Oh boy that's a bit wired...I mean not you guys...but my husband's name is Kamran and everybody calls him KAMI and my name is Katja and everybody calls me KATIE and guess what? We both have Marfans!!!!!!!
both of you shouldnt feel that bad you guys dont look bad at all!!! besides that you have such nice fingers for violin!!! you know Paganini had marfan's syndrome and he was the best violinist EVER!!! not joking but I wish I had your fingers... mines are short T_T
@AmelieSmith It's interesting you say that, because i have marfans and my mother always told me growing up i had great piano fingers, tho i'm more of a bass guitarist..
Katie and Kami...the two of you are amazing. I love you both so much, and like Lisa said you two are such an inspiration to everyone. Miss you and can't wait to see you in Houston!
You girls are beautiful! Don't ever let anyone tell you otherwise....
Kellilesli 6 months ago
Oh boy that's a bit wired...I mean not you guys...but my husband's name is Kamran and everybody calls him KAMI and my name is Katja and everybody calls me KATIE and guess what? We both have Marfans!!!!!!!
katjasheikh 7 months ago 2
damn feel for the chick at the end, i try to not worry about how my body looks, but some times it just get's to me how scrawny and goofy my body is
krozification 2 years ago
both of you shouldnt feel that bad you guys dont look bad at all!!! besides that you have such nice fingers for violin!!! you know Paganini had marfan's syndrome and he was the best violinist EVER!!! not joking but I wish I had your fingers... mines are short T_T
AmelieSmith 2 years ago
@AmelieSmith It's interesting you say that, because i have marfans and my mother always told me growing up i had great piano fingers, tho i'm more of a bass guitarist..
krozification 1 year ago
@krozification Everybody tells me that i should play the piano too.
vardineh 1 year ago
@AmelieSmith Again, the patronizing bullshit.
MinisterAilingTongue 1 year ago
Katie and Kami...the two of you are amazing. I love you both so much, and like Lisa said you two are such an inspiration to everyone. Miss you and can't wait to see you in Houston!
flyinfishegg 2 years ago
My daughter also has marfan's syndrome
jewelsofawe 2 years ago
Kami and Katie this is soo amazing, i cannot stress how much you guys are an inspiration to me...
For my senior year project i'm going to film a documentary about marfans ... Hopefully this summer i'll be able to get footage at conference!
xLilycakesx 2 years ago
I love you two so very dearly. I have great pride in witnessing how strongly you attack life. Tenacious, really. I love my Dales.
jahlela5 2 years ago 5