Added: 3 years ago
From: hmack2005
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  • You are FUCKED like every ms victim

  • Ok, so I have been having MS symptoms for the past year. I had my first MRI today and the doctor called me to tell me that it looks like MS. I have 2 MRI's next week to confirm the diagnosis and I'm terrified.

  • Well...thanks to M.S., I have done a lot of exericse, and have lost over 100lbs. That's probably the best thing that M.S. have done for me,

  • Fatigue and having 'legs fatigued' means not being able to shimmy in to a motorized wheel chair WITH assistance simply to get to the bathroom and still can't accomplish this feat before incontinence occurs... Do NOT try to be the face of Multiple Sclerosis after getting home from the gym, physical therapy, and say you're freaking fatigued!!!!!!!

  • @maybelazy1 Not trying to be the face of anything my friend. I'm just sharin my story. I'm really sorry you're SO UP TIGHT about your current situation. I hope and pray things will continue to get before for you as they have for me. Make it a great day :)

  • Going from 40 years old to 85 in a few years... Your family watching you slowly die over the course of years or maybe decades, you or anyone else never knows how long it will take... Yes positive things can one from ANYTHING in life, but do NOT try to tell people who live with everything ms has to offer that they can find something positive because you don't know... The positive may be waiting on the other side...

  • Multiple sclerosis is not moving, not comprehending, not walking, peeing on yourself Everyday, falling down & unable to get up, massive medical bills, increasing prescription & insurance costs, ripping families apart, no longer being able to afford Anything, including your children's college, having your entire future stripped from you...

  • Yes, if you can make yourself happy through everything that ms has to throw at you I smile to hear even one person can. Realize that going to the gym AT ALL is NOT multiple sclerosis - that is like having a cancerous mole cut out and saying to someone dying of bone cancer that 'cancer is a struggle' or 'having cancer is life changing'... It is not comparable...

  • I am glad that you are still positive, Please hold on to that... I am just concerned that people are constantly getting bombarded of images & messages of people who are 'fighting' multiple sclerosis. Do not be confused, ms is not something you can fight & that is fact, there isn't anything you can do as a person diet, exercise, attitude, etc that changes the course of this disease. That is a FACT of ms

  • @maybelazy1 I disagree with you my friend. You can fight it. You can beat it. I am living proof. My health is improving by leaps and bounds. With your attitude unfortunately success with come your way. Mindset, attitude, faith and work are the keys to overcoming the obstacles of life.

  • @maybelazy1

    I definitely disagree with your statement. Diet , exercise, ATTITUDE help managing MS. I have MS for almost 10 years.The symptoms of tingling,paralysis,numbness ,tremors and double vision.... I experienced most of them.As I started eating differently,feeling more positive and being grateful to GOD about everything,I noticed some great improvement.I walk,I run,I am doing great.I am studying and work full time.Other than my family and close friends, I do not mention that I have MS.

  • Having supportive children and wife is so impressive, you are truly bless !

  • "God gave me this M.S. shit to save my life" -- Richard Pryor

    That quote sums up the way I've felt since D/X. Even had it tattooed on my forearm as a reminder that I need to stay positive. I need to fight.

  • @ragnarocking Niiiice whatever it takes to keep you fightin'

  • @argylesock74 you're kiding right? Nothin positive? I know you can find somethin. If you can find at least one thing by 2nite I want you to call me. 323-325-4915 I'll help ya find somethin :)

  • since my diagnoses ive lost 64 lbs...and build up some mucle...i use to be extreeemly obese...still got a few pounds to go tho.

    im living everyday to the fullest.. im enjoing every bit of life...and keeping my positivity..

    i use to have depression... because of my obesity...even had suicidal thoughts...

    bottom line is...

    im not happy to have ms...why would i be?? but it has changed me in allot of ways...

    and yes also in a good way...cos im FINNALY happy...cos i can do what im here for...TO LIVE

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  • happy i was able to help you. just remember you can beat MS. you just have to believe it. :)

  • you really help me to embrace the fact that i have ms and thank you

  • Thank you !!! For positive words!!! I have MS too. God bless you.

  • @TheTinateal thank you for your kind words :)

  • WOW LOVE THIS VIDEO UR SO POSITIVE GOD bless u i wish u da best bro <3 ur spirit is greattttttt much love btw my step dad has MS it has changed my world completely positve thing i noticed in him 1. he takes more time to be around the house more 2. he always organizes something to do with my brother and me 3. he is a much calmer person 4 he appreciates LIFE 5 he is way more emotional

  • @sanyensi1 thank you for the kind words :)

  • Well, Let me think:

    1-I'm still married

    2-I'm retired

    3-I have more time to spend with my kids, husband and dog

    4-CCSVI treatment is advancing

    5-It could be worse or life threatening

    Good luck to all!

  • thank you so much for this video. i have a dear friend who has had ms for ten years. he is having a relapse and has been told by doctors that he will be in a wheelchair soon... he is believing the doctors. he is so depressed and i am worried about him, but seeing your videos is so helpful. thank you so much. i know that he has limitations and challenges in front of him, but i believe he can make the most of this and have a blessed life. your video proves it. thank you!

  • your outlook is inspiring. i suffer from a disability as well and it has spiritually brought me closer to the lord and made me look at things in a different light. It teaches you to appreciate what you had and have. It also makes us have to be more intelligent from basic survival instinct modes. We try our hardest to get better and take no small steps forward for granted . Best wishes my friend. p.s. how did you make money in your other videos.

  • I HEAR YOU... I'm from germany.. and MS lives with me since almost 10 years.. I'm 37 years old.. and.. All I can say is... hell NO.. MS is totally NO fun.. BUT.. since I got it.. I LIVE.. much more.. louder.. !!! I travel the world, I start playing Bass ( and I keep it damn funky ;) I was very depressive as I got it.. for an year or more.. BUT.. Thats so NOT me So.. I decided.That MS should deal with ME.. not ME with MS.. I'm out of the wheelchair and I got my voice back! Sending you a big SMILE

  • I'm glad you are positve about your MS! I've been diagnosed for 4 years now. There have been many blessing that has came from this for me. The main one is that it has allowed me to understand others suffering better as well as I am able to spend more time in my ministry. I find that as one of Jehovah's Witnesses spending time teaching the Bible to others and helping them is encouraging to them as well as helps me have a positive outlook

  • No.. Not yet....

  • that is so true, god bless you

  • @xxxCHEERIO16xxx thank you for those kind words

  • ur black with ms? i thought its dominately a white female disease .. i like your spirit

    wish you good luck.

  • @farerse I'm black.....WOW.... I'm just kidding. Thank you for your kind words :0)

  • @farerse Although MS often effects white women in their mid 30's anyone can get it from young or old male or female black or white. Because of the stereo type of being a "white female disease" it took 8 years for doctors to finally admit that I a Native American could have MS. Much damage was done because of the lenth of time going untreated

  • @reppiksjd ok i hope they learn more about the disease so people can get treatment in time.. wish you good luck

  • you should be a motivational speaker..

  • @wordey123 Thank you for those kind words :0)

  • keep up the great work bro

  • i like ur positive attitude :)

    i'm not a positive person, but i'm trying hard to change my thinking in that.

  • @kizu00 Thanks....you can be more positive eventually. Just take it one day at a time.

  • I was in the 82nd airborne and then i was diagnosed with ms.....it took me a while to come to grips with it but, u r right everything happens for a reason. i am now in school to b a social worker to help people with my problems......we cant hide from them we can only overcome our feelings and issues with it. it is great to see someone try and put a good spin on the hell we go through....thank you

  • I'm not afraid of needles anymore. lol.

    I have a appreciation of life at a different level - my 'good days' are what non-MSers would take for granted. To me, that's awesome if I can walk without weakness in my legs and balance problems.

    My cat doesn't care that I take a 'nap' on the couch - she loves to lay next to me and purr. :)

  • LOL me either.... I love pets 'cause they love ya regardless :0)

  • MS has helped me appreciate this life that God has given me.

    I appreciate taking steps.

    I am also closer to God.

    I am a better person all around because of MS.

    However, I would very much like it to stop.

    I am hoping that new research into the cardiovascular system will make this a reality.

    God bless.

    Mark

  • God has a funny way of getting our attention sometimes :0) But he knows whats best regardless of what it looks like

  • 46 year old male here and recently got slammed with Optic Neuritis. I had an MRI performed and only one lesion was present. Though not Multiple Sclerosis yet, the diagnosis was MS. In the future, if things worsen, if I have the attitude that you do, Im certain I'll be able to maintain a level of sanity. More tests are being performed soon and hopefully it can be ruled out. If not, I guess its time to put on my ass kicking shoes. Stay motivated and positive buddy!!

  • hmack, I was dx in March '09 after having several small issues I blamed on aging or whatever. anyways here I am

    1. God has become #1 in m life next to my family.

    2. I have a greater appreciation of all things, particularly people and their own situations.

    3. I am no longer superman, this kryptonite has taken away my ability to be invincible, hence I have developed a greater appreciation of people around me.

    4. MS has brought more laughter into my life. I don't sweat the small stuff.

  • No more superman for me either :0)

  • you want something Positive try this look up Dr. Zamboni CCSVI There is a paradigm shift in MS this week and a possible /Probable cause and Cure! look up Dr. Zamboni CCSVI on you tube and no Im not kidding

    Trevor

  • MS has allowed me to have nothing to fear in going to university to get a career I can do from my wheelchair, it has also allowed me to set aside all the nonsene and focus on what really matters.

  • THANK YOU.....

    see I'm not the only one that can see the good along this interesting journey :0)

  • Thank you for saying this. I have just been daignosed and notice that there are so many downer videos on here. I will say that 24 hours after my diagnosis I have decided that I am going to do something positive with this. I will be doing the videos soon.

  • i am a 23 & a male (pro) ballet dancer who last year was diagnosed with MS. I was scared at first of loosing most hobbies (guitar, backpacking, etc) not to mention I danced since age 61/2.

    Since i discovered i can still dance i feel a refreshment of joy for dance, i ride my bike every day and plan to at least ride in the MS 150 events to come. MS has made me realize how damn lucky I still am. Every day above ground is a good one. Hopefully i can do the ride the US for MS one day and help out

  • I'm 18, and got diagnosed 9 months ago, and i'm allready in a wheelchair, and probally i got primair progressive..... MS destroyed alot for me, and took alots of dreams from me, even my ex boyfriend.. so.... I dunno.

  • @dontcallmebabyx: There is Hevnawe Naturopathic approach for MS on my channel in the comment section. If you need a more clear picture of MS, just write me. Due to the number of emails we get there will be times it will take a awhile to reply- depending on staff schedule.

  • just closer to god bro.but the pain an weakness an my nuro doctor sucks.

  • Ok 5 positive things that MS has brought to my life. Great question.......

    1. I am more in tune with my emotions

    2. I am closer to my father now

    3. I have starting writing again

    4. I treat my body with more respect now

    5. I take time to notice beauty

  • mad is supposed to be man sorry good luck peace

  • ok uh i dont see anything positive other than getting closer to god from it. my mom past away from complications from her ms. i am happy then your symptoms have not gotten that bad i hope they never do cuz u my friend are a blessing for doing what u do man. god bless you mad good luck stay strong cuz u blessed by the best and god is the best

  • Not all of us can feel the same way. That's the thing about this disease it hits us all with different things at different times. We are all very unique. Going through a relapse is like going through hell. While a remission can be a up lifting experience. MS is a disease with many highs and many lows. I can see your point and it's great that you have the attitude that you have. Your attitude alone might have a lot to do with how well you are doing. I can only hope to do as well.

  • im not jumping for joy i get closer to god ive had to say what i feel not what i think ive had to become much more calm i dont have the energy for conflict ive dropped people who arent good for me ive decided im important i can do my music and my art now i dont work but it's still shit for sure thanks for helping by asking the question m*
  • No prob thanks for sharing your thoughts

  • my aunt has ms......l knew she had it when she was walking funny one christmas.......she went to the doctors office and they diagnosed her.......

  • First off, I enjoyed this honest video. I am not jumping for joy either, but I have to say I would not change what has happened as I believe it is part of my path of learning. My speed of learning of life and appreciating things as simple as the sky, have increased since getting MS. I appreciate people and take time to listen and understand them. I have met the most incredible people who I would have never met if I didn't have MS.

    Thanks for posing the question! Well done!

    Marlo

  • For me 1 year before I got MS, God gave me a yearning to know Him.Things were happening in my life that made me start my desire for Him.I call it "Preparation For a Storm" God built me up.. If I didnt know God the way that I do, I dont know where I would be. In 2 Corith it talks about Paul and the thorn in his side. He asked God to take it away 3 times but it wasnt removed.But God knows what He's doing.He says my grace is sufficient in your weakness.He is the reason I can cope w/this.God Bless u

  • Its an ugly reality check, MS. Mostly just an annoying detour/new shitty path you have to take in life. Very hard to think of anything positive about it. However, I´m sure there are things, I just dont see them. Yet. Of course things could be SO MUCH WORSE, I´m thankful for every day. If there is a God, HE gets my thank yous. And occasional F yous too. Nothing GREAT about this. But I do like you-all´s attitudes. Keep posting your vids, hmack, kinda nice to see somebody more upbeat than me!

  • Thank you for letting me hear some good stuff for a change. Stay strong my dear :)

  • I totally hear you. For me my positives are: overwhelming support from family and friends (we had meals given to us for 5 weeks after I was diagnosed!) A deeper understanding of suffering and ability to connect with others who experience difficult health issues. I've met new people who have become close friends. I am looking after myself better, body, mind & spirit. Above all I have been able to prioritise what is important; God, family, friends and put the energy I do have into those things.

  • Hello, My name is Lisa and I was just diagnosed on this Tuesday and you can imagine that my mind is in the clouds. I may be in denial a little and trying to keep a positive outlook. I thank you for posting this video and I wish you great health. My doctor recommened Betasaren and I am not sure if this is a good medicine or not. What are you currently taken? Thanks! Lisa

  • Hey Lisa, I know what you're feeling right now. But know everythings gonna be alright:) I'm not sure about your specific meds but I took rebif for a while. I no longer take meds. I've been going all natural for the last 7 months and its been great

  • hmack, look into LDN (low dose naltrexone). It's probably as close to going natural as you can get, and for most folks stops MS progression in it's tracks. And for some starts a physical healing process. There's lots about LDN on YouTube.

  • thank you for this info :0)

  • I stay positive and stay strong, I swim three days a week at the local YMCA. I work out at home twice a week. I count my blessings every day that I can move. Not well, but I move. I have found that people are more than happy to offer me help when I look like I can use some. I have been told I am a insprition to others for staying positive. I keep a smile on my face and think hey this isn't so bad.

    Stay well be strong this all happens for a reason. Smiles Bonnie

  • Hey Bonnie, Its really good to see others with a great attitude about MS :). Keep smilin'

  • Hi -- I agree with you -- I posted you a video response but you have to approve it -- please do so -- thanks -- your video inspired and encouraged me to do mine!

  • Hi there, yes, I'm having a good day and can agree with you on all the points you've mentioned. Had MS 11 years, now in w/chair but am happy and adjusted. "I would have despaired if I'd not believed I'd see the blessing of the Lord in the land of the living" Psalm 27:13? blessings, Steve, Australia

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