Great videos. I don't have it but my 2 year old nephew has recently been diagnosed and, although you're concentrating on it from a female pov, it's really useful to get more information about it since no one has ever heard of it
Thank you for this!! i have hypohidrotic ectodermal dysplasia. I wasnt aware of it. i am 15 and they have just now diagnosed me with this. they always thought it was leukemia. I dont sweat either so now doctors are trying to make me quit the wrestling team... yes a female wrestler lol. I also have very short teeth roots luckily i have been gifted to keep my teeth for as long as i have. I am kinda scared of losing them but i know it is coming. :/ I have very thin hair as well
Keep up the amazingly positive attitude! Your video-blog was very inspiring...you are very articulate and intelligent and your strength of character shines right through any genetic issues you have. I actually didn't notice that you had ED when I first looked at your image. I have 2 kids (ages 17 & 15) who have ED...I just wanted to thank you for your courage to talk about everything that you've had to deal with because I know how painful others can be in such a cruel world.
@1959annieo Awe thank you so much for the encouragement! I really hope any of my up coming videos will help your kids in some way :) (Which, hopefully, I'll have a new one or two out this coming week!) Have a wonderful New Years!
Great job on the video..PS-your beautiful!!! ;)
johnfinn7 1 month ago
Great videos. I don't have it but my 2 year old nephew has recently been diagnosed and, although you're concentrating on it from a female pov, it's really useful to get more information about it since no one has ever heard of it
sarahjct 7 months ago
Thank you for this!! i have hypohidrotic ectodermal dysplasia. I wasnt aware of it. i am 15 and they have just now diagnosed me with this. they always thought it was leukemia. I dont sweat either so now doctors are trying to make me quit the wrestling team... yes a female wrestler lol. I also have very short teeth roots luckily i have been gifted to keep my teeth for as long as i have. I am kinda scared of losing them but i know it is coming. :/ I have very thin hair as well
NoLoVe4KbAbY 8 months ago
Keep up the amazingly positive attitude! Your video-blog was very inspiring...you are very articulate and intelligent and your strength of character shines right through any genetic issues you have. I actually didn't notice that you had ED when I first looked at your image. I have 2 kids (ages 17 & 15) who have ED...I just wanted to thank you for your courage to talk about everything that you've had to deal with because I know how painful others can be in such a cruel world.
1959annieo 1 year ago
@1959annieo Awe thank you so much for the encouragement! I really hope any of my up coming videos will help your kids in some way :) (Which, hopefully, I'll have a new one or two out this coming week!) Have a wonderful New Years!
goingdental 1 year ago