The only way a doctor can understand anything about Lyme disease is if he or she were to get it. Most doctors in America are phonys who think they know more than they do. When are we going to wake up to this overly-paid, overly romanticized profession that does not deserve the power, authority, or money it is given. When a doctor misinforms or misdiagnoses a patient he should be sent to prison, like any common criminal who hurts another person.
The lady being interviewed doesnt know. I was put on Doxy back when i got the tick for 6 weeks and now 8 years later i have chronic lyme disease. speak with the patents next time to find out the truth doctors dont know crap.
That women interviewed was wrong. And she was clearly speaking on behalf if the IDADS. 60 days of doxy the day I picked the tick off of me, did absolutely nothing to me. 4 years later, still trying to get my old self back. It is much worse than she esplains later. Panic attacks, fainting, in so much pain that you cannot walk, pounding head. It is like turning 95 over night.
The best doctors are those who have been infected because they then know the horror of it all first hand. I speak from experience nothing worked until IV began & I cannot give you a fairytale ending as I am still on it but if anyone wants to talk you can reach me via my channel where there is a link to my own website. Yours Lizzie Lane
You don't have to "roll in the grass" to get Lyme Disease. How about walking with sandals on in your own yard? She made it sound like it's difficult to get or something. She did mention that it is the #1 infectious disease--well, it is for a reason--it's easy to contract! I'm a city person and can honestly say, I've never rolled in grass or hiked in the woods and yet, I have Lyme Disease. Go figure!
Re: co-infections: Tick bite/EM rash/ER Lyme diagnosis 6/14/2002 Santa Rosa, CA. Doxy/amox 21 days. Tested negative for babesiosis, bartonella, erlichiosis in Eugene, Or. Then 30 days Cefuroxime 2X standard dose (per ILADS Burrascano guidlines) low-income clinic, Boise, ID 10/02-11/02. Western Blot sent to CDC Fort Collins from ER/Catholic hospital/Boise. They refused to tell me the results ("You have to get results through primary care." Primary care: "No appts. until 6 months from now.")
Please see my comments below and on my personal profile here (click my name 'Azorka' and it will show on the left across from my favorite videos). I have to say the comments below sound like, especially with the capital letters, propaganda. From Camp A or Camp B. That's why I question both sides. Which has only gotten me kicked off LymeNet countless times. But there is nothing wrong with that. The questions are sincere and necessary.
Lyme CAN & USUALLY DOES affect ANY &/or ALL bodily systems! Lyme patients aren't getting PROPERLY diagnosed ON TIME (if AT ALL), & THAT'S WHEN LYME BECOMES CHRONIC! The CHRONICALLY ILL make drug co.'s, hospitals, etc. VERY RICH (they're in cohoots w/the CDC, IDSA, etc...these gov't agencies print BOGUS guidelines regarding Lyme, allowing patients to become CHRONIC, then they DENY CHRONIC Lyme EXISTS)!!!
(cont'd): ...ANOTHER illness! You NEED to use a Lyme Literate doctor (problem w/that is, insurance co.'s DON'T work w/them, since they only go by the BOGUS diagnosing & treatment guidelines of the IDSA & CDC)!!! AT THE VERY LEAST, MAKE SURE THAT YOUR DR. SENDS YOUR INITIAL BLOOD TEST TO 1 OF THE ONLY 2 COMPETENT & UNBIASED LABS IN THE COUNTRY/WORLD: IGENEXLAB IN PALO ALTO, CA & CENTRAL FLORIDA RESEARCH IN LAKE ALFRED, FL!!!
Azorka82: You OBVIOUSLY either were NOT put on Doxycycline SOON ENOUGH, &/or did NOT take it LONG ENOUGH, &/or did not take it PROPERLY (including NOT taking any vitamin w/iron, calcium, &/or magnesium w/in 3 hours of ingesting Doxycycline...you also should NOT ingest any foods w/high levels of those things w/in 2 hours of ingesting Doxycycline)! You see, Doxy DOES help when taken PROPERLY (the only other reason for your continued symptoms, is that you were MISdiagnosed, & indeed had (cont'd)
The first comment is very descriptive of Lyme disease being like a wrapped up mummy. Have often had that sensation though not nearly as much as depicted here. I've described it as having on a hood and the relief one feels to get it off. Only with Lyme disease you can't get it off. You have to suffer the sensation. But personally I'm getting worse (after 2002 tick bite/rash/ER diagnosis), so that the numbness in all four limbs may increase at some point to the mummy-like state described. Scary.
This starts out good, but then ends up promoting antibiotics for initial (acute) Lyme disease. I'm skeptical. See my YouTube personal profile here for more detail, but I had the tick bite/rash/ER diagnosis--ideal situation for being easily cured. Note the rash was the only symptom until taking the doxy. Then developed malaria type vision (distorted like when you have a high fever), numbness/tingling in hands/forearms, stiff neck, flu-like symptoms, etc. "Herx" or antibiotic induced Lupus?
If not chronic (tertiary) bacterial spirochette, then wondering if the "Post-Lyme disease auto-immune syndrome" is actually antibiotic (doxycycline) induced lupus. Feedback? Thanks...
Doxy crosses the blood brain barrier. Leading Lyme researcher, Sam Donta,(and who appears to be pro-antibiotic) said he isn't certain Lyme spirochette *ever* crosses the BBB. So why so severe an antibiotic as doxy when amoxicillin is sufficient enough to kill the spirochette (but doesn't cross the BBB nearly as much as doxy)? MS is described as a disease of the BBB. Connection to antibiotics causing these auto-immune diseases since they're in experimental stage with sending them across BBB?
I was treated with doxy, it did not work for me. My baby was treated with amoxy and was cured. My dog was treated with doxy too, he is as bad off as I am.
Amen @ Thedogribs
Jburdo4680 1 year ago
Don't have an explanation? WHAT? They still have lyme disease
biglogstrongman 1 year ago
The only way a doctor can understand anything about Lyme disease is if he or she were to get it. Most doctors in America are phonys who think they know more than they do. When are we going to wake up to this overly-paid, overly romanticized profession that does not deserve the power, authority, or money it is given. When a doctor misinforms or misdiagnoses a patient he should be sent to prison, like any common criminal who hurts another person.
TheDogRibs 2 years ago
The lady being interviewed doesnt know. I was put on Doxy back when i got the tick for 6 weeks and now 8 years later i have chronic lyme disease. speak with the patents next time to find out the truth doctors dont know crap.
synchrogirl21 3 years ago 3
Comment removed
Prethenie 3 years ago
That women interviewed was wrong. And she was clearly speaking on behalf if the IDADS. 60 days of doxy the day I picked the tick off of me, did absolutely nothing to me. 4 years later, still trying to get my old self back. It is much worse than she esplains later. Panic attacks, fainting, in so much pain that you cannot walk, pounding head. It is like turning 95 over night.
30378209 3 years ago 2
The best doctors are those who have been infected because they then know the horror of it all first hand. I speak from experience nothing worked until IV began & I cannot give you a fairytale ending as I am still on it but if anyone wants to talk you can reach me via my channel where there is a link to my own website. Yours Lizzie Lane
leesbet 3 years ago
You don't have to "roll in the grass" to get Lyme Disease. How about walking with sandals on in your own yard? She made it sound like it's difficult to get or something. She did mention that it is the #1 infectious disease--well, it is for a reason--it's easy to contract! I'm a city person and can honestly say, I've never rolled in grass or hiked in the woods and yet, I have Lyme Disease. Go figure!
12thJupiter 3 years ago
Re: co-infections: Tick bite/EM rash/ER Lyme diagnosis 6/14/2002 Santa Rosa, CA. Doxy/amox 21 days. Tested negative for babesiosis, bartonella, erlichiosis in Eugene, Or. Then 30 days Cefuroxime 2X standard dose (per ILADS Burrascano guidlines) low-income clinic, Boise, ID 10/02-11/02. Western Blot sent to CDC Fort Collins from ER/Catholic hospital/Boise. They refused to tell me the results ("You have to get results through primary care." Primary care: "No appts. until 6 months from now.")
Azorka82 3 years ago
Please see my comments below and on my personal profile here (click my name 'Azorka' and it will show on the left across from my favorite videos). I have to say the comments below sound like, especially with the capital letters, propaganda. From Camp A or Camp B. That's why I question both sides. Which has only gotten me kicked off LymeNet countless times. But there is nothing wrong with that. The questions are sincere and necessary.
Azorka82 3 years ago
co-infections??? the treatments are different-
babesoia-bartonella? parasites
sickfrmtick 3 years ago
Lyme CAN & USUALLY DOES affect ANY &/or ALL bodily systems! Lyme patients aren't getting PROPERLY diagnosed ON TIME (if AT ALL), & THAT'S WHEN LYME BECOMES CHRONIC! The CHRONICALLY ILL make drug co.'s, hospitals, etc. VERY RICH (they're in cohoots w/the CDC, IDSA, etc...these gov't agencies print BOGUS guidelines regarding Lyme, allowing patients to become CHRONIC, then they DENY CHRONIC Lyme EXISTS)!!!
igspal 3 years ago
CLARIFICATION!: The patients in this report ARE REAL, but the OTHER people interviewed do NOT TELL THE WHOLE TRUTH RE LYME)!!!
igspal 3 years ago
Btw, this GMA report is only 50% TRUE (to learn the WHOLE TRUTH about this HEALTH CRISIS, you MUST read comments from REAL Lyme patients)!!!!!!!!!!
igspal 3 years ago
(cont'd): ...ANOTHER illness! You NEED to use a Lyme Literate doctor (problem w/that is, insurance co.'s DON'T work w/them, since they only go by the BOGUS diagnosing & treatment guidelines of the IDSA & CDC)!!! AT THE VERY LEAST, MAKE SURE THAT YOUR DR. SENDS YOUR INITIAL BLOOD TEST TO 1 OF THE ONLY 2 COMPETENT & UNBIASED LABS IN THE COUNTRY/WORLD: IGENEXLAB IN PALO ALTO, CA & CENTRAL FLORIDA RESEARCH IN LAKE ALFRED, FL!!!
igspal 3 years ago
Azorka82: You OBVIOUSLY either were NOT put on Doxycycline SOON ENOUGH, &/or did NOT take it LONG ENOUGH, &/or did not take it PROPERLY (including NOT taking any vitamin w/iron, calcium, &/or magnesium w/in 3 hours of ingesting Doxycycline...you also should NOT ingest any foods w/high levels of those things w/in 2 hours of ingesting Doxycycline)! You see, Doxy DOES help when taken PROPERLY (the only other reason for your continued symptoms, is that you were MISdiagnosed, & indeed had (cont'd)
igspal 3 years ago
The first comment is very descriptive of Lyme disease being like a wrapped up mummy. Have often had that sensation though not nearly as much as depicted here. I've described it as having on a hood and the relief one feels to get it off. Only with Lyme disease you can't get it off. You have to suffer the sensation. But personally I'm getting worse (after 2002 tick bite/rash/ER diagnosis), so that the numbness in all four limbs may increase at some point to the mummy-like state described. Scary.
Azorka82 3 years ago
This starts out good, but then ends up promoting antibiotics for initial (acute) Lyme disease. I'm skeptical. See my YouTube personal profile here for more detail, but I had the tick bite/rash/ER diagnosis--ideal situation for being easily cured. Note the rash was the only symptom until taking the doxy. Then developed malaria type vision (distorted like when you have a high fever), numbness/tingling in hands/forearms, stiff neck, flu-like symptoms, etc. "Herx" or antibiotic induced Lupus?
Azorka82 3 years ago
If not chronic (tertiary) bacterial spirochette, then wondering if the "Post-Lyme disease auto-immune syndrome" is actually antibiotic (doxycycline) induced lupus. Feedback? Thanks...
Azorka82 3 years ago
I am alergic to pennicilan.
30378209 3 years ago
Doxy crosses the blood brain barrier. Leading Lyme researcher, Sam Donta,(and who appears to be pro-antibiotic) said he isn't certain Lyme spirochette *ever* crosses the BBB. So why so severe an antibiotic as doxy when amoxicillin is sufficient enough to kill the spirochette (but doesn't cross the BBB nearly as much as doxy)? MS is described as a disease of the BBB. Connection to antibiotics causing these auto-immune diseases since they're in experimental stage with sending them across BBB?
Azorka82 3 years ago
I was treated with doxy, it did not work for me. My baby was treated with amoxy and was cured. My dog was treated with doxy too, he is as bad off as I am.
30378209 3 years ago
Have written an informative brochure with the help of 2 Lyme specialists. Will email to anyone.
Elaine in VA
ecftube 3 years ago