Rett Syndrome - The View - January 28-2011

[maartjenunfokker]

my daughter had this. She died from a seizure when she was 7. The most awful thing that ever happened to me

[Gothmummi]

my sister has this. hopefully my project for awesome video, a charity awareness project on YouTube, will be about my sister and rett syndrome. its on 17th December 2011, if anyone see's this I'd love you to watch it. xXx

[cheerleaderMelanie]

Love the awareness

[munequitasyntetica]

I am thrilled they did this my daughter was diagnosed on June 30th 2011 thank you the view

[alaitain]

i did feel sad for my daughter , but then i said to my self. hey she will have a great life. because of the care she would be getting, and the love . the healthy surroundings. i didnt look for attention from others. i was a medical assistant who look and care for others also. home care provider also. im single and i didnt rely on others for support. im a strong woman. i miss my daughter. she was happy and i was happy to give her everything as a regular "normal" child.

[alaitain]

i wish i would have been contacted of children with rett syndrome. because i had one, she died at the age of 24.5 yrs old. iknow exactly how you all feel, and are going thru. keep them happy with bright colors happy sounds. speak to them in a voice and language you and only she knows and understands. i went thru a lot with my daughter.i had a really good doctor for my daughter.

she went thru a lot but she had a rich life with me and her other care provider. she is at peace now.

[suka0872]

I have a 10 yr. old step granddaugher who has Retts and I wish so much she could do all the things like other children. It's so sad to see what she goes thru. I give her mom a lot of credit for all she does for her.

[potaka79]

I'm a father who has daughter with retts.... My faith is with the doctors not god

[paulamalves]

i am so glad they talk about this syndrome. hope that parents never loose hope. beautiful baby and beautiful parents so much love this child have. and is all about love.

[Steadman93]

Im glad there raising awareness about rett syndrome. My younger sister is a 14 and has rett syndrome

[yannicrouche]

my youngest sister died of rett syndrome when she was 6 in 2000

[PuReN1NJA]

My granddaughter is 7 and has Rett Syndrome. I belong to the International Rett Syndryome Foundation. We are constantly raising awareness to anyone who will listen. The reversal in mice in the lab was accomplished in the UK in early 2007. We are looking forward to the day Alison may be cured as a result of the incredible folks doing all of the research all over the world for this devistating disorder. That which does not kill us makes us stronger.

[neenee131313]

Thank you for sharing this with us. There needs to be more awareness of Rett Syndrome, its a horrible disorder! Im a very proud mum of a child with Rett Syndrome!

[spewey111]

That made me cry, seeing little Anna so upset, but unable to express herself. I mad a donation right away.

[laineyful]

I'm a proud momma of a child with Rett Syndrome. I so happy that The View did this story! We need to continue to raise awareness and find a cure!

[bigshawn99t]

i have the utmost respect for a the parents, family and children that have to go through this you all are super strong people and im glad that in times when you need it the most you have people that are there to support all of you

[ReverseRettSyndrome]

Good job, Thanks for that.

Monica is doing great job with pushing ahead researches, too.

[muppet2121]

Wonderful story!

Thank you for giving such awesome exposure to the disorder that affects so many of families, our's included!!

[catluvrinky]

WONDERFUL! -- Rett Momma here!

[Lavinco]

Thanks for sharing your story. Are you guys aware of the clinical trial out of Boston underway right now?

[jemsmom93]

Thanks to the view and the family and Monica. They described everything so well.  My daughter is atypical Rett. But, when Stefani said CP, autism, and other stuff rolled into one little body, that's how I describe it as well. It was very enlightening and I thank them for sharing.

[DeRhea07272001]

My daughter Joycelyn has Angelman Syndrome. This was very enlighten about Rett Syndrome I've worked in hospital with other degenerative diseases and syndromes. I never thought I'd have a child with a condition, but know I now God was only preparing me, to be blessed with a beautiful angel. We can only pray that one day they'll be a cure.

[pixiegirlpiper]

My Daughter Piper has Angelman Syndrome. We follow the Rett Syndrome research progress in hopes that one day it will help cure Angelman/Pradder Willi Syndromes too.

[weloveoprah1]

So sad. My prayers are with this wonderful family.

[s1ng4m3]

Stef, Manny, Gabe, Anna... love you all. Continually praying for those affected by Rett, and for a cure.

[cowfence]

Thanks for putting the segment on YouTube---it's important for people to see this. 

[Triscuit3076]

Soo soo glad The View brought this sad disease out in the open. My cousin Maggie has this and is now 27 and it's hard to see but she's the sweetest thing. Rett is very rare but more people need to know and the parents and scientists working on this disease need help too.

[acantrell62]

thank you for posting this wonderful show about rett

[gutierrezm84]

Thank you so much for posting this. I will share with as many people as possible.