my mom was diagnosed at 74 now 77,I'm her son caretaker.W/O insurance she'd be dead in the water.Her doctors initially wouldn't think out of the box, I was telling them it wasn't diab. neurop.I took her to the emer rm. when the gait,weakness& confusion was peaking, B.images showed lesions on spine & brain. 2 lumbars inconclusive & no biopsies,responds to steroids.no exacerbations in 18 mnths.. get second opinions if you can don't go with the flow there is such vagueness in the medical community.
My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
My sister was diagnosed with this at 14 shes now 27,... and my mom was recently diagnosed with this in the summer.. it has taken over my family physically,mentally and emotionally... all we can do is be strong. and stay positive for them but it hurts so much just to see them in pain ='[ .... my prayers go out to everyone who is fighting this disease .
My heart goes out to you, Tameka, and all those that are afflicted with MS. My father was diagnosed with this disease in 1967. It was already in its advanced stages. He had a honorable discharge from the army when he was in his late twenties due to some health problems of which I can truly say that this was the onset of his MS. He was bedridden by 1970 and succumbed to the disease on December 24, 1971. God bless you and I hope one day there is a cure for this degenerative disease.
Thank you so much for making this video. I recently visited a great neurologist. He said my symptoms are either from MS or spine tumor or a congenital neurological condition. about 2 months ago I did a CAT scan too( negative results) and had muscle spasm and numbness. I'm seeing my Dr this Monday to do the final diagnosis.till then I have to deal with pain at night and fatigue and numbness in the day. My symptoms become much better in cold weather or when I put my hand in ice==> MS?!!?
How is God good? Hows is Good favoring people? How is there any god at all when people have to live like this? These things are why I am atheist. Im sure Ill get all kinds of responses but seriously folks, If any of you had the power to fix another person, Im sure you would fix them. So if god is real, he/she/it is totally ignoring us. God is the only super heroe that sits back and hears our call for help but does nothing.
God bless you, you are a strong woman, I am terrified I have this too, and your videos with your strength inspire me, thank you. I wish you the best of luck and you will be in my prayers. so will everyone suffering.
MS is not a disease. It's toxemia and weak adrenals/kidneys plays a roll. Switch to a high fruit (or all fruit for a while)100% raw diet and watch the changes happen as you detox your body. Also search Robert Morse ND Multiple Sclerosis Testimonial .You just have to get that lymphatic system of yours moving acids out of the body. Throw the Allopathic thought of "disease" out the window. Remove the cause "what you put in your mouth" and the body will remove the symptoms. Good Luck!
Thank you for sharing. for two years i have had these' feelings'/lack of feeling weird sensations that i can describe in so many ways, and felt like I was imagining it/making it up when I told people if only I was. This is it! I am actually relieved that IT has a name and i know what 'it' is, I have only had MRI which suggests MS but lets face it, suggests is just a nice way of putting it.
Hi, thank you for sharing this. I am experiencing quite a few of the symptoms you have mentioned and am going to see my Doctor this coming Wednesday (7th Sept 2011) It was good to hear you speak about this and for me to realise I am not going crazy with what I am experiencing. At least I now know that if it turns out I do have MS there is a wealth of information and a community on Youtube to turn to.
My son was just diagnosed with MS and one of his symptoms was the eye not following. He also is having a lot of fatigue and stumbling issues. I have been researching so much because he's a quiet person who does not open to his mama like I wish he would. He's 34, and right now his life has been turned around. We are all so in shock. I use to be a nurse for MS patients 10 years ago but I know medications have come out that help. Any advice or more videos will help me to understand it more. Thanks.
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore this blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
I was dx with MS 15 years ago. I do not take meds. I have no symptoms. I take B12, B-complex, fish oil black seed oil, vitamin D and grape seed extract. I follow a raw food diet. That means no meat,poultry, caffeine, alcohol, processed foods, gluten, legumes or dairy. I eat fruits, veggies, nuts, seeds and sea vegetables.
Dr. Joseph Evers of Germany has treated nearly 1,000 cases of multiple sclerosis with diets which included no refined foods but which were composed chiefly of raw foods
I was dx with MS 15 years ago. I do not take meds. I have no symptoms. I take B12, B-complex, black seed oil, vitamin D and grape seed extract. I follow a raw food diet. That means no meat,poultry, caffeine, alcohol, processed foods, gluten, legumes or dairy. I eat fruits, veggies, nuts, seeds and sea vegetables.
Dr. Joseph Evers of Germany has treated nearly 1,000 cases of multiple sclerosis with diets which included no refined foods but which were composed chiefly of raw foods
thanks for putting this video on here . I was shocked that your CT scan came back normal and yet you were diagnosed with MS still ? How did that come about ? I have strange patch on my head and face pain plus some really starnge ones .. anyone got restless toes ? and anyone notice that their fingers involuntry move ? Well you said we were all different ... thanks again
thanks for putting this video on here . I was shocked that your CT scan came back normal and yet you were diagnosed with MS still ? How did that come about ? I have strange patch on my head and face pain plus some really starnge ones .. anyone got restless toes ? and anyone notice that their fingers involuntry move ? Well you said we were all different ;) thanks again
thanks for putting this video on here . I was shocked that your CT scan came back normal and yet you were diagnosed with MS still ? How did that come about ? I have strange patch on my head and face pain plus some really starnge ones .. anyone got restless toes ? and anyone notice that their fingers involuntry move ? Well you said we were all different ;) thanks again X
I had no idea youtube had such awesome people willing to share their MS stories. I have ms too and am trying to find ways to cope with this disease. I have not told anyone iI have this yet. What was it like when you told your family and friends?
Your symptoms are almost identical to mine except for the vision issues. You seem to be coping very well. I don't know if I can say the same. What therapy regimen have you started?
How many people know that chronic Mercury poisoning cause many disease including Multiple Sclerosis? Do you know Dental Amalgam have 50% Mercury and non-stop leaking Mercury vapor? Do you know Sweden have banned the use of Dental Amalgam in their country already?
Also, how many people know that too many vaccine contain Thimerosal (A Mercury compound) as a preservative?
Avoid any Mercury intake, eliminate Mercury from your body and get well.
I think I am having this. I told my doctor about my tingling hands etc and I was ignored basically. I was not given a diagnosis, and the pain on the right side has been here fro a long time. My vision is really bad.
@duvexy how are you this day? I think I am having this too. I like to walk long distances but one day my legs would not carry me all the way...I thought I would fall or lie down in the street but I made it back. I also found walking and steering my body strange. I was swerving towards the right a lot and numbness and tingling in the corner of my mouth (right side) I have done research that when you have a vitamin D deficiency, it can trigger this illness. My doc told me that I needed D supp
@PsalmsNmyrrh True Vitamin D deficiency and also Magnesium deficiency would also cause symptoms like this. I take vitamins and I have also been doing some research from Dr. Sarno. I read his book called the divided mind. His theory is that people can suffer from mind body illness that are just a distraction from the brain. It is on youtube. I hope you get better. I still get the tingling in my spine esp my neck and my feet and hands tingle still.
@duvexy thank you for the book reference. I will look for it. I will see if I can turn it around. I just ordered some things today and look forward to getting better. and I hope you will too. thank you.
I was just told I have MS (Jan 2011) still find it hard to believe. I am not ure how to hande all of it. The videos help, and then some of them scare you to death, staying positive and trying to find my way...
High Saturated Fat diet -> young age (active thymus) -> exposure to herpesviridea or other neurovirus -> high permeability of BBB caused by poor, brittle structure from high saturated fat diet, low levels of vitamin D -> T cells in CNS -> sensitization of T Cells -> later onset of MS -> recovery -> anything that can cause a proper situation for episodes (stress, Epstein Barr, etc.)
Thank you so much, it is hard to get this diagnosed, my doc is completely puzzled. I made an offhand comment that my aunt had MS, but he dismissed it b/c I dont have trouble walking & vision is fine (but I have tinnitus). My intuition lead me to keep researching & you described my symptoms EXACTLY! Then my scan came back negative. But, symptoms remained, tingling, stiff neck, numbness, I know things aren't right. Its been scary but if I know what I'm dealing with it helps a lot. Thanks again.
you are amazing for sharing this....may actually save lives, seriously, cause if others out there feel like me then they may actually go jump off a bridge, i hate this, i just want answers, ok here are my symptoms (over 2 years), burning tingling (worse symptom!) this is worse at night and is in my bottom/pubic area, thighs, fatigue, memory (been bad for years), feel achey all the time, thought i had arthritis! (but dont), im 33 and just want to be normal again, im so glad you shared your story.
@stopbeingnasty without progression you probably have something more benign such as, Benign fasciculation syndrome, or fibromyalgia The only way you can know is if you get an MRI of the spine and cervical spine.
omg omg omg!!! your head was numb "smack bang into the middle of your head"?....those words i have just said to my nuroseurgeon, i have other symptoms and i think after my MRI it will be MS, i kinda hope so as i am going through hell, and i feel so alone as if i had MS i wouldnt feel so alone but i at this point have nothing, and have been told its all in my head by work mates etc.......oh wow still listening to your vid and yip muscles cramping, burning/tingling hurts like hell!!! Thanks
Sorry ran out of room- I was just wondering do you think they will want to do an MRI of brain with contrast or possibly spinal tap?? I appreciate any help you can suggest.. Thanks
Hi there I really like your videos, thanks- I have been going through a whole gammit of symptoms numbness,tingling,weakness,creepy crawly feeling up neck into skull.And from pelvis down both legs. My left foot burns at times and i'm having trouble when i get up from sitting walking. Major fatique and weakness. ETC> No ON but worsening of near sightness & stigmitism. Had Brain MRI w/o contrast and was negative, also EMG of legs and something showed more on right -no results yet-Vit D low.
You are no alone, What I have done is totally go wholistic, meaning, I only eat raw vegetation, and I am 98% symptom free. I manage MS daily with sleep and what I eat, and I have found it to be quite effective. Look at some of my videos, called (The MS Files) at youtube/malibuslimm. MS is like a fingerprint, everyone has different symptoms.
Hi,for the past few years ive had symptoms,numbness in my hands,and face,also heat intolerance. ive had an MRI but all clear. Istill have symptoms which are confusion which are supposed to panic attacks but i know better! Ihave numbness in my face which comes and goes. so what do I do because im at my wits end. Please help!!
Thank you for sharing your experience with us. I thought I was one of the few, who had an array of different symptoms. I was diagnosed last yr 2009, but I recall my first attack=MS hug & left eye vision darkened ten years ago. So, it's been with me for 11 yrs now. I have had just two major relapses since then. I guess that's pretty good, considering the whole picture. Keep hanging in there, there are so many of us on the sidelines of your journey.
do these symptoms change day to day for you? or while you're having a particular symptom (muscle weakness or numbness) does it stay pretty much the same in the same part of your body until it eventually goes away?
God Bless you. I wish you the best. I have MS aswell since 2007 it started. Doctor told me I had it in 2008 of FEBRUARY. Theeze symptoms are very very farmiliar. Your not the only one girl were here wyth ya. MUCH love and support. -SAMSNEE
@sneezln God Bless you too and thanks so much. It's nice to know there is a community of folks out there going through something similar to be able to communicate with and lift each other up. :))
Me too; diagnosed in June 2007. All I can say is that God is good; and for the most part I am doing awesomely well! Believing in full healing! God bless you all. and no you're not in this alone! Be healed and well!!
@smylez2u22 You are welcome :) No, you're not alone and you are not lazy! I actually want to make a video about this very topic. MS can totally zap your energy and it takes some getting use to. Big Hug - Tamika
@MyMSJourney I have been having symptoms for about 12+yrs, that jus the last few yrs and recently have become progressed, all that sound very similiar to what u describe, i also have the tremors which is a challenge; along with the rest.. How do i say this to a dr? i am scared to go bc i dont kno what they can do for me, if it is jus a waste of time.. any advice?
@aks12345678910 Apologies for the delayed response. I still do a ton of proof-reading before sending emails. I will sometimes respond to something close it and read again after a few minutes, then send. My vision is back to normal.
@aks12345678910 I did have a bit of confusion with short term memory and with typing, I would think one thing and type different words, lots of proof-reading was needed. Since my vision was blurred, reading was difficult. - Hope that helps. Be well, Tamika
Hi...I have been attacked with INO only 3 days ago. Neurologist appointment tomorrow...I'm really scared. How long did the INO last in your case and has there been any reoccurances?
@markgann It took 1 week for a proper diagnosis then I was placed on oral Prednisone. After 7 days of oral steroids, proper eye movement was restored. I still had some excess blinking for a couple of weeks, I think you may notice a little of that in this video. I have not had any reoccurances. Best wishes on a resolution, stay in touch! Tamika
I found this video when I was looking up intranuclear ophthalmoplegia to try and get my head around it, as I have exams in about 10 days. Can I just say that you have inspired me a great deal with the way you come across, thankyou.
Personally I enjoy this type of video a lot because I have many of the same symptoms and it makes me feel normal and connected to others. I think describing symptoms is a big service to people who don't yet know they have it so they can recognize what they are experiencing is not normal. You're also a better communicator than many. Keep up the good work.
wow lots going on. Some tips while walking..slow down and pay attention to why you fall so not to do it again. I rolled my ankle, hurt my knee,shoulder. One time fell head first into a table. Be careful. Hope you feel better real soon,
@christinedavi Hi Christine, 4 of my falls were when the INO was flared up and my vision and balance were off. One happened because my knee buckled. I started walking staring at the floor in running shoes which helped. I've had a round of 3 day IV steroid followed by 7 days of oral so most of my symptoms are better now. Thanks for viewing and offering help, I appreciate it. - Tamika
Thanks Tamika for sharing that. I am hopeful that everyone who is doing videos and has MS and actively looking to have the root of the problem treated will do a video. "numbness" to me is a sign of a problem with circulation. I have numbness oddly in the tops of my feet toward my ankles, numb calves and stiffness. I'm so glad you are doing these videos (your intro is nice!) This helps so many people! Hugs, Judy
Can u run warm H20 over ur skin & feel the warmth? I can't feel the heat of the H20. For example: If I get in the hot tub, the temp is 104 degrees. To me, the water feels cold. I also get feelings of frozen blocks of ice in my feet. I have been told the sympathetic nerves are damaged.
When the eye things starts, are you able to focus to drive or do you have to quit driving?
Are you using a cane? This was the hardest part of my journey with RSD which involves the nerves as well. I will be walking and all of the sudden I am down. My leg collapses and/or I lose my balance just standing. My kids say that I am surfing because I put my hands out trying to catch my balance. I resisted the cane for awhile but after falling several times; I realize I have to use it because it just is not safe.
I have numbness feeling in my feet as well in the am & I have found that when I go to get up in the am, I have to swing my legs over the side of the bed and sit with my feet on the floor then slowly start walking as I am sitting down trying to wake up the nerves. My worst part of the day for this & balance is in the early am or if I am over tired.
May it help to know that I am pulling for you. Blessings to you and your family over this Spring Weekend!
@123dietdrpepper I'm glad to hear you are pulling for me, I need it :) You have been so faithful with viewing videos and always commenting. I really do appreciate you!
I have been thru something really big myself, I understand how frightening it can be, and I just want you to know that you are not walking this journey alone. ((Hugs))
@123dietdrpepper No cane, I wear running shoes to help stabilize me, take my time and stop when I need to. It's a bit frustrating but getting better. Big Hug - Tamika
@123dietdrpepper Of course I don't mind questions :) Yes, I can feel the warmth of water. The only adjustments I've had to make with water is not making my showers so hot since heat intensifies MS symptoms. Wow that must be dangerous for you. How do you ensure you're not burning yourself?
@MyMSJourney Since the lack of warmth sensation is in my leg and foot, I simply test the other body parts first. I figure if the remainder of the body can handle the temperature, I will be okay. This is of great concern with my drs because they are very concerned that if I burn myself I may not realize it timely.
You know it is simply just one of those things that you learn to work around with chronic diseases.
@123dietdrpepper For my eyes, when they were flares and I couldn't focus while driving I was told by 3 doctor's not to drive, PCP, Opthamalogist, Neurologist - so I didn't for about 2 weeks until they cleared up with the steroids.
my mom was diagnosed at 74 now 77,I'm her son caretaker.W/O insurance she'd be dead in the water.Her doctors initially wouldn't think out of the box, I was telling them it wasn't diab. neurop.I took her to the emer rm. when the gait,weakness& confusion was peaking, B.images showed lesions on spine & brain. 2 lumbars inconclusive & no biopsies,responds to steroids.no exacerbations in 18 mnths.. get second opinions if you can don't go with the flow there is such vagueness in the medical community.
tjfreak 3 weeks ago
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My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
itunes.apple.com/us/album/jnewryep/id476015357
Blessings
JessicaSunshineMusic 1 month ago
My sister was diagnosed with this at 14 shes now 27,... and my mom was recently diagnosed with this in the summer.. it has taken over my family physically,mentally and emotionally... all we can do is be strong. and stay positive for them but it hurts so much just to see them in pain ='[ .... my prayers go out to everyone who is fighting this disease .
ShesAppealing 1 month ago
My heart goes out to you, Tameka, and all those that are afflicted with MS. My father was diagnosed with this disease in 1967. It was already in its advanced stages. He had a honorable discharge from the army when he was in his late twenties due to some health problems of which I can truly say that this was the onset of his MS. He was bedridden by 1970 and succumbed to the disease on December 24, 1971. God bless you and I hope one day there is a cure for this degenerative disease.
LauraLeeClare 1 month ago
Thank you so much for making this video. I recently visited a great neurologist. He said my symptoms are either from MS or spine tumor or a congenital neurological condition. about 2 months ago I did a CAT scan too( negative results) and had muscle spasm and numbness. I'm seeing my Dr this Monday to do the final diagnosis.till then I have to deal with pain at night and fatigue and numbness in the day. My symptoms become much better in cold weather or when I put my hand in ice==> MS?!!?
babak462 1 month ago
You are so pretty! and thanks for this info i'm experiencing very similar symptoms and am waiting for test results
xXAvrilAtHeartXx 1 month ago
cannabis treats MS naturally and more effectively then toxic Rx drugs
krypekeeper 2 months ago
Bless you. My aunt has MS, and i know how hard it can be sometimes.
TheRandomSweed 2 months ago
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How is God good? Hows is Good favoring people? How is there any god at all when people have to live like this? These things are why I am atheist. Im sure Ill get all kinds of responses but seriously folks, If any of you had the power to fix another person, Im sure you would fix them. So if god is real, he/she/it is totally ignoring us. God is the only super heroe that sits back and hears our call for help but does nothing.
YouPickedTheWrongGuy 2 months ago
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YouPickedTheWrongGuy 2 months ago
You are bless and highly favored!! Do you have a FaceBook page?
jjstuer 3 months ago in playlist More videos from MyMSJourney
God bless you, you are a strong woman, I am terrified I have this too, and your videos with your strength inspire me, thank you. I wish you the best of luck and you will be in my prayers. so will everyone suffering.
C2010X1 3 months ago
I was diagnosed in July 2011. I want to thank you for the videos that you have and you make me want to do a Vlog as well. Stay Blessed
parpar721 3 months ago
stay strong.
Sleepyabess 3 months ago
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Have you looked into natural cures?
4470mike 4 months ago
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MS is not a disease. It's toxemia and weak adrenals/kidneys plays a roll. Switch to a high fruit (or all fruit for a while)100% raw diet and watch the changes happen as you detox your body. Also search Robert Morse ND Multiple Sclerosis Testimonial .You just have to get that lymphatic system of yours moving acids out of the body. Throw the Allopathic thought of "disease" out the window. Remove the cause "what you put in your mouth" and the body will remove the symptoms. Good Luck!
mzimmerman12 4 months ago
You might consider LDN. Stops MS progress harmlessly in almost ALL cases. See YouTubers using it. $1.00 a day or less.
holobody 5 months ago
Thank you for sharing. for two years i have had these' feelings'/lack of feeling weird sensations that i can describe in so many ways, and felt like I was imagining it/making it up when I told people if only I was. This is it! I am actually relieved that IT has a name and i know what 'it' is, I have only had MRI which suggests MS but lets face it, suggests is just a nice way of putting it.
MsCSimmonds 5 months ago
Hi, thank you for sharing this. I am experiencing quite a few of the symptoms you have mentioned and am going to see my Doctor this coming Wednesday (7th Sept 2011) It was good to hear you speak about this and for me to realise I am not going crazy with what I am experiencing. At least I now know that if it turns out I do have MS there is a wealth of information and a community on Youtube to turn to.
Thanks again
Be well
Tracy x
Paganmaiden 6 months ago
My son was just diagnosed with MS and one of his symptoms was the eye not following. He also is having a lot of fatigue and stumbling issues. I have been researching so much because he's a quiet person who does not open to his mama like I wish he would. He's 34, and right now his life has been turned around. We are all so in shock. I use to be a nurse for MS patients 10 years ago but I know medications have come out that help. Any advice or more videos will help me to understand it more. Thanks.
rvquilter83 6 months ago
This has been flagged as spam show
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore this blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
2ndSamuel710 6 months ago
I was dx with MS 15 years ago. I do not take meds. I have no symptoms. I take B12, B-complex, fish oil black seed oil, vitamin D and grape seed extract. I follow a raw food diet. That means no meat,poultry, caffeine, alcohol, processed foods, gluten, legumes or dairy. I eat fruits, veggies, nuts, seeds and sea vegetables.
Dr. Joseph Evers of Germany has treated nearly 1,000 cases of multiple sclerosis with diets which included no refined foods but which were composed chiefly of raw foods
MsTricia8 6 months ago
I was dx with MS 15 years ago. I do not take meds. I have no symptoms. I take B12, B-complex, black seed oil, vitamin D and grape seed extract. I follow a raw food diet. That means no meat,poultry, caffeine, alcohol, processed foods, gluten, legumes or dairy. I eat fruits, veggies, nuts, seeds and sea vegetables.
Dr. Joseph Evers of Germany has treated nearly 1,000 cases of multiple sclerosis with diets which included no refined foods but which were composed chiefly of raw foods
MsTricia8 6 months ago
please hope alive and glam4ms and keep hope alive
TheGlamWay 7 months ago
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thanks for putting this video on here . I was shocked that your CT scan came back normal and yet you were diagnosed with MS still ? How did that come about ? I have strange patch on my head and face pain plus some really starnge ones .. anyone got restless toes ? and anyone notice that their fingers involuntry move ? Well you said we were all different ... thanks again
JOOLZBRUTNELL 8 months ago
thanks for putting this video on here . I was shocked that your CT scan came back normal and yet you were diagnosed with MS still ? How did that come about ? I have strange patch on my head and face pain plus some really starnge ones .. anyone got restless toes ? and anyone notice that their fingers involuntry move ? Well you said we were all different ;) thanks again
JOOLZBRUTNELL 8 months ago
thanks for putting this video on here . I was shocked that your CT scan came back normal and yet you were diagnosed with MS still ? How did that come about ? I have strange patch on my head and face pain plus some really starnge ones .. anyone got restless toes ? and anyone notice that their fingers involuntry move ? Well you said we were all different ;) thanks again X
JOOLZBRUTNELL 8 months ago
I had no idea youtube had such awesome people willing to share their MS stories. I have ms too and am trying to find ways to cope with this disease. I have not told anyone iI have this yet. What was it like when you told your family and friends?
missjenny011 8 months ago
Your symptoms are almost identical to mine except for the vision issues. You seem to be coping very well. I don't know if I can say the same. What therapy regimen have you started?
marteen1974 9 months ago
This has been flagged as spam show
How many people know that chronic Mercury poisoning cause many disease including Multiple Sclerosis? Do you know Dental Amalgam have 50% Mercury and non-stop leaking Mercury vapor? Do you know Sweden have banned the use of Dental Amalgam in their country already?
Also, how many people know that too many vaccine contain Thimerosal (A Mercury compound) as a preservative?
Avoid any Mercury intake, eliminate Mercury from your body and get well.
perryhtc 10 months ago
I think I am having this. I told my doctor about my tingling hands etc and I was ignored basically. I was not given a diagnosis, and the pain on the right side has been here fro a long time. My vision is really bad.
duvexy 10 months ago
@duvexy how are you this day? I think I am having this too. I like to walk long distances but one day my legs would not carry me all the way...I thought I would fall or lie down in the street but I made it back. I also found walking and steering my body strange. I was swerving towards the right a lot and numbness and tingling in the corner of my mouth (right side) I have done research that when you have a vitamin D deficiency, it can trigger this illness. My doc told me that I needed D supp
PsalmsNmyrrh 9 months ago
@PsalmsNmyrrh True Vitamin D deficiency and also Magnesium deficiency would also cause symptoms like this. I take vitamins and I have also been doing some research from Dr. Sarno. I read his book called the divided mind. His theory is that people can suffer from mind body illness that are just a distraction from the brain. It is on youtube. I hope you get better. I still get the tingling in my spine esp my neck and my feet and hands tingle still.
duvexy 9 months ago
@duvexy thank you for the book reference. I will look for it. I will see if I can turn it around. I just ordered some things today and look forward to getting better. and I hope you will too. thank you.
PsalmsNmyrrh 9 months ago
I was just told I have MS (Jan 2011) still find it hard to believe. I am not ure how to hande all of it. The videos help, and then some of them scare you to death, staying positive and trying to find my way...
buppian1 1 year ago
High Saturated Fat diet -> young age (active thymus) -> exposure to herpesviridea or other neurovirus -> high permeability of BBB caused by poor, brittle structure from high saturated fat diet, low levels of vitamin D -> T cells in CNS -> sensitization of T Cells -> later onset of MS -> recovery -> anything that can cause a proper situation for episodes (stress, Epstein Barr, etc.)
seekirk 1 year ago
Thank you so much, it is hard to get this diagnosed, my doc is completely puzzled. I made an offhand comment that my aunt had MS, but he dismissed it b/c I dont have trouble walking & vision is fine (but I have tinnitus). My intuition lead me to keep researching & you described my symptoms EXACTLY! Then my scan came back negative. But, symptoms remained, tingling, stiff neck, numbness, I know things aren't right. Its been scary but if I know what I'm dealing with it helps a lot. Thanks again.
jtking2504 1 year ago
also do your symptoms get worse after exercise? for example if doing gardening will you be in pain after wards?
stopbeingnasty 1 year ago
you are amazing for sharing this....may actually save lives, seriously, cause if others out there feel like me then they may actually go jump off a bridge, i hate this, i just want answers, ok here are my symptoms (over 2 years), burning tingling (worse symptom!) this is worse at night and is in my bottom/pubic area, thighs, fatigue, memory (been bad for years), feel achey all the time, thought i had arthritis! (but dont), im 33 and just want to be normal again, im so glad you shared your story.
stopbeingnasty 1 year ago
@stopbeingnasty without progression you probably have something more benign such as, Benign fasciculation syndrome, or fibromyalgia The only way you can know is if you get an MRI of the spine and cervical spine.
guitarobsessed85 1 year ago
omg omg omg!!! your head was numb "smack bang into the middle of your head"?....those words i have just said to my nuroseurgeon, i have other symptoms and i think after my MRI it will be MS, i kinda hope so as i am going through hell, and i feel so alone as if i had MS i wouldnt feel so alone but i at this point have nothing, and have been told its all in my head by work mates etc.......oh wow still listening to your vid and yip muscles cramping, burning/tingling hurts like hell!!! Thanks
stopbeingnasty 1 year ago
Sorry ran out of room- I was just wondering do you think they will want to do an MRI of brain with contrast or possibly spinal tap?? I appreciate any help you can suggest.. Thanks
tiredofbeingsick 1 year ago
Hi there I really like your videos, thanks- I have been going through a whole gammit of symptoms numbness,tingling,weakness,creepy crawly feeling up neck into skull.And from pelvis down both legs. My left foot burns at times and i'm having trouble when i get up from sitting walking. Major fatique and weakness. ETC> No ON but worsening of near sightness & stigmitism. Had Brain MRI w/o contrast and was negative, also EMG of legs and something showed more on right -no results yet-Vit D low.
tiredofbeingsick 1 year ago
You are no alone, What I have done is totally go wholistic, meaning, I only eat raw vegetation, and I am 98% symptom free. I manage MS daily with sleep and what I eat, and I have found it to be quite effective. Look at some of my videos, called (The MS Files) at youtube/malibuslimm. MS is like a fingerprint, everyone has different symptoms.
malibuslimm 1 year ago
Hi,for the past few years ive had symptoms,numbness in my hands,and face,also heat intolerance. ive had an MRI but all clear. Istill have symptoms which are confusion which are supposed to panic attacks but i know better! Ihave numbness in my face which comes and goes. so what do I do because im at my wits end. Please help!!
tonyurmate 1 year ago
I think my 17 yr old son has this.. :'( // he has been diagnosed with the internuclear opthalmoplegia
MISSIVELISSE 1 year ago
Thank you for sharing your experience with us. I thought I was one of the few, who had an array of different symptoms. I was diagnosed last yr 2009, but I recall my first attack=MS hug & left eye vision darkened ten years ago. So, it's been with me for 11 yrs now. I have had just two major relapses since then. I guess that's pretty good, considering the whole picture. Keep hanging in there, there are so many of us on the sidelines of your journey.
CeliTan7 1 year ago
do these symptoms change day to day for you? or while you're having a particular symptom (muscle weakness or numbness) does it stay pretty much the same in the same part of your body until it eventually goes away?
TheRavenHunter 1 year ago
God Bless you. I wish you the best. I have MS aswell since 2007 it started. Doctor told me I had it in 2008 of FEBRUARY. Theeze symptoms are very very farmiliar. Your not the only one girl were here wyth ya. MUCH love and support. -SAMSNEE
By THE way the HEAT SUCKS.
sneezln 1 year ago
@sneezln God Bless you too and thanks so much. It's nice to know there is a community of folks out there going through something similar to be able to communicate with and lift each other up. :))
MyMSJourney 1 year ago
@sneezln
Me too; diagnosed in June 2007. All I can say is that God is good; and for the most part I am doing awesomely well! Believing in full healing! God bless you all. and no you're not in this alone! Be healed and well!!
pprimm98 3 months ago
Comment removed
ThereminWeirdo 2 months ago
Thank you.... I'm having issues w/ my MS.. Similar to yours.. Its 'comforting' to know I'm not alone.. I'm not nuts.. and I'm not just being lazy..
smylez2u22 1 year ago 2
@smylez2u22 You are welcome :) No, you're not alone and you are not lazy! I actually want to make a video about this very topic. MS can totally zap your energy and it takes some getting use to. Big Hug - Tamika
MyMSJourney 1 year ago
@MyMSJourney I have been having symptoms for about 12+yrs, that jus the last few yrs and recently have become progressed, all that sound very similiar to what u describe, i also have the tremors which is a challenge; along with the rest.. How do i say this to a dr? i am scared to go bc i dont kno what they can do for me, if it is jus a waste of time.. any advice?
jahquahnah 7 months ago
do u still hv this problem?
aks12345678910 1 year ago
@aks12345678910 Apologies for the delayed response. I still do a ton of proof-reading before sending emails. I will sometimes respond to something close it and read again after a few minutes, then send. My vision is back to normal.
MyMSJourney 1 year ago
i wanted to know if u had balance problems in thinking as im finding difficult y in readingor following something...
aks12345678910 1 year ago
@aks12345678910 I did have a bit of confusion with short term memory and with typing, I would think one thing and type different words, lots of proof-reading was needed. Since my vision was blurred, reading was difficult. - Hope that helps. Be well, Tamika
MyMSJourney 1 year ago
Hi...I have been attacked with INO only 3 days ago. Neurologist appointment tomorrow...I'm really scared. How long did the INO last in your case and has there been any reoccurances?
markgann 1 year ago
@markgann It took 1 week for a proper diagnosis then I was placed on oral Prednisone. After 7 days of oral steroids, proper eye movement was restored. I still had some excess blinking for a couple of weeks, I think you may notice a little of that in this video. I have not had any reoccurances. Best wishes on a resolution, stay in touch! Tamika
MyMSJourney 1 year ago
I found this video when I was looking up intranuclear ophthalmoplegia to try and get my head around it, as I have exams in about 10 days. Can I just say that you have inspired me a great deal with the way you come across, thankyou.
icklepickle73 1 year ago
@icklepickle73 I love hearing that. My INO completely cleared up after a round of steroids. Best wishes to you.
MyMSJourney 1 year ago
Personally I enjoy this type of video a lot because I have many of the same symptoms and it makes me feel normal and connected to others. I think describing symptoms is a big service to people who don't yet know they have it so they can recognize what they are experiencing is not normal. You're also a better communicator than many. Keep up the good work.
gphx 1 year ago
@gphx Thanks very much for the nice comment! I appreciate it.
MyMSJourney 1 year ago
God Bless you sweetie! Stay Strong and with lots of FAITH :)
maxfaith28 1 year ago
@maxfaith28 Will do, thanks :))
MyMSJourney 1 year ago
I cant relate to most of your symptoms,
thank you for sharing
Omar
omexmc80 1 year ago
@omexmc80 Thanks for viewing
MyMSJourney 1 year ago
wow lots going on. Some tips while walking..slow down and pay attention to why you fall so not to do it again. I rolled my ankle, hurt my knee,shoulder. One time fell head first into a table. Be careful. Hope you feel better real soon,
christine
christinedavi 1 year ago
@christinedavi Hi Christine, 4 of my falls were when the INO was flared up and my vision and balance were off. One happened because my knee buckled. I started walking staring at the floor in running shoes which helped. I've had a round of 3 day IV steroid followed by 7 days of oral so most of my symptoms are better now. Thanks for viewing and offering help, I appreciate it. - Tamika
MyMSJourney 1 year ago
Thanks Tamika for sharing that. I am hopeful that everyone who is doing videos and has MS and actively looking to have the root of the problem treated will do a video. "numbness" to me is a sign of a problem with circulation. I have numbness oddly in the tops of my feet toward my ankles, numb calves and stiffness. I'm so glad you are doing these videos (your intro is nice!) This helps so many people! Hugs, Judy
donotconcede 1 year ago
@donotconcede Thanks!
MyMSJourney 1 year ago
I hope you don't mind but I have a couple ?'s
Can u run warm H20 over ur skin & feel the warmth? I can't feel the heat of the H20. For example: If I get in the hot tub, the temp is 104 degrees. To me, the water feels cold. I also get feelings of frozen blocks of ice in my feet. I have been told the sympathetic nerves are damaged.
When the eye things starts, are you able to focus to drive or do you have to quit driving?
123dietdrpepper 1 year ago
Are you using a cane? This was the hardest part of my journey with RSD which involves the nerves as well. I will be walking and all of the sudden I am down. My leg collapses and/or I lose my balance just standing. My kids say that I am surfing because I put my hands out trying to catch my balance. I resisted the cane for awhile but after falling several times; I realize I have to use it because it just is not safe.
123dietdrpepper 1 year ago
I have numbness feeling in my feet as well in the am & I have found that when I go to get up in the am, I have to swing my legs over the side of the bed and sit with my feet on the floor then slowly start walking as I am sitting down trying to wake up the nerves. My worst part of the day for this & balance is in the early am or if I am over tired.
May it help to know that I am pulling for you. Blessings to you and your family over this Spring Weekend!
123dietdrpepper 1 year ago
@123dietdrpepper I'm glad to hear you are pulling for me, I need it :) You have been so faithful with viewing videos and always commenting. I really do appreciate you!
MyMSJourney 1 year ago
I have been thru something really big myself, I understand how frightening it can be, and I just want you to know that you are not walking this journey alone. ((Hugs))
123dietdrpepper 1 year ago
@123dietdrpepper No cane, I wear running shoes to help stabilize me, take my time and stop when I need to. It's a bit frustrating but getting better. Big Hug - Tamika
MyMSJourney 1 year ago
@123dietdrpepper Of course I don't mind questions :) Yes, I can feel the warmth of water. The only adjustments I've had to make with water is not making my showers so hot since heat intensifies MS symptoms. Wow that must be dangerous for you. How do you ensure you're not burning yourself?
MyMSJourney 1 year ago
@MyMSJourney Since the lack of warmth sensation is in my leg and foot, I simply test the other body parts first. I figure if the remainder of the body can handle the temperature, I will be okay. This is of great concern with my drs because they are very concerned that if I burn myself I may not realize it timely.
You know it is simply just one of those things that you learn to work around with chronic diseases.
123dietdrpepper 1 year ago
@123dietdrpepper For my eyes, when they were flares and I couldn't focus while driving I was told by 3 doctor's not to drive, PCP, Opthamalogist, Neurologist - so I didn't for about 2 weeks until they cleared up with the steroids.
MyMSJourney 1 year ago