@lawgrad06: I wept watching this video. A very difficult Journey you have walked thus far, angel. I relate to many facets of your story. I am thankful you are in skilled hands now & hope you are feeling as well as possible, sweetheart! Much love! Xoxox
@SheWhoFeels Thank you so much! I can relate to so much of your story as well. I really need to make more videos! I moved to Ohio from Boulder in 2002 to attend law school, so I am not in the Colorado anymore. I hope you have a good day. I am Jenn F. from Facebook by the way.
Thank you so much for sharing your story with us! You have been through quite a journey, but you have accomplished so much along the way! Hope your move went really well. Praying the docs can help you and figure this all out!
@RecoveringPotsy Thank you so much for your kind words! I have an update video in the works, but I have not had a chance to finish it yet. Since I made this video, Dr. Grubb and his nurse practitioner Beverly have diagnosed me with autoimmune/autonomic dysfunction. They think it's Autoimmune Autonomic Ganglionopathy, but they are getting an endocrinologist in on team. I hope you are doing okay!
@lawgrad06 I hear Dr. Grubb is a great doctor, so it sounds like you are in good hands and on the right track to figuring more out! Looking forward to an update video!
I was diagnosed with POTS in October of 2009. It's been a struggle since then..I have good days and bad days but I'm still searching for answers. I know how frustrating it can be.. I hope your move goes well though, and that you're doing good. :)
@xNikki713x Thank you so much! I will be so glad when the move is over. It means so much to find others on here who can relate. I hope you are doing okay. Take care.
@xNikki713x I also wanted to say that I know how hard the search for answers can be. I hope you have a good team of doctors who listens to you and takes your illness seriously.
You are awesome. Thank you for taking your valuable time and making this for the world to see what we go through. I pray your move goes well. I know how difficult such things can be when having to do them in conjunction with having a chronic illness.
@missnikkiann Thank you so much for your kind words! And yes, I will be so glad when the move is over! I am so glad that I am able to connect with others on here who have similar issues. I hope you are doing okay.
@potsiemommy Thank you so much! I will be very happy to have the big move over with :-) I hope you are doing okay and that your infusions are continuing to help.
@DysautonomiaMD Thank you so much! It is obviously extremely underinclusive and leaves out a lot, but I wanted to give a brief overview of my story. I would love to make actual vlogs after I move in to my new apartment in early August. I hope you are doing well. <3
OH YAY! Hey Jenn! Big hugs & tons of love! Xoxox
SheWhoFeels 3 months ago
P.S.-- Are you in Northern CO still? I'm in Boulder-ish land! If it's not too creepy sounding, I'd love to meet you sometime if so. :)
SheWhoFeels 3 months ago
@lawgrad06: I wept watching this video. A very difficult Journey you have walked thus far, angel. I relate to many facets of your story. I am thankful you are in skilled hands now & hope you are feeling as well as possible, sweetheart! Much love! Xoxox
SheWhoFeels 3 months ago
@SheWhoFeels Thank you so much! I can relate to so much of your story as well. I really need to make more videos! I moved to Ohio from Boulder in 2002 to attend law school, so I am not in the Colorado anymore. I hope you have a good day. I am Jenn F. from Facebook by the way.
lawgrad06 3 months ago
@ lawgrad06-wow-we have a lot in common. I'll try to send u a message when I'm rested. Did u move to Toledo?
Suezqpots 3 months ago
Thank you so much for sharing your story with us! You have been through quite a journey, but you have accomplished so much along the way! Hope your move went really well. Praying the docs can help you and figure this all out!
RecoveringPotsy 5 months ago
@RecoveringPotsy Thank you so much for your kind words! I have an update video in the works, but I have not had a chance to finish it yet. Since I made this video, Dr. Grubb and his nurse practitioner Beverly have diagnosed me with autoimmune/autonomic dysfunction. They think it's Autoimmune Autonomic Ganglionopathy, but they are getting an endocrinologist in on team. I hope you are doing okay!
lawgrad06 5 months ago
@lawgrad06 I hear Dr. Grubb is a great doctor, so it sounds like you are in good hands and on the right track to figuring more out! Looking forward to an update video!
RecoveringPotsy 5 months ago
I was diagnosed with POTS in October of 2009. It's been a struggle since then..I have good days and bad days but I'm still searching for answers. I know how frustrating it can be.. I hope your move goes well though, and that you're doing good. :)
xNikki713x 7 months ago
@xNikki713x Thank you so much! I will be so glad when the move is over. It means so much to find others on here who can relate. I hope you are doing okay. Take care.
lawgrad06 7 months ago
@xNikki713x I also wanted to say that I know how hard the search for answers can be. I hope you have a good team of doctors who listens to you and takes your illness seriously.
lawgrad06 7 months ago
You are awesome. Thank you for taking your valuable time and making this for the world to see what we go through. I pray your move goes well. I know how difficult such things can be when having to do them in conjunction with having a chronic illness.
missnikkiann 7 months ago
@missnikkiann Thank you so much for your kind words! And yes, I will be so glad when the move is over! I am so glad that I am able to connect with others on here who have similar issues. I hope you are doing okay.
lawgrad06 7 months ago
Nice video. Congratulations on getting such a high degree! I hope your move goes well.
potsiemommy 7 months ago
@potsiemommy Thank you so much! I will be very happy to have the big move over with :-) I hope you are doing okay and that your infusions are continuing to help.
lawgrad06 7 months ago
Wishing you the best for your move in August.....it's right around the corner! Congratulations on the new apartment! LoLv!
DysautonomiaMD 7 months ago
Love your story. Thank you so much for sharing. LoLv.
DysautonomiaMD 7 months ago
@DysautonomiaMD Thank you so much! It is obviously extremely underinclusive and leaves out a lot, but I wanted to give a brief overview of my story. I would love to make actual vlogs after I move in to my new apartment in early August. I hope you are doing well. <3
lawgrad06 7 months ago