Added: 2 years ago
From: scottorn
Views: 1,797
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  • My 12 year old brother has 2 AVM's in his brain and had a bleed right before Christmas and us still in the hospital I had no idea so many other people have them but I'm glad to see so many survivors :)

  • my son just had an avm rubture in the lower part of his brain... hes 6.. i'm try to be strong but deep down i kno' its not enough... dis happened 2 days ago while he was plyin durin recess... i was off on a business trip.. i havent seen him in 3 weeks prior to his injury... i feel so guilty...

  • i am also an AVM Survivor i would love to know where i could find walk like this arround me if anyone no any arround MA leave some loce :)

  • I am an AVM survivor, too!

    I just had a stroke 4 months ago because of it, but I have been recovering pretty fast.

    I definitely want to participate the AVM Walk next year!

  • I didn't know that there is an AVM awareness walk, I wish I could go but my husband's gone and I have a 3 yr old I would need some help to get there If I could go.

  • Look at me! I'm a moviestar :) It was so amazing to meet so many people this weekend. I hope that this event will continue to grow and that more of our AVM family will be able to attend!

    Scott- this was a great idea to do the video. Thanks!

    Shalon

  • You're great!!!! Thanks for all to the people cannot came it.

  • Thanks scott for doing this ! Matt's almost back in the uk, sounds like he had a fantastic time !! Its a privelidge to be a part of our avm family. You are ALL, very special people. Lots of love, Chris Ransley xxxxx

  • Thanks for the vid and for letting us "meet" a few of the people there. It was my first time attending the AVM Awareness walk. Looking forward to next year's!!

  • It's awesome to see some 'in real' ~ This is one of your biggest pests ha! ~

    I think it's rather inspiring that families became involved this way. I'd like to see more family members be as supportive :)

    Wonderful vid!

    Ro~

  • Thanks HappyOldDog. It was a fun day.

  • Thanks for posting, Scott! Thanks to my AVM family for being such amazing people!

    Ben

  • Thanks Scott.

    Great vid, nice to see so many of the people I have chatted to over the past year.

    Best wishes to all of my AVM family, I love you all.

    Liam..xx

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