Understanding Generalized Seizures (Epilepsy #4)

[MTLGSE]

Thank you very much for these vidfeos. Very informative.

[SangMineral]

I have seizures from brain injury. It sucks cause I had 6 seizures in 7th grade and I finally got another seizure a couple hours ago. Now im a junior in high school haven't had a seizure in a couple years now, really sux :/

[hildarodrigu1]

saw video

[spiketail94]

I'm 17 and I have myoclonic epilepsy. I was diagnosed when I was 10. Over the past 7 years I have experienced over 80 generalised seizures alone and have had 6 different medications. I also had to quit school. Right now I'm taking both lomotragine and levateracitam. I've only had one seizure in the last 9 months I started taking it. Wish me luck.

[chavel3475]

@spiketail94 i've got epilepsy

[shealuna20]

i am 20 and i have grand mal siezures and the medicine that i am taking is not working. because i had a siezure on halloween in the shower and my parents were at work. my medicine that i am taking is called lamictal and i missed 2 of my doseges on sunday and useally my mom fills my pill box. my blood viles are good so i don't know why my medicine is not working and i had one in augest too.

[SeptemberRain11]

I had my first seizure recently. I had just gotten on a bus, next thing I know I'm waking up in the back of an ambulance, completely confused with the EMT telling me I'd just had a seizure. I actually didn't remember even getting on the bus until days later and I still have no memory of anything between the time I got to my seat and the time I woke up in the ambulance. Not only was it the scariest thing that ever happened to me, but even watching these vids gives me a panicky feeling.

[sadmoviemaker]

I'm 16 and have epilepsy since I'm 11. It's not so bad 'cause it's only focal, but it's also nerving and I have it every day. One time it was really bad and I fell on the ground, but I wasn't unconcious at this moment. When it was over, I stood up and walked on. It was so embarassing when my dad asked me what was wrong with me but I didn't answer him.

[Niceboy3377]

r they painful can someone describe wat its like

[cutie1360]

@Niceboy3377 They are painful afterwards. Mostly you get a severe headache a badly bitten toungue which sometimes it might look purple. You'll feel numb all over when you try and touch something but only a slight bit. The parts of the body that move the most in a seizure might ache a little bit. All you basically want to do is sleep after it. Sometimes you will wake up and not have any memory what so ever but it gets better. You won't remember falling but you feel like crap when you get up.

[KaiserVadin]

@Niceboy3377 i am not sure if what i have is a seizure even thought that is what the hospital said they where based on today i would say you get a feeling of numbness kind of like your body is viberating then you get random jerk spells and if you do not stop to treat it, it will get worst to drop attacks ( dropping on the floor or where you stand ) and if you still fight that it progresses to falling on the ground every 5 second its so bad you can't stand and REMEMBER YOU CAN NOT CONTROL THESE

[shayneFarmer]

We dont believe these seizures are painful? Um, well... I can assure you they are the most painful thing I have ever endured in my life... some 240 or so of them to this point. Describing the pain... imagine electricution... that is how I can best describe what I go through.

[manlymen361]

i wonder what it feels like

[wichitarick]

YOU STAY THE HELL AWAY FROM ME YA HEAR" Thanks I awoke suddenly 2.a.m.? pain? confusion? broken? Medication SUCKS I'd rather be an addict again.breathing color,feeling in reds and yellows,taste in silver like metal hearing ,blue gray,fading, I would like to SCREAM but then others will know,burning? cold?afraid to lay down ,haunting dreams,can only smile with eyes closed,pushing,pulling, from the inside,I am pissing "IT" off,clear but numb,a fishbowl,sleep while standing? HURT? NO, LIFE Rick

[dosh228]

@manlymen361 Don't!! i remember feeling healthy

[babyboyarmstrong]

i just come to find out that i have eplieplsy and it makes me kind of scared. At first i thought i was going crazy but I can control mine to were others do not know whats going on. now I know what they are =[ im going to keep loving life and trying to enjoy every moment i can. I do not want this taking the best of me

[rockersdawg7]

Seizures are the scariest thing to see O_O. my friend had one today in school. He started shaking like crazy and i just kept yelling for help and my other friends went down to the nurse. He was fine and when he woke, he was his same self. he doesnt get seizures though. he takes these meds for his diabetes and you're suppose to eat after you take them and he didn't .

[Ichigo9913]

a guy had a seizure just like that in front of me a little while ago, he was choking on an egg roll and thanks to my dad he was able to live through it.

[Peter5930]

I just got out of hospital after a 48 hour sleep study to investigate why I'm so tired for so much of the time, and I was surprised when I kept setting off the seizure alarm on the EEG during my 'episodes'. Now, the sudden tiredness, zoning out, 100 yard stare, loss of muscle tone and coordination or onset of jittery tenseness, electric buzzing sensation and the strobing visual effects for minutes or hours all make perfect sense, but it had never occurred to me before that I was having seizures.

[Peter5930]

@Peter5930 It's a pity that it took 7 years to figure out what was happening to me, but it's an enormous relief to finally have an answer and some hope of finding an effective treatment, and I'll no longer have people blaming my tiredness on depression, lack of sunlight, too much time on the computer, lack of a good routine or any other reasons that people have come up with over the years for why it's all my fault and I should just snap out of it.

[steviemakk]

this is quite educational! but really upsetting to watch i have absence seizures but it can last up to 14 hours not 30 secs which is quite unsettling, i normally go into a tonic clonic seizure afterwards but that doesnt last too long, i never remember anything or get a warning before. the meds are balls and takes a while to get used to just like any meds really, did anyone know that some epilepsy meds are also used to treat bipolar, my friend got diagnosed with bipolar and is going on tegretol?

[vanessadd]

I wish I'd only had to explain it to cops- waking up with some idiot raping you is the worst of all- and then having to stick your fist in his face is something else. I was raped over 20 times before I managed to control this crap... and getting locked up in a hospital to prevent the danger was worse than the rapes!! 

[wichitarick]

Very brief this covers much more than shown and it is down played real well ,I have done everything here EXCEPT true drop sz. for over 17 yrs. feel have had an aura all my life,this has changed many times over the yrs. The effect this has on a mind is mostly left un-discussed . my biggest prob now I feel is lg amount of concussions is causing serious damage. I now sleepwalk and have had true amnesia,on my 16th medication ,the side effects from the aed's are often worse than szs. PEACE Rick

[ChoccoMonkey]

The doctors don't even know what epilepsy I have exactly :/ It's really hard to explain. I feel really bad about this cause I'm so unsure At least I know some things about it, but not all which makes me uneasy.

[123SarahT]

That's my doctor!

[SkeksisBestSongEver]

have just been hospitalized about 27 hours because of something similar to a seizure on my way down the stairs, as first i thought it was a survire brandamage or cracked skull when i landet and it happened and i layed there completetly gone and shaking, but found out on the hospital that i didn´t hit the head at all, just a LOT of blue marks on my shoulder and body, but i´m having a mr scanning here soon to see if it´s something in my brain like ect. Epilepsy.

[LauraLea38]

I cried while watching this!!! It hurts to see people going through this! I have partial complex seizures, so they are not this scary. I hate having to live with these!!! I usually only have them about 1-3 times a month.

[LauraLea38]

I cried while watching this!!! It hurts to see people going through this! I have partial complex seizures, so they are not this scary. I hate having to live with these!!!

[xxeu4riaxx]

i have some type of partial seizures, i get weird deja vu,smells.i dont jerk,,the first one i ever had i jerkd and had to be induced into a coma, ever since, the seizures have been different,smells i reconize from years ago weird deja vu experiences eyes twitch and roll..i guess you could call it a euphoria,, weird tingles shivvers flowing up my body,quite frightening actually :( sometimes i just daze into space.

[barSLS]

i was diagnosed with epilepsy 4 years ago and these videos are helping me to understand it far better than reading leaflets. Thank you for putting them up. I had absence seizures a lot when i was younger but i now have tonic clonic seizures too. The worst part is waking up with bitten tongue, blood everywhere and crying uncontrollably while trying to apologise franticly to the person who was with you when it happened. I wish there was a miracle cure because i hate it and it scares my family

[poodtang1]

03:06

I have a hyperactive nervous system. Will have a jerky movement after something touching me: clippers when i get my hair cut, cold touching my teeth, change in tempature etc. The hair on my arms and legs stands on end, my eyes close, and i have spasmic movement. Kicking my legs out usually, i've broken atleast 3 toes.

Does anyone know what this is ?

[bathbeads10]

I love these vids

[jennahay1986]

i was told bout 1 and half years ago i have epilepsy, and my doc only seen me 2 times!!! im angry and im tired but hey, epilepsy more to write bout!!

[yelloworangered]

I think you need a new doctor.

[jennahay1986]

i agree. was diagnosed in oct 08. now going for my 3rd appointment with the hospital doc1 next month!!! it really pissing me off!!!!!!

[megabubbles3195]

i have had just about all those seizures be4 now i have them in my sleep and 2moroww im getting and E.E.G. like they said in a diff episode and i have to stay up for 24 freakin hours so they can monitor me in my sleep i have 10 hours to go !

[Shakibers]

how can you differentiate between complex partial and an absence attack if in both they appear to daydream?

[voghtl]

in complex they lose conciousness

[Shakibers]

actually in general, with simple seizures, awareness, memory and consciousness are preserved,but with complex seizures, any of these may be not be. So if you're having a complex seizure, then your consciousness may be fine, but may have problems with memory or awareness. check out the 3rd video - understanding partial seizures, to see what I mean. but i would still like an answer on how2 differentiate a partial sezure from an absence attack if appear2 be daydream during the seizure?

[13SUPERMAN1]

If you had a seizure will you be able to run?

[ObtrusiveDave]

no, not at all.

[40att2]

well i have epilepsi, but when i get an attack: i can't run or walk any good and i can't speak any good either. it's like you can't do anything. but thats for me. idk how it is for the other ppl.

and my spelling suck i know :P

[HollyvBro]

im 17 and i have complex partial seizures most days of the week.they only last a few seconds, and people think im just daydreaming, so there no need to explain really i also have regular tonic clonics. work, at school, friends houses, its awful to explain afterwards. i cant remeber anything. ive been rushed to hospital twice because they havent been able to stop me from convulsing. eplieplsy sucks! :( i still get scared every time i have one. hope everyone gets thiers under controll :)

Holly x

[CarlAndrewEvans]

i've got hippocampal sclerosis on the left temporal lobe of my brain.I'm 27 diagonised at 7 with epilepsy.I have the same types of seizures as you,complex partial and tonic clonic.I know how distressing it feels for you.Tried over 10 different drugs and dossages to control the seizures but none have ever worked.Going through a process now leading up to epilepsy surgery due to no drugs ever working and is going well.Could cure me.Hope things progress well for you

[prokzmourne]

i have experienced seizures many times, and im blaming if i have epilepsy, but after the seizure attack im back to normal in a few hours... what does it means? is this a seizure where get from low blood sugar or anemic too?

[DevilButtKicker]

I had a generalized seizure...all I know is I went black and woke up with a sore tongue (bit it) and confused. Otherwise to me when I had my first seizure..it was like falling asleep.

[TuckmanJiggityJones]

I get both complex partials and generalized, but never yell during a tonic clonic, and thankfully I've never shit myself.

[HLecterPHD]

Had a tonic clonic a couple of years back. woke up and a family member was there asking if i was alright. It was like wtf why are you askin if im ok and why are you in my room. being woken up by someone asking you questions is freaky.

[TuckmanJiggityJones]

Really the worst part about having epilepsy is waking up with the bloody tongue, the aches... trying to stand when your legs refuse to support you.

And worse still is waking up on the curb outside a 7-Eleven with a cop shining a flashlight in your face.

"How many drinks have you had tonight?"

"Egh... none you idiot..." I really get sick of having to explain it to people. And all I ever really wanna do afterwards is sleep, those shits are maaaad tiring.

[BonBon3589]

@TuckmanJiggityJones Whats worse is getting the ambulance called on you for it. I have to say I've been driven away to the ER 5-6 times, costing thousands of dollars each time. All they do is stabilize you and send you on your way.... It makes me feel guilty for having epilepsy.

[ManderLily]

@BonBon3589 I think you can refuse to be taken to the ER.... I realized this AFTER my last seizure that brought me to the ER and I'm still paying the bill because I didn't have insurance at the time. But anyway, if you know you have epilepsy and can have someone come for you to take you home, then you can refuse to go/refuse medical treatment... just remember to tell your doctor about it... I hope your seizures are more under control now

[CHRISTMASBASTARD]

@TuckmanJiggityJones yeah I bit my tongue this halloween because I watched this video and it was my first seizure and my legs where shaking whilst my mum was calming me down and I just didn't think I could walk.

[NiemeyerHilmar]

@TuckmanJiggityJones i'm with you homie.

[shadowcaster56]

@TuckmanJiggityJones get a Medical ID band public servents look for this.

[boingokky]

@TuckmanJiggityJones That does suck--do you have a medic alert bracelet explaining your seizure disorder? Keep on keepin' on, my friend!

[ThePreepree]

@TuckmanJiggityJones i understand fully...the next day you feel like shit...your body hurts especially the neck back and legs.....and a bad headache..mines begin with twitching in my face or fingers..cant stand or even think ...you just wanna sleep

[noeluas3]

@TuckmanJiggityJones You explain what i feel perfectly! It's the worst part!! And I also hate when people think you are drunk

[saiyomaru]

@TuckmanJiggityJones i really hope you get better...how are you feeling now? :(

[DevilButtKicker]

yeh man I had my first seizure and when I came too I was outside on the ground with these medical people and mom and aunt and cousin surrounding me and was as confused as ever.

[pooper7x]

im totaly aware of whats goen on when i have my gran maul shits they fucking hurt i would love to talk to these doctors once again them bitches hurt!

[bpyjktgiuk]

What about a brain chip. CHECK MY SITE.

[Georgedegriek]

Some sudden movements and strange feelings like that i experience before sleeping

[ZCoffie97]

is it painfull?

[scientologyisnuts]

no its not painfil, unless you injure yourself during the seizure, i bite my mouth sometimes...that sucks!

[Choefoe]

only when you have complex patail with secundair general. I,m one of the "lucky few" that is concience when it moves over to general. It,s like the ground is pulled away underneath you and you don,t have control of the things your body is doing and the things happening in my brain are almost not to discripbe, it,s hell. In an epileptic clinic I could answer after I had fallen down and started to twitch all over, I could not see anymore but still hear. I could answer during all that,

[Choefoe]

2) then I finally passed out, I was in an epileptic clinic but they never seen anything like it before, they knew it exist but it,s rare. Duh. The way I experience seizures is not even to find in any book and even here they don,t talk about THAT. But I don,t want to frighten anyone ,like I said it,s rare but itis is traumatic, very much so ;-((( fight against ur own brains is exhausting

[icyhassan]

i am hassan from pakistan , i had two consecutive seizures on the 14th of jan 2009.

my question is this, can a seizure disorder remain dorment for a period such as 17-18 yrs,

i have been medicated with carbomendazine or something?????

[tylersgirl9]

my daughter has a coule seizures a day, she goes to shadyhill elem. school in ocala fl. they cant see the seizures so they pretend shes fine, while suffering from sore muscles and a headache afterwords.

[DalLaschick41]

i have seizures but ther always absence seizures where i just blank put for a about 7-10 seconds n i usually tugg at my shirt. but i also have seizures wer i completely lose conciense n wake up w a HORRIBLE headache and a sore tongue bt those usually happen wen i forget to drink my meds,sometimes i really do get frustrated cuz after all these tests i ask the same question n all i get is I DNT KNOW... Its hard to understand how one day im fine n the next im diagnosed w epilepsy i try 2 live w it

[ZCoffie97]

do seizures hurt?

[gimpygibble]

no they don't cause any pain when they're in progress. however, a person will most likely feel pain after they have had a seizure.

[Dunsay]

Read Choefoe post. It apparently hurts if you're conscious during the seizure. I can't testify about that, however I feel like shit afterwards, so I can imagine it hurts during the seizure. Glad I'm unconscious during mine. I have Tonic Clonic seizures, but I live as normal as possible. Had my fourth or maybe fifth yesterday, after more than half a decade since my last one, and today I feel like I've just had my hardest exercise EVER. x) Muscles aching + lack of strength. Oh well... =)

[DaLesMultimedia]

I am glad my neurologist was better than you. I had tonic clonic seizures for about 18 months before they were ceased with Tegretol, which is a medication for those who don't know which might include this man here.

Firstly, during my seizures I was fully conscious, able to hear and see, just unable to stop or prevent the attack.

Secondly, tonic clonic seizures are agonisingly painful. The worst pain I have ever felt.

Medicine is free in the UK too. Maybe your clients should complain some!

[noypiusn]

DaLesMultimedia. What do you mean by just unable to stop or prevent the attack? What is the attack? Is it a drop seizure or just simple seizure?

[DaLesMultimedia]

Re: noypiusn

It was a tonic clonic featuring collapse and full body involvement. Yes, I would usually become unconscious after the attack had been in place for several minutes, waking later with disorientation and often amnesia, but during most of the attack I was conscious, but without any conscious control over my body. My wife can testify to my being able to later repeat her words to me during my attack.

[noypiusn]

Re: DaLesMultimedia

So, what you`re saying is that whenever you have a major seizure your memory will not all be lost and remembers some of the event during the attack? I have yet experienced that whenever I have one. Do you remember the event before the attack? I have not. My latest one being on video, I did not remember anything. I wish I did so that I would know what triggers an attack. Like what I said, I have yet to remember the auras, if any, before my major seizures.

[salc243]

thats how it is with my seizures... i remember ppl would tell me that i could not be experiencing a seziure if i was aware because then i would be able to stop myself, but you hit it right on the nail.. i totally can relate

[efundora]

Thank you for sharing this important information about epilepsy.

[spiritshy]

seizures ARE PAINFUL!!!!!!!!!!!

[jpiluke]

Is it painful to have a seizure, or after the seizure. I feel no pain, during a seizure, mind you, I'm not there. After the fact, MAJOR headache, pain in all mussels.

[mrmacaraegmarcos]

tnx for this amazing medical video...

[bsnrnlegal]

Very informative. Well done! Thank you so much!

[yuna53]

I am glad you post these educational videos. They're helping me to undestand my abscense epilepsy a bit more. Makes me feel all happy just talking about it. :)

[saffie1990]

I know how you mean about understanding absences, I have been told that its likely I've grown out of it but I still worry that I still have it and I never really understod them. I wish more people knew about the epileptic varients, I hated people thinking I was just a rude child.

[tilalover17]

I have seizures and all that he said is true.

[phillogical]

ILOVE202DC...I hope you end up having seizures for the rest of your life you asshole.

[dominicanboy12]

um i want to ask somethin...but i donnt know if itz a siezure or not...usually at class wen im almost done with my work...i jus freeze and look straight...jus thinkin of nothing...jus pure blank and then i jus shake and wake up...is that a siezure?

[MissyContraband]

The person below me is a moron

[MySeizures]

Is this all you have to say on University Research board dedicated for Epilepsy & victims of Seizures?

If you have seen the video, people are suffering, struck with seizures and mocking people suffering with depilating disorder by your statement BELOW is simply outrageous. DON'T YOU HAVE A HEART? I wonder!

Thank You,

MySezures

[ILOVE202DC]

No, i don't have a heart,BUT i do have a penis.And it shakes on it's own.

[ualapil]

I can see its the only part working in you, cause there is simply nothing inside your scull to work with.

[AcidRefluxx27]

Aparently this guy has never had a tonic clonic seizure, and for his sake, I hope he never has to learn how painful they really are first hand. Let him be wrong about this one.

[voison]

This doc got his diploma from a cereal pack!

[MySeizures]

Dear Dr. Fisher and all of your co-workers at Stanford University Hospital, Thank you for helping me learn on how to face, admit, accept, cope and live with my seizures.

Your great services for the well being of all human beings will continue to eternally benefit humanity and save millions of lives who have been taken hostage to the agony, nightmare and misery of being destroyed by Epilepsy and other Neurological adversities.

Wishing you success in your divine mission.

Thank you,

Gerrie

[xsnugglebunnix]

they say that seizures arent painful because they only know from scientific research..from eegs and MRI's it might seem unlikely that they arent painful...but its stupid...if ur muscles complete contract...like a cramp...obviously itll hurt...ur teeth are clenching and ur stiff as hell...course it hurts..

[MySeizures]

It's about time society recognizes the agony and devastating effects of Epilepsy as much as it recognizes stroke, cancer, diabetes, etc. After all, adversity is just adversity, one way or the other. Let's raise our voice and root for ourselves as much as rooting for others who can NOT stand for themselves. IT'S ABOUT TIME TO STAND UP & CHALLENGE THE CROOKED SYSTEM.

[DavidHenesy]

Excuse me but this so called doctor does not know what the fuck he is talking about folks!

Having had clonic-tonic seizures i can tell you personally you can be both aware and in painfull horror until they pass!

Hell on Earth is what they are, anybody agree, please write me.

[twtw7777]

I know what you mean it is painful until I pass out from them.

[anonrhea]

Seizures do hurt. I used to have the shaking, jerking seizures when I was a child and they are frightening AND painful. This DR. says they aren't painful at all. Whatever.

[anonrhea]

I have seizures and when they are the shaking, jerking type they DO hurt this doctor says they don't but I am aware of them and they are frightening and can be painful. Not on my tongue or cheek but in my arms and legs which are shaking uncontrollably and make me nervous and upset.

What's he talking about they "don't hurt"?

[MySeizures]

Just like you are witnessing the epileptic seizure on this video, I learned the hard way from my own family and friends, it's a life time haunting trauma and agony to see your loved ones being struck with seizures. Seizures destroy families. Too bad, there's NOT much that could be done to help the patient or the family. All that "help" advertised by "caring foundations and agencies" is nothing more than empty promises and bureaucratic circus. It's heart breaking, we are on our own. Good luck.

[pinkbook5]

quit puting this stuff on youtube lol

[MySeizures]

BE PREPARED, IT'S GOING TO BE FRUSTRATING.

I ignored, denied and desperately tried to cover up my seizures. But angry and frustrated at waking up in emergency rooms, I use to jump out of Ambulances until I started falling in to deep sleep in ICU and was hooked to MRI and EEG machine. Finlay, they traced my seizures and I'm waiting for brain surgery after years of every thing frustrating under the sun.

I wish you the best.

Gerrie