Invisible Symptoms in MS Part 1 - National MS Society

[niceybob]

I try to talk myself out having this disease all the time. ..sometimes it is all too clear that I may not win the argument.

[ApolloSol]

@niceybob Tell me about it. I feel fine but I also have a couple of the symptoms. This is killing me.

[diddydee65]

Boy can I relate to these... esp the cognitive issues and vision...and then there is my drunken slur and drunken walk...

[peacefulpony]

The host Kate Milliken looks like a hot vampire.

[generalbomax]

My son (age 14) has just been diagnosed with MS and things that I've been seeing over a period of time are now making sense as to why. Thanks for sharing this video.

[MsLucky443]

UMMMM, I was diagnosed with MS about 10 years ago, I do not get upset that someone tells me I look good.

[o0professional0o]

i had both my hands numb for 1 year and i thought its carpel tunnel syndrom.. but last week i did visit the neurologist and he tested me for carpel tunnel and told me i have it. but a day after i started to feel it in my feet and started to feel itchy my body all over and specialy my face ! i went back to my doctor and told him to check for MS.. today i did a blood test and will do MRI soon.. am 29 single and was planning to get married ! its painful guys to change ur whole plans for ur life !!

[MsLucky443]

@o0professional0o

Do not worry! Infact I would not even get tested for MS. MS is a state of mnd, it is not the end of the world at all! Just forget about it. The meds only hurt you, get married and have kids, live your life. Forget about getting an MRi, the diagnosis can destroy your life, altough MS may not hurt you at all. Also pray to Jesus and delvelop a relationship wiith him. Unite your suffering to Jesus on the cross and you will be able to get thru all.

[lordblest]

@MsLucky443 thx for such an encouraging advice ...

[baierlvids]

Very informative video, but it's not captioned. I was just diagnosed and have deaf family members that I would like to show them this video, but I can't because it's not captioned :(. Also deaf people can get MS too!

[carolemarra111162]

This is the best MS video I've seen by far! Very thorough.

Maybe this will help some people "get it!"

[BlotBlackInk]

I've been having chronic fatigue and weakness for seven years doctors do not know what's wrong with me it seems like i've seen every kind of doctor now except for a neurologist.

[markl1420]

Get a new neruologist. Yours is a moron. Ask around for someone with MS experience.

[lawandasan]

How come there are neurologist that don't seem to know about these wide range of symptoms. My neuro just dismissed my concerns and so my attitude is why bother bringing it up.

[sleekcartim]

@lawandasan Im dealing with this also. VERY frustrating! dealing with all that BS is only making my symptoms worse.. get a clue doctors! ignorant docs are only doing harm!

[kathiharpst]

@lawandasan Where do you live? I'm in the Kansas City area and have a wonderful neurologist.

[lawandasan]

@kathiharpst In Ca, can your neurologist recommend someone in southern california

[Sagembers]

Having MS takes a toll on you even though you seem to be doing ok. Many things cn be going on that are not visible to others.

[mystery8881]

What's the significant difference between fibromyalgia and MS? Any ideas, anyone?

[imgodsfavorite]

@mystery8881

seriously???? well, for one, fibro isn't caused by damage and if you are having a flare it isn't actually damaging your body. it is an over active pain response.firbro has flares and when it passes you are back to mornal. MS is is an uncureable disease where your body attacks your nervous system basically giving you spinal and brain damage. Relapses leave you with scars on the CNS that leave permanent damage. Fibro=some uncomfortable days MS=permanent CNS damage, also try google

[mystery8881]

@imgodsfavorite I don't have "flares".. I'm ALWAYS in pain and I was diagnosed with fibromyalgia..

[imgodsfavorite]

@mystery8881 I am sorry to hear that your fibro isn't following the definition of the disease. if you are not "flaring" then maybe your diagnosis isn't complete. if you truly only have fibro then at least you can take some comfort in knowing that it isn't permanently damaging your body and that you can greatly control your disease through moderate exercise and knowing that there are several medications made just for fibro pain.

[stopbeingnasty]

oook then, gosh i cant wait to get my MRI, im sick of living like this, i kinda hope i have MS at least then i will have an answer to this hell im living......BURNING sensations!!! omg, tingling/burning is like satan him self is attacking me, memory, yip, fatigue, heck yes always tired....and with all the hell now i just want to lie down and die...would be easier....and my family and work mates think its all in my head....bastards.

[sstroup20]

@stopbeingnasty . So sorry to hear about what you are going through. Unfortunately the MRI may not have your answers. many people with MS go through these symptoms for years and years before anything ever turns up on the MRI. If you facebook please look me up. Shawn Morrison Stroup. I can link you to some support groups of people like you and me who are enduring hell.

[MetatroN197924]

@stopbeingnasty .friend i had all this kind of shit 2 weeks ago with great depression and anxiety i run all over the fucking exams mri of brain of spinal cord blood sugar triplex of the legs xray everything,i had 3 days suffering from this shit with my left eye being yellow with pain in the fingers and legs after this hellish 3 days i return to normal with little tingling and burning sensation and my eye is white now.i have to do some more exams,i hope its not lupus,because if it is fuck.

[deepashtray]

What I've found that is a real difficulty regarding invisible symptoms is just my ability to articulate just what it is I'm experiencing. My Dr. is one of the best neurologist in my city and he though I was nuts... until the MRI came back positive.

[Reymona1]

I will send this to my family. People just don't understand it well.

[wysiwyg43]

My quality of life has changed because of MS and not for the better. I'm glad I watched this because I thought I was going mad!

[Miffny]

Helps to understand a bit more of what I along with so many others share with MS. x

[support2gether]

Kate,

How do I email you? I tried but cannot find your email. Had some questions about the vitamins you take, and the doctor you see.

You can email me here.

[zekest]

Kate talks on this video. She is a good talker!!