The real truth of my ME: LYME disease

[neil1758]

hi there, i have has cfs/fibro symptoms for six months i would like to get tested for lymes to rule it out, i was wondering if you could list the symptoms you had to me? i exprience extreme fatigue even a 15 minute walk on some days is too much.

[cronelesbo]

I'm in the U.S. and I forget, what does

ME stand for?

Can you tell me what your treatment is/was?

I am happy you are doing so much better!

[BuggedbyMPD]

Can you tell what kind of treatment you are taking to get better?

[101oddball]

what i cant hear whats shes saying

[ecftube]

Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience in Lyme disease. WE ARE ALL IN THIS TOGETHER !

God Bless,

Elaine

[Bluebottle83]

Wow, what good news that you are recovering. I have been housebound with ME & fibro for 20 years - & have just been diagnosed (privately) with borrelia too.Good luck with your treatment, I wish the NHS would recognise chronic Lyme.

[ecftube]

Hi there,

I have a Lyme brochure that was written with the help of 2 Lyme specialists. Great information and contact numbers. Will email to anyone.

Elaine in VA

[LymeAwareness]

I think I'm in the same boat as you. I was originally diagnosed with CFS, but I had lyme many years ago and believe that I still have it. I think that's what's screwing me up

[LymeKerry]

Can you get any of your Drs there to send your lab work to Igenex Labs in California? Look up that lab and ask your Dr there.

Multiplex PCR test will be able to pull it out of your DNA.

[devongirlme]

Hi, that's where I sent my test!

[deadgirldreaming]

Hi Jas,

I am so, so happy to see you smiling and to hear that you are feeling so much better - absolutely brilliant news!

I had a bullseye rash on my foot after being bitten by a tick but have still not been able to get tests beyond the basic ones available on the NHS - can I ask if you had to get private tests or say what tests you had done.

All good wishes,

xxx

[maximotion]

I have fibro and I'm in the UK. What kind of consultant did you see and what test confirmed Lyme? Was it all on the NHS? What was the treatment/how long did it last? Thanks.