I have RSD much better now...but this happens to me now...never did before the RSD hit me....it's so weird!!! My kids think I'm just being goofy...but if I'm tired? And I just try to stay up a little bit longer? Game over!! I thought it was a separate issue....guess its really not!! Thank you so much for sharing:)
Sorry you have to go through this. Have a similar situation. I take 3mg Requip and helps. I have had RLS 12 yr. 5 yr ago I started with 1) tremors: quick, powerful kick, 2) shaking-uncontrolled from 1-20 sec, like yours or worse/faster & sometimes 3) nerve/muscular pain-like a cramp. For 2 yr pain on 1 leg or the other. Then 3 yr ago events ‘migrated’ to my arms. Usually happen when I am getting sleepy. Event repeats every 30 sec to 1 min; I can feel aura developing & another ‘event’ happens.
I want to thank you for posting your leg spasming on to you tube; My 9 year old daughter developed a spasm in her left leg after being put in a half cast the whole length of her leg when her patella slipped out. We were told her spasming was a behavioural problem etc etc but after watching your clip on searching child leg spasm on google I went to the consultant with your link...thank you , we still have a way to go but she is finally improving thanks to early diagnosis!!!
God it hurts when people think you are faking, and merely choose to be this way. If they could only understand the pain that comes with it! I wish there could be a cure, or at least an effective relief discovered for it. I find it does help to talk to others that have it as well. They are the only ones that can understand how it disrupts your entire life. I never go out anymore. The shaking can come at the worst time, and I still get embarrassed.
I have many of the symptoms of RSDS/CRPS and I have found something that really helps. Check out my blog for more information-- and it is completely FREE information. I'm not making a penny off this. My blog is under my username at W o r d p r e s s . c o m. Hope you'll share your story and try what I recommend because it's taken all my pain away and, I believe, curing me one day of healing at a time.
I have many of the symptoms of RSDS/CRPS and I have found something that really helps. Check out my blog for more information-- and it is completely FREE information. I'm not making a penny off this. My blog is under my username at W o r d p r e s s . c o m. Hope you'll share your story and try what I recommend because it's taken all my pain away and, I believe, curing me one day of healing at a time.
I think I can help others get rid of their RSDS pain. Search for my username and find my blog and you can make up your mind. I'm not making a penny (yet, but maybe if others agree I'm right I can) on this, but I think I can help others....
I have RSD in my right foot and calf and I get weird spasms and cramps in the leg and foot at night to. Not this severe though but very painful. I have been drinking Tonic water with quinine in it at night and it helps a lot also with a powdered magnesium/calcium citrate supplement at night.
I have many of the symptoms of RSDS/CRPS and I have found something that really helps. Check out my blog for more information-- and it is completely FREE information. I'm not making a penny off this. My blog is under my username at W o r d p r e s s . c o m. Hope you'll share your story and try what I recommend because it's taken all my pain away and, I believe, curing me one day of healing at a time.
a difficult disorder to understand. most neurologist will dismiss this disease as a pseudoneuropathy of psychogenic orgin. too many studies with no clear evidence of medical understanding. same can be said of posttraumatic dystonia.
im not saying this isnt fake maybe it is but this does happen to people with RSD you get spasms now i believe this vid is real those r bad spasms...i have RSD i was in a bad atv accident
its not fckn fake. i have this stupid disorder too and i dont fake it. your symnatic nerves take control and you cant do anything about it. DONT JUDGE IF YOU DONT KNOW.
I have had this for 5 months. It started in my foot and is now to my hip. My right achilles tendon has shrunk 4". My ankle bones are smashing together. My calf and thigh look like it has had polio. I can't straighten my knee. I am in agonizing pain. My neurologist said I am the worst case of rapid spread and debility she has seen. If it would help (and they say it won't), I'd have my leg cut off. I have tremors and spasms in all my limbs. .
Here I am, a year later, still searching for answers...This is now in 3 limbs, my chest, back, neck and side of head. I have severe blood pressure instability and was hospitalized for 3 weeks. My legs jump and I twitch everywhere. I hurt so much some days that I vomit and have issues nutrition because of it. I could deal with the burning if I could skip the electrical shocks. They cause severe anxiety as it's random and SO intense. I am not living, just existing. God, take me home, please.
i am 27 year old diagnosed with RSD on my right hand early stage, they said that if it is cought early it cant be fought but its been 6 weeks and my hand gets inflammated and painful. if i dont get better does any one know if it will affect the rest of my body?
yes it can spread i have it n my left foot & had surgery to get my wisdom teeth cut out & it now in my bottom lip.. nut ther are physical thepary exercies to help with the pain. have u been given any nerve pain meds?
it will affect other lims like your legs and arms. i am 13 and i have it in my hand, and both of my legs. i been having it for 3 months and physicall therapy is the only reason im walking today.
@TaliaBeltR I know this was posted 2 years ago, but I did want to say yes it can. I am 15 and have it full body with organ involvement. How are you doing?
My mum will try and post a video of my walking when she can, we have been going to post a video of my walking, it is just difficult to do so as my mum has to stand behind me to hold me up so we would need someone else to take the video.
We will try and post a video shortly though 0 I agree it would be very educational and a great way of raising awareness.
I have RSD much better now...but this happens to me now...never did before the RSD hit me....it's so weird!!! My kids think I'm just being goofy...but if I'm tired? And I just try to stay up a little bit longer? Game over!! I thought it was a separate issue....guess its really not!! Thank you so much for sharing:)
Kvarian3 1 month ago
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luckyamo15 9 months ago
Sorry you have to go through this. Have a similar situation. I take 3mg Requip and helps. I have had RLS 12 yr. 5 yr ago I started with 1) tremors: quick, powerful kick, 2) shaking-uncontrolled from 1-20 sec, like yours or worse/faster & sometimes 3) nerve/muscular pain-like a cramp. For 2 yr pain on 1 leg or the other. Then 3 yr ago events ‘migrated’ to my arms. Usually happen when I am getting sleepy. Event repeats every 30 sec to 1 min; I can feel aura developing & another ‘event’ happens.
metaloceno 11 months ago
I want to thank you for posting your leg spasming on to you tube; My 9 year old daughter developed a spasm in her left leg after being put in a half cast the whole length of her leg when her patella slipped out. We were told her spasming was a behavioural problem etc etc but after watching your clip on searching child leg spasm on google I went to the consultant with your link...thank you , we still have a way to go but she is finally improving thanks to early diagnosis!!!
tjknit 1 year ago
God it hurts when people think you are faking, and merely choose to be this way. If they could only understand the pain that comes with it! I wish there could be a cure, or at least an effective relief discovered for it. I find it does help to talk to others that have it as well. They are the only ones that can understand how it disrupts your entire life. I never go out anymore. The shaking can come at the worst time, and I still get embarrassed.
Downedworker 1 year ago
Hi,
I have many of the symptoms of RSDS/CRPS and I have found something that really helps. Check out my blog for more information-- and it is completely FREE information. I'm not making a penny off this. My blog is under my username at W o r d p r e s s . c o m. Hope you'll share your story and try what I recommend because it's taken all my pain away and, I believe, curing me one day of healing at a time.
isthisthecure4rsds 1 year ago
This has been flagged as spam show
I have many of the symptoms of RSDS/CRPS and I have found something that really helps. Check out my blog for more information-- and it is completely FREE information. I'm not making a penny off this. My blog is under my username at W o r d p r e s s . c o m. Hope you'll share your story and try what I recommend because it's taken all my pain away and, I believe, curing me one day of healing at a time.
isthisthecure4rsds 1 year ago
I think I can help others get rid of their RSDS pain. Search for my username and find my blog and you can make up your mind. I'm not making a penny (yet, but maybe if others agree I'm right I can) on this, but I think I can help others....
isthisthecure4rsds 1 year ago
I have RSD in my right foot and calf and I get weird spasms and cramps in the leg and foot at night to. Not this severe though but very painful. I have been drinking Tonic water with quinine in it at night and it helps a lot also with a powdered magnesium/calcium citrate supplement at night.
marriedtoajason 1 year ago
This has been flagged as spam show
@marriedtoajason
I have many of the symptoms of RSDS/CRPS and I have found something that really helps. Check out my blog for more information-- and it is completely FREE information. I'm not making a penny off this. My blog is under my username at W o r d p r e s s . c o m. Hope you'll share your story and try what I recommend because it's taken all my pain away and, I believe, curing me one day of healing at a time.
isthisthecure4rsds 1 year ago
a difficult disorder to understand. most neurologist will dismiss this disease as a pseudoneuropathy of psychogenic orgin. too many studies with no clear evidence of medical understanding. same can be said of posttraumatic dystonia.
eyedea81 2 years ago
fake. Anyone can do that.
journeystarr 2 years ago
im not saying this isnt fake maybe it is but this does happen to people with RSD you get spasms now i believe this vid is real those r bad spasms...i have RSD i was in a bad atv accident
atvchick09 2 years ago
its not fckn fake. i have this stupid disorder too and i dont fake it. your symnatic nerves take control and you cant do anything about it. DONT JUDGE IF YOU DONT KNOW.
kamrynblanchard1 2 years ago
I have had this for 5 months. It started in my foot and is now to my hip. My right achilles tendon has shrunk 4". My ankle bones are smashing together. My calf and thigh look like it has had polio. I can't straighten my knee. I am in agonizing pain. My neurologist said I am the worst case of rapid spread and debility she has seen. If it would help (and they say it won't), I'd have my leg cut off. I have tremors and spasms in all my limbs. .
usecori 3 years ago
Here I am, a year later, still searching for answers...This is now in 3 limbs, my chest, back, neck and side of head. I have severe blood pressure instability and was hospitalized for 3 weeks. My legs jump and I twitch everywhere. I hurt so much some days that I vomit and have issues nutrition because of it. I could deal with the burning if I could skip the electrical shocks. They cause severe anxiety as it's random and SO intense. I am not living, just existing. God, take me home, please.
usecori 2 years ago
i am 27 year old diagnosed with RSD on my right hand early stage, they said that if it is cought early it cant be fought but its been 6 weeks and my hand gets inflammated and painful. if i dont get better does any one know if it will affect the rest of my body?
TaliaBeltR 3 years ago 3
Yes I can affect the rest of your body the pain can spread. I'm 24 and had it for 2 yrs it started in my foot and now is in my entire right side.
Gamechica 3 years ago
i feel so sorry for u.
that sounds so painful.
Horseflies12 3 years ago
yes it can spread i have it n my left foot & had surgery to get my wisdom teeth cut out & it now in my bottom lip.. nut ther are physical thepary exercies to help with the pain. have u been given any nerve pain meds?
spiderman1fan 2 years ago
it will affect other lims like your legs and arms. i am 13 and i have it in my hand, and both of my legs. i been having it for 3 months and physicall therapy is the only reason im walking today.
kamrynblanchard1 2 years ago
kamrynblanchard1 its been a year now, i have it from right hand, up to the shoulder, neck, right side of the upper back, left wrist and hip.
TaliaBeltR 2 years ago
@TaliaBeltR I know this was posted 2 years ago, but I did want to say yes it can. I am 15 and have it full body with organ involvement. How are you doing?
atvchick09 4 months ago
Hi Acheese9,
My mum will try and post a video of my walking when she can, we have been going to post a video of my walking, it is just difficult to do so as my mum has to stand behind me to hold me up so we would need someone else to take the video.
We will try and post a video shortly though 0 I agree it would be very educational and a great way of raising awareness.
ajkay159 3 years ago
hii! i was wondering if you coould post a video of her walking. it would be very educational, and raise awarness.
acheese9 3 years ago
Hi, thanks for the question.
My daughters leg is now spasming every minute and is even doing it whilst she is trying to walk which is pretty scary.
My daughter is starting a Physio program in July so hopefully that should help somewhat. The program lasts 3 weeks (possibly longer)
I will keep you all updated
Thanks once again and i'm sorry for only just replying to you
ajkay159 3 years ago
just curious to know has it gotten any better? best wishes
hotlez008 3 years ago