Paige - Infantile Spasms also known as West Syndrome

[carrieisreborn]

Our nephew Dallas had the same thing at about a year old; spasms and West Syndrome. He just turned 16 years old 3 days ago. I invite you to check out a song I wrote for him when he was diagnosed. I hope it brings you some hope and smiles. Just search Earl318 and find "dallas' song". Praying for your family as we know what it's like to be in your shoes.

[Shaeree624]

im sorry to hear about your little girl. Paige is doing great. She originally started on the Vigabatrin but it stopped working a month later. In November 2010 we were readmitted into the peds unit and they started her on the full ACTH treatment. As of November 13th, 2011 Paige has been seizure free for a year. :D she is growing fast and learning more and more things as the days go by. She is a little bit behind in a few things but they are small things. 

[jyotsanasharmauae]

how is the little one now? what treatment did u give? pls . tell. my 8 months old daughter is having the same. her EEG shows hypsarrythmia. waiting for the MRI.