Great video. I also suffer from chronic pancreatitis, a congenital defect to the pancreatic duct called a pancreas divisum. I was diagnosed in 2001, I'm 44 now and have been able to have 2 healthy kids through this. It is such a misunderstood disease. I have spent over 175 visits to the ER/Hospital in the last 10 years. My veins are so narrow and flattened that I have a mediport attached to my chest. Anthem was charging me $1600/month had to drop and go with Medicare, still not enough to cover.
My husband lost his job and with it went our health coverage. We tried to buy insurance but the cheapest we could find was $400/month but it did not cover meds, office visits, specialist visits, or labs so what good is it? We applied but were denied. Since we are citizens we're screwed. If we had snuck here from Mexico we'd have all the med coverage we could want!
I have a self-employed friend with a large, suspicious growth on her thyroid and no insurance so no doctors want to help her.
I sent Kev a message on his page. Plese view our page and see our story, since Feb my husband was 20 days on life support, 46 days total on one visit to hospital, almost died, lost our home, jobs, education, ministry and we still rebuild our lives. some videos are in sign language on this pancreatitis, but there is one in pictures, very graphic, as this disease is graphic life changer, but God is good and continues to watch over His children...thx
Im sorry kennedy its just to sad to watch for me for someone to have to live like that and some bullshit law to oill him i cant waych it its just to damn sad
I had CP caused by sphincter of oddi and it got to the point that I underwent a TOTAL PANCREATECTOMY WITH AUTO ISLET TRANSPLANT in Minnesota in 2002. I had complications and am insulin dependent, but alive. As far as I know this is not available to those in the UK, which is unfortunate as I would not wish this disease on my worst enemy. I suffered about 13 yrs with it and am sorry for your pain and suffering. My best, amy
My prayers are with u!!!! I am a 25 year old female who is also living with Chronic Pancreatitis. I have had 11 abdominal operations. I have been living with it since I was twelve years old. I am post whipple. I am on IV nutrition via a port-a-cath in my chest, I am diabetic also. It is such a painful disease. Even though I am post whipple I still am in immense pain- that knife is still in my belly- I have a lot of Nausea and Vomiting. I currently recieve ssi due to my pancreatitis.
My prayers are with u!!!! I am a 25 year old female who is also living with Chronic Pancreatitis. I have had 11 abdominal operations. I have been living with it since I was twelve years old. I am post whipple. I am on IV nutrition via a port-a-cath in my chest, I am diabetic also. It is such a painful disease. Even though I am post whipple I still am in immense pain- that knife is still in my belly- I have a lot of Nausea and Vomiting. I currently recieve ssi due to my pancreatitis.
But, I'm sorry you and your father have to go through this. It's a pain that is too intense to describe.
I don't want to go on Medicaid, but, I probably should. I've gone broke by simply following along with this Redneck paradise health care system we have.
I've paid way more of my share in income tax and the rest to recieve nothing.
I am not the only person , either.
Americans don't understand the health care system. They will once they are sick, then they'll be begging for help.
I've been dealing with chronic pancreatitis. First attack the called acute was on my 30th b-day then 4more attacks within 2years now have chronic. On top of CT scans MRI ERCP. Now on 3rd year with pain trips to ER for dilaudid for burst of attacks. I'm on lortab 10's emzyms pills and nausea pills. Still working but I drive a truck so not to physical but its getting a lot harder to work. Both my doctors will sign for disability.
I've been dealing with chronic pancreatitis. First attack the called acute was on my 30th b-day then 4more attacks within 2years now have chronic. On top of CT scans MRI ERCP. Now on 3rd year with pain trips to ER for dilaudid for burst of attacks. I'm on lortab 10's emzyms pills and nausea pills. Still working but I drive a truck so not to physical but its getting a lot harder to work. Both my doctors will sign for disability.
I'm sorry. All I know about the disease is what I've heard from Kevin (his dad is in the video), and I can't even imagine what kind of pain you're going through.
I too suffer from Chronic pancreatitis and all the other diseases that come with it,I'm 33 now it all started when I was about 25 and has got progressively worse since.Being in the UK the doctors here prefer to do as little as humanly possible apart from throwing pills at you to sort the problem out,I have travelled all over the country seeing different "Specialists" all giving me options but actually never offering any of them as they are "Too risky","Too risky" for them and their jobs!!
It's a terrible disease, and I don't wish it upon anyone. Sadly, I just found out about an hour ago that Chris Hanley passed away. American doctors will look at people like you and say "You need treatment, let's get it for you," but then insurance companies will say "too expensive--here are some pills. And by the way, you owe us $400,000." No system is perfect, but something is better than nothing, which is what I have.
i had the Whipple last year and i had the best care, all because i live in the UK.
when are u in america going to wise up, and get a national health.
GOD BLESS YOU ALL.
davegodden1 9 months ago
@davegodden1 You're preaching to the converted, my friend.
SoberKennedy 9 months ago
Great video. I also suffer from chronic pancreatitis, a congenital defect to the pancreatic duct called a pancreas divisum. I was diagnosed in 2001, I'm 44 now and have been able to have 2 healthy kids through this. It is such a misunderstood disease. I have spent over 175 visits to the ER/Hospital in the last 10 years. My veins are so narrow and flattened that I have a mediport attached to my chest. Anthem was charging me $1600/month had to drop and go with Medicare, still not enough to cover.
journeyland 1 year ago
My husband lost his job and with it went our health coverage. We tried to buy insurance but the cheapest we could find was $400/month but it did not cover meds, office visits, specialist visits, or labs so what good is it? We applied but were denied. Since we are citizens we're screwed. If we had snuck here from Mexico we'd have all the med coverage we could want!
I have a self-employed friend with a large, suspicious growth on her thyroid and no insurance so no doctors want to help her.
szqsk8 1 year ago
I sent Kev a message on his page. Plese view our page and see our story, since Feb my husband was 20 days on life support, 46 days total on one visit to hospital, almost died, lost our home, jobs, education, ministry and we still rebuild our lives. some videos are in sign language on this pancreatitis, but there is one in pictures, very graphic, as this disease is graphic life changer, but God is good and continues to watch over His children...thx
cdbicdb 1 year ago
Im sorry kennedy its just to sad to watch for me for someone to have to live like that and some bullshit law to oill him i cant waych it its just to damn sad
sandman9913 1 year ago
I had CP caused by sphincter of oddi and it got to the point that I underwent a TOTAL PANCREATECTOMY WITH AUTO ISLET TRANSPLANT in Minnesota in 2002. I had complications and am insulin dependent, but alive. As far as I know this is not available to those in the UK, which is unfortunate as I would not wish this disease on my worst enemy. I suffered about 13 yrs with it and am sorry for your pain and suffering. My best, amy
BLUEEYEDSOUL68 1 year ago
My prayers are with u!!!! I am a 25 year old female who is also living with Chronic Pancreatitis. I have had 11 abdominal operations. I have been living with it since I was twelve years old. I am post whipple. I am on IV nutrition via a port-a-cath in my chest, I am diabetic also. It is such a painful disease. Even though I am post whipple I still am in immense pain- that knife is still in my belly- I have a lot of Nausea and Vomiting. I currently recieve ssi due to my pancreatitis.
Medic25MK 1 year ago
My prayers are with u!!!! I am a 25 year old female who is also living with Chronic Pancreatitis. I have had 11 abdominal operations. I have been living with it since I was twelve years old. I am post whipple. I am on IV nutrition via a port-a-cath in my chest, I am diabetic also. It is such a painful disease. Even though I am post whipple I still am in immense pain- that knife is still in my belly- I have a lot of Nausea and Vomiting. I currently recieve ssi due to my pancreatitis.
Medic25MK 1 year ago
aw crap i accidently removed my comment.
boohowdy 1 year ago
Comment removed
boohowdy 1 year ago
But, I'm sorry you and your father have to go through this. It's a pain that is too intense to describe.
I don't want to go on Medicaid, but, I probably should. I've gone broke by simply following along with this Redneck paradise health care system we have.
I've paid way more of my share in income tax and the rest to recieve nothing.
I am not the only person , either.
Americans don't understand the health care system. They will once they are sick, then they'll be begging for help.
boohowdy 1 year ago
This has been flagged as spam show
I've been dealing with chronic pancreatitis. First attack the called acute was on my 30th b-day then 4more attacks within 2years now have chronic. On top of CT scans MRI ERCP. Now on 3rd year with pain trips to ER for dilaudid for burst of attacks. I'm on lortab 10's emzyms pills and nausea pills. Still working but I drive a truck so not to physical but its getting a lot harder to work. Both my doctors will sign for disability.
abnerrose 2 years ago
I've been dealing with chronic pancreatitis. First attack the called acute was on my 30th b-day then 4more attacks within 2years now have chronic. On top of CT scans MRI ERCP. Now on 3rd year with pain trips to ER for dilaudid for burst of attacks. I'm on lortab 10's emzyms pills and nausea pills. Still working but I drive a truck so not to physical but its getting a lot harder to work. Both my doctors will sign for disability.
abnerrose 2 years ago
I'm sorry. All I know about the disease is what I've heard from Kevin (his dad is in the video), and I can't even imagine what kind of pain you're going through.
SoberKennedy 2 years ago
I too suffer from Chronic pancreatitis and all the other diseases that come with it,I'm 33 now it all started when I was about 25 and has got progressively worse since.Being in the UK the doctors here prefer to do as little as humanly possible apart from throwing pills at you to sort the problem out,I have travelled all over the country seeing different "Specialists" all giving me options but actually never offering any of them as they are "Too risky","Too risky" for them and their jobs!!
silver760 2 years ago
It's a terrible disease, and I don't wish it upon anyone. Sadly, I just found out about an hour ago that Chris Hanley passed away. American doctors will look at people like you and say "You need treatment, let's get it for you," but then insurance companies will say "too expensive--here are some pills. And by the way, you owe us $400,000." No system is perfect, but something is better than nothing, which is what I have.
SoberKennedy 2 years ago