I STRONGLY recommend having her apply for Social Security Disability. It will give her health care and some income. What stage is she? If she is 4th state she should be able to get SSDI with minimal problems. 4th state comes with problems like internal bleeding and fatigue, so there is no reason why she should be refused. It will really help you to have Medicaid for her. Good luck! <3
My wife was recently diagnosed with PBC. We are COMPLETELY self-pay,no insurance whatsoever(alot of issues).I truly fear that shortly we will have to give her only "comfort care" until she passes. There are SO MANY secondary diseases and problems that even Donald Trump wouldn't be able to afford everything that we have to treat her for, and those are only Band-Aids.It just keeps on coming. God bless you.
Im 34 and HAD PBC. I found out I had it at stage 4 when I was about 27. I had a Liver transplant 7 months ago. I ran 2 half marathons, 3x10k runs and raised over £2000 for charity. I'm back in training for10k Manchester in May and Great North 13.1 mile September 2011. I never give up my full time job and did well in it, I went back to work 12 weeks after my transplant. PBC is rough, it's a nasty illness that literally gets under your skin, but you can certainly live a good life. Be postive.
Sorry you have to go though this at such a young age. I am 52 and was just recently (2 weeks ago) diagnosed with PBC. I haven't been staged yet but have an appointment in a few weeks. Its been very frightening for me but I'm trying to educate myself as much as I can on my illness. I have a feeling I may know more about PBC than my GI doctor. Good thoughts and health to you
Thanks for the words of support. I hope your next appointment goes well for you. It is really scary at first, but most people don't ever really run the risk of dying of PBC. Depending on your stage you can live a long life with a few annoying symptoms. The disease usually progresses slowly and is maintained by Ursodiol and other medications.
Brave girl. We're rooting for you.
WritaholicDK 4 months ago
I STRONGLY recommend having her apply for Social Security Disability. It will give her health care and some income. What stage is she? If she is 4th state she should be able to get SSDI with minimal problems. 4th state comes with problems like internal bleeding and fatigue, so there is no reason why she should be refused. It will really help you to have Medicaid for her. Good luck! <3
Saiyukifg 11 months ago
My wife was recently diagnosed with PBC. We are COMPLETELY self-pay,no insurance whatsoever(alot of issues).I truly fear that shortly we will have to give her only "comfort care" until she passes. There are SO MANY secondary diseases and problems that even Donald Trump wouldn't be able to afford everything that we have to treat her for, and those are only Band-Aids.It just keeps on coming. God bless you.
ThePresticle1 11 months ago
Im 34 and HAD PBC. I found out I had it at stage 4 when I was about 27. I had a Liver transplant 7 months ago. I ran 2 half marathons, 3x10k runs and raised over £2000 for charity. I'm back in training for10k Manchester in May and Great North 13.1 mile September 2011. I never give up my full time job and did well in it, I went back to work 12 weeks after my transplant. PBC is rough, it's a nasty illness that literally gets under your skin, but you can certainly live a good life. Be postive.
clarecanrun 1 year ago
Sorry you have to go though this at such a young age. I am 52 and was just recently (2 weeks ago) diagnosed with PBC. I haven't been staged yet but have an appointment in a few weeks. Its been very frightening for me but I'm trying to educate myself as much as I can on my illness. I have a feeling I may know more about PBC than my GI doctor. Good thoughts and health to you
fishermanswife1957 1 year ago
@fishermanswife1957
Thanks for the words of support. I hope your next appointment goes well for you. It is really scary at first, but most people don't ever really run the risk of dying of PBC. Depending on your stage you can live a long life with a few annoying symptoms. The disease usually progresses slowly and is maintained by Ursodiol and other medications.
Saiyukifg 1 year ago