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From: VideoCrazyBaby
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  • i have a heart condition like that, its gentic, its called Long QT Syndome! I had heart surgery as well :/ last year when i was 18.. so im 19 now lol i have an ICD now, you know like an interal defib. It sucks, but when you have a heart attack at a young age, with a diagnosed heart conditon like yours, it needs to be done.

  • I just had surgery for svt it totally effects your life dramatically. I had to get an abortion because of it. :-( :-( I wish u the best.

  • wat ward were you in was was in picu and dolphine ward when i was 7years old (I had Toxic Epidermal Necrollysis)

  • You were submitted around the time that my best friend was - sadly she didn't make it. Im glad you did x and your life is still moving n :)

  • i nely cryid becaurses my best friend Jessica had a heart Operation too and it not funny becaurse that my friend plesese help that girl make such you do a good job!!!!

  • I thought after your operation it would be a happy ending. This is so sad ;( I hope you're better now x Much love xx And stay strong !

  • nobody helped my child in posttransplant rehabilitation and integration in life, no GOSH or LEA. She was left hoppless for 2.5 years completely isolated from society and life

  • Aww, You've changed so much! >< :L

  • i hope u get better casey

    

  • you are so brave! i wish you good luck in the future! <3<3<3<3<3

  • You are a total inspiration and i wish you luck in the future!!!!

  • You are one brave girl Casey! You're so young, you really shouldn't have to go through all of this at your age. Everything will be fine sweetheart, keep your head held high!

    By the way, what is the song called? The one that is played after 'Womens work' xx

  • wow you are so brave babe xx

  • I'm 18 and I'm having an ablation in the next 3 months as well : ( I'm scared about it but I know it has to be done because I have tachycardia and a extra electrical signal in my heart! Thanks for giving some knowledge into what it is like!

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  • u seem so young to have all these problems..im 32 and i was at patient at GOSH as a child,still remember the times when i were there...i still have health problems..hope that ur feeling better,and ur health has improved :) x

  • @DRnikkiHOUSE Umm, to put it in the simplest way, its when you're walking is abnormal

  • keep your head up girl

  • You're a beautiful brave girl x

  • ive had heart surgery 9 times.

    it really sucks,but i kinda just hide in a percocet bottle.

  • Okay im sorry but this video brought tears to my eyes stay strong :(

  • your so brave

  • OMG CASEY 4000 VIEWS! jealosue ¬¬ Lol

  • awwww u made me teary eye :'( a 13 yr. old has to go thro tht my WORST FEAR IS TO HAVE TO GO THROUGH SURGERY and u had to get it done on ur heart ur a SOLDIER

  • hope your doign ok now tho all the stays at gosh are very worth it :) this is definatly a great idea that you have come up with to help show others what you have been throught :)

  • did they let you get high off morphine?

  • I had my first Ablation on November 19 2009 i feel better not like a normal person but i need to be strong cause i had a baby and she need me I'm going to pray 4 u. You are and inspiration for thanks for post those videos God Bless You!

  • Sometimes i fight and says God Why me? But then i understand and change the way i feel and think because some ppl are more sick than us. I had 3 years trying to know what happened with my heart and after those tears and sadness God sent the right dr and save my life.

  • Hey Casey!

    i went to great ormond street aswell to have heart surgery, mine was in november last year. your video was touching, reminded me of when i went there, they had to give me a drug to calm me down :L. hopes your all better and getting on well, btw i was in the exact bed as you when i had mine when you talked to the camera >< lol.

  • i have a congenital heart disease and was treated at gosh. <- did dr low do your EP study?? i've had 10 heart surgeries. i'm 18 years old, and was also diagnosed with PCOS. your story connected with mine a bit, so i just wanted to say stay strong. there's so many children and teens that go to gosh and never get to walk out of these doors x

  • Hi casey. just in a matter of interest, you were probably there when i was having one of my injections. i felt a deep sorrow for you while watching this video and how you explained it was magnificent. you will pull through the heart disease and though they might not be able to take it away, which i dont know if they will, great ormand sreet hospital is still an awesome hospital. also, nice socks.

    Nico

  • @evillink1996 i forgot to include how brave you are but im sure you're tired of hearing that.

  • hey casey

    hope you are well

    gosh is an excellent hospital

  • Your an inspiration Casey, keep going girlie x

  • Casey .... i really hope your operation goes well .. ur soo brave ....

    good luck ...wish u the best xxxxxxxx

  • I have hypermobility syndrome aswell (apparently,even though my mum thinks its worse)

    You are so brave

    Good luck with the future :] x

  • You are very brave! I hope others find strength through your videos.

  • Goodluck use my info I promise you will have the same result your not alone I'm with you every step of the way. I love you and I don't know you but I know your hell lets get some light going in that dark room your in. God Bless you

  • So in 2007 I decided not to think about it anymore I just went on with my life. I have had episode probably since but I have learn to master them and call them away. I workout still and I live life, I tell to pray alot and learn your body master your mind. Look for a better doctor. I went to the best hosital in the world also the biggest Columbia Prespitarian Medical Center in New York City. Best doctor he teach throughout the world Dr. Hasan Garan

  • Things are tuff when it comes to heart problem. In 1998 I was in the gym and my heart went to 276bpm, After many doctors I was told it was SVT. For the next 5 years it was hell so I went for my ablation surgery in 2005. I was under for 3 an a half hours and they could not make my heart go into SVT so mapping it was a failure but they called it a miracle cause my condition just disappeared. But the next 2years would prove that wrong I got 2 more SVT episodes in the gym.

  • I had a cabg (connary artery bypass graft) at great ormond street just under 3 weeks ago and i had to be in CICU for 2 days and on ladybird ward for about 3 or 4 days. but first before my op i went to the cardiac day care where you were. everybody looks after you very well in there  and i was the the first child ever to have this operation done before

  • your incredibly brave, you've been through alot and have inspired me to not take anything for granted. i hope you get better very soon xxx

  • well done for being so brave :'D ,, you've inspired me.. im in the middle of being diagnosed with kidney disease and was in GOSH for a week,, i only came out on wednesday,, befor that i was a UCL for 2 weeks and had 2 opps.

    i hope everything works out for you in the end,, enjoy life and never take anything for grantage<cant spell ,, because i took my good health of grantage and now its gone :|

    thanx 4 the vid ;) Xx

  • hey

    i hope you got my inbox message. for some reason yotube wouldn't let me reply to the comment you left me on my chanelxo

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  • you're very brave and have been through a lot.. i have only experienced a small part of what you have , having had very bad svt since 16.. last month i had the same operation as you xo

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  • CASEY, ILYSM

    ALWAYS REMEMBER THAT (y) =D

    xxx

  • i just wanted to say that your an inspiration and truely touched me and related to... thank you for showing this.. i was young when i had my ops so i don't remember, but you showed the realism of what my family went through soo thank you and has made me see how much staff at many hospitals have helped soo thank you...:) and just want to say your an amazing person, very strong... don't let health get in your way.... thanks again xxxxx

  • CASEY!!!

    You just made me cry you little willy!!

    I promise you, all these stays at GOSH will be worth it...just as soon as you meet Franny baby. ;)

    So glad to have met someone like you, a top inspiration!!

  • wow, really emotional.

    Well brave too.

    Good Luck in further operations and be strong xx

  • :O U're so brave! U've been through so much..

    ily ;)

    Matty

  • btw dont hate in this girl cos she been thru a lot...if u think she is lying or seeking attention then thats ur point of view, but keep it 2 urself...

  • Thank you :) x

  • my 2 year old girl has been diagnosed with kawasaki tnite im scared i hope you are are better your vid made me cry i think it was athelete get well soon even tho i dont know you xxx

  • i love all of these songs and they all just make me cry and this video is so sad D:

    u r my brave girl :-)

  • Casey Baybeee

    =(

    Love you so much.

    This video made me cry

    didnt know how much you went through

    ='(

    lyBecky

    x

  • ur 1 of the bravest ppl ive ever met

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