This is an eye opener for me actually, when i see/hear the word "siezure", i had always assumed that meant the physical shaking and then the recovery.
I never knew there were several types of seizures, Thanks for posting, Never too old to learn :)
I was diagnosed with this in early 1991. It took sixteen years for my mother to find a doctor that believed her when she said there was something wrong. Because they were so subtle she only saw one...her first one....when I was almost 16. Everyone could see my potential but no one understood what I had. I was medicated for it (Tegretol) and I stopped taking it when I was 23 and have been seizure free for 13 years. I'm no longer drawn into a large black hole with no sound or feeling :)
When you think about seizures u think drop n flop I have absence seizures and all I do is get disoriented then tired sometimes I remember what I did while going through it and some times a gap is missing on my day
My son suffered from CAE starting at age 7 and he is now 11 and hasn't had a seizure or "space out" as we call it for months. It can be a condition that they simply grow out of. Good luck to you!
BDMKEC, I am a clinical psychology doctoral student. I would like to use your video in my dissertation, which is a continuing education course to help medical and psychological professionals differentially diagnose CAE and ADHD, Inattentive Type. May I have permission to use your video in this course?
I have not viewed the comments nor the video in several months. Thank you to everyone who suggested lowering the resolution to 240p, that does indeed work. For everyone who has asked, our daughter has been seizure-free since Nov. 2009. She is on a combination of low doses of ethosuximide and depakote twice daily. After over a year of tinkering with her meds, that was the magic bullet. Thank you all for your prayers and well-wishes.
I'm not sure if you're aware of this, but the video only seems to show grey if you select 360p as the resolution. If you bump the resolution down to 240p the video shows up just like it should.
I randomly fell in the middle of class once. Just dropped, the last thing i remembered was everything went black. They called an ambulance and everything for me, my parents were shocked, my teachers guessed it was a seizure, or a faint. The doctor said a faint, and i do not remember anything at all. They asked me all these questions, i was so confused and scared i was like crying. The scariest part is that i still dont know what it was.
I would like to see a channel also. My daughter has absence seizures. You could add her to one of your shows if you wanted to. It is amazing though how many people do not know what to do as far as first aid. Last year there was girl on one of the buses that the driver said had a few. I told him next time pull over when it is safe and get them off the bus. Being on the bus with the seats and all she could have gotten hurt.
i have absence seizures since i was 10 and now i'm 24. my diagnosis is epilepsy. it is pretty nasty to have them. i was almost hit by a car because i had these absence seizures on the street. i simply started to walk while the lights were red and when i rehained my consciouness i was standing in the middle of the road while the driver was shouting at me. i was 13 and i was so shocked that i froze. but now i'm used to them. i now know when i have them.
I was diagnosed with absence seizures when I was five, and I am 15 now. I used to have a lot, probably 50-100 times a day. I've been off my meds for about three years and I haven't noticed any in a long time. My mom and I are pretty sure that I'm growing out of them...which happens a lot. Hopefully your daughter will too. :)
If you're having trouble with the video being gray, there's an option at the bottom right of the vid that defaults to 360p. If you change it to 240p, the vid should play...
Sorry, I am aware of the technical issues with this video which have developed within the past week. Thank you to all of you who have notified me of the problem. I have reported it to youtube and hope to have it resolved as promptly as possible. I posted the video 2 years ago and have not touched it since; so I don't know why it is suddenly all gray. If anyone has a suggestion on how to fix it without re-uploading, please tell me.
I have had seizures since I was 10 now I'm 14. The doctors say I still have them all the time but no one notices, so they keep increasing my meds. That poor girl, it must be hard for her parents to deal with that.
I had petit mal seizures throughout my childhood that went undiagnosed until I was 16, when I had one in front of my mother incorporated with some strange hand movements. It's interesting to see a child having them, because I can see how easily it is to not notice a child is having them.
I can't explain to you from outsider's view, but someone who has had them, what happens is very similar to normal seizures in that you have a certain strange feeling beforehand. It can act as a warning, but it's not long enough for say, if you were in a car to pull over. Just long enough to say to someone it's about to happen.
I would have a strange smell right before, closest I can can describe is natural gas. Then I would have very strange thoughts (contd)
The actual topic of these thoughts I can never remember, but they're just bizzare thoughts. I would also lose concentration if I was speaking. Then I would finally go into the seizure. I probably only would last under 5 seconds, (not sure since it was me) but I had no memory of the seizures.
When I was diagnosed I had a 20 second petit mal seizure with some strange hand movement. My mother witnessed this. Previously no one was witness to my seizures.
@smcross9 No, she is unaware that anything has happened. It's like a slice of time is removed. However, if she is reading or speaking then she loses her place. This has become a signal to her that she's had a seizure, although as I said she is unaware with regards to any particular sensation or thought.
This video was taken about 2 years ago. Fortunately the seizures have since come under control with medication. She has not had a seizure in several months.
@smcross9 Currently she is on low doses of both ethosuximide and depakote. Over the past 2 years we have tried full doses of both drugs individually without success. On this regimen she has been seizure-free for the past several months.
@smcross9 what BDMKEC said is true, but the child knows he or she has had a seizure after it occurs. i have epilepsy, so i would know. it feels as if you were watching tv, then you turned it off, then back on. you know you've missed a part of the show. same goes for a seizure, you know you missed a part of life.
@chaimaintenance4 Maybe an older child would realize what has occurred, but a young child may not have that awareness. My daughter has never known afterwards that a seizure has occurred. However as I have stated in the past, I am not a physician & am only speaking from our unique perspective.
@chaimaintenance4 you are right, and wrong. i have these seizures too, and it can go either way. sometimes the person knows, and sometimes they dont. my best friend has epilepsy also, and she knows when she has one, but i never do. not even if i am reading and i lose my place, you know? i mean, i do that anyways. lol. i know this isnt a laughing matter, but i have found that the only way for me to keep from losing hope in a cure is to savor life as it is, and try to make others and myself laugh.
Did she or does she ever say anything about having "daymares"? My daughter does some of this and I thought she was just thinking. She talks about having daymares, rather than nightmares, with her eyes open during the day. I asked if it is the way she imagines a story? But she says it's like a nightmare but she's not sleeping. She says sometimes it's about a big spider.
As I have been playing Chess for 40 years now, that is the only thing that I could suggest. I knew a man that was Epileptic and he could drive a car with no problem, so I can only assume that it concentration is required it may help. Little kids love chess and there is chess club every weekenend and USCF tournaments every month or so. God bless that child!
Yeah but it's not like having tourettes where the meds keep it under control only 40% of the time. I have petit mal seizures and i can go at least a year and a half without having one.
@trigbeatz i had absense serzurs now i have these flash backs they do go but they take a diffrent form my doctor still have not considerd the to be serzurs
The Human Brain is a really amazing thing,it can affect you at so many levels,but still can take so much punishment...I heard a story about a man that has hydrocephalus,but was unaware at the growth of the brain liquor on his brain,and his brain turned into a donut,with a hole on the center,but with no cognitive problems...
There is a cure. It gradually goes away. What do you think? That people who are epileptic are just hopeless? Perhaps I am missing the real message that your comments are sending.
My 6yr old son was just diagnosed with this. I've seen the signs for a long but never knew, just figured he was thinking or spacing out.. Thanks for posting this so others are aware. May I suggest that you use the youtube annotations feature to point out when they happen so other parents will know what to look for.
Heart-breaking. Hope she gets well very soon. Please try naturotheraphy & specific diets, which fixes the underlying conditions, rather than western medicine pills which only fixes the symptoms.
@IstanbulRider For a child with a serious neurological condition, time should not be wasted on this. You cannot fix a gene mutation with naturopathy or diets, this is absurd. It also doesn't fix brain lesions, and I cannot find any reputable peer-reviewed research that shows a link between naturopathy (or diet) and reversing epileptogenesis.
My advice to BDMKEC is to not waste time with unproven speculative medicine when a child's health is at stake.
@Narsilion On one hand, we got the doctors telling us these conditions are not treatable, on the other hand we have others there is a treatment. I think it's much better to try and make your child's life easier than sit and do nothing as to "not waste time".
Nobody can expect parents to not do anything about their children's health. In the end, it's your child, it's your future.
On one hand, we got doctors there's no treatment, because nobody has done any research for it(!), on the other hand, we got others there IS a treatment.
I'd rather try every possible way to help my child than sit and do nothing, as "not to waste time". Nobody can expect parents not to do anything when it's your child's health is at stake.
@IstanbulRider Thank you everyone for your respectful input. Healthy discussion & debate is always helpful. As for my daughter, this video was taken about 2 years ago. We posted it in order to help other families who may be experiencing similar issues.
i got petit mal when i was 9, and i would get over 100 a day, but people said it looked lyk i had suddenly just gone into a coma or something and would have one for about a minute, i dont remember the name of the medication i took but it took me 5 years to get rid of it
She needs to go to UCSF and get a "Vagus Nerve Stimulator" implanted in her. Thats what I did and it helped. Plus I take Dilantin, Keppra, Buspar, Gabapintin and as needed Atiavan
Thanks for that. I had two seizures in the past two days and today I had to go the er. I feel like I'm putting my family through needless pain and suffering. They have their own lives to.
A kid at school had a siezure today and everyones like that's so horrible. It makes me feel like having epilepsy is a bad thing and that I'm different. Ugh I hate that feeling.
@KCFlegend You are different, but not in a bad way. People usually react negatively because they are not informed, and so do not know that it doesn't make you a less of a person by being different. Just know that its a part of who you are, and what you bring to the world, is completely unique from another person. I know being cast out because you are different is difficult, but those people are not your friends. They don't matter. If all ppl were the same, what a boring place the world would be.
@sosaley you are so right it will def make her condition worse. I have had seizures since I was 13 yrs of age and am now 36. I have gone eight years without them and last weds had two grand mals. SO important to be educated this could be your relative or your child's life u save . You only have seconds to react !
While it is true that being overtired can increase seizures, the time on this video camera was not set correctly. It is not accurate to speculate that the child in this video is tired. The sole purpose of this video is to help parents of children with classic absence epilepsy.
oh wow, this is awfully scary stuff! Mainly because I know nothing about this type of thing. Bubbly? it would be great of you to bring out awareness. I just happened across this video. I'm glad I did, I learned something new. I would be terrified for my child! Very scary.
@BubblyMagic97 i think that would be a great idea, many people are not aware of this. For example me, i knew what "epilepsy" was but i only just found out today about "absence seizures". It's good if you make a channel so people can be more aware of it.
@BubblyMagic97 yep! i would really like to see such a channel. since i have epilepsy too, i think it would help. so good luck if u decide to make such a channel!
wow! thank you for posting this. the school nurse just called and said the teacher had observed what she thought was several seizures for my son. reading about this and seeing this video makes alot of sence and I will be getting him to the Dr for further testing right away.
thank you for sharing this. I had previously been the unaware parent. Bless you
people often mistake absence siezures as day dreaming. the child or whomever it may be, stares off into space and eventually comes back with a loss of memory. I was diagnosed with absence seizures when I was 8. 14 now.
my little brother had absent seizures, i felt so bad because we didn't know what was really happening then we went to the doctor and got help. it turned out he had an allergic reaction to a med.
i have absence seizures i can tell you it hurts like hell knowing you have them i cry and wonder why i had to get them i was dignoised with them when i was just 8 im goin on 17 years old soon my mom and i both havent noticed me having them so she will be booking an appoinment with my doc.and going up to childrens for an 24 hour eeg to find out if there gone. or NOT. i take 7 pills in the morning and at night it has helped so much but it is alot off med.
I was diagnosed with "epilepsy caused by stress" when I as 17, I had a grand mal seizure on night and they called a paramedics for me because I stopped breathing. I also have tonic clonic seizures (absence seizures) which I agree, it hurts inside knowing that somethings happens :(
I am not aware of trileptal being a first-line medication for classic absence epilepsy. If you have concerns, they should most certainly be made known to your neurologist.
My son has absence seizures and has great luck with Zarontin. It is the oldest seizure medicine around. He gets blood tests every 6 weeks so the neurologist can monitor the levels....it works and really no side effects
thank you so much! I'll be sure to let my mom know about it. my little sister has had three seizures in the past two weeks, which is totally uncommon for her. she's got a doctor's appointment in the morning. I'll have my mom ask the doctor about it. again, thank you!
my 5 year old daughter was finally diagnosed with petit mal seizures. After over a year of wondering what was wrong with her. She is on Ethosuximide now, and it seems to be helping. I have only seen her do it once in the last week.
I was born with epilepsy also. I had them all the time up until I was 19 years old. I am 34 now, & I have remained seizure free for about 16 years now. I've been told by my neurologist that it can come back at anytime, hopefully it doesn't.
I was diagnosed with this after an abnormal EEG. But I do not agree with the diagnoses. I never blank out or have any of the side effects of this condition. Doctors are idiots. They threatened to have my drivers licence taken off me if I did not take the medication. I refused to take the medication because I DO NOT HAVE EPILEPSY
I noticed that they just talk about kids having them, I'm 26 years old & it happen to me exactly how it happening to the girl in the video, I don't shake, I don't do anything to noticeable, people don't notice that I'm having an episode until I tell my self with a hand signal, please wait, and then I have to ask "what are we talking about?, can you repeat the question?" I work in front a computer all day, and sometimes I forget where the key "Q" is, even though I know the keyboard by memory.
The estrange thing with me is that I don't recall having them when I was that young, I remember they start when I was about 13 or 15 years old, I never had one while I was at school, I didn't tell my parents it was just for few seconds (deja vu, and sensations that I didn't know to describe), they went away for many years, I came to US on 2005 free of free of episodes until last year they star coming back, stronger or more often and is happening while I'm talking with my coworkers.
Sorry, but I read about the complex partial seizures and the description is not the same as what I feel, I do not do faces or things like they describe on this kind of seizures, and I can have one and I know that I'm having it and after I know what it happened, I can talk at the moment it's happening the only thing is that is a little confuse. I'm going to try to make a video at the moment is happening to see how it looks.
If you know that you are having it, and your awareness is still retained (i.e., you can talk), then it's possible that they are simple-partial seizures. Absence seizures are generalised seizures, that is, the abnormal electrical activity spreads across the whole brain, and awareness is lost. Most people have no warning of an impending absence seizure, and have no memory of the event afterwards.
i had to have surgery one time and after the surgery started having absence seizures and would get a swooshing sound and flash of light with it. usually happened while sitting still or in the bathroom. i take a low dose of ativan for it now and don't have them anymore TG! i hope that girl is doing better.
Yes, she is doing well now. Thank you for asking. She is currently taking low doses of both ethosuximide and depakote. This video was taken almost 2 years ago, before diagnosis & medication.
My advice to you would be to see a neurologist, then don't be afraid to go for a second opinion. Good luck & best wishes.
@BDMKEC is she doing well on depakote? i have depression and got depakote because of a secondary effect of sertraline.. and it made my depression come back strong after almost 2 months of being ok. it went away a week after i left the pill. be careful <3
My daughter, almost 5 has Grand Mal/tonic clonic seizures; as well as absence seizures quite often. I sympathize with you on what is happening. I pray that a cure if found for all children/adults diagnosed with Epilepsy so they can go into life without fear of seizures or setbacks. My prayers are with your family.
Yo tambien padeci de este tipo de epilepsia. Gracias a quien este arriba, a un buen neurologo, a la atencion de mis padres y fuerza de voluntad, hoy no tengo ni rastros de estas secuelas.
El ultimo "Vuelo" lo tuve a los 15 años... Hoy tengo 26. Te deseo lo mejor!
I wish my parents would have caught this on me when I was a child. I'm 19 years old and in June 2009 I had a seizure much worse than these kind I have had all my life. I had a grand mal. And until then I didn't know I was epileptic. I even had one of these at the hospital and without knowing it tore out my IV. It drove me crazy my whole life wondering what they were cause I knew when I had them, well somewhat cause you don't remember all. I asked people an no one knew, now I am happy to know.
How did you know to take her to a doctor? I would never have guessed absence seizures if I had a child like that. Of course, I'm fifteen doing a report so I don't have children yet but still...my parents say that I used to do that a lot and still do.
The short story is that we took her to a doctor because the episodes were increasing in frequency and there were pronounced start and stops to them...therefore we suspected it was something more than daydreaming. Good luck with your report.
Oh. That seems to make sense...but still, it look so much like daydreaming. I do that, and I never noticed, is it possible that I have these? Thanks, we're almost done.
OMG this is excatly what my 5 yr old son is doing i started noticeing it about 2 mths ago and then it started happening everyday several times aday. I took him to the doctor todaylookthis is what they said he has so i wanted to look in to it. Thank You for posting this video.
OMG. This is exactly what my daughter does every day. Her preschool teacher expressed some concern about the behavior about 1 year ago, but we had no idea what was wrong. I took her to see her pediatrician and she said she was a normal child daydreaming. This happens to her every day several times a day and I couldn't think of what it could be since the doctor said she was fine. I am definitely going to make another appointment to have her checked out. Thank you for posting this.
Yes, and that's exactly what we thought for the first few months. Basically the episodes increased in frequency; she would stop mid-sentence; and would lose her place or train of thought in activities. It became clear at that point this was more than daydreaming. Diagnosis was confirmed via neurologist and EEG.
My son was diagnosticated two years ago, since the first day he took medicine he has not presented the seizures thanks God, Dr says he must be in treatment at least 4 years..your girl will be fine, she is on time ..God bless you
Precious little girl...(Not to sound insensitive). My mom had a dog that ahd petit mals...it was as if she was walking in slow motion..I wk with a child like this...
Poor thing! I was diagnosed with epilepsy at 21, 10 years after I started passing out. My mom always said I was a space cadet. I really wish someone had noticed me doing this, I would have been diagnosed much sooner. I'm now 31, I know I lose time now and then but at least I know why. Best of luck with her!
What Is And Absence Seizure Exactly?
Misstatter 2 weeks ago
This is an eye opener for me actually, when i see/hear the word "siezure", i had always assumed that meant the physical shaking and then the recovery.
I never knew there were several types of seizures, Thanks for posting, Never too old to learn :)
dippidop 4 weeks ago
I'm not getting the video--I'm getting audio only.
loge10 1 month ago 7
@loge10 As the previous comments mentioned, you can switch to 240p resolution and the video will work. Thank you & best wishes.
BDMKEC 1 month ago 4
I was diagnosed with this in early 1991. It took sixteen years for my mother to find a doctor that believed her when she said there was something wrong. Because they were so subtle she only saw one...her first one....when I was almost 16. Everyone could see my potential but no one understood what I had. I was medicated for it (Tegretol) and I stopped taking it when I was 23 and have been seizure free for 13 years. I'm no longer drawn into a large black hole with no sound or feeling :)
AutumnPheonix1 2 months ago
240 for protection ;3
xArnold99x 2 months ago
this is sad... :(
kellyfan25 3 months ago
switch to 240p, image will appear!
kloiq 3 months ago
When you think about seizures u think drop n flop I have absence seizures and all I do is get disoriented then tired sometimes I remember what I did while going through it and some times a gap is missing on my day
lillweez99 3 months ago
The absent seizures are Absent" Duh!!
startingoutbackwards 3 months ago
no, they are really brief.... observe 1:36
alterego112285 1 day ago
I can't really tell the difference at all.
DistortedFaiths 4 months ago
hmm i see no seazures
Idellle 4 months ago
@Idellle seizure
Idellle 4 months ago
Change the RAM
crackfare 4 months ago
I do that almost all the time. I just look up for like 5 seconds then come back. I say it's cause I'm thinking but then sometimes I'm not.
ShowWizard104 5 months ago
My son suffered from CAE starting at age 7 and he is now 11 and hasn't had a seizure or "space out" as we call it for months. It can be a condition that they simply grow out of. Good luck to you!
KateJahnson 6 months ago
wow its really an absence seizure coz i didnt see anything at all
reglap2002 7 months ago
SET THE VIDEO TO 240 P!!!! IT SHOWS IMAGE!!!
FuZeProductiionz 7 months ago 6
i cant see anything.....
cristaljones35 8 months ago
@cristaljones35
If you would of seen what she said ,it said to lower the resolution to 240p
EpicExplosive 7 months ago
@EpicExplosive you shouldn't have to do that.
HankWhiteman 7 months ago
Comment removed
dkvrosie 8 months ago
BDMKEC, I am a clinical psychology doctoral student. I would like to use your video in my dissertation, which is a continuing education course to help medical and psychological professionals differentially diagnose CAE and ADHD, Inattentive Type. May I have permission to use your video in this course?
dkvrosie 8 months ago
she is a beautiful child,god blessyou with a happy life
badder002 8 months ago
I have not viewed the comments nor the video in several months. Thank you to everyone who suggested lowering the resolution to 240p, that does indeed work. For everyone who has asked, our daughter has been seizure-free since Nov. 2009. She is on a combination of low doses of ethosuximide and depakote twice daily. After over a year of tinkering with her meds, that was the magic bullet. Thank you all for your prayers and well-wishes.
BDMKEC 9 months ago 14
malakia
orlof12 10 months ago
switch to 240p, it works
Alexlevy47 11 months ago 5
watch on 240p
LYLAB619 11 months ago 5
She is so sweet
shadowcaster56 1 year ago
I'm not sure if you're aware of this, but the video only seems to show grey if you select 360p as the resolution. If you bump the resolution down to 240p the video shows up just like it should.
moe555 1 year ago 2
OMG little kids!!!!~~~~
- Michael Jacksn
kelloggcerealxoxo 1 year ago
I randomly fell in the middle of class once. Just dropped, the last thing i remembered was everything went black. They called an ambulance and everything for me, my parents were shocked, my teachers guessed it was a seizure, or a faint. The doctor said a faint, and i do not remember anything at all. They asked me all these questions, i was so confused and scared i was like crying. The scariest part is that i still dont know what it was.
emogalinkheart 1 year ago
To watch the video, switch to 240p it honestly works
mitch36311 1 year ago
This has been flagged as spam show
She's so beautiful.
sezums 1 year ago
lower 360p to 240p
maximilli111 1 year ago
Comment removed
flossyxx07 1 year ago
switch to 240p to watch the video
arcturian627 1 year ago
I would like to see a channel also. My daughter has absence seizures. You could add her to one of your shows if you wanted to. It is amazing though how many people do not know what to do as far as first aid. Last year there was girl on one of the buses that the driver said had a few. I told him next time pull over when it is safe and get them off the bus. Being on the bus with the seats and all she could have gotten hurt.
202Twilightrocks 1 year ago
i have absence seizures since i was 10 and now i'm 24. my diagnosis is epilepsy. it is pretty nasty to have them. i was almost hit by a car because i had these absence seizures on the street. i simply started to walk while the lights were red and when i rehained my consciouness i was standing in the middle of the road while the driver was shouting at me. i was 13 and i was so shocked that i froze. but now i'm used to them. i now know when i have them.
milenna87 1 year ago
gray gray and gray
jojo193101 1 year ago
I see nothing but gray stuff in this video...
purplecheeseify 1 year ago
I was diagnosed with absence seizures when I was five, and I am 15 now. I used to have a lot, probably 50-100 times a day. I've been off my meds for about three years and I haven't noticed any in a long time. My mom and I are pretty sure that I'm growing out of them...which happens a lot. Hopefully your daughter will too. :)
ECTwilightgirl 1 year ago
this is the most hard to find form of epilepsy.. cause you cant see it on the outside...
GepieNL 1 year ago
Thanks for sharing! I have to wonder how many children are under diagnosed- just looks like the child stops paying attention for a few seconds.
HaileysYaYa28 1 year ago
on 240p u can see the vid
rubymermaid1 1 year ago 9
put to 240p and it works
darksonicma 1 year ago 4
Comment removed
GORbyBE 1 year ago
If you're having trouble with the video being gray, there's an option at the bottom right of the vid that defaults to 360p. If you change it to 240p, the vid should play...
GORbyBE 1 year ago
The video isn't working on this. Audio is fine.
oldladydrummom 1 year ago
@oldladydrummom i know i couldnt get it 2 work either
BellaCullen1017 1 year ago
i know i couldnt get it 2 work either
BellaCullen1017 1 year ago
this is absence of images XD
PeperoBoy 1 year ago 73
@PeperoBoy Try 240p mate ;)
terryex2 6 months ago
Sorry, I am aware of the technical issues with this video which have developed within the past week. Thank you to all of you who have notified me of the problem. I have reported it to youtube and hope to have it resolved as promptly as possible. I posted the video 2 years ago and have not touched it since; so I don't know why it is suddenly all gray. If anyone has a suggestion on how to fix it without re-uploading, please tell me.
BDMKEC 1 year ago 4
@BDMKEC To have this video playing normally i chose watching it in 240p not 320.
It helped and i have watched this video properly. And how is that girl now?
Deathuntneki4 1 year ago
@BDMKEC
Reduce the video from 360p to 240p
sinclaire18 1 year ago
@BDMKEC I set it to 240 dpi and it apeared
Norbertasss 10 months ago
@BDMKEC by selecting the lower resolution (240p) i was able to diplay the video
medeste 9 months ago
@BDMKEC tell people to select 240p to view the video.
perplexedmoth 9 months ago 3
I have had seizures since I was 10 now I'm 14. The doctors say I still have them all the time but no one notices, so they keep increasing my meds. That poor girl, it must be hard for her parents to deal with that.
angel10252 1 year ago
um this video is broken I can't see anything on it
artpeacemaster 1 year ago
video is showing us distorted and all gray.
jaemarie830 1 year ago 4
yaYYYY i have those :)
LickYoSuperCuz 1 year ago
it dosent only happen to children.
angellxxxLA 1 year ago
i have absences seizures i iv bine video taped alot of times and i dont blink or move those are diffrent kind of seizures
snowboardercity 1 year ago
I had petit mal seizures throughout my childhood that went undiagnosed until I was 16, when I had one in front of my mother incorporated with some strange hand movements. It's interesting to see a child having them, because I can see how easily it is to not notice a child is having them.
dirtyrottensecret 1 year ago
What happens durring an Absence Seizure? And why does it happen?
BamBabyBrenda 1 year ago
@BamBabyBrenda:
I can't explain to you from outsider's view, but someone who has had them, what happens is very similar to normal seizures in that you have a certain strange feeling beforehand. It can act as a warning, but it's not long enough for say, if you were in a car to pull over. Just long enough to say to someone it's about to happen.
I would have a strange smell right before, closest I can can describe is natural gas. Then I would have very strange thoughts (contd)
dirtyrottensecret 1 year ago
@BamBabyBrenda
The actual topic of these thoughts I can never remember, but they're just bizzare thoughts. I would also lose concentration if I was speaking. Then I would finally go into the seizure. I probably only would last under 5 seconds, (not sure since it was me) but I had no memory of the seizures.
When I was diagnosed I had a 20 second petit mal seizure with some strange hand movement. My mother witnessed this. Previously no one was witness to my seizures.
dirtyrottensecret 1 year ago
she's adorable! it's sad that this keeps happening to her :(
BitterYouth 1 year ago
Does she know that happens?
smcross9 1 year ago
@smcross9 No, she is unaware that anything has happened. It's like a slice of time is removed. However, if she is reading or speaking then she loses her place. This has become a signal to her that she's had a seizure, although as I said she is unaware with regards to any particular sensation or thought.
This video was taken about 2 years ago. Fortunately the seizures have since come under control with medication. She has not had a seizure in several months.
BDMKEC 1 year ago 20
@BDMKEC Ok, and if you dont mind me asking, what medication is she on to stop these from happening.
smcross9 1 year ago
@smcross9 Currently she is on low doses of both ethosuximide and depakote. Over the past 2 years we have tried full doses of both drugs individually without success. On this regimen she has been seizure-free for the past several months.
BDMKEC 1 year ago
@BDMKEC That's great news =D
She's such an angel xxx
MrsAriaElizabeth 1 year ago
@smcross9 what BDMKEC said is true, but the child knows he or she has had a seizure after it occurs. i have epilepsy, so i would know. it feels as if you were watching tv, then you turned it off, then back on. you know you've missed a part of the show. same goes for a seizure, you know you missed a part of life.
chaimaintenance4 1 year ago
@chaimaintenance4 Maybe an older child would realize what has occurred, but a young child may not have that awareness. My daughter has never known afterwards that a seizure has occurred. However as I have stated in the past, I am not a physician & am only speaking from our unique perspective.
BDMKEC 1 year ago
well maybe I have two seizures when I was 12 and i was compleatley unaware of what had happend.
spiffmeister28 10 months ago
@chaimaintenance4 you are right, and wrong. i have these seizures too, and it can go either way. sometimes the person knows, and sometimes they dont. my best friend has epilepsy also, and she knows when she has one, but i never do. not even if i am reading and i lose my place, you know? i mean, i do that anyways. lol. i know this isnt a laughing matter, but i have found that the only way for me to keep from losing hope in a cure is to savor life as it is, and try to make others and myself laugh.
hustonswa 1 year ago
Did she or does she ever say anything about having "daymares"? My daughter does some of this and I thought she was just thinking. She talks about having daymares, rather than nightmares, with her eyes open during the day. I asked if it is the way she imagines a story? But she says it's like a nightmare but she's not sleeping. She says sometimes it's about a big spider.
rancar29 1 year ago
As I have been playing Chess for 40 years now, that is the only thing that I could suggest. I knew a man that was Epileptic and he could drive a car with no problem, so I can only assume that it concentration is required it may help. Little kids love chess and there is chess club every weekenend and USCF tournaments every month or so. God bless that child!
georgegrasser 1 year ago
Thank you for this great example of absence seizure. Helped me understand my study books.
erqesamviq 1 year ago
Yeah but it's not like having tourettes where the meds keep it under control only 40% of the time. I have petit mal seizures and i can go at least a year and a half without having one.
KCFlegend 1 year ago
@kfcledgend yeah I asked my doc do they go away he said "nope having them for the rest of your life. That's why I'm puttin you on meds" grand mal btw
trigbeatz 1 year ago
@trigbeatz i had absense serzurs now i have these flash backs they do go but they take a diffrent form my doctor still have not considerd the to be serzurs
snowboardercity 1 year ago
The Human Brain is a really amazing thing,it can affect you at so many levels,but still can take so much punishment...I heard a story about a man that has hydrocephalus,but was unaware at the growth of the brain liquor on his brain,and his brain turned into a donut,with a hole on the center,but with no cognitive problems...
Heitor619 1 year ago
she is soo adorable
jessiecomedy15 1 year ago
Btw it's not genetic
KCFlegend 1 year ago
There is a cure. It gradually goes away. What do you think? That people who are epileptic are just hopeless? Perhaps I am missing the real message that your comments are sending.
KCFlegend 1 year ago
Oops double post sorry.
IstanbulRider 1 year ago
My 6yr old son was just diagnosed with this. I've seen the signs for a long but never knew, just figured he was thinking or spacing out.. Thanks for posting this so others are aware. May I suggest that you use the youtube annotations feature to point out when they happen so other parents will know what to look for.
Thanks!
PsychoDaveFilms 1 year ago
Heart-breaking. Hope she gets well very soon. Please try naturotheraphy & specific diets, which fixes the underlying conditions, rather than western medicine pills which only fixes the symptoms.
IstanbulRider 1 year ago
@IstanbulRider For a child with a serious neurological condition, time should not be wasted on this. You cannot fix a gene mutation with naturopathy or diets, this is absurd. It also doesn't fix brain lesions, and I cannot find any reputable peer-reviewed research that shows a link between naturopathy (or diet) and reversing epileptogenesis.
My advice to BDMKEC is to not waste time with unproven speculative medicine when a child's health is at stake.
Narsilion 1 year ago
@Narsilion On one hand, we got the doctors telling us these conditions are not treatable, on the other hand we have others there is a treatment. I think it's much better to try and make your child's life easier than sit and do nothing as to "not waste time".
Nobody can expect parents to not do anything about their children's health. In the end, it's your child, it's your future.
IstanbulRider 1 year ago
@Narsilion
On one hand, we got doctors there's no treatment, because nobody has done any research for it(!), on the other hand, we got others there IS a treatment.
I'd rather try every possible way to help my child than sit and do nothing, as "not to waste time". Nobody can expect parents not to do anything when it's your child's health is at stake.
IstanbulRider 1 year ago 2
@IstanbulRider Thank you everyone for your respectful input. Healthy discussion & debate is always helpful. As for my daughter, this video was taken about 2 years ago. We posted it in order to help other families who may be experiencing similar issues.
BDMKEC 1 year ago
@IstanbulRider
There is treatment, there is just no cure. If you're looking for peer-reviewed research on its effectiveness, I will happily supply it.
Narsilion 1 year ago
TEGRETOL KILLED MY KIDNEYS. Does anyone had the same happen ?
MrNalgas1969 1 year ago
i got petit mal when i was 9, and i would get over 100 a day, but people said it looked lyk i had suddenly just gone into a coma or something and would have one for about a minute, i dont remember the name of the medication i took but it took me 5 years to get rid of it
sk8rgrrl94 1 year ago
She needs to go to UCSF and get a "Vagus Nerve Stimulator" implanted in her. Thats what I did and it helped. Plus I take Dilantin, Keppra, Buspar, Gabapintin and as needed Atiavan
78452312 1 year ago
She's all cute with her Hello Kitty shirt :) Best of luck little one.
kenzieflii 1 year ago
Thanks for that. I had two seizures in the past two days and today I had to go the er. I feel like I'm putting my family through needless pain and suffering. They have their own lives to.
KCFlegend 1 year ago
A kid at school had a siezure today and everyones like that's so horrible. It makes me feel like having epilepsy is a bad thing and that I'm different. Ugh I hate that feeling.
KCFlegend 1 year ago
@KCFlegend You are different, but not in a bad way. People usually react negatively because they are not informed, and so do not know that it doesn't make you a less of a person by being different. Just know that its a part of who you are, and what you bring to the world, is completely unique from another person. I know being cast out because you are different is difficult, but those people are not your friends. They don't matter. If all ppl were the same, what a boring place the world would be.
418608 1 year ago
guys, she also has serveral symptoms of lack of sleep, look at the time, . . those conditions might make her condition worse.
sosaley 1 year ago
@sosaley you are so right it will def make her condition worse. I have had seizures since I was 13 yrs of age and am now 36. I have gone eight years without them and last weds had two grand mals. SO important to be educated this could be your relative or your child's life u save . You only have seconds to react !
flcherrybomb 1 year ago
While it is true that being overtired can increase seizures, the time on this video camera was not set correctly. It is not accurate to speculate that the child in this video is tired. The sole purpose of this video is to help parents of children with classic absence epilepsy.
BDMKEC 1 year ago
oh wow, this is awfully scary stuff! Mainly because I know nothing about this type of thing. Bubbly? it would be great of you to bring out awareness. I just happened across this video. I'm glad I did, I learned something new. I would be terrified for my child! Very scary.
FireFytingNut 2 years ago
Do you guys think i should set up a channel for epiletics? To make people more aware of it? I have it and i think it would be a great idea!
BubblyMagic97 2 years ago 35
@BubblyMagic97 hey if you do add me becuase i wanna know more about seizrues
WHATKIDS123456 2 years ago
@BubblyMagic97 i think that would be a great idea, many people are not aware of this. For example me, i knew what "epilepsy" was but i only just found out today about "absence seizures". It's good if you make a channel so people can be more aware of it.
alwayzbeyu 1 year ago
It will be a great idea.If u do so PLZ send me a message at dontgiveupdeeeeer@yahoo.com
amaqqqama 1 year ago
@BubblyMagic97
People aren't aware?
MagnusRulerHardt 1 year ago
@BubblyMagic97 i totally agree.
hustonswa 1 year ago
@BubblyMagic97 yep! i would really like to see such a channel. since i have epilepsy too, i think it would help. so good luck if u decide to make such a channel!
milenna87 1 year ago
Do you guys think i should set up a channel for epiletics? To make people more aware of it? I have it and i think it would be a great idea!
BubblyMagic97 2 years ago 2
wow! thank you for posting this. the school nurse just called and said the teacher had observed what she thought was several seizures for my son. reading about this and seeing this video makes alot of sence and I will be getting him to the Dr for further testing right away.
thank you for sharing this. I had previously been the unaware parent. Bless you
sweetcerise 2 years ago
wow. I never knew there were so many people effected by epilepsy in general. I've always felt so alone all the time.
KCFlegend 2 years ago
Same here. Im starting my medication soon and im only twelve. Im soo glad im not the only one
BubblyMagic97 2 years ago
people often mistake absence siezures as day dreaming. the child or whomever it may be, stares off into space and eventually comes back with a loss of memory. I was diagnosed with absence seizures when I was 8. 14 now.
KCFlegend 2 years ago 2
do you still have them now? What was your diagnosis?
michellestone100 2 years ago
umm im sorry im kinda confused in whats goin on...is she having the seizure when she gets really quiet??
cnwoke 2 years ago
I saw this happen to a kid in a restaurant. His parents didn't seem to notice.
generation1313 2 years ago
my little brother had absent seizures, i felt so bad because we didn't know what was really happening then we went to the doctor and got help. it turned out he had an allergic reaction to a med.
jvcheer2013 2 years ago
i have absence seizures i can tell you it hurts like hell knowing you have them i cry and wonder why i had to get them i was dignoised with them when i was just 8 im goin on 17 years old soon my mom and i both havent noticed me having them so she will be booking an appoinment with my doc.and going up to childrens for an 24 hour eeg to find out if there gone. or NOT. i take 7 pills in the morning and at night it has helped so much but it is alot off med.
italiancutiepie100 2 years ago
@italiancutiepie100
I was diagnosed with "epilepsy caused by stress" when I as 17, I had a grand mal seizure on night and they called a paramedics for me because I stopped breathing. I also have tonic clonic seizures (absence seizures) which I agree, it hurts inside knowing that somethings happens :(
heslop01 2 years ago
tonic seizures* sorry
heslop01 2 years ago
my eight-year-old sister has absence seizures
she's taking Trileptal and...well...sometimes it seems to help, and other times, it doesn't
one of the side effects of that medicine is that she becomes easily frustrated and unreasonably angry, which gets her in trouble in school and at home
does anyone know of any *better* medicines for absence seizures in children?
MakeJoyfulNoise 2 years ago
I am not aware of trileptal being a first-line medication for classic absence epilepsy. If you have concerns, they should most certainly be made known to your neurologist.
BDMKEC 2 years ago
My son has absence seizures and has great luck with Zarontin. It is the oldest seizure medicine around. He gets blood tests every 6 weeks so the neurologist can monitor the levels....it works and really no side effects
thehockeymom99 1 year ago
@thehockeymom99
thank you so much! I'll be sure to let my mom know about it. my little sister has had three seizures in the past two weeks, which is totally uncommon for her. she's got a doctor's appointment in the morning. I'll have my mom ask the doctor about it. again, thank you!
MakeJoyfulNoise 1 year ago
@MakeJoyfulNoise my daughter has these and they have her on Keppra, also, we're thinking about the ketogenic diet.
momof2brownstars 1 year ago
I am giving a talk about seizures to pediatric residents next week. Could I show them your video for teaching purposes? Thanks.
kwin79 2 years ago
my 5 year old daughter was finally diagnosed with petit mal seizures. After over a year of wondering what was wrong with her. She is on Ethosuximide now, and it seems to be helping. I have only seen her do it once in the last week.
luces7 2 years ago
nice to hear that beautiful child is doing well now.
lisanti42 2 years ago
I was born with epilepsy also. I had them all the time up until I was 19 years old. I am 34 now, & I have remained seizure free for about 16 years now. I've been told by my neurologist that it can come back at anytime, hopefully it doesn't.
August875 2 years ago
I was diagnosed with this after an abnormal EEG. But I do not agree with the diagnoses. I never blank out or have any of the side effects of this condition. Doctors are idiots. They threatened to have my drivers licence taken off me if I did not take the medication. I refused to take the medication because I DO NOT HAVE EPILEPSY
ByeByeBelly 2 years ago
I noticed that they just talk about kids having them, I'm 26 years old & it happen to me exactly how it happening to the girl in the video, I don't shake, I don't do anything to noticeable, people don't notice that I'm having an episode until I tell my self with a hand signal, please wait, and then I have to ask "what are we talking about?, can you repeat the question?" I work in front a computer all day, and sometimes I forget where the key "Q" is, even though I know the keyboard by memory.
ZeroKool2983 2 years ago
The estrange thing with me is that I don't recall having them when I was that young, I remember they start when I was about 13 or 15 years old, I never had one while I was at school, I didn't tell my parents it was just for few seconds (deja vu, and sensations that I didn't know to describe), they went away for many years, I came to US on 2005 free of free of episodes until last year they star coming back, stronger or more often and is happening while I'm talking with my coworkers.
ZeroKool2983 2 years ago
They sound more like complex partial seizures, rather than absence seizures.
livadia 2 years ago
Sorry, but I read about the complex partial seizures and the description is not the same as what I feel, I do not do faces or things like they describe on this kind of seizures, and I can have one and I know that I'm having it and after I know what it happened, I can talk at the moment it's happening the only thing is that is a little confuse. I'm going to try to make a video at the moment is happening to see how it looks.
ZeroKool2983 2 years ago
If you know that you are having it, and your awareness is still retained (i.e., you can talk), then it's possible that they are simple-partial seizures. Absence seizures are generalised seizures, that is, the abnormal electrical activity spreads across the whole brain, and awareness is lost. Most people have no warning of an impending absence seizure, and have no memory of the event afterwards.
livadia 2 years ago
i had to have surgery one time and after the surgery started having absence seizures and would get a swooshing sound and flash of light with it. usually happened while sitting still or in the bathroom. i take a low dose of ativan for it now and don't have them anymore TG! i hope that girl is doing better.
morpheus1x 2 years ago
Downhill man---that happens to me too when I am in the bathroom...
Is she better now? I've been having seizures like that for seven years and few grand mals but still haven't found a useful medication
Apostolicgrl04 2 years ago
Yes, she is doing well now. Thank you for asking. She is currently taking low doses of both ethosuximide and depakote. This video was taken almost 2 years ago, before diagnosis & medication.
My advice to you would be to see a neurologist, then don't be afraid to go for a second opinion. Good luck & best wishes.
BDMKEC 2 years ago
@BDMKEC this happened a lot to me when i was younger but after i was diagnosed with epilepsy and received medication for it never happened again
roseandstem 2 years ago
@BDMKEC is she doing well on depakote? i have depression and got depakote because of a secondary effect of sertraline.. and it made my depression come back strong after almost 2 months of being ok. it went away a week after i left the pill. be careful <3
CreatureofMasquerade 1 year ago
she's a beaitiful girl.
LJB85 2 years ago 14
a mi pasa con pensamientos, me voy a otra dimension...que tengo?
cjvchile23 2 years ago
i have seisures sometimes when i wake up to go to go to the bathroom late at night i dont rely remember i have to refer to what my parents tell me :(
TheDownhillman 2 years ago
my cousin has absence seizures i would talk to her and all the sudden it just happen
FFlover14 2 years ago
My daughter, almost 5 has Grand Mal/tonic clonic seizures; as well as absence seizures quite often. I sympathize with you on what is happening. I pray that a cure if found for all children/adults diagnosed with Epilepsy so they can go into life without fear of seizures or setbacks. My prayers are with your family.
TrishL0817 2 years ago
Yo tambien padeci de este tipo de epilepsia. Gracias a quien este arriba, a un buen neurologo, a la atencion de mis padres y fuerza de voluntad, hoy no tengo ni rastros de estas secuelas.
El ultimo "Vuelo" lo tuve a los 15 años... Hoy tengo 26. Te deseo lo mejor!
feetforeveryone 2 years ago
I wish my parents would have caught this on me when I was a child. I'm 19 years old and in June 2009 I had a seizure much worse than these kind I have had all my life. I had a grand mal. And until then I didn't know I was epileptic. I even had one of these at the hospital and without knowing it tore out my IV. It drove me crazy my whole life wondering what they were cause I knew when I had them, well somewhat cause you don't remember all. I asked people an no one knew, now I am happy to know.
lmfishe 2 years ago
thank you for sharing , this is very helpful for young doctors and medical students ,,
she is very pretty god bless her
i wish you guys happy new year
Darote 2 years ago 3
How did you know to take her to a doctor? I would never have guessed absence seizures if I had a child like that. Of course, I'm fifteen doing a report so I don't have children yet but still...my parents say that I used to do that a lot and still do.
1cjl2 2 years ago
The short story is that we took her to a doctor because the episodes were increasing in frequency and there were pronounced start and stops to them...therefore we suspected it was something more than daydreaming. Good luck with your report.
BDMKEC 2 years ago
Oh. That seems to make sense...but still, it look so much like daydreaming. I do that, and I never noticed, is it possible that I have these? Thanks, we're almost done.
1cjl2 2 years ago
Do they happen this often every day? How hard for you and her. I hope it's something you grow out of.
cate2728 2 years ago
OMG this is excatly what my 5 yr old son is doing i started noticeing it about 2 mths ago and then it started happening everyday several times aday. I took him to the doctor todaylookthis is what they said he has so i wanted to look in to it. Thank You for posting this video.
1whiterhino4u 2 years ago
OMG. This is exactly what my daughter does every day. Her preschool teacher expressed some concern about the behavior about 1 year ago, but we had no idea what was wrong. I took her to see her pediatrician and she said she was a normal child daydreaming. This happens to her every day several times a day and I couldn't think of what it could be since the doctor said she was fine. I am definitely going to make another appointment to have her checked out. Thank you for posting this.
luces7 2 years ago
What brought this to your attention? I never would have picked up on it if she were mine. It just looks like she's thinking to herself for a moment.
pellykate 2 years ago
Yes, and that's exactly what we thought for the first few months. Basically the episodes increased in frequency; she would stop mid-sentence; and would lose her place or train of thought in activities. It became clear at that point this was more than daydreaming. Diagnosis was confirmed via neurologist and EEG.
BDMKEC 2 years ago
I'm 33 years old and I from Portugal. I've epilepsy, complex parcial seizures.
Only people prepare can identify epilepsy through this kind of seizures. My mother and some others relatives can recognize.
However the maiority of people can't.
In my opinion is an advantage because there still are preconception about this deases. In my work, or school nobody knows that I have epilepsy.
The complex parcial seizures are unknowable, so most people do not associeted them to epilepsy.
osvideosdojoao 2 years ago
My son was diagnosticated two years ago, since the first day he took medicine he has not presented the seizures thanks God, Dr says he must be in treatment at least 4 years..your girl will be fine, she is on time ..God bless you
MultiLiliana2009 2 years ago
Hope she's doing fine. She's doing a good job reading! Seems very bright.
icaleod 2 years ago
Precious little girl...(Not to sound insensitive). My mom had a dog that ahd petit mals...it was as if she was walking in slow motion..I wk with a child like this...
URAcreep1 2 years ago
Poor thing! I was diagnosed with epilepsy at 21, 10 years after I started passing out. My mom always said I was a space cadet. I really wish someone had noticed me doing this, I would have been diagnosed much sooner. I'm now 31, I know I lose time now and then but at least I know why. Best of luck with her!
beckyperigo 2 years ago
thank you so much for posting. had to watch it twice to pick up the absence attacks bec