aw this is so sweet. my little brother has angelman syndrome. he was officially disgnosed when he was 2. thanks for uploading this video. it's so beautiful and you have such a gorgeous son.
I'm a FAST member, and I think Foundation for Angelman Syndrome Therapeutics-What is AS-Facts is something every parent of a newly diagnosed child should read to gain understanding of this condition. Only 1 in 10,000 to 12,000 will be born with AS. The statistics are so imprecise because many are not recognised.
he is very precious. i could not imagine having to go through the surgery yall had to go through with him. my daughter is 6 and she has angelman as well. we didnt find out till a year ago.
@amanacanandaplan she is doing pretty good. not talking or walking yet but the goal is that she walks on her own and can say a few words. i try to keep my hopes up about it when i see that other kids can do it.
the funny thing is, that I also take valproic acid and topiramax; I have been put in Special Ed classes and I still, to this day, have trouble with left-right distinction, spelling, telling time, and with conversational skills. But do you know what else... I also have a high IQ, have been reading medical books since I was a kid and have also been labled gifted...my point is that doctors cannot tell you the future; your kids-all kids- are loved by God and He and parents know best ! Bless you...
Hi there! Just stumbled on this. My son Mason, is also an deletion positive angel and had a chiari malformation repair when he was ten months old. Some of your pictures of your son are almost identical to ours! They look SOO much alike! We were diagnosed with the chiari first and then angelmans right after, as well.
@robnad1 Colton is now four. He started walking around Jan. 2010. He is doing quite well.
He started to have seizures this summer. That was a bit scarry. How old is your son now? How do you feel the chiari surgery went? Thanks for the post!
@amanacanandaplan My son is 6 now. He started walking when he was 3 1/2 and started having seizures when he was 2 1/2. The seizure activity is hellish to say the least. His neurologist has diagnosed him with Lennox Gasteau ( a severe form of epilepsy ). Mason has 4 different types of seizures, but his seizure of choice is the drop seizure. He's broken his nose from these and done some major bruising damage. He takes his meds 3 X a day and is on valproic acid and topiramax.
@amanacanandaplan As for the chiari, we had an amazing surgeon, and he barely has any scarring. The surgery seemed to be successful because we haven't seen any signs that it has come back. He had a doc band put on right after as well to help with reshaping his little head.
so many of your pictures are just like the ones of my daughter shelby . The first song you choose is the one i also choose for her video that I am making for her sixteenth birthday it's perfect. God Bless u on you journey for it is long and hard as u must already know.
My angel Aiden is the same age as Colton and I love Love love this movie, a few times I actually thought some of the pics were Aiden.... Lol they are so similar- blond/blue :)
Thank you for sharing Colton's journey with all of us. While undoubtabley challenging, it is heartwarming to see your beautiful family and hear the love of his father's voice towards this beautiful child of God. May you all continue to be blessed. I would encourage each person who watches this video to skip a lunch or some unnecessary purchase and donate a small amount towards the Walk-A-Thon. The small gift of many will create a large difference for a few.
Angelman Syndrome is 1 of there disabilities out there & 2nd disability what out there is my disability called Hemiplegia Cerebral Palsy. I am 17 yrs old girl.
God bless this child! And I know that he's here to make some of us a better person. All the best to his parents and well wishers. ! And stay positive!.
If you could only see what it is like when I come home from work. It would make your day as it does mine. Nowhere else in the world makes me feel like I feel when I come home. It truely is a blessing.
Angleman Syndrome is connected to the 15th chromosome. In Colton's case, part of the maternal chromosome is missing. When we were looking into what Colton might be dealing with, the question of cerebral palsy came up to be negative.
firstly my child is just in the middle of being diagnosed with syndrome i was trying to familarise my self with this i would like to ask why your child had a operation on his neck as my child clearly has a problem with her neck and secondly i would also like to refere to a comment saying by gemzenith that has clearly worried me is there a life expentancy for angel man syndrome as i have to wait another month before seeing our consultant shariann
Sorry it has taken so long to respond. Please let me know how your child is doing.
Colton is expected to live a full life. He will always be develpmentally delayed. Some project that he'll have a two plus year mentality in his lifetime, but it is too early to tell.
Colton was first diagnosed with Chiari One Malformation. That was what the neck surgery was all about. It had nothing to do with the Angelman Syndrome. We didn't find out until later that he had that.
What I see is how much a familiy's love can climb any mountain! You all are an inspiration for me. My daughter hasn't a diagnosis yet but they think its AS. I love the songs!
Let us know how the diagnosis goes for your daughter. After a year or so of wondering what was going on, it was nice to have a name attatched to Colton's behavior.
We sure do love him and he adds a lot to our family. We have learned so much from him.
I have a friend who's grandson has Angelmans syndrome.I want to learn more to understand.His health is failing and it is touch and go now.Hes about thirteen now and has lived longer than expected.
What a gorgeous Angel! Im a mum of a 1yo Angel In Australia, Im inspired by your video. I love the infectious smile our kids have. Well done, please message me if you want to chat. PS. what are those songs - they are great??!!!
Thanks for the comment. I did watch the video of your Angel. What a darling little girl.
Our Angel is the youngest of six children. He is keeping us on our toes. We sure do love him.
The songs being played are:
"Angels Among Us" Alabama
"You're My Angel" Brooks and Dunn
Since making this video, we found out that our six year old has Type One Diabetes. So that is our newest drama in the house. We will be reading a lot about diabetes just like we did with Angelman Syndrome.
well if you have nay questions my mother in law is type one and i am type 2 i will help answer anything for you. i am curious though what is angel man syndrome and what it does or dosnt do.
My son has Angelman Syndrome. He will be turning 5 soon and he is just learning to sit on his own. Colton is amazing, and thank you for sharing him.
WhyIsACrow 1 month ago
Aw what cut little boy you there and know whole family love him and he is your little angel
sweetkittens 4 months ago
aw this is so sweet. my little brother has angelman syndrome. he was officially disgnosed when he was 2. thanks for uploading this video. it's so beautiful and you have such a gorgeous son.
UTubesLOL 7 months ago
This has been flagged as spam show
I hope he dies.
41354N4 9 months ago
Thank you so much for this wonderful video...~
a soft kiss as a flute´s note in the air between the sky and the earth...
Deborah Reis
A Flauta da Lua...
aflautadalua 10 months ago
I'm a FAST member, and I think Foundation for Angelman Syndrome Therapeutics-What is AS-Facts is something every parent of a newly diagnosed child should read to gain understanding of this condition. Only 1 in 10,000 to 12,000 will be born with AS. The statistics are so imprecise because many are not recognised.
colinchick69 10 months ago
he is very precious. i could not imagine having to go through the surgery yall had to go through with him. my daughter is 6 and she has angelman as well. we didnt find out till a year ago.
mandicurry23 1 year ago
@mandicurry23
Let us know how your daughter is doing. We'd also like to know some goals that you were able to set during kindergarden and first grade.
amanacanandaplan 1 year ago
@amanacanandaplan she is doing pretty good. not talking or walking yet but the goal is that she walks on her own and can say a few words. i try to keep my hopes up about it when i see that other kids can do it.
mandicurry23 11 months ago
i got chills up my spine at 2:30
TheDonutTheif 1 year ago
@TheDonutTheif
Yeah, I get that a lot. Thanks for the comments.
amanacanandaplan 1 year ago
He is so precious! May God richly bless this lil angel and his family.
bubbiz99 1 year ago
@bubbiz99
Thanks! We sure love this angel and the rest of his brothers and sisters. We truely are blessed.
amanacanandaplan 1 year ago
the funny thing is, that I also take valproic acid and topiramax; I have been put in Special Ed classes and I still, to this day, have trouble with left-right distinction, spelling, telling time, and with conversational skills. But do you know what else... I also have a high IQ, have been reading medical books since I was a kid and have also been labled gifted...my point is that doctors cannot tell you the future; your kids-all kids- are loved by God and He and parents know best ! Bless you...
TheGuineagirl101 1 year ago
Ohhh those BLUE EYES. <3
SamanthaMarkss 1 year ago
Hi there! Just stumbled on this. My son Mason, is also an deletion positive angel and had a chiari malformation repair when he was ten months old. Some of your pictures of your son are almost identical to ours! They look SOO much alike! We were diagnosed with the chiari first and then angelmans right after, as well.
robnad1 1 year ago
@robnad1 Colton is now four. He started walking around Jan. 2010. He is doing quite well.
He started to have seizures this summer. That was a bit scarry. How old is your son now? How do you feel the chiari surgery went? Thanks for the post!
amanacanandaplan 1 year ago
@amanacanandaplan My son is 6 now. He started walking when he was 3 1/2 and started having seizures when he was 2 1/2. The seizure activity is hellish to say the least. His neurologist has diagnosed him with Lennox Gasteau ( a severe form of epilepsy ). Mason has 4 different types of seizures, but his seizure of choice is the drop seizure. He's broken his nose from these and done some major bruising damage. He takes his meds 3 X a day and is on valproic acid and topiramax.
robnad1 1 year ago
@amanacanandaplan As for the chiari, we had an amazing surgeon, and he barely has any scarring. The surgery seemed to be successful because we haven't seen any signs that it has come back. He had a doc band put on right after as well to help with reshaping his little head.
How is Colton coping with the seizures?
robnad1 1 year ago
so many of your pictures are just like the ones of my daughter shelby . The first song you choose is the one i also choose for her video that I am making for her sixteenth birthday it's perfect. God Bless u on you journey for it is long and hard as u must already know.
nikkimikk67 1 year ago
What a happy beautiful blessing you have!
angelmanmom8 1 year ago
Such a wonderful and courageous little boy; thanks a lot for sharing this.
jessikanne 1 year ago
what is angelman syndrome dude?¿
nanamimily 1 year ago
that babies cookie monster outfit was so cute :)
Princess100112 1 year ago
This has been flagged as spam show
I just learned of this syndrome, May God Bless you all, all the days of your lives, he is truely a beautiful gift from Heaven...............
tobimissipatch 1 year ago
I just learned of this syndrome, May God Bless you all, all the days of your lives, he is truely a beautiful gift from Heaven...............
tobimissipatch 1 year ago
My angel Aiden is the same age as Colton and I love Love love this movie, a few times I actually thought some of the pics were Aiden.... Lol they are so similar- blond/blue :)
wyndimere 1 year ago
Thank you for sharing Colton's journey with all of us. While undoubtabley challenging, it is heartwarming to see your beautiful family and hear the love of his father's voice towards this beautiful child of God. May you all continue to be blessed. I would encourage each person who watches this video to skip a lunch or some unnecessary purchase and donate a small amount towards the Walk-A-Thon. The small gift of many will create a large difference for a few.
thebeej04 1 year ago
hahaha purple mouth =) so cute!! it's wonderful to see that the parent's are also involved and doing a WONDERFL job!!
briannagarrard 1 year ago
Angelman Syndrome is 1 of there disabilities out there & 2nd disability what out there is my disability called Hemiplegia Cerebral Palsy. I am 17 yrs old girl.
birds16ful 1 year ago
Please consider donating to this years walk a thon!
Thanks!
amanacanandaplan 1 year ago
Hes beautiful.
XXtokieXX 1 year ago
Aw bless him hes gorjuz whar are the symtoms of angelmas syndrome? Do they all have blonde hair and blues with a big smile?
imo07 2 years ago
I wish, some day, I have a family as happy and special as yours!
Merry Christmas!!!!!!
Laís
laisrusso 2 years ago 2
Colton is your special blessing.
birds16ful 2 years ago
God bless this child! And I know that he's here to make some of us a better person. All the best to his parents and well wishers. ! And stay positive!.
sundeep4965 2 years ago
Thanks sundeep4965. Colton sure has added to what we feel is a wonderful family.
amanacanandaplan 2 years ago
Colton is a very very special boy!!!
His smile tell us a lot of good things!!
laisrusso 2 years ago
If you could only see what it is like when I come home from work. It would make your day as it does mine. Nowhere else in the world makes me feel like I feel when I come home. It truely is a blessing.
amanacanandaplan 2 years ago
blond and blue eyed
JanetCrammit 2 years ago
and a wonderful smile on top of all that
amanacanandaplan 2 years ago
The crazy thing is you have all of us, millions of people, backing you up, and loving you. Its gonna be better than "OK"
odinata 2 years ago
We sure have felt that. Thanks!
amanacanandaplan 2 years ago
Is Angelman Syndrome just like Cerebral Palsy or Rett Syndrome? I am 16 years old & I have hemipelgia right cerebral palsy girl.
birds16ful 2 years ago
Angleman Syndrome is connected to the 15th chromosome. In Colton's case, part of the maternal chromosome is missing. When we were looking into what Colton might be dealing with, the question of cerebral palsy came up to be negative.
Good to meet you.
amanacanandaplan 2 years ago
God Bless your child!!!!!!!!!!!!!!
1021bubbles 2 years ago
He sure did!
amanacanandaplan 2 years ago
wat a cute little boy you have
typical angel he is with his blonde hair bright blue eyes and a smile that makes even the worst day seem better
my sister has angelman syndrome so i know wat joy these angels can bring to a family
zachariahsoccer 2 years ago 5
We sure have learned that in the past two years! Thanks for the comments.
amanacanandaplan 2 years ago
Moving. Thanks. Juan.
juanQ7 2 years ago
Thanks Juan
amanacanandaplan 2 years ago
firstly my child is just in the middle of being diagnosed with syndrome i was trying to familarise my self with this i would like to ask why your child had a operation on his neck as my child clearly has a problem with her neck and secondly i would also like to refere to a comment saying by gemzenith that has clearly worried me is there a life expentancy for angel man syndrome as i have to wait another month before seeing our consultant shariann
shariannjohn 2 years ago
Sorry it has taken so long to respond. Please let me know how your child is doing.
Colton is expected to live a full life. He will always be develpmentally delayed. Some project that he'll have a two plus year mentality in his lifetime, but it is too early to tell.
Colton was first diagnosed with Chiari One Malformation. That was what the neck surgery was all about. It had nothing to do with the Angelman Syndrome. We didn't find out until later that he had that.
amanacanandaplan 2 years ago
What I see is how much a familiy's love can climb any mountain! You all are an inspiration for me. My daughter hasn't a diagnosis yet but they think its AS. I love the songs!
sabree73 2 years ago
Let us know how the diagnosis goes for your daughter. After a year or so of wondering what was going on, it was nice to have a name attatched to Colton's behavior.
We sure do love him and he adds a lot to our family. We have learned so much from him.
amanacanandaplan 2 years ago
I have a friend who's grandson has Angelmans syndrome.I want to learn more to understand.His health is failing and it is touch and go now.Hes about thirteen now and has lived longer than expected.
gemzenith 2 years ago
Comment removed
grakowsky 2 years ago
lindo,lindo lindo é tudo que posso dizer.
pedrodarp 3 years ago
What a gorgeous Angel! Im a mum of a 1yo Angel In Australia, Im inspired by your video. I love the infectious smile our kids have. Well done, please message me if you want to chat. PS. what are those songs - they are great??!!!
CrossynMeags 3 years ago
Thanks for the comment. I did watch the video of your Angel. What a darling little girl.
Our Angel is the youngest of six children. He is keeping us on our toes. We sure do love him.
The songs being played are:
"Angels Among Us" Alabama
"You're My Angel" Brooks and Dunn
Since making this video, we found out that our six year old has Type One Diabetes. So that is our newest drama in the house. We will be reading a lot about diabetes just like we did with Angelman Syndrome.
amanacanandaplan 3 years ago
well if you have nay questions my mother in law is type one and i am type 2 i will help answer anything for you. i am curious though what is angel man syndrome and what it does or dosnt do.
mysubsbang 2 years ago