@fredrgray Cindy had the procedure with Dr. Rafael Moguel in Cabo San Lucas, Mexico. We had some help with the cost, but still paid 85% of it ourselves. Still paying for it actually and will be for some time.
yae!!!!!!! my sense is you've caught this nice and early - you look to be about 10 yrs younger than me - I remember being much more mildly effected by my ms back then. more proof how important getting this done as soon as possible is! Thanks for sharing. (lack of money right now keeps me fm getting it done to date)
It sounds like you had a baby not to long ago. Did you notice that your MS went into remission while you were pregnant? This is because the immune system shuts down to a crawl. If it didn't your immune system would attack the fetus.
@notapplicable66 There was no significant change with regards to MS symptoms and pregnancy in Cindy's case. I think you need to research and learn more about Immune tolerance in pregnancy as there are several mechanisms in play that prevent an immune response to the fetus. It has nothing to do with the level in which the immune system is activated with MS.
@notapplicable66 I know that many MS'rs have shown improvement with pregnancy. I don't know of any specific scientific study that explains why though. Perhaps with iron deficiency that is common in pregnancy? Perhaps relaxin hormone making things "more stretchy" allowing better blood flow?
Regardless, Cindy was hoping to feel better durring pregnancy, but it just didn't happen. Then again, she didn't feel worse either durring pregnancy as her MS symptoms have been relatively stable.
@gtube22 I have been the happiest and healthiest in my life during pregnancy (MS dxd 2002 but I had symptoms earlier - my kids are now 13 yo and 10 yo). I hear you abou the immune sys theory, that never resonated, but the flow of blood theory, how our bodies when pregnant are more loose, in preparation for carrying a fetus and then giving birth, makes complete sense. And of course we are all different. No angio yet due to lack of money but i did get an mrv that shows 40% stenosis in right jg
@lavmac56 There is not really much significant objective improvement with walking yet. Cindy thinks perhaps she is steadier, but I can't tell the difference. Cindy has used the wheelchair since 1999, so muscles have atrophied and it's going to take time to rehab her legs. Still has issues with balance as freestanding is difficult as well.
@gtube22 Thank you for your update. I have had to start using a scooter much more since my last exacerbation in late May, so, am worried about the same happening to my muscles. My balance has become non existent.
Thanks so much for your update Cindy. Glad to hear you are having some positive results. Hopefully you keep noticing improvements as you go along! Kylie.
Where did you have it done? Did you have help with the cost?
fredrgray 6 months ago
@fredrgray Cindy had the procedure with Dr. Rafael Moguel in Cabo San Lucas, Mexico. We had some help with the cost, but still paid 85% of it ourselves. Still paying for it actually and will be for some time.
gtube22 6 months ago
Hi htube22, It has now been more than 7 months since your liberation treatment. Please can you give us another update on how you are doing?
SIBUK 1 year ago
how about another update?
grrl1213 1 year ago
yae!!!!!!! my sense is you've caught this nice and early - you look to be about 10 yrs younger than me - I remember being much more mildly effected by my ms back then. more proof how important getting this done as soon as possible is! Thanks for sharing. (lack of money right now keeps me fm getting it done to date)
mandi7and10 1 year ago
It sounds like you had a baby not to long ago. Did you notice that your MS went into remission while you were pregnant? This is because the immune system shuts down to a crawl. If it didn't your immune system would attack the fetus.
notapplicable66 1 year ago
@notapplicable66 There was no significant change with regards to MS symptoms and pregnancy in Cindy's case. I think you need to research and learn more about Immune tolerance in pregnancy as there are several mechanisms in play that prevent an immune response to the fetus. It has nothing to do with the level in which the immune system is activated with MS.
Glen
gtube22 1 year ago
@gtube22 I have known 3 women with MS including a ex-girlfriend, who all went into remission while pregnant. Which is why I asked.
notapplicable66 1 year ago
@notapplicable66 I know that many MS'rs have shown improvement with pregnancy. I don't know of any specific scientific study that explains why though. Perhaps with iron deficiency that is common in pregnancy? Perhaps relaxin hormone making things "more stretchy" allowing better blood flow?
Regardless, Cindy was hoping to feel better durring pregnancy, but it just didn't happen. Then again, she didn't feel worse either durring pregnancy as her MS symptoms have been relatively stable.
gtube22 1 year ago
@gtube22 I have been the happiest and healthiest in my life during pregnancy (MS dxd 2002 but I had symptoms earlier - my kids are now 13 yo and 10 yo). I hear you abou the immune sys theory, that never resonated, but the flow of blood theory, how our bodies when pregnant are more loose, in preparation for carrying a fetus and then giving birth, makes complete sense. And of course we are all different. No angio yet due to lack of money but i did get an mrv that shows 40% stenosis in right jg
mandi7and10 1 year ago
Thanks for the video! Keep us posted!
msclinicaltrialsinfo 1 year ago
Congratulation Cindy on your liberation, can you please tell me which hospital or through which website you booked your appointment? Thanks
golsol 1 year ago
@golsol ...my Question Exactly...where is this Hospital...details PLEASE...
Cindy...May you continue to heal steadily as time passes!! Interesting that the Antecubital site was used in lieu of Femoral..
kkkkkkatherine 1 year ago
@kkkkkkatherine Diagnosis of CCSVI and liberation was performed in Cabo San Lucas, Mexico at the Amerimed hospital.
gtube22 1 year ago
@kkkkkkatherine Thank you for info Cindy...That hospital sounds like a good provider of "Liberation'...
Let the Healing Continue!!!!!
kkkkkkatherine 1 year ago
Can't wait to see how the walking is going. Happy for you, hope for steady improvements.
lavmac56 1 year ago
@lavmac56 There is not really much significant objective improvement with walking yet. Cindy thinks perhaps she is steadier, but I can't tell the difference. Cindy has used the wheelchair since 1999, so muscles have atrophied and it's going to take time to rehab her legs. Still has issues with balance as freestanding is difficult as well.
Glen
gtube22 1 year ago
@gtube22 Thank you for your update. I have had to start using a scooter much more since my last exacerbation in late May, so, am worried about the same happening to my muscles. My balance has become non existent.
lavmac56 1 year ago
I think any improvement is good, the goal is to stop further progression. Glad that you are doing good and hope it keeps getting better!
MSVlogSupport 1 year ago
You didn't get this way in a day. Hopefully it just keeps getting better!
4happygolucky1979 1 year ago
Thank you for updating
ThePennygirl 1 year ago
Thanks so much for your update Cindy. Glad to hear you are having some positive results. Hopefully you keep noticing improvements as you go along! Kylie.
Marlimouse78 1 year ago