Our Daughter Lilly 1/10/08

[andrekejackson]

i cant stop crying so sorry for your loss god is your comfort shes with the angels

[greenize1959]

I applaud you on your faith and trust in God! Although Lilly passed 6 hours after she was born, for her short life in the womb and outside the womb, she felt Agape love from her parents.....I think you are right, our society can end life just like that, as if a fetus has no purpose.....but, as you so beautifully showed here in your tribute to Lilly's life.....every fetus does have a purpose....and every mother, as well! God bless you!

[lkrause74]

No one should put this family down for what they chose. It is NOT our right as human beings to decide if an unborn baby is to live or die, no matter what they are diagnosed with in the womb! It is GOD who gives life and her life was in his hands from the moment she was conceived. I believe this with every fiber of my being. The same went for my son who was born 13 weeks early...his life was in Gods hands and its by his grace he is alive today! Hallelujah! God bless little Lilly's family!! :-)

[german4battlemaiden1]

All Lilly's are beautiful...

[xzday]

My cousin's child had trisomy 18 as well. She died a few minutes before her birth. Your beautiful Lilly is so precious and adorable. I know that me saying "I'm sorry for your loss." won't make you feel much better, but I hope it brings you at least a small amount of comfort to know that I'm thinking of your beautiful little Lilly today, and she will always have a special place in my heart.

[LDavis0731]

Such an amazing video to honor your child.

[lagueradewestpark]

I CRIED THE WHOLE VIDEO BUT I AM SO INSPIRED BY YOUR STRENGTH TO KEEP HER I UNDERSTAND HOW YOU FEEL I WAS TOLD I WAS HAVING AN ECTOPIC PREGNACY AND IF I DID NOT TERMINATE THE PREGNACY I WOULD RISK MY LIFE THAT WAS AT 5 WEEKS I SAID I WOULD LET GOD TAKE US BOTH AND REFUSED TO GO TO THE DR TILL I WAS 13 WEEKS AND THEN THEY DONE A ULTRASOUND AND MY BABY WAS WAVING AT US IN THE ULTRASOUND AS TO SAY I MADE AND HERE I AM GOD IS THE ONLY ONE WHO CAN DETERMINE THE END FOR US

[4ChildofChrist]

In the arms of Christ. No better place to be! May God Bless you and yours always.

[esperalenasa]

You are amazing people to share your story with us, your faith in God is a tribute we can all learn by, I am sorry for your loss, God bless you all!

[cerys38]

This is a beautiful video for your beautiful daughter. I lost my son to T18 also and thank God every day I was blessed be be his Mum and hold him in my arms. Our precious babies change our lives for ever. Thank you for sharing and God Bless.

[connor1687]

i cant tell you how sorry i am for little lily i bet she would have groun up and be came an actres i bet ( or some thing nice like that) but you got to love her for a hole 6 hours. and you made the best of it right.

[susan21869]

Precious Lily. She arrived in love and then deprated in love, thats all ANY of us hope for, to leave this place while surrounded in love. What a lucky girl she was to have such loving parents.

[esperalenasa]

@susan21869 Amen!!!

[LoveMyLils]

This video was absolutely beautiful and I greatly admire your faith and gratitude towards God. I would say that I am sorry about your loss, but I think you see it more of a blessing than a loss. A blessing that you were able to share those moments with your beautiful child an angel you have with you always. Thank you for sharing this!

[caroljohnson168]

'thank you for your testimony of faith in God. Indeed, He is the Giver of life. What a precious little one. Bless you.

[betsy5592]

how sweet, brings tears to my eyes. you both inspire me. my husband & i found out its a 95% chance our daughter has trisomy 18 we have choosen to go thru with this pregnancy. im learning so much about this condition and how do deal with all this the best way i hope if you do read this we could keep in touch my email is brownbetsy7@yahoo.com god bless your family

[roguegirl29]

@CrystalStarrBell But say that the woman has a condition where it would be too dangerous for her to keep the baby. What then? Do you then deny her the right to have an abortion because you don't believe in it? Why should you impose your beliefs on anyone else? They're your belief but they're not someone else's beliefs.

[esperalenasa]

@roguegirl29 I didn't get that from this video, they choose for their family, men created abortion not God and abortion is wrong because only God should decide who, when and how we die!

[maverick76trucker]

so sorry for your familys loss.and yes abortion should not be allowed.god bless

[ILUVHORSES1981]

what a beautiful video, I am so sorry for your loss, she was precious, my daughters name is also Lily and it make me realize how incredibly blessed I am to have a healthy child, but I do know that the lord gave you Lilly for many reasons and she is a very special little bundle of joy..an angel in heaven!

[MissKimberlyKay]

THIS VIDEO IS SO SAD AND I AM SO SORRY TO HEAR ABOUT YOUR LOSS...YOU ARE ALL IN OUR PARYERS.

[LarisaMW]

Beautiful... thank you for sharing your story... you will meet again.

[nadlerskid]

I'm so sorry for your loss!

[najma1011]

Hi,

I am so sorry about Lilly, I am 26 wks pregnant now, when I was 18 wks I was told my baby got Trys 18 (Edward Syndrome) offered termination but I have decided to go ahead with the pregnancy no matter what. I believe who am I to take my babys life if my god wills to do that then let it be.

[lkrause74]

@najma1011 Such a beautiful thing you did. I hope you dont take this wrong because I dont mean it in a mean way...but how long did your baby live? I cant imagine being in situations like yours. God bless! :)

[Hans021220]

Wonderful tape!God bless you!Your litlle,beauiful daugther is now in heaven!

[psaa61573]

What a beautiful tribute to your precious daughter. Now whenever I see a Lilly flower I will think of her. I am inspired by your faith and strength. God Bless you!!

[MrRavenhaven]

thankyou so much for sharing this! i praise you for not aborting! i do believe that murder is wrong at any stage of life! i am sorry for your loss but i believe your daughter was too perfect for this world

[mofolo23]

I am so sorry my daughter was also born with trisomy 18 her name was also Lily but Lilyrose only lived 12 days old ill never be the same i am a changed person...

[MrBannanaification]

I am sorry for your loss. It would have been terrible, not knowing when He would take her into his arms. Things like that are terrible.

[lillillybug]

@CrystalStarrBell Thank you for your comment! I'm also sorry for the loss of your precious baby boy. If you ever need to talk don't hessitate to send me a message.

[GodsBlessedBeauty]

Thank you, absolutely beautiful.

[xmoongirl15x]

God Bless you, your daughter, and all those effected by these diseases. Thank you for your message.

[kelsiesullivan]

beautiful video

[sindie11]

God bless you and your child. I'm truly sorry for your loss, but the world is better for people like you who believe that all life is sacred. It took tremendous courage to keep her. You are absolutely right - God alone should determine who lives and dies.

[darklampard]

Rest In Peace! It's actually quite sad that I'm suspicious for screamers in such kinds of videos as this! =s

[bexcarlisle88]

I am so sorry, my brother Joshua died of T18 at 4 week's and 5 day's, i miss him so much. x

[HammerofHeretics]

Thank you for being a witness to the preciousness of life. How tragic that you had such a short time with your daughter, but how beautiful that she was loved so deeply for her entire life.

[kimmylee31]

so sorry for your loss of your baby.

[MrsDestinyDean3403]

Wonderful heartfelt tribute to your daughter. I have not experienced what you have but I know God only gives you as much as you can handle and lord love you and Lilly! God Bless

[deliveryboy1]

God bless you. im a grown man and i have not cried since i was a boy. this video actually made a tear come out of my eye. Abortion stops a beating heart, no matter how anyone looks at it or tries to justify it so they can sleep at night. at least your little girl had a chance to breathe fresh air and look at the world before God decided it was time to come home. God bless you!

[samive165]

That is a beautiful video. My sister lost her daughter to trisomy 18 in October. God bless Lilly! God is very lucky to have so many beautiful baby angels.

[78weeduff]

Thank you. Beautiful song, and heartbreaking video.God Bless Lilly. x My sister lost her beautiful boy 11 days ago, to trisomy 18 plus a few other conditions. We all had the honour of getting to meet him, short though it was, he was so loved in those precious 70 mins. God Bless little angel. x

[Museros56]

My prayers go out to you and your baby. She is safe and well now. She is where we all want to be. May God comfort you until you meet her again. Nobody has the right to kill his/her own child. Maybe you won´t go to jail for doing it, but it does not mean you have the right to kill your own child at your convenience. Just because we feel pain when our children die is no excuse to kill them.

[78weeduff]

Could anyone tell me who sings this song, ive been trying to find out. Thanks!

[lillillybug]

the song is Held by Natalie Grant

[femf8tal]

WoW! Lilly a sweet name for a sweet, sweet girl. Your tribute shows your strong faith. You understood that God could have provided a miraculous healing but for His reasons, did not. The temporary sting of death is just that. Temporary. I, too, have lost. It took me along time to see that death was a celebration of the life...whether how little...6 hours or long...it is a soul returning to God. It hurts and sometimes blinds us that they cannot return but one day we can go to them (King David).

[jedinine]

in 08 me and my wife lost our twin daughters abi and leah sometimes our pain is unbareable we lost our beautiful twins both in the same night and i begged for god to help us and save our twins and nothing happened they still died the worsed thing is they were ivf twins and we lost them we still feel the pain the pain will never leave we just have to try and live with you have our sympothy our daughters may be gone from our arms but they will never leave our hearts blessings be on you

[d103cc]

terminating is wrong if god wants ou to miscarry he will do it but always know you made the right choice no doubt you got to know lilly for a little while but sh be forever blessed with loving parents she is watching over you and she is going to be with you always and forever no matter WHAT god will give you unfailing strength

[mima145]

you´re wrong. i don´t give a damn about god so i don´t care what he wants or not. it´s every parents´ choice what to do...it´s their right.

[pseudonympersona]

Much as I feel for you and your child - this video brought tears to my eyes - I'd like to point out that it takes an incredibly strong person to bring a child with a deformity to term.

I hope you don't look down on parents who choose to terminate pregnancies when their children have defects; so many cannot bear the pain of bringing a child into the world only to have to say goodbye again so soon.

[taradotdotdotdot]

im crying. im not a mother but i will love to be one some day and that would just crush me. im so so so very sorry for your loss god bless u!!

[bcandy1029]

omg...I can't stop crying now. I'm soo sorry for your loss.

[Isolerare]

This made me cry...

[IrishPrincess1012]

God Bless your precious angel, you and your family. I am 20weeks and 3 days pregnant and just last week my son was diagnosed with Trisomy 18. This video you have shared has given me strength...and I dont feel so alone anymore! She is truely beautiful and I am so sorry for your loss. God Bless

[Katie42837]

@IrishPrincess1012

im so sorry but i am truely curious, did your baby live? God is with you and your family always. you just hav to believe (:.

[HeartlesGeminidragon]

@Katie42837 If you read the description you'll see their daughter lived for a few precious hours before God called her back. Blessings.

[Katie42837]

@HeartlesGeminidragon

i asked @IrishPrincess1012 if her baby lived or died.

[barkomulch]

Lilly was truly blessed to know her Mommy and Daddy. God Bless you all. She is a beautiful angel. I can't wait to meet her in Heaven!

[iLOVEplies86]

God Bless you and im sorry for your loss and praise you for giving her those 6 hours she did deserve to see her loving mother before she passed and its wonderful u didn't terminate the pregenancy because you never know what could of happend. She did not suffer at all she was shown that you loved her. Shes in a better place and god will take care of her. Ill pray for you god bless you u made the right decision

[kittycatmeow30]

I lost my Lucy to trisomy 18. She was 24 weeks in the womb and never took a breath. My prayers to you and for your Lilly. What a terrible loss for your family. A perfect moment is never truly perfect because that is when you most miss them.

[sweetpeacegarden]

HUGS

SWEETIE

:)

[sweetpeacegarden]

My term baby suffered she had 7 days of iv sticks and many failed iv attempts and they still were going ot keep going with sticks into her veins next they were going to try a scalp iv with a screaming red faced wiggly infant. And she was not terminally ill. How do you understand these parents pain have you beein in there circumstance, did you see your child suffer because you allowed it hmm?

[lillillybug]

Sweetpeacegarden, I am so sorry to her that your baby suffered after she was born. Some people will never understand the true value of life. My daughter never suffered, and while she was here she was held and loved by every family member. Every life has a purpose, no matter how short. Through my daughter, Lilly, God taught me about life and loss. Because of her I gave my life to Christ. I never knew true love til I looked in her eyes and prayed that God would take me instead of her.

[sweetpeacegarden]

You have no proof her baby suffered, she had her baby in hospital with medical care. She has been hurt badly by her childs loss stop attacking parents who's babies have died. Look up prostaglandin abortiions babies are bruised by contractions and some born alive bruised.

[lillillybug]

Thanks for standing up for me! :)

[sweetpea219731]

your baby didnt suffer, im a neonatal icu nurse for almost 20 yrs, and you gave your baby her right to be born and held by her mother and feel that bond that no one will ever ever understand, She felt loved and wanted, and she is beautiful. MOST babies at birth are red, bruised, wrinkled ect. doesnt mean they suffered at all.

[sweetpeacegarden]

Terminally

Ill

Babies

Can

Be

Given

Pain

Relief

[sweetpeacegarden]

And Theres No Actual Real Proof Babies At 20 Weeks Don't feel Pain From Abortions

[sweetpeacegarden]

Tenpast4

Heartless!

[tenpast4]

no, it is said with a heavy heart. I understand the pain those parents are in, believe me I do. I just can't understand why it is necessary for more babies to suffer.

An abortion does not last 6 hours!

[Jazznsam]

She was loved for 6 hours how is that suffering? God knew that her parents and family would love her and she would teach them. HE has a purpose for all of us no matter how short our life is and abortion is MURDER which isn't love.

[lillillybug]

I believe that my daughters life had a special purpose. I respect your opinions, but my daughter never suffered. After she was born she was held and loved by the whole family. Giving my daughter a chance to live was God's will. Through her birth I experienced unconditional love.. I looked in my daughters eyes and prayed that God would take me instead of her. That is the same love that God feels for all of us. I'm sorry that you feel like terminating my daughter was in God's will.

[LadiieHennessy]

@tenpast4 I'm guessing you are not a parent! if you are shame on you! if not until you become a parent you wouldnt know the love a mother has for her child! How dear you tell this lovely lady that her child suffered how do you know that! Dnt judge a book by its cover Lilly had all right to live no matter the sitution every child and person should have a chance at life! If you have nothing nice to say dnt comment at all!!!

[Brooke684]

Very beautiful tribute, and you're so brave! God bless you, and may Lily rest in peace ...

[iluvbabies17]

What is Trisomy 18?

[Brooke684]

I think it's a mild form of Down's Syndrome. These children have higher IQ's, and they don't have the typical physical attributes of Down's Syndrome. I met a cute, little girl one summer. Since our town is a tourist attraction, we have a lot of out-of-town visitors. 

I met her at the ice-cream shop, and coincidentally, I saw her again the next day in the E.R. Her grandma told me about it, and I was shocked! She looked totally normal, to me, and was age-appropriate. Try "googling" it.

[ib13chika95]

God bless you and your beautiful daughter Lilly.

She was truly a blessing. Thank you for sharing her.

My son Joshua was born Feb. 4, 1994. He lived 12 days. His life, like so many other children who come and go so quickly touched so many others. Teaching us what is really important in life. LOVE. I know that every day is a gift! A blessing from God! And i am grateful for the time i have with my children ! I know that every day is a Gift! And i treasure them! God Bless !

[trilogy11]

I Wish you would show a more clear piture of her face. Im sorrry about our loss. I dont know how you feel ive never lost a child but i can imagine it would be the most painfull pain ever. When a child has no parents its called an orphan. when a spouse dies its is called a widow. but when a child dies there is no name for it because there is no words that can express the pain.. God bless you and your family..

[bestrongnmbr2]

this video is amazing..

im 23 weeks pregnant with my second and just found out he has trisomy 18 and im continuing my pregnancy as well.

[maxtimus]

That was amazing...to God be the glory.

[mom2nji]

God Bless you for loving her enough to give her a chance to live. I am so sorry for your loss.

[LillyMarwa]

Ur video broke my heart as i too lost my daughter Lilly only 4 days after her birth, she was born at week 33 with good health but needed to saty in the incubator inorder to breath, although she lived 4 days (died September 9th 2008) i never had the chance to see/hold her....I will never forget het & i will stay all my life mourning her.

[tinakins80]

That video made me cry so hard. I was 29 weeks and lost my daughter Kyra Ann. Not from trisomy 18. They dont know what happened. But i didnt get the chance you did. With her being born alive. I pray for you and i am beginning to heal

[lillillybug]

Healing takes so much time but once your at a place where you can smile at the memory of every little kick, its a good feeling. My heros are the people who have experienced loss because the strength that they carry with them is so enormous and no one will ever be able to take that away from them. Stay strong! Prayer is so strong and remember that God knows the desires of your heart and gives you his strength. :)

[llama1264]

a friend of mine told a couple at our church who lost their daughter too "All she knew was love, as she opened her eye to the sight of her loving parents and when she took her last breath she opened her eyes to the sight of her loving saver" their daughter was born on October 8 2008 and died on October 9 2008

[keepcrossing]

that was beautiful....

[lovemyfamilysomuch]

"Take care of flowers

And open up your heart

Because if you love them

Your soul must be nice"

Sandor Petofi Hungarian Poet

[lovemyfamilysomuch]

The most gorgeous attire produced by the skill of art cannot bear comparison with the natural grace and radiant beauty of the flowers of God's creation.

[lovemyfamilysomuch]

For 1 Mom of a Lily (Lilike)

To another mom of a Lily

Matthew 6:26 Christ pointed his disciples to the flowers of the field, growing in rich profusion and glowing in the simple beauty which the Heavenly Father had given them.

As an expression of his love to man. He said, "Consider the lilies of the field, how they grow." The beauty and simplicity of these natural flowers, far outrival the splendor of Solomon.

[chrissbaby2009]

i cant imagine that just a quick note she was born just 2 days b4 my b-day

[justmecrystal01]

the most inspiring video i have seen on here i was in tears before i started watching this video!my mother was 26 weeks pregnant and found out my little brother had trisomy 18 she was devistated and still is he would be 11 years on christmas we have 9 in our family and not a day goes by that we dont think of him!im sorry, tears overwhelm me im greatly sorry for your loss!

[bellachellabby]

awhh , shes beautiful .

God Bless you and your family <3

[JessicaCaley]

wow, you're amazing.

this video made me so emotional,

it's just not fair.

she's is a beautiful little angel <3

[icango6hrs]

you and your husband made the right decission, and I'm glad your family and you got a chance to see,hold,and love,your precious "lily."

[susanalan33]

I'm so sorry for your loss, she was beautiful. God Bless You!

[sylviesangels]

Your daughter Lily is gorgeous! The Lily represents purity, beauty and innocence and your daughter is all 3. A perfect flower from God.

[cholaperuana]

You are an amazing couple and God knew what he was doing when he decided to send Lilly to you. After 6 years of being unable to conceive, I got pregnant in March. At 9.5 weeks over Mother's day weekend I found out my baby had died a week prior. Test later showed that it had trisomy 23 a very rare condition. Your video is truly inspirational and I am glad you got time to spent with your precious baby. I am sure my angel is up there with Lilly waiting for us one day. God bless you & your family

[DekarsMom]

Beautiful video. My son Dekar had T18 and lived just over eight hours. You are never the same person when you hold a lifetime in eight hours....Bless you, and may God forever sustain you.

[onthegoodshiplollie]

You have very strong FAITH and You loved her so much. God Bless You

[PINKEE38]

i have watched alot of videos on youtube however..this video is the most beautiful,inspirational story i have ever seen.thank you for sharing it.

[lillillybug]

Thank you so much for your comment! :)

[boyle1976]

Your faith is inspiring. What a beautiful little one.

[KellieMomof7]

Thank you for making this beautiful video and sharing your precious angel with me. My heart breaks for you. I too had a son born sleeping at 18wks 4 days due to Trisomy 18. I found out about his condition about 45mins before I found out he passed away. I have a video made for him too on here Kayson Tyler if you want to check it out. You and your family as well as your angel are in my thoughts, prayers and my heart.

[rainyrain1979]

Lullaby and goodnight,let the angels of light,spread wings round your bed and guard you from dread. slumber gently and deep,in the dreamland of sleep. Here for such a short time but held in your heart forever! Till you meet agan. Bless your heart!!

[julbez]

i am truly sorry for your loss!

BUT...why do you worship a "god"that  "gives" life...just to take it away again?????!!!very sick!!REIGION I SICK

[memyma]

im praying for you julbez after reading your coment you need god in you life.

[lillillybug]

I believe that God had a very special plan for my daughter. Its okay to have your own opinions about what you believe.. I don't judge you. Many people probably would have steared away from God and religion but God and my religion are what keep me strong.

[PINKEE38]

absoultely beautiful.you held a real angel.god bless you and your family always.

[tm4429]

I'm just a little one Who didn't quite make it there; I went to be with Jesus, I'm waiting for you there. Don't you fret about me, Mommy, I'm of all God's lambs most blest, I'd have loved to stay there with you But the shepherd knows what's best. Mommy & Daddy, don't you sorrow Wipe those tears and chase the gloom I went to Jesus bosom From my lovely mother's womb. I'll be waiting for you Mommy You and Daddy and family dear. I'll be with you then forever, We will be ever near.

[lillillybug]

This poem is very sweet! Thank you so much!

:0)

[bubinka2803]

my daughter is called LILIANA too, she died on 28 march 2005, she died cause of doctors mistake. 3 years have passed but something like this is impossible to forget !!!

[banyango]

I am so sorry for your lose. Beautiful video and nice music. who sang that song if you do not mind my asking?

[lillillybug]

Thanks for your comment! Natalie Grant sings the song and her CD is absolutely wonderful!

[snickers3829]

what is trisomy 18

[lillillybug]

Its a chromosomal disorder that 1 of 3,000 babies get. Its kind of like Downs Syndrome except the baby with Trisomy 18 has a 10% chance of living to see their 1st birthday.

[2QTsInHeaven]

I think there was a mix up--I have Molly's video tributes bookmarked cuz she's so precious & reminds me so much of my Anne. Anne was full trisomy 18 & we got to have her for 61 days, but for eternity in heaven. She will be 3yrs in heaven on 6/28. The pain of missing her still stings quite a lot some days. She always makes my heart smile, even thru the anguish. It gets more bearable in time, but I don't know as if ever goes away entirely. email me if you want to talk more--

[2QTsInHeaven]

What a lovely video tribute to your beautiful Lilly. I was blessed with my sweet & wonderful trisomy 18 baby for 61derful days. She will be in heaven with Jesus 3yrs this June 28th.

[jcaccia]

I am just so sorry...there aren't words.

[AlyKid2k8]

Im 13 and i just got my first baby sister and she has edward syndrome

[pandyloo76]

Hello My Baby was born with Edwards as well.Like Lilly he lived for 32 hours.I feel your pain and grief.

R.I.P Lilly with my Louis xxxxxxxxxxx

[tammyt06]

She came here fullterm so you can your family can come full circle, you life would be forever changed, forever blessed. I only Pray you and yours are living each day as if you only had six hours. God bless thanks for sharing for you inspired me.

[Angitia39]

Such a precious lil one.. I am so so sorry for your loss. I am not a mom but I do feel for you and your family.. May the Goddess take care of her and keep her safe

Blessed Be

[kcaven0915]

Wow. Im speachless... Lilly was sent here not just for 6 hours but for a lifetime of difference in your lives...What a blessing you got to hold her in your arms for those moments.

[kcaven0915]

Wow. Im speachless... Lilly was sent here not just for 6 hours but for a lifetime of difference in your lives...What a blessing you got to hold her in your arms for those moments.

[prettyprettypoo]

That was nothing short of amazing. It took a lot of heart to not consider abortion considering the circumstances. While I wish she was still here for you to enjoy, she is in a much better place. God bless you and thanks for sharing such a touching video.