart wasn't strong enough to hold the surgery done perfectly. I am glad your baby made it, I hope my baby helps future babies like her.
RabekaJo 3 years ago
I am so forgetful sweety I am so sorry about my end of this last comment...I am so out of it these days, grief I guess has its vicious hold on me these days. Please forgive me, I am deeply sorry for your loss. May God keep our hearts light and our feet firmly planted on the ground.
RabekaJo 3 years ago
It's okay. I understand the fog. I'm glad you guys made the choice to have the surgery- as you said your daughter taught the doctors something as all of these babies do. With that we move forward constantly improving the techniques and survival rates of these surgeries. So many choose to give up that glimmer of hope and opt for no treatment, but we've come so far- why stop now?
AddiesMamma 3 years ago
Glad you understand, and I totally agree with you, its hard to see them in that state they have to go through but in the end I see its worth it with all the success stories out there, I mean this is the dark side of the force our babies who lost, but I know there is light side of these type stories there are so many children living with hearts that were repaired, its amazing how it can all come together, I am sad that our's had to be lost, but know their purpose is far bigger than we imagined :)
RabekaJo 3 years ago
Thank You for sharing this with us. I hope you guys are ok. I believe little Addie came to change your life and the life of many of us. I feel lucky for what I am and have. Ant I thank Spirit for giving me the opportunity to live. Blessings and strenght to you guys.
Thank You Addie for existing.
Djinn0fire 3 years ago
We do what we can, living every day knowing we are moving forward with her and not leaving her behind. That was beautiful, thank you very much.
AddiesMamma 3 years ago
awh, im so sorry for your loss <3
i have a 3yr old sister and if
something happened to her i don`t
know what i'd do . StayStrong .
babyiloversyou 3 years ago
hi ang ganda mo.........
rhiannmaganda 3 years ago
my baby was just born on October 27th with hypoplastic left heart syndrome, I cried watching your video, it was so sweet. My mother made a video for my newborn who is having surgery next week, I can't wait to hold her...
joshua1davison 3 years ago
im so sorry.why did she die?
sergiodeloera11 3 years ago 2
Addie was born with Hypoplastic Left Heart Syndrome. To simplify that essentially half of her heart didn't develop at the critical stage in pregnancy. Adelle had her first of three open heart surgeries at the age of 2 days. She did very well. We were going home soon. Then complications started arising and she passed away of unknown cause in her Mamma's arms with her daddy at her side very suddenly one evening. Attemps were made to save her, but our angel had already taken her wings.
AddiesMamma 3 years ago
What a beautiful Video. RIP Sweet Little Adelle.
msjacxxx 3 years ago 2
that is sooooooo sad what happend
mrzbitch1120 3 years ago
I am so sorry about your baby girl I cried because that is so sad. That touched my heart. I hope you guys were okay when it was over. I'm sorry about your loss I know it is almost 2 years since she past away but I hope you guys are doing okay.
I will pray for you. thanks for sharing with us.
unitedleftD 3 years ago
365 days have flown by since you departed this world, my sweet little Adelle. What I would do to have you here with all of us, but I know that you're in better hands now. You were taken from this broken and suffering world, but not before you too, suffered. My heart breaks every time I remember what you and your little body went through. You, precious girl, have touched my heart in ways no one else has. I look forward to the day that I get to meet you, you can give me the Heavenly tour. I love u
mtskies 3 years ago 3
I am sorry for your loss.What a little sweetheart.I am here in tears your girl has touched my heart an the hearts of the world.God Bless You Little Angel.You Have your wings sweet girl.God Bless you and your family xxx
hot2trot74 3 years ago 3
I resently had a baby girl 3 months ago and I cant imagine my life without her. My heart and prayers go out to you and your family. She is a beautiful angel in heaven now.
abaduno 3 years ago
heaven needed an angel!
i cried, that sooo sad.
MizPia 3 years ago 4
What a beautiful baby girl you two were blessed to know, if only for a while. I hope the two of you can work through this together! It's nobody's fault, it's Gods way. God Bless both of you and your precious baby girl.
shescorpian 3 years ago 8
Happy Birthday my sweet baby girl. Eat a really big piece of cake and share lots of giggles with every one up in Heaven. As always I miss you and can't wait to hold you again.
AddiesMamma 3 years ago 7
Happy First Birthday baby girl. I love you so much. I wish you were here to celerbrat your big 1 Year, but I know that you are having one heck of a party in Heaven. Hugs and Kisses my Love. Love Aunti Sally
eiazapata 3 years ago 6
first let me say you have my sympathy,god do everything for a reason so hold on long stay strong and keep her memories close to heart.i know how it feel lost a angel then god bless me with three more they are now 17,14,13.amen stay praying.
catisland07 3 years ago 2
i cried watching your video, she is the sweetiest angel, so innocent, R.I.P., stay strong, she is with God looking down & smiling at her mommy & daddy for being so strong with her.
midwestkitty 3 years ago 5
RIP
You are a very beautiful angel.
bigmomma1965ca 3 years ago 5
what an angel taken too soon, this was a wonderful tribute to her...I know it will never get easier how can it your baby is gone, but even though you can't carry her in your arms I know you will always carry her in your hearts its not enough so until you can be together again hold on to the moments you had with her in the end its only moments and memories we have
AntoniaS82 3 years ago 3
I was told God gave us memories and moments for that very reason....
CherylAhmed 3 years ago 3
i must say its a precious baby and im sorry for thing that happend. my condolences
adaxior 3 years ago 3
Such a beautiful, precious baby! I am so sorry for your loss, I truly am.
mnm55m 3 years ago
Your daughter was beautiful and my condolences go to you and your family. I know she will always be loved and missed.
dreamie897 3 years ago
sorry =[
rosslegend 3 years ago
i know if i see a baby now all i want to do is pick it up and love it knowing how fragile babies life and knowing how easy they can be lost both during pregnancy and birth, i am happy do say we did continue with our family and now have a 2 year old boy :) we lost our babies 4 years ago and we still get them xmas presents and birthday presents, some people say whats the point to them its hard to explain, but i am sure you will understand they are our babies and always will be babies to us xxxxxxx
zukoq 3 years ago
I think it is so important to remember your children in a healthy way. We are having a birthday party this year for Adelle. We also go to her gravesite every day for a few minutes to talk to her and let her now that we love her and are always thinking about her. You have a way with words.. you should take advantage of that! You really have the ability to reach out to people.
AddiesMamma 3 years ago
Yes they was premi 27 weeks, Aaron weighed just over 1lb and sadly only lived 30 minutes, Ryan weighed just over 2lb and gave us 11 days of happiness before he sadly passed away in my arms. A lot of people don't understand or know how to react to you when you have told them of your loss, they just say "i am sorry it will get easier" i think they see it as a adult passing away, sadly its not and i truly hope they never get to feel what it is like, life does go on for us but in a different way....
zukoq 3 years ago
I feel your loss having lost twins I understand what you feel and are going through, one day you will be reunited with your angel as we will be with our angels, she will always be with you in heart and in soul.. i can't say it gets any easier as time goes by you just learn to accept it and think of her in everything you do thats the biggest love you can give her...
R.I.P little angel xxxxxxx
zukoq 3 years ago
I'm sorry to hear about your heartache. Were they premies? I worked with a disabled twin who had been born @ 23 weeks gestation weighing 1lb, 8oz. Sadly his brother didn't make it. I appreciate you mentioning that it doesn't get it easier. Many people kept telling me it would and I wanted to scream at them. Nothing gets easier it just gets different. God bless you and yours and thanks for your message!
AddiesMamma 3 years ago
Your message is so true and honest. I can feel your pain and I'm sorry for what has happened during your life. Sometimes I wonder why certain events happen. You are strong and I pray for your baby, you and all your family and friends.
RudyJustice 3 years ago
I am sorry, it's always hard when people pass away..
Suu100 3 years ago
she is so precious ((hugs))xx
Indogo 3 years ago
Im so sorry for your loss.
She was a beautiful baby.
Im also a mother and cant imagine the hurt you must feel this video made me cry.
you can really feel the love for her.
RIP Addie
lachicademalaga 3 years ago
Thank you, that really means a lot.
AddiesMamma 3 years ago
i am so sorry for your loss.
my nephew passed away at just
three months.
rip.
she was beautiful
softballXObby 3 years ago
I'm sorry to hear about your heart ache as well. I'm sure he was absolutely beautiful, after all God only takes the best. God Bless you and yours.
AddiesMamma 3 years ago
God bless you and your family. This video really touched me. Thank you for spreading the word about HLHS
Holmesymom 3 years ago
THe multitude of people this video has touched amazes me. We initially put it up as a way for Addie's family to take joy in her life when we were missing her ever so badly. Never would I have thought it would reach so many people. We have been very blessed and will continue to share her legacy always.
AddiesMamma 3 years ago
what a sad video im so sorry 4 ur loss she is so beautyful what a short life 4 the little angel wish yous all the best 4 the future 4rm a imotional mother
bUrs3lF 3 years ago 2
im so sorry for your loss! What a beautiful little Angel! god bless you all
love lots from another HLHS Mummy
nicosmummy 3 years ago 4
I hope your sweet babe is thriving. You are in my heart.. may God bless you all with only easy roads ahead.
AddiesMamma 3 years ago
im so sorry for your loss may god please bless you your family and Addie. She was such a beautiful little girl. I wish the best for you and yours God Bless Amanda
booboogurlygurl 3 years ago 2
:'( :'( i´m sorry
jackeline0223 3 years ago 2
WOW!!! It has been along time since I posted anything on this video. I can not belive how many people have viewed this video of our Addie. 28,614. You continue to touch so many people. I love you lil one. Love Auntie Sally. P.S. I bet you are excited to be a big sister. I bet you pick him or her and told them that they will be the best parents. So is it a boy or girl?
eiazapata 3 years ago
Precious little angel.
rudielor 3 years ago
im so sorry 4 ur loss we have lost 1 to its not easy i know but time does heal youre wounds u r feeling rite now such a beautiful baby ... god bless her and you all ....lee
skyscraper2525 3 years ago 2
I am so sorry for your lose, RIP Addie from another heart mummy.
zoemya 3 years ago
My condolences to your family.. I am so sorry for your loss. (RIP little angel).
man609 3 years ago
WHAT A BEAUTIFUL LITTLE GIRL
millz76 3 years ago
so sorry about the loss of you child.i hope things start to look up for you and remember she is always there up above
faygofalana 3 years ago 2
I am so sorry for your loss. I know it will be a wonderful day when you are reunited with her in heaven. God's peace to you.
darlafong 3 years ago 2
sorry to hear of your loss, we just lost our lil eli to sids in june, he was 33 days old so i know how it hurts, my thoughts and prayers are with you and your family
darlene324 3 years ago
I'm so sorry. I'm sure he was gorgeous. May God be with you all during this hard time, may He bring you peace and healing. You are in our thoughts and prayers as well.
AddiesMamma 3 years ago
Im sorry for your loss........I dont know what I would do. Stay strong. May god be with you
dubeezsnax 3 years ago
man if they had youtube back in 1985, my video from my mom would have looked alot like this, because thats what I looked like from birth until age 8. I know whats its like and it's not fun, havin a heart problem....sorry for your loss, I guess oct/november is bad months, because my son passed away in november of 2006.
coleybug2207 3 years ago
I'm sorry to hear about your son. How did he pass? I'm also sorry to hear about your C.H.D. You're right: they are no fun. What do you have? How are you doing medically? I ask these because a lot of people in that generation did not make it if they were born with a severe C.H.D. so it is interesting to talk to the people who have made it. Once again I am sorry to hear about your son and I would love to see a picture of him.
AddiesMamma 3 years ago
what a beautiful little girl. I cant even begin to imagine what you all went through, you must be amazingly strong people to have gone through that, seeing your baby hurtng and being unable to help must simply be torture. The picture of the 3 of you is particularly lovely. xx
1984ljs 3 years ago
She was heavily sedated while her chest was open & during recovery we always made sure she was comfortable. There was only 1 or 2 times when she seemed in pain & that was bcuz she was having withdrawals (they had taken her off of her pain meds 2 quickly). She was happy. She would smile and stare in2 ur eyes & she LOVED to eat. She had a very good energy level. We were going home soon. We couldn't be more blessed, as we were in the company of an angel, even if it was just for a while.
AddiesMamma 3 years ago 3
poor little mite, just could'nt win the fight, god bless you all in the family xxxxxxxx
car0n73 3 years ago
We were getting ready to go home. Adelle had done very well in the recovery process, the dr.s even called her the poster child for the Norwood Procedure. In no way do I see her as having lost the fight, she just chose to fight it from a different angle. She is taking care of other HLHS survivors from Heaven and the doctors and families who care for them.
AddiesMamma 3 years ago
I'm so sorry for your loss. This is a very beautiful video for a beautiful baby. I love the name you chose for her.
Kinabonita 3 years ago
My heart goes out to you. My son was a premiee, and went through 2 heart surgeries so far. He has two more that need to be fixed yet.
I don't know how you survived... you are strong!
You're little angel is precious!
CHDMissa 3 years ago
beautiful angel. god bless.
KC1967 3 years ago
hiya i am so sorry for the loss of your daughter im pregnant now and during early pregnancy i bled serverly that was devistating i know this cant possibly be like anything you've felt but stay strong and i hope you are coping
xxxxxxx
clarebear1989 3 years ago
I am so sorry for the loss of your baby girl.
brunadora1 3 years ago
our world didnt deserve ur angel u gave birth to something so precious it didnt deserve to feel life in this cruel dirty world shes somewhere btter where shell be happy waiting to be reunited with u
GMGallSTAR 3 years ago
Thank you, that means a lot.
AddiesMamma 3 years ago
My baby didnt exactly have health problems but did come 10 days too early to be on any machine to help him live, but just wanted to say that I hope you guys are still strong and remember our babies were just too special for this world that God wanted to keep them with him....one day we shall see them and hold them....so sorry...God would never put us through anything we couldnt handle...we are in a way chosen to go though shit for unknown reasons....never lose hope or your mind...keep ur head up
pimptresh03 3 years ago
I am so sorry to hear about your sweet baby. I hope someday we may find a way of preventing premature birth. I believe that God gives his best students the hardest assignments because we have the ability to take good out of even the most dire situations. We have the ability to take heart ache and use it to become caring and compassionate instead of angry and ungrateful people. You learn a lot about love when you can no longer see it. Someday we all will be reunited. Thanks for your words.
AddiesMamma 3 years ago
I am so sorry to hear about your angel. It upsets me to know how far we still have to go, I guess we can only think of how far we have come. I pray that you may have only healthy pregnancies and babies in the future (if you desire to have more children). Thank you for your comment and God bless.
AddiesMamma 3 years ago
wow...i have no words of comfort for you and i truly wish there were words to say to someone that can completely lift the spirits of anyone that has suffered such a horrible loss like you have. I know for a fact that this baby is waiting for that day you join her and be together for an eternity of happiness and pure love with our God in heaven. I will truly keep you and your family in my prayers...
alopez2209 3 years ago
Thank you, I can't wait to hold her again. She's just so amazing, she is indescribable.
AddiesMamma 3 years ago
I'm sure that u hear i'm sorry everyday. But i truly am, you are a insperation for many of us mothers who have babies with health issues. i am one of them. Thank you for shareing ur beautiful baby gurl with us.
TONIDELJEW209 3 years ago
I am so sorry to hear about your baby. I hope he/she is healthy now and doing well. Thank you, your comment means a lot.
AddiesMamma 3 years ago
So sorry about your baby, my sister also died from HLHS. God Bless. =]
MileyCyrusRoxsMySoxs 3 years ago
Sorry to hear about your sister. Was she older or younger than you?
AddiesMamma 3 years ago
SHES so Pretty..im so sorry for your loss.I remember my girl.shes premature and shes in ICU for 3 weeks her lungs not yet develop.lucky me my daughter is fighter now shes 2 yrs old and very hyper...im so sorry for your loss.
charmedusa 3 years ago 2
She is so cute, i m so so sorry for your loss.
we are all proud of her even i didnt meet her. Love from spain
paulacb11 3 years ago
I am so sorry for your loss. I could never pretend to undertsand how you feel or what you were going through. Your daughter was beautiful and she is now an angel in heaven with god looking after her for you. I feel that she is looking over the two of you every day and knows how much you love her
HotRed89 3 years ago 2
Thank You, she is indeed our angel and we couldn't be prouder of her.
AddiesMamma 3 years ago
You're predictable and a bore. I'm on to ur sick little game. I've read ur page and read comments other users have left for u. Apparantly our Addie is not ur only victim. I've been polite and answered ur rediculous comments, thus far. Now u need to go seek an encounter with God. He is the only 1 who can help ur depraved mind. U should seek quickly. U'v got some reconciling ahead of u. I've already prayed 4 u today. I felt better after I did. Game time is over. U can't hurt us. U hurt yourself.
mtskies 3 years ago 4
First things first... Adelle is not an "it" to "get over". She is our family member and now an angel with the Lord Almighty... the same Lord u will one day stand before and give account to everything u ever said or did. I pray there is more to u than the ignorant comments u leave. Second, no the mother is not now, nor ever has been a crackhead. Third, people care, unlike u and ur calloused heart. Instead of saying something I'd regret, I leave you with this.. u r officially on my prayer list!
mtskies 3 years ago 3
what a beautiful litle girl, an angel to perfect for this plane ! gone on to the other angels in the sky allways with you
zimraver 3 years ago 2
Thank You, I like to believe that she is working in Heaven to protect babies and kids here on Earth.
AddiesMamma 3 years ago
I'm glad you didn't sue. My son died when he was 3 mos old from HLHS. He had a pacemaker...the kind that was later recalled and a lot of people are blaming the company for deaths. I had thought about suing but in the end, it wouldn't bring my son back and as you know, that's all you really want anyway. I'm sorry about your little girl. I wish no parent had to lose their child.
trudeaca 3 years ago
I think I remember reading about that recall, or 1 similiar. Here you have something that is supposed to protect your child and it ends up putting their life at risk. I ?d everything the dr.s did to the point it drove my husband crazy, and honestly I wish I'd asked more ?s because moms really do know best. I'm sorry that you know the horrible heart ache of the passing of a child and I'm sure your son was gorgeous. God Bless.
AddiesMamma 3 years ago
so very sad
starbabe58 3 years ago
my heart goes out to this family!!!
baby adelle is gorgeous im thinkin of use all at this sad time...
R-I-P Adelle XXXXXXX
ashleenaaaa 3 years ago
We had 2 babies die in the late 50's of holes in the heart. My Aunty Wendy was 5 months and cried alot for the 5 months she was alive and she was suffering with no medical care. And Ian was 10 days old. He was early. Sadly no pictures of them exist only birth and angel dates. My grandmother was 2 poor to take pictures of them.
sylviesangels 3 years ago
It is amazing how many advances the medical community has made in the treatment of Congenital Heart Defects. Surgeries for a hole in the heart (Ventricular, Atrial, or Atrioventricular Septal Defects)have become a lot more common day & the survival rates are much higher now than ever, but we still have far to go. Thanks for sharing your story. Your grandmother sounds like a sweetheart!
AddiesMamma 3 years ago
OMG! That is really sad:(
pixie1310 3 years ago
I am so sorry for your loss I lost my son at 16 days old the pain slowly goes away but you never forget. God Bless you
mattyboi365 3 years ago
I am sorry to hear about your angel's passing.. I am sure he was just gorgeous. Did he have a heart defect/ do you know the cause of his passing? May God be with you.
AddiesMamma 3 years ago
i am so sorry for your loss she was so beutiful i cried so hard i am a mother of 6 children 5 girls 1 boy and some times you take for granted that life is so fragal my youngest is 7 months she is healthy but when i was pragnate thay said that she had some ciysts in her brain(thay cleared up)i was so scaired how did you find out your little angel had HLHS do the children always become angels
32scorpio 3 years ago
We found out during a routine ultrasound. If surgery is not performed all babies with HLHS will die. Before 1990 few people made it even with surgery, right now there is a 70% survival rate with surgery! These surgeries are relatively new so long term outlook is unknown, but there is more than a glimmer of hope as more and more HLHS babies are becoming HLHS adults! I am glad to hear your sweetheart is healthy, my husband is the only boy with 6 older and 1 younger half-sister. You are brave!!
AddiesMamma 3 years ago
Why didn't she make it?:(
pixie1310 3 years ago
We don't really know. Adelle had flown through the recovery process, exceeding all expectations. She developed an arrhythmia the day b4 we were to be discharged. They kept her a few days to monitor her & then she developed NEC the night b4 she passed away. The autopsy said the NEC wasn't advanced enough to cause death. The autopsy only ruled out what didn't happen, so we are left with the belief a significant arrhythmia occured & it wasn't caught bcuz the nurse forgot to hook up her monitor.
AddiesMamma 3 years ago
Ru going to sue them? I would!
pixie1310 3 years ago
Some days you feel like it, and you have to stomp those thoughts out. Human error happens and mostly at the expense of others, but I know if I had made such a mistake that haunted me all of life with "what-ifs" I'd pray that someone could find it in their heart to forgive me because I don't think I could forgive myself. I've typed this and re-typed it because everything is so complex and there is never an easy explanation, emotions are so paradoxical.
AddiesMamma 3 years ago
I can not imagine the pain this type of situation would bring! I'm feel VERY sad for you and other parents who have lost their children, no matter the age. I'm blessed to have my baby girl, and my boy on the way. I could not imagine barring my child. I am really sorry for your loss, my heart goes out to you guys.
pixie1310 3 years ago
Thank you, I always said I could never do it but when I found myself in this situation I had to. I don't feel strong, I just feel like a mom who loved her baby girl with all of her heart. Congratulations on your son, I hope your pregnancy and delivery are smooth going.. God Bless:-)
AddiesMamma 3 years ago
it wasn't caught bcuz the nurse forgot to hook up her monitor."that says it all I am so sorry for your loss hun you havve such a great way of dealing with it....amnio's are dangerous but hell it sure is best to know b4 hand God Bless you,ive had a bub in scu&know tha fear of the monitors but ifu don't do a complaint will there be more?hccc takes the entire case it simply possibly stops another babe leaving us rip little one thnaks for sharing this xx
ictossers 3 years ago 3
Thank you. Sadly an amnio does not detect this type of birth defect merely the possibility of 1 if there is a chromosomal abnormality such as Turner's syndrome that is linked with CHD's. We did find out in utero from an ultrasound. My husband went up to the nurse and gave her a hug the day after my daughter passed away. She broke down in tears apoloqizing profusely, I think our forgiveness left more of an impression that any law suit could have.
AddiesMamma 3 years ago 2
i know what its like to lose someone close to you, but not a child, i am going to have my daughter on june 15 i cant tell you that i know how it feels, but i can imagine, the only thing i can tell you is that while it may never be ok it wont always hurt as bad
pallmallsnoveralls 3 years ago
Good luck with your pregnancy, there is nothing sweeter in the world than a newborn baby. I don't know if the pain does get better because as time has gone on I've come to miss my daughter more, my memory is not very good and I hate that. I watch this video every day to remind myself of how beautiful she is and though we have many pictures you always wish you had more. Thank You for writing, again congratulations on your baby girl!
AddiesMamma 3 years ago
My husband has an identical twin and their little girl was born the same day as our Lilly, two hours apart from one another. Now they are expecting their second in July, and they just found out that she (they are naming her Grace) is going to have HLHS.
gourleyfam 3 years ago