Cluster Headache

[AndyRCO]

Hello Jonny, wow I know exactly the pain and suffering you’re going through for I was a Cluster headache sufferer myself for 20 years, but have been cluster free for 8 years now, hooray! I found a natural remedy that worked magic for me & I thank God everyday! Possibly it could help you too. I made a video that explains if you’d like to check it out. Bless you, Andy

[suzyhalcrow]

after 25yrs i like to keep my family informed on what im going through would love to show them this film, i wont now because of the response this poor man has got, its not a competition , and the last thing you need is PAIN from another sufferer who cant grasp polite language.

[SerennnaSerennna]

All the peace and love to other cluster suffers just like myself

[koolaid5684]

Man do these hurt.....imagine a brain freeze right behind ur eyes and times it by 999 billion

[HeadacheTreatment]

Very useful information....! thanks for upload this video...!

[IBezimeniI]

But there is a bright side to this phenomena at least for me... after the pain is gone I feel like I'm in trance, the lack of pain and not feeling anything provides me such a pleasure. I am almost happy enough to cry, feel more creative and my thoughts speeding yet at the same time I have an extraordinary feeling of inner-peace and calmness. Although I must admit I can't get any serious work done in that condition since I tend to space out a lot when that feeling lasts.

[IBezimeniI]

@IBezimeni I think it may side effect be due to release of opioid neuro-peptides in brain during the painful phase or something like that. Anyhow I can understand but you must look on the bright side or at least that's what I'm trying... I don't use anything btw... I take every now and then a Caffetine (paracetamol+caffeine+codeine) but I doubt it helps more then a placebo but still this drug is effective when I have a pulsating type headache.

[IBezimeniI]

@IBezimeniI Sometimes it helps to try to sleep over... but mostly the pain is keeping you awake and probably I only fall asleep when it subsides and then wake up shortly after but feel like I was sleeping for hours (like my brain rebooted in that period). That's all, keep strong everyone!

[IBezimeniI]

I too am suffering from something similar to this... I have headaches which are unilateral. Sometimes they are pulsating (which are weaker) but mostly they feel like someone is drilling behind my temple (currently on the right side) but I was strictly left few months ago. I fell that the condition worsened (like double or tripled) in frequency since I've stopped smoking (but I can go back to tobacco and don't want to).

[IBezimeniI]

@IBezimeniI Anyway when I am having one pain can be bad, I've fantasized of driving something sharp through my temple many times and that seems to be the main common denominator with what is described as cluster-headache . Usually I can tell when one is coming, sometimes I wake up with a blurry feeling in my head and the pain slowly increases through the day until it culminates in hour or two excruciating debilitating long headache and then goes away.

[IBezimeniI]

@IBezimeniI There are few symptoms which can occur few hours before and during the attack but they don't repeat themselves in any meaningful order and seem completely random - sensitivity to light or sound, hyper-salivation and not being able to eat, pupils not responding to light, "feeling" that it's coming, changes in visual field - I experienced these only 2 times in my entire life but they have lasted for an hour or two so I remember them very well since I got worried

[IBezimeniI]

@IBezimeniI First center of my visual field went bluish, I could see but I had a feeling like I was blind, and actually I was reading something and I read everything wrong blending words etc, it was like my brain didn't compensate the blind spot or work at all in the visual region at that time and after that passed headache started and the left part of my visual field was flickering and distorting itself - but the problem wasn't in the eye since it was still there when I closed one of them.

[daniacea]

Natural remedy for sale from a former sufferer ! Just search for cluster headache remedy on ebay

[manifestgtr]

the realization that your headache didn't come around it's usual time is one of the most amazing things of all time because it means that even though you will probably be getting a few more, they're about to go away for awhile

[xXSparky117Xx]

Watch the movie Pi, it has a subplot about cluster headaches.

[daniacea]

I suffer from cluster headaches and I tried everything and nothing worked. Until I tried hallucinogenic mushrooms. They are illegal but you can find them on the internet if you search for them. Legality is the least of your worries when you have headaches that are so painful you are contemplating suicide. Any one out there who has cluster headaches I suggest you try mushrooms. Not only do the abort a headache but if you take a small amount each day it will prevent them. Telleveryone about this

[Jonnymule]

@daniacea .....Telling people to take this drug without any other info is just plain STUPID!. I take it you are a newbie to this game, you keep your newbie ass info to yourself until you know what you are talking about!

Anyone seeking this route can go to clusterbustersDOTcom and find all the SAFE info!

[daniacea]

@Jonnymule How is it stupid if it works? I know because it worked for me. How is getting rid of cluster headaches a "game"? Do you get cluster headaches? Have you tried mushrooms? I am no "newbie" I have suffered from cluster headaches for 5 years and nothing worked. Mushrooms did. PERIOD. I am going to tell everyone in the world, because it WORKS. Mushrooms have been tested in trials on cluster headache sufferers and it was PROVEN to work! Search google for mushroom cluster headache study

[Jonnymule]

@daniacea Are you that stupid that you did not read what I wrote and what website I provided for people to get safe info on shrooms?......Both of which you did not do!

5 years huh?.......Your a fucking newbie! When you can dance with this devil for 34 years chronic you can talk your shit. Until then get your fucking info straight.....Asshole!

[MoronMantra]

@Jonnymule

i agree with both of you.

as 25+ year CH sufferer though, i would say ANY consequence from illicit drug use is preferred over sliding down a cable slide that is threaded thru my eye. the pain is irrational, so it makes sense that dans haphazard approach is irrational. seems dan offers the quick reckless "fix" while jonny offers the more intelligent methodical approach. Harvard did do the study. its not like dan is totally out of line. its just a matter of being smart about things.

[LadyCypher54]

@Jonnymule You are not a nice man.

[WeTheStrange]

@Jonnymule God, you sound like a really unsympathetic creep.

[MiisterrMurray]

@Jonnymule sorry i have two friends who suffer from cluster headaches and they have tried everything and mushrooms are the only thing which work. it has saved my two friends lives

[paulypaulification]

@daniacea Heavenly blue morning glory seeds are not illegal and they contain the same alchaloids!!!! I tried them and they worked well for my cluster headaches. Just Google it,o.k

[rachelchunter]

I get the pains so bad, I once asked someone to punch me in the head until I was unconscious. Obviously, they didn't do it, but I wish they had. I've seen all sorts of doctors about the headaches. Most of them didn't believe that I could be in that much pain. Only once or twice did someone mention cluster headaches. But, the hospitals refuse to help me at all, unless I'm screaming bloody murder, begging them for help. Because of this, I've honestly lost my faith in doctors. =o[

[jeezusallahchrist]

I just barely started getting these CH attacks after my bike wreck. When I get them they last for almost three hours and its the worst pain I've ever felt in my life! My T9 in my spine had gotten completely obliterated in the wreck and I thought that pain was bad. I would so much rather go through those back pains than my head.

[outontheair]

you've made it thru a few more cycles since making the vid! WOOHOO

Gotta say I KNOW what you're thinking...we get thru...and the drugs get better...imitrex KICKS ASS on my clusters...but they're $100 a pill now, YIKES! BUT-chop off my own head or keep buying the imitrex?...hmmmm...let me think...

[depoty]

Tramadol Hydrochloride is what I use to alieviate the pain.

Only found out they were called CH yesterday after 30 years of having the beast tear my head apart.

So comforting to know I am no longer alone with it, and I respond to all these CH youtube vids now

[lolita15081985]

i know exactly what he is talkin about i have the same feelings,i have this monster (cluster headache) :(

[ltsgoyanks]

Well done. Nice camera work in the video. Not your typical CH video, I liked your angle on the torture of "anticipating" when the next HA may come or next cluster period may come. Thanks for sharing.

[angiemations]

Thank you.................this brought a tear to my eye, It is so hard suffering, I myself get CH attacks once or twice a year.........................I­'m dreading the next bout! Fantastic video - well done :) x

[Jonnymule]

@angiemations .......Live for the pain free times!

[AnimatedCrime]

Fantastic video. As a migraine sufferer, I can only imagine how bad a cluster must be, since even a migraine puts me flat on my back, huddled in the dark and completely incapacitated for about 10 hours.

I hope they find a control for this to make these things liveable.

[Jonnymule]

@AnimatedCrime ....Thank you!

[mantywi]

WOW!!!!!!!!!!! I'm a 48 yr. old male i HAD!! chronic CH for almost 20 yrs. i was in the 3 top hospital one was the diamond clinic in Chicago Ill. 57 different meds went thro 9 drs. and finally found one 30 mi. from my house in Wi. I was on verapamil 240mgs aday Zomax 100mgs.aday Litheum 600/day was on that for a yr and headache free for over 3 yrs.and on only verp.I tryed shrooms but cant take the chance cause of my job.I hope this combo.works for someone thats what its all about..Awsome vid.TY.

[Jonnymule]

@mantywi ....Thanks for your input, Manty! It means alot to so many as you can imagine!

[mantywi]

@mantywi

Sorry i was NOT on Zomax,it was Topamax 100mgs./day.....

Jonny is that you in the video?...If so well done

[ltsgoyanks]

@mantywi Topomax worked well for me, until the kidney stones. I didn't mind the stones compared to the HA... but urologist made me get off of it becasue he was afraid of kidney damage. Lithium I think has made the pain less severe.. if that makes sense, and the HAs are not as frequent (2-3 week as ooposed to 3-5 day). Good advice, The Lithium verapamil and topomax may be best as a cocktail. I think that is good advice, as ONE drug on its own may not be enough.

[mantywi]

@ltsgoyanks ......Yes just like i said in my main post just have to find the right combo and i did after 57 different meds it was hell and i have NOT had a HA in yrs. and TRUST me i feel your pain i've been there and it FREAKEN sucks,there was a few times i wanted to just end it, NO more pain, i use to Beg my wife to get a gun..

I don't really know what i would do IF the beast ever cam back i HATE to think OR even talk about it,Sorry i CAN'T talk about it.

Good Luck To ALL!!!

[TeeBoneTrail3rs]

u can do shrooms =D

[benjenga]

I watched it twice and each made me cry, thanks jonnymule.

I am 28 now and a CH sufferer for 8 years. it comes almost every year and the cycle lasts 30 days exactly. attacks are about 60 minutes and no way to explain the pain. yelling wriggling crying and counting the seconds. I am on the third week (the most severe one) of my new cycle now after 16 months relief. O2 helps but I couldn't find a pill which works. i tried indomethazine, sumatriptan (both tablet and nasal), topiromad, all useless!

[Jonnymule]

@benjenga ....Try the Sumatriptan shots, works in minutes!

[robbypoelstra]

@Jonnymule ... yeah  try the shots they work for real

[Enthos2]

My love is for you, cluster headache sufferers. Stay strong.

[Jonnymule]

@Enthos2 .....Thank you!

[tonizgcr]

Jonny You need to know that I yesterday haved a first time saw your video and thank you for all of us cluster peoples , as You know I am 14 mounths in remission but I cant foregive pain like this , pls if you are on facebook add me like a friend my fool name is antun kovacic and thank you one more time !!!

[Jonnymule]

Nearly four years pain free and the beast is back, thats the longest remission in 35 years. I am armed and ready for battle. Lets go muthafu@ker, balls in your court!!!!!!

[tonizgcr]

@Jonnymule

Hi , I am 32yo boy from Croatia . I have cluster from 2002 and I have remission 1 year and 2 mounths from last atack but that is not enough for be for sure isnt it ???

[mantywi]

@Jonnymule WOW!!!!!! 4 yrs me 3 yrs thats got to be scary i feel for yea man.... :(

[teatropereyra]

I'm a chronic and find the only solution in psychedelics. There are legal way's to take them: LSA from Hawaian Baby Woodrose seeds ( 5 seeds crushed in plain water for 2 hours and than drink it ) - Psilocybe ( you can order magic truffels online, just put them in yogurt and eat them ) Ayahuasca ( go to a meeting of the Santo Daime church ). To get out of the episode do it once a week and absolutely take no other medicins exept oxygen and lots of water. Than once a month to stay out of pain. QED!

[MrCollan]

einfach nur grausam was diese Menschen mit dieser Art Kopfschmerz erleiden müssen. Sie gehen täglich x-Male durch die Hölle. das tut mir sooooooooo unendlich leid. collana

[thegur3]

Awesome vid, really nails it, like the nail which is being hit in my head everytime i get a cluster, the ppl around me really dont understand nor do the drs ive seen, my sister says when im having one it looks like im crying tears of blood and have been taken over by a demon as my face changes, if only they could feel the pain i suffer and others who suffer from clusters feel. thank you for putting this together, i will def be showing ppl and try getting them to start understanding the pain.

[Jonnymule]

@thegur3 We all look pretty bad when beng hit.....sucks to be us I guess!

[grant20100]

Although I'm not a sufferer of this condition - my heart goes out to all those who do suffer from this. I have read many stories about these headaches and they frighten me terribly. I can't imagine what you guys have to go through. Please stay strong, and take all the medication you can. Try LSD (yes its illegal) as i've heard it helps with the pain.

[Jonnymule]

@grant20100 Thank you, Grant!

[TheLosthigh]

im 16 i now understand that i should be grateful for my life i have scoliosis and take vicodin its nothing compared to this i only saw two videos and i stoped i lowered the volume of someone experiencing one i found it to be disturbing this is a terrible thing for people please dont kill yourselves or mabey you shpild i dont have a true answer for cluster patients but to take chronic cocktails

[halodude347]

my older brother had these for 12 years but now he found the chronics cocktail and it helped now o dont have to listen to him in pain its much better i hope anyone else suffering will get better

[pondscym]

I watched this and started to cry. My first cluster was 11-13-1992 in a theater watching Dracula starring Gary Oldman. Since then there has been no reprieve, no relief, at least one attack a day .....the first one always hits at 2:30 AM without fail. Several Doctors,all the meds, even oxygen doesnt help. My medical chart lists intractable chronic cluster headaches but that doesnt even begin to describe my hell. Now I have 3 to 6 attacks a day. A bullet surely wouldnt hurt this much...........

[Jonnymule]

@pondscym ..... I was chronic for 20 years before I found what is called "The chronics cocktail", It is 600 mg of lithium carb and 480 mg of verapamil a day. It stopped 85% of headaches from ever starting....ask your doc about it!

02 didnt work for me either until I was taught the right way to use it, no less than 15 LPM with a non-rebreathable mask, the LPM and the mask are the key to 02 working!

Good luck, hope this helps!

[tonizgcr]

@Jonnymule

Hi !!! 32 Croatia

I was chronic for 8 years ago and last year i have therapy with lithium carb. 3 mounths and really this summer i didnt have atacks

[didz12345]

@pondscym Mine started again from about 8 days ago I get them for about 6 to 8 weeks then they go and come back around this time every year, I thought I had it bad but I cannot imagine having 3 to 6 attacks a Day???? May God bless you I really feel for everyone that has it I wouldn't wish it upon anyway : (

[jhartist123]

My husband had them for 7years every day from age 19 to 26 and 34 to 36, and last night at 41 they're back! I think they should give theese attacks a new name. There really not even headaches, they're head tortures. I can't stand to hear people say, I have cluster head aches. I have a headache once a week. If they only knew!

[Jonnymule]

@jhartist123

Thanks for posting. Only a sufferer and a supporter really knows what its like. Hang in there!!!!

[magje77]

Chronic myself for 3 years know, every time i survived a attack, i have to find strength to carry on like every clusterheadache survivor out there..i feel bad for every one! Keep fighting! we have to!

With regards Agaat.

[rmoriarity]

This is exactly how i feel....... thank you.

[Jonnymule]

@rmoriarity ....Thank you!, for posting.

[MSK2232]

my father had this all his life, and than it suddenly stopped when he was 39. he said that the longest episode lasted for about 8 hours. when that episode lasted he was 28 and he cut two of his finger on his left hand and broke his jaw... i surely hope that this shit is not genetic...

[cbblvr]

Dear Jonnymule,

my boyfriend suffers of cluster headache since 1996 and I would like tell as much people as possible what ch is. I found this vid and I think is very effective. I would like to add italian subtitles and to publish it again on youtube and facebook.

Would you mind if I do that?

zero for all...

lele

[Jonnymule]

@cbblvr ....Not at all, do it! :)

[TheRealHotShot]

The uncool name is suicide headaches, after 7 long years of episodes, I am in a shadow now. I await for 02:07am tomorrow, but this episode should end in 3 weeks. I will be celebrating for one!

I still don't understand how so much pain is NOT your body telling you something is badly wrong.

I have broken numerous bones, dislocated joints, etc. But the pain is unbelieveable; you want to brake bones to alievieate the pain. Docs are useless - they don't care or understand.

[IstillOwnAvcr]

@TheRealHotShot Thanks for that generalization. My doctor did care. He was very compassionate, and HIS wife is a sufferer. My neurologist has witnessed these attacks more times than I've had them. You can't expect these doctors to perform miracles. I understand some might fall in that "don't care" category, but not all doctors are like that. Some do care.

[Socratease1]

Understood, is this not a symptom in itself of the medical profession in not acknowledging the work and the lack of recognition of the research that generally culminated at the time with Brom from Germany? Brom ~ non-hallucinagenic derivative of LSD. The dealing with psychosis and mental illness that was caused with the generalized use of LSD illegally has closed down research into the chemical interactions within the human brain in this field. Consider the potential research available.

[Socratease1]

My wife is suffering these horrendous cluster headaches even more this year and tonight 's been particularly horrific with my twice getting her onto the oxygen at 12LPM and we have nearly run out of our first cylinder already after only a few days with one more cylinder of oxygen for back up. The Immigran injections did not not work and the Verapamil, though it has decreased the frequency, isn't stopping it. I do wonder if it is environmental. Microwave tranmissions, both civil and military?

[chavez0001]

Started getting headaches on the right side of my head. Then it got so bad that it woke me up in my sleep and throwing up from the headaches. So painfully I broke down crying and it killed me that I started hitting myself. The pain feels like a nail is being pound into my head with a sharp pain in my eye, my hearing goes and the right side of my head feels as if it well blows open. Very glad that I only have the headaches for 2 months, 3 to 5 time a day. Really do feel for you man, stay strong.

[EnIgMa241175]

I suffer this headache´s cronic version, now for four years. I have ONS-stimulator in my neck and it didn´t help as hoped but gain a little bit better life for me! This is full speed hell to live with and it takes me to the edge! I´m going for a nother surgery soon. They but the ONS also on the other side of my neck. Hopes are high again!

All the best for you!

-EnIgMa-

[1999F399]

I have a disase, Result totally with OXIGEN THERAPHY,

FANTASTICO!! :-))

[OffenburgerJungs]

yeah i have that too my shortest atack was 15 min my longest 6 hours its like your eyeball explod any moment or beien eated from inside out

[muszkavis2]

it`ssss auuutuuumn :D and it means - once a weak :) and it`s just a pain, not a bif f*****g banger! now it`s startin, but i`m sittin here, smokin, cuz i know - it won`t be worse ;) pleasure

[8ways2love]

Yep, mine are back too...

[slasherNxO]

I'm 43 years of age and outside the age for getting clusters apparently but still get them. Twice a day sometimes for around 2 to 4 hours, had them for months. I seem to get them in summer for some reason, pain can start one side of the head then stop for 8 seconds then start again from another part of the head all the time. I get the blocked nose symtom when I have an attack. Using 10mg Rizatriptan and I've just been put on 10mg Propranolol today so we will see how that goes.

[ossium70]

my cycle just started the other day. fortunatly i only get a one to two month stretch every 2 years.

PS. for those who wanna get an idea of the pain take a slush and try and get the worst brain freeze you possibly can for 30 min to and hour. " i think thats the best way i can describe it.

[JephN]

I've been dealing with another recurrence for the past week and a half or so. I hit a 10 the other night. absolutely worse than the last 10. lasted for about 90 minutes. I went back to an 8 as the attack passed, and actually felt relieved! I just got over a 7 about 30 minutes ago.

Great video. Everything summed up very well.

[deadjaybird]

any time i am upset must watch this to cheer me up

[leap2jump]

10 minutes since my 2nd attack of the night I want to post this on here to show how much we ALL SUFFER Only a matter of time before the demon awakes again in my head waiting to show its ugly head what id give to get some painless sleep, for gods sake I cant take it anymore, my heads sore taken my pills nothing works, im staying awake

[david292978]

would it be worse then being first, sliced all over your body with razors, then pouring a mixture of salt, lime, and vineger, then pouring some polish spiritus, and then pouring gasoline and setting the sufferer on fire with a blow tourch, if it really is more painful then that then fuck, ill pray for yu ppl tonite

[Jonnymule]

Start praying, Shithead!

[david292978]

fuck man no disrespect , it was a dumb statement, and i Wasn't being sarcastic if that's what you think

respec to all people with cluster headaches

[95Donna]

This is right on, except with a calm that does not exist during a cycle. I'm a female, 55, had these since I was in my early 20s. Initially you think you have a brain tumor - still amazed to survive them...( i am thin, don't smoke, rarely drink alcohol, and eat pretty healthy -so don't fit "profile") Will try oxygen and wonder has EFT worked for anyone? My heart goes out to all sufferers.

[bmoney916s]

Ohh man! Just starting a cycle again after 2yrs of peace! All I can do is pray for strength to make it through... My heart goes out to all of you!

[didz12345]

Yes mine have just started just over a week ago after like 4/5months of peace, All this time I thought and i was told that it was migraines but its not exactly the same my symptoms are exactly that of a cluster headache, No one will truely ever understand what it feels like untill they actually have one. :(

[muszkavis2]

mine ch are always the same. from 15 to 60 minutes - once or twice a day. now twice, cause it`s summer and the weather changes very often. i`m off. I h8 it but i see some people got much worse than me.

[david292978]

so what do you do when it hits you, and is it realllly that painful, the way some people describe, makes it sound like you would rather just commit a suicide then to go through such pain,,,,,2 times a day if not more

[muszkavis2]

when i just feel it`s coming, i go to bed immediately and lay my head on side that`s starting to hurt. thanks that, it stops before it really starts.when i can`t lay (f.ex. at work) i take 4 deep breaths and then stop breathing till it`s` gettin darker`. then i repeat this. after 15 minutes i`m ok. I see c.h. attacks me less when i don`t drink coffee!! i think cofee is a reason, and the weather pressure changes also. good luck!

[david292978]

jestes Polakiem???

[muszkavis2]

jes ajm from polant kurwa :)

[david292978]

AHA

[londonstal]

just entered my first CH cycle after 15 months of pain free existence. this video pretty much sums it up

[wXLp2oo8]

A very artistic way to tell your story!

I know too...

Love from Holland!

[azmab]

Now celebrating my 20 year anniversary of Cluster headaches and if I were carefully script my thoughts over the past two decadesand put them to video I would end up with what you have posted here. What I think is captured so beautifully is the despair and fear one feels.

After 20 years I still HOPE that my current cycle is my last. Without that hope, the outlook for the remaining years of my life would be grim to the point of being socially paralyzed.

Keep hope alive fellow sufferers.

[Jonnymule]

Keep hope alive my friend, I was chronic for 31 years and then they just went away. Its been over three years since ive had a HA.

YES!, Keep hope alive folks!

[azmab]

Congratulations....and I mean that in all sincerity. Imprisoned for 31 years and finally paroled.

[jnny3000]

@Jonnymule

way to go jonny!

[Flip4910]

@Jonnymule I hope they never come back for you!!!! I heard that sometimes they come back even after, ya know what don't wanna jinx it for you. Congratulations!!!!

[Jonnymule]

@Flip4910

Thank you friend!

[krisbliz]

People try Zolmitriptan helps alot, last year aborted my cycle of pain. Till three days ago :(

[XxHorseluver29xX]

i really don't want to get cluster headaches, how does it feel like? =S

[rachelchunter]

It's meant to be worse pain than child-birth. It says all about it on wikipedia. They say that normal pain-relief doesn't work and may take drastic measures to cure the pain. One doctor even mentioned LSD and "magic-mushrooms" having a positive effect on cluster headaches. Shocking stuff. 0_0

[azmab]

It is impossible to describe. My wife has lived with this along with me and to this day she admits she has no idea what I go through, but sees the daily devastation. By every account it is far worse than childbirth (as reported by women sufferers and worse than artificial amputation. Something that you may be able to relate to, imagine the absolute worst burn you ever got and the pain you were in. Imagine that happening every day of the week, 2-6 times per day. That might come close.

[Just4you87]

im in my third period started about 3 weeks ago but this time it isnt like it was before less pain, had only one attack in the night which was compareable to normal attacks all other attacks ( not even one a day) are much less pain than i expected is that a good sign? i changed my lifestyle a lil bit, doing some sport now and eating some tabletts as dietary supplement, especially iron now, just a "lucky" period or whats going on? sorry for my english greetz from germany

[amber1606]

wow you guys are serious inspirations, this condition interests me so much and reading your stories ..honestly, i cant even imagine what this is like, i work in health care and i am definitely advocating for more awareness of this...people think migraines are bad....stay safe

[akulelakiitu]

thanks for this video

i got CH since 15 years ago

when i got this pain

i'm only think to die

[spidermoon2006]

It looks like SUNCT

have u tried Indomethacin ??

[cantank78]

he has episodic ones, those are nothing compared to my type, chronic cluster, i have them almost everyday the last 7 years

[WowKlayton]

i have been having cluster headaches since i was 7 years old and i have 34 time of 7 years of having them want to kill me self i can barely go to school my mum and teachers get worried are my school life i am getting so depressed i just want them to go away i get them like almost every day i lost over 4 stone in 1 month only drink them are the worse thing the just want to have a normal life but the cluster headaches fucked everything up :(

[SinNanna]

Almost made me cry. So true. I've been suffering from clutser headaches for 2 ears now. It is the worst thing in the world. Great video, I commend you.

[RECBG]

I have been having Cluster Headache for 3 years in periods. My worst one lasted for 12 hours. Trust me the pain makes you wanna die.

[Jonnymule]

12 hours?

Sounds like migraine, see a doc to rule out a tumor also!

[caddymob]

Man, thanks for sharing. I'm having a wicked cluster after a year without... Your video captures the suffering really well.

[AtLastTheCatsBack]

This is a really beautiful video about a brutal subject that I understand all too well. I take some comfort now knowing that there are others of us out there.

[Jonnymule]

I love the video YOU did, man...Its dead fucking on!

[r888iii]

いいビデオですね。

[itchyoldfart]

Yes...Get to see a neurologist tomorrow.....

[r888iii]

headache ? 任せてください。

[itchyoldfart]

2 years ago I had an 8 week bout of excruciating pain in one eye and midway down my neck. They lasted from 20 min. to almost an hour and usually occured twice a day. I had MRI's, CT scans, and 3 doctors diagnosed sinusitis, sinus infection and migraine. By this time the headaches were gone and life was good again. Well as of 2 weeks ago, THE BEAST IS BACK IN IT'S FULL SICKENING BRUTAL FURY. I do believe these are CH's and will seek help in that direction. Bless U all.........

[sirmagnuss]

Thank you for give us a voice!!Gregory

[gilliandtheo]

Thank you for voicing what I feel too... I am 35, female, clusterhead for 12 years. Am heading into cluster season soon, and am already having anxiety attacks about it. Every little niggle makes me think "Oh God - is this the start? Is this a shadow? Or should I just not have had that extra glass of wine last night?".

Thanks again for posting. Good luck.

[dunskie]

I never can believe how horrible each attack is. And I've had hundreds. Maybe thousands. But I never am prepared for the pain. It is amazing that sufferers dont go into shock.Or cardiac arrest.

[freestyle646]

I just turned 14....

The doctors made 3 wrong diagnos's before telling me i had chronic cluster headaches. I'm not responding to any of the medication except oxygen at 15L and its so hard...

[papuette]

Hi everyone. I am Pablo and I suffer of this horrible disease. In Brasil, we have just 2 good specialists, but they are teaching many more. I am an episodic one, and I threat it whit VERAPAMIL CHLORIDRAT. It works, no shadows, no bad sensation. I have this last 33 years. When I have to made a huge decision, the headache gets a trigger. sorry for my bad english.

[dogsoljer]

you have my understanding brother i suffer this madness , this demond storm in my head,

the pain is an unwelcome tresspasser who keeps on comming , and even when i sleep it anounces its presence with bad dreams to wake me heralding another strenght sapping bout of agony,

my understanding to you brother and i wish us all healing and peace, regaurds .

[coanmarc]

lsd25 saved my life - sub-allucinogin dosage. After 12 years of oxigen and imigran I can say this is my first period of remission (no shadows) from 9 months i have nothing. The doctor will give me a psylocybe sub-allucinogin dose on 3 months from now, it's nothing compared with the imigran-terapy during the attaks. Please HAVE CAUTION IT'S DANGER but ask your doctor to help you in this way, psylocybe or lsd works. Incredible I-N-C-R-E-D-I-B-L-E. I'm an ex cronical suffer

[jayarr2k]

Chronic for 14 years.... No days off. Make sure you use OXYGEN. 15 litre flow until its gone. It works, trust me.  If a doc wont prescribe, get another or use welding oxygen. NO prescription required.

Good luck brother.

[Jonnymule]

I own a welding company, 02 is free! :)

[snusan420]

Hi Jonny...new to you tube and what do I see when I search clusters? Your ugly mug! Damn, keep up the awareness dude. OUCH member-the nose

[Jonnymule]

LOL....Hi Sue, 33 years with CH keeps me going!

[Kleverkreep]

Thank you for making this. Everyone needs to understand this. It's like pure hell is injected into your skull. I don't want sympathy, I just want people to understand what we have to go through.

[brettgee]

I had to go to hospital to have my head checked for damage where i bashed it up so much on the bed post. (luckily was only severe bruising) I'm not moaning just saying that it is possible, i know this first hand.

[brettgee]

Hey Jonnymule... i just saw on another clip that you said an 8 hour cluster is not possible. The clip did seem a little bogus but i have had an almost 7 hour cluster attack 4 years ago. Worst time of my life... not even describable... and no i do not suffer from migraines, was throwing my self round the bed, headbutting the bed post and throwing up for hours on end. Suicide was my strongest and only thought for about the last 4 hours of it..

[Waughch641987]

Hey demetanne: It's YOU who needs to stop being so selfish. I get horrible migraines too, but I can just tell that nothing compares to what these people have to go through. Learn some sensitivity.

[blueluckgun]

thnx but it gone now thnx tho

[TRlegendAmandaislush]

cluster headaches are supposed to be some of the most severe pain known to man.

[MorePowerrr]

the scary though of our disease is that ya never know when its gonna happen.....we are walking time bombs....its so scary...

[demetanne]

I dont have them, but I had eye cramp,and migraine to the point I trow UP, so I have an idea......be positive NOt negative....

[MorePowerrr]

Id have a 100 migraines a day rather than have 1 cluster a year....not even close.....thank god u dont have them,. consider urself very lucky

[demetanne]

thanx man, I may just start enjoying them now...what a selfish comment!!!

[blueluckgun]

i have a huge headache right now and it been going on for 5 days any help?????

[raymond759]

Keep the video coming, as others have said, people don't get it. I've broken bones and not noticed them during a cluster attack until it subsided...

[Powderedtoastman79]

I feel your pain. I go through 2-3 cycles a year, and i know there are people worse off than i am. I just thank god i'm episodic and not chronic.

[xylocomod]

with me, it started again, aswell.. but i have a good solution, until neurosurgeries will become more secure in this point. if you are interested in informations and the publication or the method please contact me at the emailaddress theguyatwork at gmail dot com, medical university vienna, departament of neurology, 6A AKH-Wien, Vienna, AUSTRIA, VoIP: +496126591396 (german number) and leave me a message on the voicebox if i'm not available. sven.

[dunskie]

harbirne demonstrates my point. People just don't get it. How could they? Unless they've had one.

[harbime]

The solution is very easy. Mohammad, prophet of Islam was using it whenever he feel headache. It is called "Hijama" in Arabic, "Cupping" in English. It is the process of sucking blod out of the body from the back of the shoulders and nick. It is an immediat e relife of headache pain, and long-lasting effect.

[Jonnymule]

Your an idiot!

[raymond759]

Even if you mean well, you haven't a clue.

[ManUnited007]

the solution is very easy? hahaha -> you definitely have no idea! I have this shit headache since 20 years (I just thank god i'm episodic and not chronic). 13 years I have been treated the wrong way (with hundreds of tablets which didn't help at all) by all the doctors 'cause nobody knows about this headache. now that I know what it is and what I can do about it, I feel a bit better.

I'm with all your cluster heads and wish you that it will stop immediately. painless time for you all.

[dunskie]

I pray to GOD that soon people in this country will become aware of what this is like. I don't think that it is going to happen though. It is almost impossible to believe how severe the agony is unless one has experienced it themselves. I still can't believe it and I have had them for about 18 years now.

[amishelite]

incredible. only us.

[deenava]

nobody understands only us.

fantastic vid.

[snusan420]

amen