I Am Dystonia

[margarethaverbraeken]

i got also distony in the worst degree. must always look out, i have not to much stress, not lightflash, drums, our unsespected touch. i missed tha tmi husband can rub mi back. but i jump to all directions. the worst is whenn the best doctor say. i can not doing any thing for you. keep strong love

[atomaugust]

My wife was one of the people in the video. She's not one that craves attention.

Without getting crude or vulgar, I would suggest that you get a clue, get a life and open your eyes.

[ResilientLilOne]

@atomaugust Atomaugust ... This video was done to raise awareness for Dystonia, EVERYBODY gave me written permission prior to the video being put here on UTube. As well, ALL involved sent me the pics they wished to use. Not knowing who your wife is, alls I can say is I hope she is doing well. Why would something like this make you "Harsh & Vulgar" & why would you want to say cruel things like "open your eyes" to anybody with a disability who's disability effects their eyes, that is so mean

[ResilientLilOne]

@atomaugust ... I do have a life, a very happy and fulling life, even with dystonia. Bringing awareness to Dystonia can only benifit all with Dystonia, be it less stares at the supermarket or the millions of dollars just given by the Federal Gov toward research and finding a cure. Is it the fear or maybe bitterness toward the fact that you see your wife suffer so from dystonia that you write such cruel things. Ease up, your wife needs your love and understanding not cruelness or fear

[trappedhere2]

This video is beautifully done . thank you so much.

[AlexMatt1987]

Thank you, they are working on my diagnosis and I am sure you can add me to the list of those who suffer dystonia. Pray that I have the courage to go on and live with this. They have been looking for my diagnosis for 10 years now.

[BestivalFan]

Lay off the booze

[miaanna1]

I know of someone that tried botox but it didn't too do much,  They only been to the neurologist once for the injections and put that whole ordeal behind them yeah what no one tells you is that there really is a cure not one that any doctor, neurologist or man could ever do I''m witness to that and have a testimony to that being diagnosis in sep.09 and cured in jan.10 proven God still work his miracles to this day. (True Story)

[kswize]

I was just diagnosed with cervical dystonia mine involves shaking of the head and turning my head sideways. I am 47 years old.. Chiropractic treatments have helped a great deal. I may start the botox injections. Has anyone tried them and have you had success with it?

[B4realalready]

If you really want viewers to take you seriously, try proofreading before posting. And for the comments about fakers, why would anyone want to fake such a devasting affliction for sympathy? I know two poeple who have dystonia. They would give anything to be free of it.

[wellnessnumberone]

Please know you are not Dystonia, you are more than that. I was diagnosed with spasmodic torticollis (no capital letters), this is not who I am, I many many more things. I am on my journey to wellness and on that journey I have found EFT, Emotional Freedom Technique. PLEASE search it on You Tube. All illness all pain is emotional stuck energy, your body CAN heal itself, PLEASE try EFT three times a day, for 21 days, what do you have to lose? Faith is a beautiful thing. Love yourself first..

[ResilientLilOne]

This video depicts the wide array of people dystonia can effect as well as the many different forms of dystonia ... I am not dystonia, dystonia is not me. Check out my video "Putting A Face On Dystonia"

[MrDylaneric]

ITT: people claiming to have dystonia for attention.

[ResilientLilOne]

ya really think people claim to have this dreaded condition just for attention .. hummm you obviously know nothing about dystonia ... my advice to you would be to get a clue !!!!

[wellnessnumberone]

Thank you

[JamesCnotactYelena]

Even after 2 surgeries i do hate my life sometimes..... i feel second sort of person :(

[kanez42]

I have cervical dystonia and it came about middle age for me. God bless all of you everywhere!!

[roydillard]

Great Video.There are alot mispelled words though.I have dystonia and I wish more people were aware of what this does to you both physically and mentally.

[nonh84]

Great video!!

Let people know about our disease, and how we suffering from it :(

I have cervical dystonia since I was 8 years, in the beginning it was very hard to walk or sleep, my parents were suffering also, they were stay with me until I could sleep, I'm really appreciate them and I hope that I can return some of what they done for me :(

I had DBS 3 years ago, I'm much better now, no movements no pain, but my neck still little pulling to left side

[JamesCnotactYelena]

have u tried DBS?

[srasrodriguez]

Thx for helping me understand...

[ninonino001]

I really have a strange kind of Dystonia that comes to me in all and every part of my body in episodes that are like seizures some in my back, some in my joints, some in my face and these episodes happen often and getting worse. I am 35 year old; I was diagnosed in Dec. of 2007 after not knowing what I had for more than 17 years of my life. This clip had brought hope to me that one day there will be a cure for Dystonia; I believe in God. God bless all and May God help us all

[8646099127]

I got facial dystonia about August of 2005. I tried a medical doc, massage therapist and a chiropractor the first six months, and no help .. I was misdiagnosed. A great neurologist viewed my MRI and perfectly diagnosed me with facial dystonia (everything he said fit as well). He prescribed lepodova (dopamine) but I refused to take it & become dependent on "bottled adrenaline". I tried acupuncture, alternate, herbs, internet-everyone said "no cure". Jesus healed me this past month. I'm THRILLED!

[laxbro4]

What do you mean Jesus healed you. Please tell me more!

[ApheZ18]

@laxbro4 U rly believe jesus heals? Even the best doctors cant heal some things, accept it. Good video, inspired me.

[luvslulu]

What a fabulous video you have done here, LiL'One! Lets keep Dystonia at the top of the list of finding a cure..ONE DAY AT A TIME!OUTSTANDING JOB!!!

[drmseer]

God Bless us all...Let's make Dystonia known to the public and physicians alike!