ALS residential living...

[Kunniatonpaskiainen]

Me too.Saw it with my mother.

[smoothsaling]

@canada930 There are a lot of people who agree with you and they tend to do so within 5 years. But since ALS does not affect the mind, it is possible to utilize technology to restore the functions that ALS steals away. That is really good news for those of us determined to live. Until medicine proves otherwise, technology IS the cure. The ALS Residence proves it.

[deaseong314]

나는 여기써있는 글들은 다이해할수가 없다. 그러나 이들이 말하는것이 무엇이며 무슨말을 하는지는 어렴풋이 알수가있다. 그어느누구보다도 잘알수가 있다. 왜냐면 현재 나도 2006 년 시작돼 지금은 상태가 많이 안조은 시기까지 왔기때문이다. 그러나 이제는 눈물도 감정도 많이 닳아없어졌다. 그래서 이들의 고통과 슬픔을 누구보다도 잘알수가있다. 목소리도 잘나오지않고 몸도가누기 힘들어졌지만 그래도 아직 키보드 를 두두릴수 있음을 하나님께 감사드림니다. 그리고 지금 루게릭을 같이 앓고있는 환우들 우리모두 이글이라도 쓰고 읽을수 있음을 감사하기로합시다.. 우리마지막은 생각하지말고 오늘은 또오늘은 그리고 또오늘은 하면서 살기로 합시다.

모든분들께 하나님 은혜가 있으시기를 기도합니다.

여기까지 적는데 너무시간이 오래걸렸습니다.영어로 쓰지못해 죄송합니다.

new york 에서.....

[MissMelodia4U]

My Father my Superman got ALS

Thank God we live in Sweden and Finland with public healthcare and LOT of handicap rights ..I have the luxury to move back home to my mom and dad parttime

cuz my dad will be at he´s own home as long as we can <3

[kendrat199]

For those of the people that have ALS, is it basically the destruction of nerve fibers which, even though the brain works perfectly fine, is unable to receive messages fully? Or are there other components. It's so sad knowing that these illnesses exist and we haven't found a cure for them or anything to slow down the progression. Bless all the people that were present in this video.

[The391956]

I see you wrote to me

Why do 90% not want to be on ventilators?

Are Hospitals Any Worse Then A Nursing

Home, That is strange

Do Most ALS patients want home care

instead of Hospital

I do not understand

[The391956]

What a outrage asking for money to build a nursing home, then they will have the gall to charge the patients $400. a day to be in the nursing home till the patients savings is taken. Then the nursing home will rip off the tax payers Medicaid for the patients. Do Not Donate Any Money Let It Fail Vote For Community Care Act. Care In Peoples On Homes Not Nursing Homes. Even Spouces are paid. ADAPT will help to get community choice act passed

[smoothsaling]

@The391956 You are missing the point. This is no traditional nursing home. The Leonard Florence Center for Living is doing stuff that’s never been done before. We have invested over a half million dollars of the donations received to create a home automation software that will eventually be available to all disabled people.

[smoothsaling]

@The391956 I live in this "nursing home" as a 42 year old man and I promise you that it's unlike any other facility. As followup to the success of the ALS and MS Residences, we have started the ALS Residence Initiative (ALSRI) to create more specialized residences for those who are totally dependent on others for care. They will be built in the community wherever possible. The Leonard Florence Center for Living is a nonprofit nursing home and provides the highest level of care to the most needy.

[larbacmc1]

@smoothsaling How many ALS-MS specialized nursing homes do you have besides the 20 ALS patients? is it 20 MS patients? Did the $5Million help the 20 ALS patients? How many ALS, MS, SMA1, very disabled patients on ventilators need nursing homes provides the highest level of care to the most needy. Is it about 5,000 to 10,000. patients nationwide who need this type of nursing home. Is their a need in Calif, Florida, Texas, Washington Massachusett? How much is care a month?

[smoothsaling]

@The391956 I applaud your effort to advocate for community care legislation. It is critically important that we deinstitutionalize long term care of our elders and disabled population. Home Care can be provided more economically in the home and most people would prefer to stay in their homes.

[smoothsaling]

@The391956 In many situations, home care is not viable or appropriate. The Leonard Florence Center for Living is a nursing home our society can be proud of and should be the model for how to provide long term care when community care is not an option.

[smoothsaling]

@The391956 LFCL is the first urban GreenHouse model of nursing home in the country. I live in a private residence of 10 people, with a private bedroom and bath. I have a normal residential kitchen and a spacious living room. My home is as nice as most 5-star hotels and, because of the built-in automation, I have total control over my environment despite being paralyzed and speechless from ALS.

[smoothsaling]

@The391956 If you want to see how to live residentially in a skilled service residence, check out LeonardFlorenceCenter dot organization

[larbacmc1]

@smoothsaling

You say your paralyzed and speechless from ALS

Is That You Walking With A Cain Talking To That

Lady Helping Her Draw The Papers To Build The

Nursing Home Working For Nothing. In 2007

When This Was Video Was Made To Raise Money

For The First

[The391956]

@smoothsaling

I am so sorry that you are paralyzed and speechless from ALS

ALS is a awful illness., I lost my Grandmother from ALS.

I am sorry I cursed your nursing home,

My grandmother was in a very bad one.

[The391956]

What a outrage asking for money to build a nursing home, then they will have the gall to charge the patients $400. a day to be in the nursing home till the patients savings is taken. Then the nursing home will rip off the tax payers Medicaid for the patients. Do Not Donate Any Money Let It Fail Vote For Community Care Act. Care In Peoples On Homes Not Nursing Homes. Even Spouces are paid.

[The391956]

Euthanasia is kinder then a nursing home,

that is what most would prefur over

a nursing home.

Community Care Act is the true answer

not nursing homes.

[safarsafar1234]

I HEART HURTS, be grateful for everything you have!

[SusanitaMarquez]

Fucking disease!!!

[pantyflash]

Like, folks with ALS don't just "pass away." Let's not mince words here; those folks die miserably! Bless those who are providing this fine facility to mitigate that grim misery. Way to go, babes!

[alcinderalla]

my daddy passed away with this evil disease and it was hard to watch him go down so fast he first started in 2007 and was declining fast he passed away july 24 2008 ,,,I love you daddy I wish they have had a cure ,,,,,

[P9046]

@alcinderalla my dad died from this disease to on dec 9th 2004 it started when i was lying on his lap and he couldn't breath good so about a week later he went to the hospital and they said you have been diagnoast with A.L.S................ p.s. they have a walk and a foundation for this disease.

[alcinderalla]

I know some of what they are feeling I was a caregiver to my DADDY he passed july 24 2008 from this evil disease

[LPdude71789]

I'm so glad to see this in the works, its groundbreaking. Hopefully more facilities like this can be built around the nation and eventually the world.

[maypema]

I would love to see the final design which will allow people with ALS to live more fully and freely. I care for people with ALS in Colorado. I am interested in learning how it feels for people with ALS to be in such a home. Will there be room for the family or just the person with ALS? Maya RN

[larbacmc1]

@maypema Maya RN I read about a special nursing home and wondered how it went. I have a ? for you do you know how many ALS patients their are and are most left in hospitals or worse ? I am going to start a fundraiser to build specialty care nursing homes for ALS, M.S., CP, SMA1, SMA2, MD, SCI Quads, who need specialty care, feeding tubes, kidney dialysis, artificial ventilaton,

[mnccarna]

Thanks for posting this! I'll be watching for further developments in the ALS house. I wish you well in your journey with ALS. Montana Carol

[mftravis2]

Kudos to posting this to YouTube Steve!

--Mike

[ManicGrasshopper]

What a worthy cause. I am in awe over the togetherness of this venture. Kudos to all involved, and God Bless.