Faces of Lupus II

[whitneylove1369]

I'm 20 and my family cant understand whats happening to me. I wake up and I'm tired. I just want to go back to bed. I'm always in pain and I'm tired. I'm starting to get red in my face and I'm losing all my hair. I'm so scared that one night when I go to bed I wont wake up. My family doesn't understand. They all call me lazy and tell me its not as bad as I'm making it to be. I'm tired of always hurting. I'm tired of being scared. I'm tired of dealing with this alone.

[taylorcam321]

my twin sister and i both were diagnosed with lupus she at age 11 me at age 12 now were 14 its been a bumpy road and alot of things have happened so far but i got her and she has me and we understand each others pains and were both fighting every single day. were P.U.S.Hing and making it. :)

[agetlostgirl]

I had always wanted to be a doctor before I got really sick but now with great treatment im going back

[THINKING301]

I just got diagnosed..and I'm only 14 :/

[xxtasha10xx]

@THINKING301 Can you please tell me your symptoms? I think I may have lupus but the internet isn't much good to thoroughly give the symptoms in detail..You can PM me if you feel it is private :\ I'm just really scared.

[sadihymas]

im just found out i have lupus im all was tired and its hard to explan to my family that im sic with this im 25 years old and. im so scared i have a friend that has it and i see what she is going threw nd im going thre it i sleep alot and i have bad joint pain and the rashes on my face are so inbaracing every body just keeps asking why is your face red and its going to be hard to explan to them what i have . im just scared

[yumygelica]

last week (7-7-2011) my doctor said that i might have lupus erythematosus so he put me in a medication called hydroxychlor for a month, then they'll do some testing (taking lost of blood out of me) to check if the medicine helped or not. before he told me i might have it, i had never had heard of lupus, but now i know what it is & to be honest, i'm very afraid because i'm only 16 years old & no body in my family that i know has these. so i'm praying that these medicine helps & give us answers

[modelnsinginme19]

@yumygelica wishing you the best..i have had lupus for 6 years now and I was diagnosed at 16. Stay Positive!

[davekat]

I watched a friend of mine fight lupus for many years. Sadly, lupus recently attacked her and ended her life. I guess when she was diagnosed not alot was known about lupus or treatments for it. I have now come to understand how difficult living must have been for this extrordinary woman who loved her life. In the end her kidneys failed and she was gone. I miss Pauline terribly my heart and hope that a cure for lupus will be found sooner rather than later. One life lost is one life to many

[beka430]

can lupus speard form person to person???

[sd46323]

@beka430 No it cannot. It is an autoimmune disease.

[polaris911]

Great vid. Whats the song in the credits? I tried searching those sites and I can't find it.. =/

[lovesfreedomtoo]

I also hope to never hear, But you don't LOOK sick or be called a hypochondriac again. I want people to educate themselves about this disease. I am lucky in that my husband is very supportive & that means the world to me. But I know there are times when he is tired of the trips to the hospital

[lovesfreedomtoo]

The drugs make me feel worse, oh the weight gain, moon face with prednisone, what a harsh medication it is, when I was diagnosed, I felt so isolated because few people understood what it means to have Lupus. I don't think I have an organ that has not been affected. There are times when I just can't get out of bed & I feel guilty for not being able to work or keep the house as clean as I want. I pray for a cure & meds that don't have the horrible side affects.

[RaymondFRevalee]

i think it was beta blockers that has made my dear mother ill, with lupus/dermatomyositis ... i hate her doctor and despise the FDA ompletely. They are death merchants and the doctors are their dealers.

[MsMightyisis]

My sons father had lupus, when I found out he was 36 and they told him he only had to years to live. He was on alot of meds. suffered two heart-a-tacks, had to get a toilet booster because he could not stand up or sit down to well, his joints were if he had arthritis and eventually after about two years or less he died at the age of 38. There is no know cure for Lupus or what exactly causes it, just try to stay healthy and if anything feels or looks wrong PLEASE! don't wait go to the doctor

[bmviola310]

i have 2 types of lupus, both systemic and discoid lupus, my flares vary but mostly triggered by the sun i pray one day we find a cure to lupus so that no one has to suffer day to day from painful side effects. i wish every one good health and speedy recovery. peace and one love =)

[CherokeeMeli]

I have suffered for years with so many of these symptoms but the doctors say that it must just be Fibromyalgia & Arthritis because my blood work doesn't show that I have Lupus. I am cold when others are normal. I can't tolrate heat. I have Interstitial Cystitis flairs, severe joint pain on both sides of my body & bone degeneration. I just had spinal surgery on my neck due to spinal degeneration. The doctors were all shocked that I am only 57 yrs old. My MRI of my spine is that of a 70 yr old.

[belladiana09]

steroidds are the worstt ...just awful but it keeps ya alive

[jfsmith95]

My Uncle who is Around 63 Has lupus

[myalr]

Lupus is an autoimmune disease that can affect various parts of the body, including the skin, joints, heart, lungs, blood, kidneys and brain. Normally the body's immune system makes proteins called antibodies that protect the body against viruses, bacteria and other foreign invaders.

[amenda191]

what is lupus? that your skin turns white? caus my nsound is not working

[dinkersmom]

I have Lupus and have worked in health care for 21 years. What works for you won't work for everyone else. I am able to be in the sun, except during solu-medrol therapy, but the majority can not. You telling people to not take their med's is as dangerous as me telling them to go sun bathing. It's crucial that patients work with a Dr that they trust and find a treatment that works for them, whether it is medication, raw foods or life modification.

[funnyrawfood]

This is sickening....I had lupus and nephritis for 10 years and am no longer sick. If you stop taking the drugs you will get better. You can heal from any autoimmune disease with a alkaline non-processed food diet, rest and exercise. There's no money to be made from people who are healthy, that's why they will continue to look for a "cure."

Vlad The Raw Comedian

[poosaypirate]

@funnyrawfood  not everybody can do that

[funnyrawfood]

@poosaypirate and not everybody can take meds for their entire life.

[poosaypirate]

@funnyrawfood THAT WOULD DEPEND ON THe INDIVIDUAL NEEDS OF THE Person. you dont have to be a pompous ass, some people MUST in oder to stay alive not to mention that not all people who have lupus have it because medications

[funnyrawfood]

@poosaypirate diet = disease

[poosaypirate]

@funnyrawfood POOR diet CAN LEAD to disease.

[funnyrawfood]

@poosaypirate WILL is the word.......are you a doctor? or somebody with an autoimmune disease?

[wordey123]

@poosaypirate haha, you dont believe diet can fix most people? Unless they're born with a genetic condition it can reverse the health it ruined.You think humans evolved on a standerd american diet? No way, otherwise we wouldnt make it and be dying from sad diseases like lupus and other auto immune conditions. Go paleo if you believe in your health. Google it.

[poosaypirate]

@wordey123 Wordey on the contrary, either you have accidentally posted your message to the wrong participant in the forum here or you have made a grave error in jugment with regards to my comments

that said. should be clear that there is no standard in a country of an excess of 300 million people-

nevertheless food is medicine.

Ive done, & continue to do that what is necessary for what appears to be my disease. -still no technical diagnosis from any DR yet but all the classic symptoms i test neg

[poosaypirate]

@wordey123 i avoid oxalic acid and nightshade vegetables and avoid other acidic foods. it took FOREVER for me to figure this out ( on my own thanks!=) and in fact my reaction(s) to all the obvious foods, as well as a very severe flare i had last year were key components , after that , i learned my mother, sister, and four other family members suffer of lupus, ( those are diagnosed, and there are other suspects without health insurance) two of these people died..

[wordey123]

@poosaypirate Ah, my apologies. Thats great you figured out triggers! What style diet dyou do or dyou only avoid those triggers?

[wordey123]

@funnyrawfood I agree too. I had colitis and fibromyalgia symptoms and all fixed by doing a paleolithic diet. Now I'm back doing brekadancing and loving life!

[dooners2u]

I have lupus and hope and pray everyday for a cure! We all need to get back to living a normal life...You hit all the points that are so important to one who is suffering from this aweful disease. I want my pain gone and my sunshine back. Please don't take my sunshine away! Need to bring back my light!

[Slovirgo]

Thank you, Thank you, thank you so very much for this video. This will really help to get the word out about Lupus. Once again, thank you. I pray that once day there will be a cure.

[fflochan]

thanks

[ToiTroutman]

Hi #UN#

I have lupus and I have a vlog/show called F.I.T.U.M.I. It would be great if you could take a look some time and leave a comment. I enjoyed your video.

[surreeal]

This is an awesome video. So well done. Good job Alex! What a great way to get the word out about the affects of this dreadful illness. I hope and pray that this furthers the cause and that one day we can find a cure.