I have been living with Cystic Hygrma for 37 years. I have a typical life with healthy children, marriage, friends and career. Last year I started support groups on Myspace and Facebooke. We are 158 and 325 strong! For links to my support groups click on my highlighted name and go to my profile.
i wish there was more videos like this, my neice is 9 months old now and has this condition.its so difficult to watch her in and out of hospital all the time.she has had 5 ops already.she also has them on her tounge which is going to be a major problem.she has a tracheostomy in her neck for breathing and we have never heard her cry as the tracheostomy rests on her voice box.thanks for this video.
Neat! I'm sure you posted this on YT for some nobler purpose than to interest layfolk like me, but I enjoyed it nonetheless.
I just had a lymphangioma removed from my neck (for the second time). I keep reading that they're congenital, but mine didn't show up until I was 22. Thanks for sharing this video.
Thanks for putting that video up, I have one of those in my neck, I don't know much about it apart from my surgeon thinks it's a bit too risky to try and remove unless it becomes very large, it's good to learn more about it so thanks :)
i have a lymphangioma tumor too
i am so glad i didn't get it on my neck tho :O
HannahS8775 2 years ago
I have been living with Cystic Hygrma for 37 years. I have a typical life with healthy children, marriage, friends and career. Last year I started support groups on Myspace and Facebooke. We are 158 and 325 strong! For links to my support groups click on my highlighted name and go to my profile.
CysticHygroma 3 years ago
you ROCK, CH!
WashingtonDeceit 3 years ago
i had cystic hygroma when i was 6 years old.. it was at a weird place. at the back of my ear. however i have been free from it for 10 years..
thank god
peanutbutterpig 3 years ago
i wish there was more videos like this, my neice is 9 months old now and has this condition.its so difficult to watch her in and out of hospital all the time.she has had 5 ops already.she also has them on her tounge which is going to be a major problem.she has a tracheostomy in her neck for breathing and we have never heard her cry as the tracheostomy rests on her voice box.thanks for this video.
brianyjan 4 years ago
Neat! I'm sure you posted this on YT for some nobler purpose than to interest layfolk like me, but I enjoyed it nonetheless.
I just had a lymphangioma removed from my neck (for the second time). I keep reading that they're congenital, but mine didn't show up until I was 22. Thanks for sharing this video.
Prepoceros 4 years ago
Thanks for putting that video up, I have one of those in my neck, I don't know much about it apart from my surgeon thinks it's a bit too risky to try and remove unless it becomes very large, it's good to learn more about it so thanks :)
greenfoam 4 years ago