Added: 5 years ago
From: serkott
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  • I have a 6 year old boy with frgile x syndrom. People thinking he is normal, but he didn't speak, he can, but very very bad. I hope that people learn more about that...!

  • Thank you for this. This is the first video I've found on youtube that explains the symptoms of Fragile X clearly and addresses the male / female concerns as well. I encourage those of you that are concerned about your child having Fragile X to have your child SPECIFICALLY tested for Fragile X and know your child's FMR-1 repeat level. For questions, go to FRAXA.org

  • I have autism and I am a girl. I was never shy, just extremely agressive. I wanted to be alone and if people wouldn't let me be alone I would physically hurt them to make them leave me alone. I OFTEN would lay my head on tables or desks and I never put two and two together until now. I did have low muscle tone as a baby.

  • Asian beauties are waiting for you "busizz4me.info"

  • My nephew has Fragile X. If he doesn't he should. He seems to match all the criteria. The kid is so for out in left field he's not even in the ball park any more.

  • I must admit, i never knew that this can affect females as well as males. It makes perfect sense since it affects the x chromasome though. I guess it is like haemophillia, X linked which mainly affects males but can affect females. Am I right?

  • I think I have fragile x syndrome. That means, my mom and my Grandpa have it too!

  • @spikedude55 not necessarily.

    

  • im not so worried about their cognitive function ...... but i am worried about the association of fragile x with Mitral valve Prolapse; the latter making them more prone for infective endocarditis, septic emboli, or mitral insufficiency....all of which can be prevented.... talk to your cardiologist. GOD BLESS!!

  • this is a product of mass vaccinations and flouridation. it has increased so rapidly that they had to call it a "syndrome".

  • @niccarstob Fragile X is a genetic condition NOT caused by vaccines. It is present at and even before birth

  • @xmom1011x moms vaccinations affect the fetus. its 80% enviromental. note statistic. mothers prenatally consuming aspertame drinks have much higher miscarriage rates. etc. etc. we are being softkilled.

  • @niccarstob Google Fragile X syndrome. Fragile X is not autism, it is not caused by vaccines. It is handed down mutation on the X chromosome that the mother has from birth resulting in the lack of a protein that causes mental retardation and sometimes autistic like symptoms. The mother can even be tested as a carrier before the baby is conceived. It is 100% purely genetic. Seriously do your research.

  • @xmom1011x i think i can get an accurate profile here. is this right? you live in a metro area with flouridated tap water and havent missed a vaccination, either for yourself or your children. am i close?

  • @niccarstob Dude I don't even know if my kid has fragile X yet, as I haven't been tested. And we are very cautious about vaccines. Seriously do your research. It is caused by a genetic repeat on the X chromosome present at birth in the mother and passed down through 50% of the women in that particular family line. It is the most common single gene cause of mental impairment. IF you want to argue vaccines, argue them about something that hasn't been proven like autism.

  • @xmom1011x  There is no link between this disorder and vaccines. This, like all genetic issues, is present at conception (actually, BEFORE conception). Don't stop vaccinating your children, for crying out loud. Do some research and stop believing all those stupid tales!!! Vaccinations have absolutely NO ability to change a genetic profile. Come on, people!!!

  • @LindaLouwants2retire

    I am not sure if it does not lead to genetic abnormalities, that is yet to be seen, but vaccines definitely do in some way either cause autism and other disorders, or inhibit a gene that some people have that cause autism and ect. People lets face the facts. These are our children! Vaccines do keep them from getting some germs but their are worse chemicals inside the vaccines. Until there is full evidence and not by anyone pharmaceutical involved, i don't trust it!

  • @LindaLouwants2retire and there is evidence that the polio vaccine at some point contained SV-40, a Simian virus that can cause brain cancer in humans, which it did exactly. I don't know what has been going through the heads of the pharmaceutical world, but it is clear Autism isn't the only problem. Whether its population control or a mistake, idk but its evil. Plus living cells are used to make vaccines. There is no telling what other microbes can be found. this is the case with polio vaccine

  • @niccarstob FLUORIDE doesn't cause this. PEOPLE, stop believing this garbage!

  • 1 on the 6000 people has Fragile X syndrome and atleast 15 people a year get born with this syndrome.

  • My 12 yrs old friend Camryn has Fragile X Syndrome.

  • my b rother has this.

  • can females be homozygous for fragile X, or are men who have it sterile?

  • yes

  • Why does messi try to get it known? He used a t-shirt against real madrid yesterday written fragile x syndrome on it.. I heard that he used medical treatment to get taller- has that something with fragile x syndrome...

  • aww there cute <3

  • Hi, I'm a student occipational therapy, and it's really nice to see what occupational therapists can do and reach with this children.

  • well; for those that dont know, fragile x can skip many generation and one might not know that the are carrier

  • hey im doing a project about fragile X syndrome do you know where i can find some more info on the disorder cus wikipedias awfully shallow i

  • damn thats deep i feel so sorry bout this kid wish there some kind of cure 2 help him out with his disorder.

  • NIce video. I didnt know anything about fragile x. It certainly is a good one to learn about. It also seems like a very educable syndrome and one that the children can make great strides with.

  • Great educational vid. It'll help me to remember for my test.

    I pity those who talk shit but it really doesn't surprise me. The most ignorant are usually the loudest.

  • very informative. is this from a public education video?

  • 3 of my 4 kids have fragile x syndrome. you are a fucking piece of shit. my children all have genius i.q.s and are smarter at thier young age than you are you ignorant fuck. they have overcome more and are stronger than you in your prime. you are a mere dustball compared to any of these children. in the end it's okay because karma will come back to you by providing you with a disabled child. i'll meet you at that river and provide that child a beautiful loving life. fuck yourself asshole!

  • hey man good point i totally agree. wikipediafollower is an ass

  • You are a disgusting human being.

  • You DISGUST me!

  • oh man if your serious i would have to find you and put a plastic bag over your head and slowly bleed you out through your various sensitive parts but you would have to be joking, right?

  • oh really. if u did that u would miss out on a great lyf!!! my little brothers have this syndrom, & my mom and i r carriers. and if i have kids they will b twice as worse as my brothers but i wouldnt trade them 4 the world. these children r so special and very smart. u r so freaking obliviouse to how badly the comment that u made hurts ppl. i hope u do have a disabled child then ull understand how special these children r!!!!

  • Apparently you also have the condition due to atrocious use of spelling and punctuation.

  • WHATEVER!! Let me ask you this... Why where you looking up this syndrom if the only thing u where going do was talk shit????????

  • dont let me catch you doing that, cause trust me i wont hessitate to skin you alive like a fuccing animal you sick bitc#....

  • You know you're cool when right?

  • U r a dumbass. Shut up.

  • Its important to get the word out about Fragile X Syndrome, thanks.

  • Thanks for the video.

  • My little baby brother was unfortunately born with both FXS and severe Autism. He's 7 now and rarely communicates with more than two words, although he does make an effort. He's still amazingly sweet and smart.

  • Very informative, thanks so much. Those children are PRECIOUS sweethearts!

  • Fragile X is not on the ASD, it is a different condition, but shares some of the same characteristics. Also, some people with FX also have austism. How's that for confusion? It is found in 1 of 4000 boys and 1 of 6000 boys.

  • why do we even think about what people like NicholasKen say? actually these people are the one who are really abnormal and children i think who are suffering with fragile x syndrome are far more mature then skunks like nicholasken.

  • i think its a form from the ASD

  • Is Fragile X on the ASD? It sounded like it was common in the video - how is it I've never heard of it? (in the media, etc)

    Thanks for the video, knowledge is a good thing.

  • It truly is amazing how much we can do to help these children. I'm doing a research project for school on this disease and came across this video: I just wanted to say, to whoever made it, keep up the good work!

  • Same here dude. I am doing a project as well

  • yankeegurl162 is exactly right. I'm a doctor and repeatedly encounter ignorant comments from people like NicholasKen whenever researching unofficial sites regarding medical conditions. They are usually cowards in real life and prefer the anonymity of the internet to vent their frustrations. In short they have their own problems, but that's not an excuse. Keep sharing your insights! They're extremely helpful, and important to professions like my own!!

  • I don't know if others agree but it just seems to me that people with Fragile X aren't mentally retarded but just eccentric and unique in their thinking and learning (Autism,ADHD, LD).

  • @thisusernameistaken2 umm. MR is a blanket word for disabilities. dont take polictics seriously

    

  • "wat" "im" "u"

    do you mean what, I'm, and you???

    yeah you are so intelligent aren't you? Seriously, jump of a bridge or gtfo.

  • im totally with the same opinion!

  • NicholasKen, you are an asswipe.

    It sucks being you.

  • excellent video like I said above my son who's three years old has this syndrome, he hasn't spoken a word.. It warms my heart to see these stories to know that I am not alone out there.

  • Fragile X refers to an improperly formed X chromosome in case anyone was wondering with about 200 CGG repeats (CGG are nucleic acids). Thought I'd clear that up as this video isn't too informative.

  • Are you being sarcastic or are you being a douchebag?

  • you are an immature jerk. I have a three year old son who has fragile x, he hasn't spoken a word, what if it was you???? or a brother or sister? would you laugh at them, shame on you, shame on you......

  • this is in reference to NicolasKen's response.

  • How dare you say that to me, you have no idea or any clue what its like to have a child with this syndrome, I am repulsed by your response you need to grow up...he didn't ask for this God made him that way, its unfortunate you cant' see it.

    I feel bad for you.... or should I?

  • don't let this idiot get to you. His type like to go on sites like this and goad people because he has no life, and no ability to realate to the human race as a whole. My heart goes out to you dear woman. I'm looking into this syndrome, my son is 10, and he has so many problems, he is hard to diag. God bless

  • you were obiviously kept in a dark damp basement and beaten daily. You have no heart, and no soul. Your parent's if you have them, which I seriously doubt, I think you NicholasKen, came from a trash heap at the bottom of the genitic dump. If you have nothing good to say, then SHUT YOUR MOUTH!! YOUR LACK OF IQ IS SHOWING, AND YOUR IMBARRISING YOUR SELF. someone should block him, please.

  • wow. I bet NicholasKen is going strait to hell for that comment.

  • They say you should learn something new every day, but wow! I have never heard of this disorder. This is a very informative video!

  • Haha Daniel Benoit

  • ya i think i have this. i always thought i was retarded hahahahaha i guess i am woo hoo! go Calgary!

  • Thank you, my twins may have this and it is helpful for me to see other children in action to make "comparisons" of which there are many!!

  • I might have fragile x syndrome but i ned to find out what the hospital found out.

  • Tanks i gotta do a report on fragile x so tis helped a little

  • Thank you so muck! my science class has a gentic disorder poster project to do, and i just happend to get, FRAGILE X SYNDROME. and thinking. "hmm.. what would happen if i typed "Fragile X" on the search on youtube, i was expteting to get a "No result" but instead i found this! Thanks so much!

  • Excellent video.

  • very good  video thanks

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