Eosinophilic Esophagitis

[tigerluver3000]

I just found that I have this yeserday. I am kind of scared. I am 15. Do you have any advice for me? I am allergic to over 30 foods and formula is a big possibility. Also, I am praying for your son! <3

[zaksoustara1cadix]

hello that video made me cry )-: i wish i could take your pain giovanni ... ur an angel god is reserving a place for u in heaven ...

[situation1fan]

Soo Sorry I PRAY FOR YOU

[tara6692]

my daughter has ee but its not a food allergy, she has a very rare immune ee, she is in so much pain, her ee is 55 high power , she is the only one in Australia with this condition, she cant eat much food as it gets stuck and is very painful for her to swallow , she has 2 tins of neocate advanced over a 16 hour period, she is on every reflux, steroid, and morphine medication for the pain, the specialists are finding it very hard to treat her, god bless your son xx

[mewzoeykiarasimba1]

i hope you find a cure! i will pray for all EE kids! may god bless you

[christiangirl878]

my 15 year old bro has this disease as well as E.G. and its just heart breaking praying for you

[COCOpebblez100]

i have this. i cry and my friends leave me out now. I hate it and i am not on a feeding tube or anything. I just want my normal life back its not fair:(

[swimchickxoxo]

aww im so sorry your son is an angel and i hope he gets better:)

[campnewman54321]

i'm so sorry you and your son have to go through this.

i am thinking of you and your family. I suffer from Crohn's Disease so this touches me deeply.

[cloTwenty3]

im not trying to be rude, but y does he only have one eye? is it part of what he has??

i hope he gets better soon :)

[69Emohazard69]

The disease has nothing to do with that. Just how he was born I guess.

[DestroyAndVoid18]

Hello! I am only 12 and I may have both EE and Dysphagia. I am going in to get put to sleep so the doctors can put a camera down my throat and see what I have. I have heartburn, acid reflux, and almost anything gets stuck in my throat. There was one point where I couldn't swallow anything. All I could eat was yogurt, but that still got stuck in my throat. This gets better and worse for me, but I wish your son the best of luck!

[italianking212]

I'm so sorry to hear that!! My son has alot of your symptoms to but he gets really bad stomach aches and cramping. Did you go for allergy testing too?? Thats very helpful. Well I wish you all the best too!! :)

[DestroyAndVoid18]

That's kinda funny you ask that, I get that done in a week or so. And thanks!

[ECProductionsTV]

Ur welcome hope your fine it turns out that my friend doesn't have EE. Go check out my Awareness video in my channel

above.

[ECProductionsTV]

ya I wish I can help to. I really want to help your son. so sorry.

I want to raise awareness. i think my friend has EE I want to be a scientist wen I'm older so I can help kid's like your son and DestroyAndAvoid. Hope yours son's alright. and best wishes to you to DistroyAndAvoid. :(

[ClubPenguinsZbzb]

@DestroyAndVoid1I hope you get better. I thought I had it bad when I got sick, but this is worse. I hope this doesn't stop you from being a kid!

[0Mellennium0]

@DestroyAndVoid18 I hope all is going well. I got diagnosed with EE 3 years ago, and was given flovent as an anti-inflammatory inhaler. After being re-scoped, the doctor said everything looked normal, but i still feel that "food getting stuck" sensation. I believe a big part of this disorder is mental, and there is a difference between food feeling that it's stuck, and actually choking. Not once in my life have I ever choked and couldn't breathe. Psychological work may help a lot! good luck

[vegeta11974]

I have EE...its been 8 long years...since i was 10...but i'm managing. no medications yet. but im fine heh. the only things i can really say, is stay strong n never give up. thats what got me through...and is getting me through.

[Mistyeyes392001]

you're son is still young...I have EE as well and its pretty easy to manage once he gets older. I take protonix once every other day (started once a day everday but I do well with once every other day) and Fluticasone once a day in alternating as follows: 1 day 1 puff, the next day 2 puffs, day after that 1 puff and so on. I started out with four puffs a day then the doctor gradually took me down. You're son will be fine although its pretty freaky when food gets stuck down ther!

[unleashdabeastXD]

im 14 and i have EE...... god bless your son. Having EE is tough, i understand.

[kingshane340]

my name is shane rider im giovannis cousin for real i love him so much hes really funny and he adores me and the rest of his family i love u gio!

[chitownbaby811]

We Luv U Gio! Your mommy makes such beautiful video's! Hope to see you some day! Stay strong for each other!

Great job Jamie!

[mophead2345]

i found that blue ribbon and will post it onto my profile. is it O.K. if i put the link on my profile for this vid?

[italianking212]

You sure can.. Thanks

[rubyrocksallthetime]

your son is an Angel, May God bless him

[italianking212]

Thank You!!!!!

[Liz2do07]

Hello i am a 14yr old who has EE in Norfolk NE USA i have delt with this disease all my life i go to a pedatric gastrentologist in omaha ne usa i know how hard it is and i would like to offer some advice i f you have to have allergy shots i would recomend this but there is a down fall though instead of throwing up you break out in hives from head to toe. anyways i take formula because i dont weigh the average amount of a teenage boy and i can only eat 8 foods i hope this helps sincerly Liz2rd07

[jchamberlain06]

my son has previously been told he has EE and i dont have a clue about any of it, I was woundering where you got your blue ribbon at and want to say i wish no kid would have to go through this ..good luck

[NAGME]

My son has recently been diagnosed with this condition in the last few months, he is 15 yrs old. We had never here'd of eosinophilic esophagitis before now. Good Luck for the future i hope it improves for your son.

[italianking212]

I am sorry that you are dealing with the same thing. It's the hardest thing I have ever had to deal with. I have met some incredible people along this journey. I wish you and your Family the best!!!!

[Hadra568]

Is the eye issue related?

[italianking212]

No It was another Rare Disease he had too

[aronmauck]

I am a 15 year old male and I was recently diagnosed with this and had no clue it was even there. I had been very sick with intense nausea and pain in my chest/abdominal region. Had never heard of this disease before now. I am actually going to an allergist tomorrow to be tested.

Good luck to your little guy and know there are other people out there hoping for some breakthrough.

God Bless

[italianking212]

Good Luck! I wish you the best! Thanks!