Help CURE Pulmonary Hypertension

[harpersteven]

Thanks it was my ex girlfriend using my account when we were together. Not everything is as black and White with transplants and relationships. Transplants put alot of pressure on relationships. It's hard to deal with and hard to live with someone.

[maciemills]

my mom died from pulmonary hypertension wen i was 2....they didint know what it was untill it was to late .....i am praying for everybody who has ph ....yall are very strong.

[harpersteven]

DOn't give up hope.... I nearly died from PH with 20 years old. I never thought i'd turn 21 but I got a double lungs and heart transplant last January. Today I am absolutely fine. I can walk, I can live. It is a new life...

[vikingscool]

I know. I have flolan for PPH class 1. It's good to me. I don't need to get a double lungs and or heart transplant that too much pain for me. Ugh. But I happy for you. :) Good luck, keep up going!

[maciemills]

@harpersteven you are a very strong women...

[vikingscool]

I know about PH isn't curable. Sadly. But good news there is treatment able for me and PPH people who want to live long.

[politimaki]

I was diagnosed almost two years ago with idiopatic ph. I am currently on Flolan, letairis, Revatio and coumadin, I was stage four when diagnosed but have had a very good rersponse to treatment and am currently stage two. They doctor is switcing me to Remoudalin in three weeks. Hang in there , treatment is available. Good luck to bothof you.

[mjvg1]

I have pulmonary hypertension I am 15 but thanks god Iam ok

[Brencin]

Our prayers are with you.

[Littleangelgrr]

I am 20 from France ... got PAH too .. I am desperately waiting for a double lungs and heart transplant...

[Brencin]

Good luck with the transplant, I know it will be difficult but at least it gives you hope....my prayers are with you!

[vikingscool]

I have PPH. My prayers are with you! God bless you.

[harpersteven]

THanks a lot... Just wanted to say that i got a double lungs and heart transplant in January. It was hard but boday i've got a new life...I'm absolutely fine and experienced my 21 years old in June! There is hope... Don't give up! WIll post a video soon to talk about my experience

[RabidNurse]

my mom was just diagnosed with PH, its secondary to her lung disease Pulmonary Alveolar Proteinosis or (PAP) no cure for this either. She is 46 :(

[Brencin]

I am so sorry to hear about your mother also, and so young, there are so many new meds out there now, but i know first hand how difficult it is to hear about your mother, my prayers are with you.

[iwishyouwerehere000]

my mom has PH.

was diagnosed in '98.

she is on Hospice care now.

[Brencin]

I'm so sorry to hear that, my prayers are with you. I know how tough it is, my mom is on everything possible at this point to keep her going. And she was only diagnosed 1 1/2 years ago, and hers is severe. So I pray i have her for xmas this year.

[whyme1177]

This is bullshit, its all the FDA's and Pharmecutical companies faults, trying to treat not cure.

[RustyRagnarok]

I have PPH.

Diagnosed 4 years ago, had it for probably over 5 or 6.

Sucks to have to deal with it, and I have the primary version.

Please help cure and support this disease, and you can donate to ph association.

[Brencin]

Thanks so much for the comment and my prayers are with you also, as I know how tough it is.

[Truthy]

I know a 26 year old who was diagnosed with Pulmonary Hypertension due to her ongoing struggle with the rare blood disorder, Elliptocytosis. If anyone has more info, please help. Coolcat1211, I hope your Mom's health improves, please remain positive and tell her to do the same. You and your families mental disposition will indeed assist the physical rehabilitation.

[Brencin]

I am sorry to hear about you and i will say a prayer for you. With this disease the only cure is a transplant and she is not qualified as she got diagnosed after having heart failure on her 70th birthday. Today she is 71 and i pray she makes 72.

[coolcat1211]

Lord, Please help my mom today she is getting taken away by the hospitale please help!

[Brencin]

Our prayers are with you