Fibromyalgia...go ahead bring on the rain!

[spookylocopv]

Im on Lyrica 3 times a day & Cymbalta + Abilify... fibromyalgia kicks my ass at times

[netfullofshells]

The 3 people that have the nerve to dislike a video meant to give love and encouragement have no soul. I am so sick of people saying fibro is not real. It must be so wonderful to denounce what is and isn't real when you are not the one who is sick.

[LANDS102800]

This is beautiful! Thank you!!!!  from an Fibro sufferer

[shellbunique]

aww such an apporiate song... thank you for your efforts t help educate and raise awareness...

[mohawkbell]

thank you I live with fibro and myfascial pain along with other things. It wont' kill us but if we have courage and knowledge we can make this life not so much hell but makes us stronger than most normal and healthy people are. I appreicate this song to go with it powerful message and song is beautiful.

[reg2450]

thanks for sharing. This thing sux hey? I don't talk about it all that much, because everyone jumps in with "yeh, I get that..." when I've only mentioned one of the dozens of symptoms - you know: twitchy legs; sore dry eyes; exhaustion just from waking up; needing the bathroom RIGHT NOW; nausea; having to hold my legs and arms all the time; sleeplessness; pain, pain, and more pain....

No baby, nobody gets this unless they get this..... More power to you all. God bless x

[missbinky219]

thank you so much for the video, it brought tears to my eyes this morning.This illness is so terrible and it's hard being as young as i am with it. But i know God can and will.. 

[natureasintended]

Check out BoutenkoFilms on youtube. There is a video there called Green Smoothies Reverse Fibromyalgia Symptoms In 4 Days, and another video called Green Smoothies Reverse Lupus Symptoms. Sending lots of love and best wishes and hope this helps! <3

[JelliclesForever]

It's cold and raining here...I just want to do nothing but I am the kind of person that always has to do something! I think I'm going to try to work on my cross stitch that's taking me so long since the cold weather's come. This illness is so terrible!

[1life2live4eternity]

I've had fibro for over 6 years and I speak the language of those who also suffer it.. it's called fibrofog. (jk) Actually, that was a lil funny to make you smile. However, I do want to say that it helps to accept this illness, rather then try and deny it as if it's not there. (as a sufferer) allow yourself to cry. Allow yourself your privacy. Accept that people won't understand you. Accept that life for you has changed, it's time to rearrange. U will b o.k.

[cottoncandypoms]

This is caused by inflamation . Sugar and vaccines are are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes will bring alot of help.. Study the healing testimonies on awmi dot net (put it together)

[cottoncandypoms]

This is caused by inflamation . Sugar and the are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes will bring alot of help.. Study the healing testimonies on awmi dot net (put it together)

[MyLPhillips]

so beautiful...and educational...from a FM sista ~soft hugs~

[bordsyko]

Thanks for helping spread awareness! Soft hugs!

[63blueyegirl]

Hang in there my fibro. friends...GOD is with us.

Gentle Hugs , my friends.

(Remember GOD can only give us the amount of pain we can handle, guess we can handle ALOT.

Please remember you are NOT alone !!!

[leahcrow1]

love the video

[energyila]

GREAT video! It is nice to know I am not alon ein this pain, exhaustion, restless legs, frequent urination, electrical shocks....I am just MAD AS HELL at the certain woman here who is posting on EVERY Fibro video that she has a cure and can cure us. Do not prey on anymore fibro sufferes so you can make a buck!!

Thanks for this lovely video junebugh8fms

[Iskramh]

@energyila may be she just try to help, don't be mad at her. i also suffered fm but i found a way to cure myself. so a cure exists. thanks for the video, its lovely. and awareness is important, hugs

[ysabellabravetalk]

sometimes this feels like a death sentence.

[pentiuman]

I'm male and have FMS for last 25+ years. Diagnosed in about '95 before many knew what it was - before it was accepted as a "legitimate", actual disease by the AMA, SSA, or my own family doc (at the time). Glad I believed in myself, kept seeing different docs until we got the right diagnosis. It surely tests one's ability to make it through the pain, fatigue, and other terrible symptoms. Best relief for me is stress reduction, light exercise, proper diet, and no smoking. Thanks for this video!

[ValerieLumley]

FMS awareness is so vital to all the worldwide suffers! Do not give up. You can get your life back. I am a recovered fibromyalgic who has taken back my life because I did not believe what the doctors said when they said there was no cure. Keep going!!! Every bit of help is needed. Don't let failed hope discourage you!!!

Valerie Lumley, Recovered Fibromyalgic and author of

"Curing Chronic Fibromyalgia - Choosing What Works"

[kellyjustus]

The number one killer of Fibromyalgia is suicide. If doctor's could help with the pain better, the numbers would drop. It is the Lord who give me strength for another day.

[JANNBROWN1959]

I have never been an emotional person but lately, tears are just a breath away...every breath is an attempt to get to the next without caving in. How long can I go on pretending I'm as OK as I look. What about the bills that need paid, the children that need held, the unfinished hobbies and the dishes that need washed...where do the moments of energy come from that get me to tomorrow...I really need to tap those moments and put them on lock down..then I'll cry for joy. 1 tear for FMS..thanx june

[Bluequotations]

im pregnant and really suffering with my fibro at the moment, as i cant take any of pain relief.its just so hard to settle and get comfortable

[rekon209stk]

i have an aunt that was just diagnosed with this pain disorder. what can i do to help her live a "normal life". what are the odds of her recovering from it? i need help trying to understand this disorder to help my loved on.. thankyou

[lemongirlohyeah]

@rekon209stk no cure I'm afraid. she could numb the pain with drugs, or strengthen herself a bit with physio, but there is no real cure :(

just imagine how it would feel to be different- not only different but in pain, physically and emotionally.you dont HAVE to fuss her or treat her a disabled (I personally HATED this!- "I understand-" "NO YOU BLOODY DONT!!!"), but little helps, like offereing to get her a drink or walk slower, or rub her back. a shoulder to cry on helps alot too. x

[mcscott1st]

Thanks for the video. Fibro is tough - it's tougher being in the less than 10% i.e., a man with Fibro and surrounded by people that can't comprehend an "invisible disability." I'm a Fibromite since December 1991.

[xSimplyAmusedx]

Hugssss my fibro friends, you are all so special! stay strong, ha! easy said

[sickfrmtick]

Sounds like lyme disease, not Fibro which is pain, muscle joint pain, not all the other symptoms- Thisvideo describes an an infectious disease..Lyme disease and/or associated tick borne infections.

[gorchie56]

Thank you this video was beautiful and covers the Fibro dilemma. I have said, with Fibromyalgia you live in a personal hell. And many times it is invisible. Thanks so much!

[SuperScreamingEagle]

I have fibro and chronic fatigue. What we all need is care and compassion, not judgemental attitudes and mean comments. I need positive people not judgemental bastards. Sorry for the b word, Im upset right now. GBY.

[eutuve]

I am sorry for saying this..

the only music I can stand with this videos is Wagner's funeral march...

the rest is irritating..

you don't know what it is to be really sick !!

[Bluequotations]

@eutuve you have no idea, what fibromygia patients live with, why dont you go and put nasty comments elsewhere.we have no interest or time for people like you.and while your at it, go and get educated about this condition, that i and millions of others cope with every day.you are pathetic

[semrete]

better to die than live with this ****

[eutuve]

@semrete

or watching this crap videos with stupid music..

it's like going to a preacher, believing that a charlatan is going to cure you !

better to die...when I will get the balls to do it !

[ms3kitty]

Much appreciation for putting this together. I was diagnosed with Lupus about 6.5 yrs ago, then Sjogren's, RA & OA and fibro. Lifelong depression worsened. Too many meds, fibro fog. Just about have had enough. Your video gave me my gentle {{HUG}} that I needed so much. Blessings!

[brighteyez2k]

I just loved it and I love that song too I have Fibromyalgia and somedays are just hell....I am going through a flare up right now as we speak and can not get over this violent cold spell with these pains like shooting knives anyways sweety wonderful job hope ya have a wonderful and blessed day xoxo godbless,*Anne*

[coyne12543]

Great job on the video - love the song! Music helps me - alot :)

I've lived with fibro. a long time, and know others have it worse. So "bring on the rain"!

Thanks again - best wishes and "gentle hugs"

[FatMal]

There is hope

Please Google Low Dose Naltrexone

[kayaleia]

Fibromyalgia is a PAIN!!! Pain in the whole body, a pain to think straight, a pain to remember stuff, a pain to not be in pain!! So many problems and no cure!!

Only people who have the disease can understand what its like.

[mneerat]

thank you so much , for your video

[leogirl777]

Hugs and kisses,

lovely, thank you

[queenXofXglam]

I think my favorite part was "gentle hugs" I live in the south and we don't shake hands we hug, and a friend of mine gives me "gentle hugs" because one time she gave me a tight one and i almost cried. amazing vid. thanks.

[Teresa6538]

I loved the video, I thought the song was perfect for us! NON fibro ppl just don't GET IT! Imagine your worse body aches with the flu ppl. Imagine having that ALL THE TIME! Then add chronic fatigue and DAILY headaches. If I sit or lay down for just a few mins I have to work my legs b4 I can even walk. The mrng is the worst, I feel like I've been ran over by a truck! I can hardly walk from the stiffness. I over do it & it takes me 2-3 days to recover. You just can't possible know how we feel.

[happysad321]

Particularly like the fibromyalgia acronym at 26secs :) Sums up so much of what I feel, as someone with this horrible condition.

[ScruffyRanger]

God this is bad music. Surely you could have picked a better track? You trying to raise awareness here? Or repulse people?

[Praisegrrl]

This video hit the nail right on the head. Noise hurts, oh, yes, it sure does, and so does light. So does everything. Bad days my pain is 15 on a scale of one to 10! I suffer so much Fibro fog I can't get everyday words out. One second I know just what I was talking about, the next--nothing! The thoughts and the words are gone! Im dont let it get me down, and I'm not angry. I just wish that, somehow, non-Fibro people could understandbut they never really can!!!!!!

[bamababy4913]

I've been a fibro SURVIVOR for about 6 1/2 years now. Loved this video! Everyone please remember this...

I have fibromyalgia.

It does not have me.

[robinluann]

I too have suffered for years, i wont let it get me down. I try to do all the things that make me feel better. i have had some success with detoxing . I use Acidopholus and i get colonic cleanses, they really help. I rub my legs briskly as i can and put a heating pad on my feet, that helps my legs. I have a job that i cannot afford to let go. i just seem to be on auto pilot. I get so depressed at times and i suffer so much brain fog i sometimes cant get day to day words out. Noise hurts me.

[damianraver]

Now I see why people make fun of Fibromyalgia...........LOL!

[mindya12]

@damianraver You are a douchbag.

[MsAnthropy82]

ugh... it's crappy... what is going on? why do people have this so much? why do i have it? i was athletic, healthy... well, i pretty much stayed in bed for days and days and 6 years ago i just made up my mind i wouldn't let it get me down, and i got out of bed and have been attempting to deal with it since. my wrists burn and hurt right now... i'm a writer... so that's not cool...

[FrogsRFriendsNotFood]

i really love this.. i've had fybro and diabetic nueropothy for 1 1/2 years, thank you for sharing this.. it's on my fav list.

[TakodaForever]

SexiSez: It's so true!! Like - we just want to be young and free - do the things we love yet it proves to be a difficult task which it shouldn't be at all. It's heart-breaking really. Hang in there *hugs*

[TakodaForever]

I'm a new sufferer of Fibromyalgia and it's been incredibly tough! I'm 21 years old ... no one understands ... it breaks my heart. I've lost MANY friends since the beginning of all of this =(

Love, Prayers & Blessings

[SexiSez]

i feel exactly the same - im 18, and its like we are both at the best points in our life and yet we cant do anything. Ive lost so many friends as well, that almost hurts as much as the Fibro pain

all my support X

[xxbeautybabesxx]

I can totally understand this. I've had fibro since I was around 6, but it got worse during high school (ended up finding out that I have a connective tissue disease as well) and I had friends who accused me of making it up for attention or even that I was a hypochondriac! It's hard to explain your pain when so many doubt the existence of the cause :-/

[Lisspratt]

Wow, 6? I had it since I was 9. I've never known anyone who's had it as early as that. ((( gentle hugs)))

[Lisspratt]

I have it too, since I was 9 yrs old. I'm 19 now and feel incredibly old. I've gone through the same exact thing. Just hang in there. I wish we could gather all the people with FM as a community for support, also as friends. My friends dont understand what I have, they think I'm just trying to get attention. But its there. I think we FM sufferer's are stronger than those who dont have chronic pain like we do. I think that's what makes us so much more unique and special. Hang in there :)

[omtamayo]

Today was a bad day and it gave my hug it needed. Love it..

[sturgismom13]

Years of pain and no meds help....cannabis helps the depression some but nothing works on the pain...massage would be good but sometimes I cannot tolerate being touched. Where does it hurt? everywhere..

[omtamayo]

I've have FMS, CFS for 23 years..at time doctors didn't know what to do until I went to Cleveland Clinic and finally I knew what I had.. It finally has a NAME!!!!!

May 12 is Fibromyalgia Awareness Day.

[lusaroo]

thank you for sharing this gentle hugs to all fellow sufferers keep strong never give up hope

[Juanita767]

I had it since 1991--Cqr accident started it--fms-cfs-chronic pain..Huggs Allllllllllllllllllllll

Great Inspirational song..Who sings it!:-)

[xxbeautybabesxx]

JoDee Messina :)

[andy56573]

i have suffered for 5 years now and im 22 now thank you for the post its great to see people trying to raise the awareness ,great post x

[KTerra1227]

I have FMS since the age of 27.

Thank you for posting this

[loserella55]

Thanks for posting this, I suffer from this illness as well and you told it completely how it is. Five stars for you!

[alexapollo22]

There is this other guy Alex Chiu with his Immortality Rings, he treated lots of fybro myalgia cases. I had his Immortality Rings on and it certainly did help my pain a lot.

[tattoomama9]

Gentle Hugs to all of my fibro sisters and brothers out there.

Fibromyalgia survivor.

[junebugh8fms]

thank you my friend!!

[Hertsman50]

@junebugh8fms have you tried Buffered Vitamin C powder?  It really does help.

[Hertsman50]

@tattoomama9 there is no such thing as fibromyalgia, you just have a food intolerance.

[junebugh8fms]

your welcome! I just wish Fibro was a lot more well known about ya know?

[photojenni]

Thaanks for putting that out there! :-) Stay strong.